Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 135

Cover image of 'Learning difficulties in children with brain tumours'

Learning difficulties in children with brain tumours (February 2018)

The Brain Tumour Charity

This fact sheet gives an overview of some of the learning difficulties your child may experience as the result of a brain tumour and also of the support and possible plans of action (strategies) available to help them in their learning. 

Cover image of 'Vision loss and brain tumours. What you need to know'

Vision loss and brain tumours. What you need to know (July 2018)

The Brain Tumour Charity

This booklet summarises some of the key types of vision problems that may occur as a result of brain tumours or their treatment, and how to adapt to them. 

Cover image of 'Steroids for adults with brain tumours'

Steroids for adults with brain tumours (May 2018)

The Brain Tumour Charity

This factsheet describes what steroids are, how, when and why they are used, and the possible side effects. It also answers some questions that you may have about steroids.

Cover image of 'Radiotherapy for adults with brain tumours'

Radiotherapy for adults with brain tumours (May 2018)

The Brain Tumour Charity

This factsheet describes how radiotherapy treatment is planned, the radiotherapy mask, and the treatment procedure. It also answers some questions about radiotherapy, such as: who will my medical team consist of; will treatment be painful; how long does it take; what are the typical side effects; will I need to give up work; where can I find a wig or headwear.

Cover image of 'Helping your child to eat (children with brain tumours)'

Helping your child to eat (children with brain tumours) (February 2018)

The Brain Tumour Charity

Practical suggestions for parents/carers to helping their child to eat if they have had treatment for a brain tumour.

Cover image of 'Understanding kidney cancer'

Understanding kidney cancer (August 2018)

Macmillan Cancer Support

This booklet is about a type of kidney cancer called renal cell cancer. It is for anyone who has been diagnosed with kidney cancer, or is having tests for it. There is also information for carers, family members and friends. The booklet explains how renal cell cancer is diagnosed and treated. The booklet also talks about your feelings when you are diagnosed with cancer. You can find practical advice on dealing with work and finances towards the end of the booklet.

Cover image of 'Financial support and brain tumours'

Financial support and brain tumours (November 2018)

The Brain Tumour Charity

This factsheet gives a brief outline of the financial support that may be available to you if you are living with, or caring for someone who has, a brain tumour. 

Cover image of 'Questions to ask'

Questions to ask (May 2018)

The Brain Tumour Charity

A list of questions for people to ask their healthcare team at different stages of diagnosis and treatment.

Cover image of 'Watch and wait (active monitoring)'

Watch and wait (active monitoring) (May 2018)

The Brain Tumour Charity

This factsheet explains when and why watch and wait is sometimes more appropriate than immediate intervention. It also looks at how to deal with the emotional impact of receiving this type of treatment. 

Cover image of 'Neurosurgery for children with brain tumours'

Neurosurgery for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet gives an overview of surgery for brain tumours in children and helps to answer some questions you may have about brain surgery. 

Cover image of 'Glioblastoma'

Glioblastoma (June 2018)

The Brain Tumour Charity

This factsheet gives an overview of glioblastomas in adults and answers some of the questions you may have about this type of tumour. 

Cover image of 'Astrocytoma'

Astrocytoma (October 2018)

The Brain Tumour Charity

This fact sheet gives an overview of astrocytomas in adults and how they are treated and answers some of the questions you may have about this type of tumour. It doesn’t deal in detail with grade 4 astrocytoma (glioblastoma/GBM), which is explained in a separate fact sheet. 

Cover image of 'Childhood brain tumours'

Childhood brain tumours (February 2018)

The Brain Tumour Charity

This factsheet briefly describes brain tumours in children, the risk factors, diagnosis, treatment options and long-term side effects. It also describes the different types of brain tumours in children.

Cover image of 'Seizures (epilepsy) and brain tumours - introduction'

Seizures (epilepsy) and brain tumours - introduction (June 2018)

The Brain Tumour Charity

This introduction to seizures addresses the following concerns: what is a seizure; what is epilepsy; what is the risk of having seizures; and what happens during a seizure. 

Cover image of 'Clomipramine and brain tumours'

Clomipramine and brain tumours (August 2018)

The Brain Tumour Charity

Clomipramine has been used to treat depression since the 1960s. Recently there has been debate about using it to treat brain tumours. There is some anecdotal evidence but there have been no clinical trials. This factsheet outlines some of the research and theories about Clomipramine.

Cover image of 'Steroids for children with brain tumours'

Steroids for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet describes when and why children might be given steroids, how they are taken and the possible side-effects, and answers some commonly asked questions that you may have about steroids in children.

Cover image of 'Chemotherapy for children with brain tumours'

Chemotherapy for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet has information about chemotherapy to treat brain tumours in children. It covers how chemotherapy works, why and how it is given, and preventing infection of your child’s central line and has answers to some common questions.

