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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 135

Cover image of 'How to deal with money worries'

How to deal with money worries (July 2020)

Brainstrust

This factsheet provides a framework to hlep people deal with money worries. 

Cover image of 'How to be assertive to get the support that you need'

How to be assertive to get the support that you need (March 2020)

Brainstrust

This factsheet will help you use assertiveness to get the support that you need.

Cover image of 'How to build a supportive team around you'

How to build a supportive team around you (March 2020)

Brainstrust

This factsheet will help you build a supportive team so you can cope better when a loved one has a brain tumour. 

Cover image of 'How to live with uncertainty'

How to live with uncertainty (March 2020)

Brainstrust

When you have been diagnosed with a brain tumour, you feel that your life is less secure, more fragile than it once was. You find yourself living in a space where nothing seems certain anymore. It’s a scary place to be, and it can leave you feeling out of control and overwhelmed. This factsheet will help you get comfortable with living with uncertainty.

Cover image of 'How to get a carer’s assessment'

How to get a carer’s assessment (March 2020)

Brainstrust

This factsheet will explain what extra support may be available to you as a caregiver in the form of a carer’s assessment. It will go through what the assessment is and how to apply for it, and it will also signpost some useful organisations that may be able to support you.

Cover image of 'How to have a voice as caregiver'

How to have a voice as caregiver (March 2020)

Brainstrust

Being a caregiver is a daunting role – you need compassion, fortitude and fierce resilience. And more often than not, you are living these values on behalf of your close person, but never for yourself. This factsheet will help you find your voice as a caregiver of someone with a brain tumour.

Cover image of 'Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma'

Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma (June 2020)

Macmillan Cancer Support

This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'Understanding secondary cancer in the liver'

Understanding secondary cancer in the liver (June 2020)

Macmillan Cancer Support

This booklet is about secondary cancer in the liver. This is cancer that has spread to the liver from somewhere else in the body. It is for anyone who has been diagnosed with secondary cancer in the liver. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of secondary cancer in the liver. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'Driving'

Driving (June 2019)

Brainstrust

This factsheet provides information on the law around driving with a medical condition, the process when involving the DVLA and your medical team, and organisations that may be able to help.

Cover image of 'How do I know if information on the web is reliable?'

How do I know if information on the web is reliable? (July 2019)

Brainstrust

Access to the internet at the tips of our fingers has made getting hold of information quicker and easier than ever, but how can you know what sources to trust? Misinformation spreads fast online, and is sometimes shared by people with a large following. This factsheet will help you to understand what reliable websites look like, establish fact from fiction online and stop feeling overwhelmed by the volume of information available.

Cover image of 'How to deal with the overwhelm'

How to deal with the overwhelm (January 2019)

Brainstrust

If you are a patient living with a brain tumour, the change in your situation may be difficult to deal with and there may also be changes in your ability to function as you used to. This factsheet has tips to help you cope.

Cover image of 'Immunotherapy: DCVax® - information for patients and carers'

Immunotherapy: DCVax® - information for patients and carers (January 2019)

Brainstrust

Brain tumour immunotherapy, particularly DCVax®, is gaining an increasing amount of media coverage and interest. This Know How explains what immunotherapy is, what DCVax® is, and the current state of research and evidence to date. 

Cover image of 'Finances and benefits'

Finances and benefits (November 2019)

Brainstrust

No longer being able to work, new and expensive mobility requirements, having to travel long distances to get to hospital – whatever the reasons for you, having a brain tumour can be a huge financial strain. This factsheet finances and benefits that could support you and your family.

Cover image of 'Cannabinoids – information for patients and carers'

Cannabinoids – information for patients and carers (January 2019)

Brainstrust

This factsheet explains the difference between Cannabidiol (CBD) and cannabis oil, the evidence to date, and the current legal status.

Cover image of 'Looking after yourself. A guide for partners and family members'

Looking after yourself. A guide for partners and family members (2019)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Guidance for those caring for, or close to, someone living with an endocrine tumour.

Cover image of 'How to handle conflict'

How to handle conflict (January 2019)

Brainstrust

Living with a brain tumour can cause stress and this can cause emotions to run high. This factsheet has tips to help solve conflict.

Cover image of 'How to get a second opinion'

How to get a second opinion (January 2019)

Brainstrust

This factsheet describes the pros and cons of a second opinion, clarifies the options, and explains how to seek another opinion.

