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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Brainstrust
Introduction to the leaflets in the Patient Guide.
Brainstrust
One in a series of eight leaflets that form the Brain Tumour Patient Guide.
Brainstrust
One in a series of eight leaflets that form the Brain Tumour Patient Guide.
Brainstrust
One in a series of eight leaflets that form the Brain Tumour Patient Guide.
Brainstrust
One in a series of eight leaflets that form the Brain Tumour Patient Guide.
Brainstrust
One in a series of eight leaflets that form the Brain Tumour Patient Guide.
The Brain Tumour Charity
This factsheet explains what a brain tumour is, how they are graded, the different types of brain tumour, and the possible causes and answers some common questions you may have about brain tumours.
Ovacome
This factsheet describes some of the rarer ovarian cancers and how they may be treated, namely: germ cell tumours; sex-cord stromal tumours (granulosa cell tumour and Sertoli-Leydig cell tumours); small-cell carcinoma of the ovary; Brenner tumours; and Krukenberg tumours.
The Brain Tumour Charity
In this factsheet: What are the symptoms of a brain tumour?; Symptoms due to raised pressure within the skull; Symptoms due to location within the brain; What should I do if I think I might have a brain tumour?
The Brain Tumour Charity
Leaflet with information about the common symptoms of brain tumours in children and young people and what to do if a child is experiencing any of the symptoms. It also has information about the Headsmart campaign and details of further support.
The Brain Tumour Charity
This factsheet outlines the roles of some of the health care professionals who may be part of a child’s multidisciplinary team.
The Brain Tumour Charity
This factsheet describes CT scans and MRI scans - the two scans most commonly used in the diagnosis and monitoring of brain tumours - and answers common questions you may have.
The Brain Tumour Charity
Antineoplaston therapy is an alternative treatment available in America. This factsheet gives an overview of antineoplaston therapy and some of the literature behind the theories.
The Brain Tumour Charity
If you have a brain tumour or have received treatment for a brain tumour, you may experience memory difficulties; these could be because of the tumour itself or may be a result of surgery or treatment such as chemotherapy or radiotherapy. This factsheet describes what memory is, the types of memory, how a brain tumour may affect memory and answers some common questions about memory problems.
The Brain Tumour Charity
This factsheet describes chemotherapy for brain tumours in adults. It describes what chemotherapy is, why it is given, how it is given, possible side-effects, and answers some common questions you may have about chemotherapy.
The Brain Tumour Charity
Information about CT and MRI scans for the parents/carers of a child with a brain tumour, including scan procedure, and how to prepare your child for a scan. It also has answers to some common questions you may have about CT or MRI scans.
The Brain Tumour Charity
This factsheet gives an overview of neurosurgery for brain tumours and gives an idea of the processes and procedures you may experience.
The Brain Tumour Charity
This factsheet addresses the impact of living with seizures, including the emotional aspects, driving, identifying triggers, and safety and first aid.
The Brain Tumour Charity
This factsheet describes what a clinical trial is, the four phases in developing a new treatment, and the benefits and risks of taking part.
Macmillan Cancer Support
This booklet explains what testicular cancer is, the symptoms, diagnosis, treatment, and surgery. It also has sections on sexuality and fertility (including sperm storage), emotions, self-help and support. Includes details of useful organisations.
The Brain Tumour Charity
This fact sheet gives an overview of some of the learning difficulties your child may experience as the result of a brain tumour and also of the support and possible plans of action (strategies) available to help them in their learning.
The Brain Tumour Charity
This booklet summarises some of the key types of vision problems that may occur as a result of brain tumours or their treatment, and how to adapt to them.
The Brain Tumour Charity
This factsheet describes what steroids are, how, when and why they are used, and the possible side effects. It also answers some questions that you may have about steroids.
The Brain Tumour Charity
This factsheet describes how radiotherapy treatment is planned, the radiotherapy mask, and the treatment procedure. It also answers some questions about radiotherapy, such as: who will my medical team consist of; will treatment be painful; how long does it take; what are the typical side effects; will I need to give up work; where can I find a wig or headwear.
The Brain Tumour Charity
Practical suggestions for parents/carers to helping their child to eat if they have had treatment for a brain tumour.
Macmillan Cancer Support
This booklet is about a type of kidney cancer called renal cell cancer. It is for anyone who has been diagnosed with kidney cancer, or is having tests for it. There is also information for carers, family members and friends. The booklet explains how renal cell cancer is diagnosed and treated. The booklet also talks about your feelings when you are diagnosed with cancer. You can find practical advice on dealing with work and finances towards the end of the booklet.