Cover image of 'Seizures (epilepsy) and brain tumours - treatment'

Seizures (epilepsy) and brain tumours - treatment (June 2018)

The Brain Tumour Charity

This factsheet describes the options that are available for the treatment of seizures: anti-epileptic drugs; surgery; and vagus nerve stimulation. It also discusses the use of complementary therapies (ketogenic diet and cannabis).

Cover image of 'Radiotherapy for children with brain tumours'

Radiotherapy for children with brain tumours (February 2018)

The Brain Tumour Charity

This factsheet has information on radiotherapy in children, the treatment procedure and some of its possible side-effects. 

Cover image of 'My daddy is my superhero'

My daddy is my superhero (2018)

North Staffordshire Press

My Daddy Is My Superhero was inspired by Michaelagh's own experience of explaining her husband's brain tumour illness to her eldest son, and is intended to help begin conversations surrounding serious illness and death with young children. At its core, My Daddy Is My Superhero is about the loving relationship between a little boy and his dad. It is a story about love, fun, beauty, loss, sadness, memories and celebration. (Publisher)

Cover image of 'Gone in the morning. A writer’s journey of bereavement'

Gone in the morning. A writer’s journey of bereavement (2018)

Jessica Kingsley Publishers

An exploration of death, bereavement and grief. This first hand account gives Geoff Mead's experience of responding to the loss of his wife from a brain tumour. Giving insight into the grieving process and how Geoff learned to manage his grief, this book will offer hope to anyone experiencing something similar. After coming to the realisation that mourning is a conscious process, to which we can apply creativity, passion and intelligence, Geoff explored the unknown territory of bereavement through his writing. The book shows how artful practice, such as writing, can help to make sense of our experience and navigate the wreckage of grief. (Publishers)

Cover image of 'Brain tumours and epilepsy'

Brain tumours and epilepsy (2017)

Brain Tumour Action

This booklet explains what epilepsy is, the types of seizures, how it is diagnosed,and treatment options. it also has tips on people can help themselves, what family and friends should do if someone has a seizure, and how seizures may affect daily life (driving, work, home life, sport). 

Cover image of 'The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people  affected by a brain tumour'

The little white book. Aberdeen, The Highlands and surrounding areas. A directory of resources to help people affected by a brain tumour (January 2017)

Brainstrust

A directory of support services and resources for people with a brain tumour in Aberdeen, The Highlands and surrounding areas.

Cover image of 'No stomach. A guide for patients by patients'

No stomach. A guide for patients by patients (February 2017)

GIST Support UK

Although this booklet has been written mainly for patients suffering from a Gastrointestinal Stromal Tumour (GIST), other patients who have had a total gastrectomy may also find it helpful. It describes how the gastrointestinal tract works, what happens if you have no stomach and the problems that may arise after surgery and later.

Cover image of 'GIST for beginners. A guide for patients by patients'

GIST for beginners. A guide for patients by patients (October 2017)

GIST Support UK

Booklet with information about GIST (gastrointestinal stromal tumour).

Cover image of 'My fatigue book. A resource to help you understand, manage and own fatigue'

My fatigue book. A resource to help you understand, manage and own fatigue (September 2017)

Brainstrust

This resource aims to enable patients and caregivers living with a brain tumour to understand what is meant by fatigue and to self-manage fatigue relating to brain tumours so that they: learn a new pace of living; take steps to mitigate the impact of fatigue; and make the most of what they can do, rather than what they can’t.

Cover image of 'My child has a brain or spinal tumour. A guide for parents and carers'

My child has a brain or spinal tumour. A guide for parents and carers (January 2017)

Children's Cancer and Leukaemia Group

This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.

Cover image of 'My employee has, or is caring for someone with, a brain tumour. How can I help?'

My employee has, or is caring for someone with, a brain tumour. How can I help? (September 2017)

The Brain Tumour Charity

Guidance for empoylers on how best to support an employee who has a brain tumour, or who is caring for someone with a brain tumour.

Cover image of 'Employment charter: for people with a brain tumour'

Employment charter: for people with a brain tumour (September 2017)

The Brain Tumour Charity

This charter will guide you on the rights that people have when at work or seeking work, whether you are an employee or an employer. It can also be used by people who are caring for someone with a brain tumour. 

Cover image of 'Brain tumours'

Brain tumours (June 2017)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a brain tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Telling your employer'

Telling your employer (September 2017)

The Brain Tumour Charity

This factsheet aims to help people look at the pros and cons of telling their employer about their, or their loved one's, diagnosis, and how to go about it. 