Cover image of 'Returning to work'

Returning to work (January 2019)

Brainstrust

Guidance on returning to work after treatment, or when your caring role has ended.

Cover image of 'Going home after brain tumour surgery. A discharge guide for people with a brain tumour'

Going home after brain tumour surgery. A discharge guide for people with a brain tumour (July 2019)

The Brain Tumour Charity

Going home after brain tumour surgery can feel quite overwhelming. We know there can be a lot of information to process and you may find that you have more questions, or need additional information or support. This leaflet provides information and answers to questions often asked by people after brain tumour surgery.

Cover image of 'Brain tumour biomarkers. What you need to know'

Brain tumour biomarkers. What you need to know (July 2019)

The Brain Tumour Charity

This leaflet explains what biomarkers are and how they may be used in the management of brain tumours.

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Personality changes'

Personality changes (September 2019)

The Brain Tumour Charity

This leaflet describes personality changes that may occur in brain tumour patients and the reasons behind these changes. It has advice on coping with personality changes and sources of support.

Cover image of 'Ependymoma (in children). What you need to know'

Ependymoma (in children). What you need to know (July 2019)

The Brain Tumour Charity

This leaflet gives an overview of ependymoma in children and answers questions you may have about this type of tumour.

Cover image of 'Speech and language difficulties'

Speech and language difficulties (September 2019)

The Brain Tumour Charity

This leaflet explains how brain tumours can affect communication. It describes the communication difficulties that someone with a brain tumour may experience, and the emotional difficulties that this may cause for them and their family and friends.

Cover image of 'Thinking difficulties (cognitive impairment)'

Thinking difficulties (cognitive impairment) (September 2019)

The Brain Tumour Charity

Many people diagnosed with a brain tumour will have some form of cognitive impairment (difficulties with their thinking abilities), due to the presence of the tumour and the pressure it puts on the brain. This leaflet describes the types of impairment that might develop and how they are affected by the location of the tumour, treatment and drugs, and by emotional and psychological factors.

Cover image of 'Coping with thinking difficulties (cognitive impairment)'

Coping with thinking difficulties (cognitive impairment) (September 2019)

The Brain Tumour Charity

This leaflet explains what is meant by cognitive impairment and has suggestions to help people cope.

Cover image of 'Proton beam therapy and brain tumours'

Proton beam therapy and brain tumours (October 2019)

The Brain Tumour Charity

Proton Beam Therapy (PBT) is a highly specialised form of radiotherapy that is more targeted than conventional radiotherapy. This means it causes less damage to the healthy tissue of the brain and so causes fewer side-effects. However, PBT is only suitable for a few types of brain tumour and, in most cases, does not lead to better outcomes than conventional radiotherapy. This factsheet describes PBT and how does it compare to conventional radiotherapy, who can have it, what it involves and side-effects, and answers some commonly asked questions.

Cover image of 'Coping with speech and language difficulties'

Coping with speech and language difficulties (August 2019)

The Brain Tumour Charity

This leaflet has tips for dealing with speech and language difficulties from people affected by a brain tumour and from healthcare professionals specialised in treating brain tumours. 

Cover image of 'Coping with depression and low mood'

Coping with depression and low mood (October 2019)

The Brain Tumour Charity

This leaflet has suggestions to help you cope with low mood and depression.

Cover image of 'Being a carer'

Being a carer (July 2019)

The Brain Tumour Charity

This leaflet has suggestions to help carers manage their role, such as having a break, and getting practical and emotional support.

Cover image of 'Diet and nutrition'

Diet and nutrition (December 2019)

The Brain Tumour Charity

This leaflet is for anyone receiving treatment or who has recently completed their treatment.There’s no specific food or type of diet that can control or treat brain tumours, but controlling your diet may help to improve your quality of life and manage the side-effects of treatment, such as dry mouth, nausea, poor appetite, and weight loss.

Cover image of 'Understanding cancer of unknown primary'

Understanding cancer of unknown primary (June 2019)

Macmillan Cancer Support

Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.

Cover image of 'Depression and low mood'

Depression and low mood (October 2019)

The Brain Tumour Charity

This leaflet explains what depression is and describes the signs and symptoms and possible causes.

Cover image of 'Driving and brain tumours'

Driving and brain tumours (July 2019)

The Brain Tumour Charity

This leaflet outlines some key facts in relation to driving for people who have a brain tumour.