The Brain Tumour Charity
This factsheet gives a brief outline of the financial support that may be available to you if you are living with, or caring for someone who has, a brain tumour.
The Brain Tumour Charity
A list of questions for people to ask their healthcare team at different stages of diagnosis and treatment.
The Brain Tumour Charity
This factsheet explains when and why watch and wait is sometimes more appropriate than immediate intervention. It also looks at how to deal with the emotional impact of receiving this type of treatment.
The Brain Tumour Charity
This factsheet gives an overview of surgery for brain tumours in children and helps to answer some questions you may have about brain surgery.
The Brain Tumour Charity
This factsheet gives an overview of glioblastomas in adults and answers some of the questions you may have about this type of tumour.
The Brain Tumour Charity
This fact sheet gives an overview of astrocytomas in adults and how they are treated and answers some of the questions you may have about this type of tumour. It doesn’t deal in detail with grade 4 astrocytoma (glioblastoma/GBM), which is explained in a separate fact sheet.
The Brain Tumour Charity
This factsheet briefly describes brain tumours in children, the risk factors, diagnosis, treatment options and long-term side effects. It also describes the different types of brain tumours in children.
The Brain Tumour Charity
This introduction to seizures addresses the following concerns: what is a seizure; what is epilepsy; what is the risk of having seizures; and what happens during a seizure.
The Brain Tumour Charity
Clomipramine has been used to treat depression since the 1960s. Recently there has been debate about using it to treat brain tumours. There is some anecdotal evidence but there have been no clinical trials. This factsheet outlines some of the research and theories about Clomipramine.
The Brain Tumour Charity
This factsheet describes when and why children might be given steroids, how they are taken and the possible side-effects, and answers some commonly asked questions that you may have about steroids in children.
The Brain Tumour Charity
This factsheet has information about chemotherapy to treat brain tumours in children. It covers how chemotherapy works, why and how it is given, and preventing infection of your child’s central line and has answers to some common questions.
The Brain Tumour Charity
This factsheet describes the options that are available for the treatment of seizures: anti-epileptic drugs; surgery; and vagus nerve stimulation. It also discusses the use of complementary therapies (ketogenic diet and cannabis).
The Brain Tumour Charity
This factsheet has information on radiotherapy in children, the treatment procedure and some of its possible side-effects.
North Staffordshire Press
My Daddy Is My Superhero was inspired by Michaelagh's own experience of explaining her husband's brain tumour illness to her eldest son, and is intended to help begin conversations surrounding serious illness and death with young children. At its core, My Daddy Is My Superhero is about the loving relationship between a little boy and his dad. It is a story about love, fun, beauty, loss, sadness, memories and celebration. (Publisher)
Jessica Kingsley Publishers
An exploration of death, bereavement and grief. This first hand account gives Geoff Mead's experience of responding to the loss of his wife from a brain tumour. Giving insight into the grieving process and how Geoff learned to manage his grief, this book will offer hope to anyone experiencing something similar. After coming to the realisation that mourning is a conscious process, to which we can apply creativity, passion and intelligence, Geoff explored the unknown territory of bereavement through his writing. The book shows how artful practice, such as writing, can help to make sense of our experience and navigate the wreckage of grief. (Publishers)
Brain Tumour Action
This booklet explains what epilepsy is, the types of seizures, how it is diagnosed,and treatment options. it also has tips on people can help themselves, what family and friends should do if someone has a seizure, and how seizures may affect daily life (driving, work, home life, sport).
Brainstrust
A directory of support services and resources for people with a brain tumour in Aberdeen, The Highlands and surrounding areas.
GIST Support UK
Although this booklet has been written mainly for patients suffering from a Gastrointestinal Stromal Tumour (GIST), other patients who have had a total gastrectomy may also find it helpful. It describes how the gastrointestinal tract works, what happens if you have no stomach and the problems that may arise after surgery and later.
GIST Support UK
Booklet with information about GIST (gastrointestinal stromal tumour).
Brainstrust
This resource aims to enable patients and caregivers living with a brain tumour to understand what is meant by fatigue and to self-manage fatigue relating to brain tumours so that they: learn a new pace of living; take steps to mitigate the impact of fatigue; and make the most of what they can do, rather than what they can’t.
Children's Cancer and Leukaemia Group
This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.
The Brain Tumour Charity
Guidance for empoylers on how best to support an employee who has a brain tumour, or who is caring for someone with a brain tumour.
The Brain Tumour Charity
This charter will guide you on the rights that people have when at work or seeking work, whether you are an employee or an employer. It can also be used by people who are caring for someone with a brain tumour.
Children's Cancer and Leukaemia Group
Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a brain tumour is, and describes the signs and symptoms, tests and treatment options.
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