Cover image of 'Mary has a brain tumour [Welsh]'

Mary has a brain tumour [Welsh] (March 2017)

CLIC Sargent

Mary is five years old when she is diagnosed with a brain tumour. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Mary from first feeling ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Possible effects of brain tumours and their treatment for adults'

Possible effects of brain tumours and their treatment for adults (September 2017)

The Brain Tumour Charity

A poster to help people with a brain tumour make their employer or colleagues aware of the possible effects of brain tumours and their treatment.

Cover image of 'Employment adjustments'

Employment adjustments (September 2017)

The Brain Tumour Charity

This sheet gives examples of 'reasonable adjustments' that can be made in the workplace according to the side effects that you are experiencing. You can use these suggestions to start a conversation with your employer about things that can help you in the workplace.

Cover image of 'Mary has a brain tumour'

Mary has a brain tumour (September 2017)

CLIC Sargent

Mary is five years old when she is diagnosed with a brain tumour. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Mary from first feeling ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Lucy has a tumour'

Lucy has a tumour (September 2017)

CLIC Sargent

Lucy is five years old when she is diagnosed with cancer. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Lucy from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'Understanding lung cancer'

Understanding lung cancer (December 2017)

Macmillan Cancer Support

This booklet has detailed information on the causes of lung cancer, symptoms, diagnosis, and treatment options. Includes information on clinical trials and issues such as feelings, talking to children, and financial support. 

Cover image of 'Lucy has a tumour [Welsh]'

Lucy has a tumour [Welsh] (March 2017)

CLIC Sargent

Lucy is five years old when she is diagnosed with cancer. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Lucy from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'Brain tumour. A guide for patients and carers'

Brain tumour. A guide for patients and carers (March 2017)

Brain and Spine Foundation

This booklet provides information on brain tumours in adults and focuses on primary brain tumours. It describes brain tumours and provides information on common symptoms, tests and investigations and possible treatments. It also provides information on rehabilitation and returning to everyday activities.

Cover image of 'Spinal tumours. A guide for patients and carers'

Spinal tumours. A guide for patients and carers (May 2017)

Brain and Spine Foundation

This booklet provides information on spinal tumours in adults. It provides information on common symptoms, tests and investigations, and possible treatments. It also provides information on recovery and returning to everyday activities.  

Cover image of 'About brain tumours'

About brain tumours (September 2017)

The Brain Tumour Charity

This booklet explains what a brain tumour is, how they are graded, and the different types. It also considers possible causes and risk factors, and treatment options.

Cover image of 'The little white book. South East Scotland. A directory of resources to help people affected by a brain tumour'

The little white book. South East Scotland. A directory of resources to help people affected by a brain tumour (April 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in South East Scotland.

Cover image of 'The little white book. Glasgow and surrounding areas. A directory of resources to help people
affected by a brain tumour'

The little white book. Glasgow and surrounding areas. A directory of resources to help people affected by a brain tumour (May 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Glasgow and the surrounding areas.

Cover image of 'The little white book. Tees Valley and surrounding areas. A directory of resources to help people affected by a brain tumour'

The little white book. Tees Valley and surrounding areas. A directory of resources to help people affected by a brain tumour (November 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in the Tees Valley and surrounding areas 

Cover image of 'The little white book. Greater London. A directory of resources to help people affected by a brain tumour'

The little white book. Greater London. A directory of resources to help people affected by a brain tumour (May 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Greater London.

Cover image of 'My radiotherapy book. Information to help you understand the treatment'

My radiotherapy book. Information to help you understand the treatment (January 2016)

Brainstrust

This leaflet describes the range of radiotherapy treatments currently available to treat brain tumours. It aims to help people understand what is the most appropriate and best treatment for their type of brain tumour.

Cover image of 'The little white book. North West Children’s. A directory of resources to help children affected by a brain tumour'

The little white book. North West Children’s. A directory of resources to help children affected by a brain tumour (October 2016)

Brainstrust

A directory of support services and resources for children with a brain tumour in the North West of England.

Cover image of 'The little white book. Mersyside. A directory of resources to help people affected by a brain tumour'

The little white book. Mersyside. A directory of resources to help people affected by a brain tumour (April 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Merseyside.

Cover image of 'The little white book. Greater Manchester. A directory of resources to help people  affected by a brain tumour'

The little white book. Greater Manchester. A directory of resources to help people affected by a brain tumour (October 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Greater Manchester.

Cover image of 'Travelling and brain tumours'

Travelling and brain tumours (April 2016)

The Brain Tumour Charity

This factsheet aims to give an overview of some of the options and help available for people who have or have had a brain tumour. It covers travelling locally and for medical appointments, travelling abroad and travel insurance companies. Includes details of resources about travelling and related issues that may be helpful.

Sorry, no publications found.
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