Cover image of 'Returning to school. A teacher's guide for pupils with a brain tumour, during and after treatment'

Returning to school. A teacher's guide for pupils with a brain tumour, during and after treatment (2019)

The Royal Marsden NHS Foundation Trust|Cerebra

This publication aims to guide teachers and schools faced with the task of supporting a pupil with a brain or spinal tumour who may be absent for some time, or who may have sporadic attendance with a very serious illness and potentially devastating long term effects. It explains what the pupil may be going through both medically and psychologically. It offers practical strategies for ensuring supportive re-integration back to school. Suggestions are given for how teachers, assistants and SENCOs can provide sustained and targeted support for pupils who face extended treatments, devastating long term side effects or an uncertain future.

Cover image of 'Supporting your pupil after a cancer diagnosis. An information guide for teachers helping children and young
people returning to school after a diagnosis of cancer'

Supporting your pupil after a cancer diagnosis. An information guide for teachers helping children and young people returning to school after a diagnosis of cancer (December 2019)

Children's Cancer and Leukaemia Group

Getting back to school is vital for children with cancer. School helps them to feel ‘normal’ and reduces the isolation and loneliness which many children with cancer face. Teachers have a really important role to play in encouraging the child’s integration back into a school routine. But cancer is a scary word for many and it is completely normal for teachers and others working at the school to feel upset – not just for the awful situation facing the pupil and their family, but also for the impact on the rest of the class and school community. This guide aims to lessen some of the worries you may have by giving simple practical information and advice on a variety of issues faced by the child and their family, and some ideas on how to help them within a school setting.

Cover image of 'Surgery for operable pancreatic cancer'

Surgery for operable pancreatic cancer (March 2018)

Pancreatic Cancer Action

This booklet for patients and carers covers surgical procedures for those who are able to have their tumour removed. It has information on the different types of surgery available and practical information about being in hospital and returning home. It also includes a section about second opinions, clinical trials and questions to ask your doctor, and a glossary to explain some of the terms used.

Cover image of 'Who's who in your clinical team?'

Who's who in your clinical team? (July 2018)

Brainstrust

A who's who of healthcare professionals involved in the care of someone with a brain tumour: GP; consultant neurosurgeon; consultant neurologist; consultant radiologist; neuro-oncologist; clinical psychologist; neuro-ophthalmologist; community neurological rehabilitation nurse; neuro-oncology clinical nurse specialist; epilepsy nurse; palliative care nurse; specialist allied health professional; disability co-ordinator (higher education). It describes the role of each professional and how they can help.

Cover image of 'Patient guide. Diagnosis'

Patient guide. Diagnosis (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Follow-up'

Patient guide. Follow-up (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Introduction'

Patient guide. Introduction (July 2018)

Brainstrust

Introduction to the leaflets in the Patient Guide.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Palliative care'

Patient guide. Palliative care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. End of life care'

Patient guide. End of life care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Treatment'

Patient guide. Treatment (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Survivorship'

Patient guide. Survivorship (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'What is a brain tumour?'

What is a brain tumour? (August 2018)

The Brain Tumour Charity

This factsheet explains what a brain tumour is, how they are graded, the different types of brain tumour, and the possible causes and answers some common questions you may have about brain tumours.

Cover image of 'Rare ovarian tumours'

Rare ovarian tumours (May 2018)

Ovacome

This factsheet describes some of the rarer ovarian cancers and how they may be treated, namely: germ cell tumours; sex-cord stromal tumours (granulosa cell tumour and Sertoli-Leydig cell tumours); small-cell carcinoma of the ovary; Brenner tumours; and Krukenberg tumours.

Cover image of 'Symptoms of a brain tumour in adults'

Symptoms of a brain tumour in adults (May 2018)

The Brain Tumour Charity

In this factsheet: What are the symptoms of a brain tumour?; Symptoms due to raised pressure within the skull; Symptoms due to location within the brain; What should I do if I think I might have a brain tumour?

Cover image of 'Head Smart. Early diagnosis of brain tumours'

Head Smart. Early diagnosis of brain tumours (2018)

The Brain Tumour Charity

Leaflet with information about the common symptoms of brain tumours in children and young people and what to do if a child is experiencing any of the symptoms. It also has information about the Headsmart campaign and details of further support.

Sorry, no publications found.
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