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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 135

Cover image of 'Germ cell tumours'

Germ cell tumours (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a germ cell tumour is and describes the signs, symptoms, tests and treatment options.

Cover image of 'Patient guide to brain tumour treatment and services'

Patient guide to brain tumour treatment and services (2016)

The Brain Tumour Charity

Finding out that you have a brain tumour is a frightening and overwhelming experience for anyone. You may feel as though your whole world has been turned upside down. This booklet aims to guide you through the system, answer your questions, and outlines some basic aspects of care that everyone should expect when they’re diagnosed with a brain tumour. 

Cover image of 'The butterfly within. A triathlete's race against a brain tumour'

The butterfly within. A triathlete's race against a brain tumour (2016)

Book Guild Publishing

"The butterfly within" follows Special Educational Needs PE teacher and international triathlete Rachel Bown through a year which changes her life forever. It begins on the day she is diagnosed with a brain tumour and finishes when she proudly returns to racing for Team GB. The reader is taken on a roller coaster ride of emotions. We witness hope exploring new depths and determination reaching new heights. She writes about the characters she meets along the way and how they have helped her to become the person she is today. Throughout her story, Rachel recognises the love of those closest to her and understands fully how lucky she is to have their unwavering support. Her focus is always on embracing the life she has been given and defying the so-called insurmountable. Rachel's humorous outlook will have the reader laughing with her wit and honesty; and perhaps shedding a few tears at the low points of her story. Fundamentally, she wants to show that people are good and kind and that if you have faith, there is always hope. A truly inspirational story as Rachel fights her tumour with everything she's got! (Publisher)

Cover image of 'Living with Timmy'

Living with Timmy (2016)

Self-published using CreateSpace Independent Publishing Platform

The writer’s personal story, who on the threshold of retirement, is diagnosed with a rare brain tumour. How will he cope as he uncovers more and more detail about the tumour? Does he opt for risky brain surgery or for a “watch and wait” strategy? And will his life ever be the same again? Follow his personal journey from diagnosis to the present day in this story. (Publisher)

Cover image of 'Pear shaped'

Pear shaped (2015)

Self-published using CreateSpace Independent Publishing Platform

Adam is a 44-year-old London lawyer and father of three. Completely out of the blue, and for no reason other than sheer dumb chance, he was diagnosed with a rare and aggressive brain tumour. Adam has endured radiotherapy and chemotherapy which were preceded by major brain surgery to remove the tumour - helpfully described by his surgeon as being the size and shape of a pear. Using the blackest of humour, this book charts Adam's journey from normality to having a disease regularly described as a “death sentence”. How will he cope with the treatment? How will his relationship with family and friends be affected? Most important of all, how will his hair come through this? Quite simply, it is the funniest book so far this year about brain cancer. Warning - this book is intended for mature audiences due to the subject matter and use of strong language. (Publisher)

Cover image of 'Cancer determination and me'

Cancer determination and me (2015)

Self-published using AuthorHouse

The author was once an all round sportsman keeping fit and healthy until one day he was diagnosed with a brain tumour. This book is about what he had and what he has been through and how he came out fighting and mainly how motivated he was. How he used to just try to get up and do things in this book are all his feelings of what he has been through. It is strange because his life and his perspective on life have changed dramatically since he was diagnosed with a brain tumour. He has missed a lot of school and study time because of the intense and lengthy treatment he received. He had to Re-learn basic skills, especially basic physical skills that most people take for granted, such as writing, walking and other every day activities. He believes that this experience has made him a more determined and motivated person. He had to work very hard to get his life back but he never complained or gives in. The words that got him through everything where 'No pain no gain' and he will look forward to using his inner strength as he go forward in life. He wants to pass this book around the world for people to understand that no matter how hard life is or how hard you fight to beat an illness. If you want something that bad YOU CAN DO IT... (Publisher)

Cover image of 'Brain tumours for dummys'

Brain tumours for dummys (2015)

Self-published using CreateSpace Independent Publishing Platform

Thinking nothing of an epileptic seizure, my carefree and single-thinking lifestyle continued as usual. That was until the results of the scan. A brain tumour stopped me in my tracks. Suddenly I had to rely on others. Moving out of my crime-ridden area was supposed to be a positive move towards recovery following the most mind bending experience of "awake" brain surgery. But Sarah and I couldn't have been more wrong. Our new home was in the flat beneath the neighbours from hell. Radiotherapy may have been easy if it hadn’t been for the scum determined to make our lives a misery, sending me to the brink of despair. With a lifestyle that featured an unhealthy amount of alcohol and facing up to my addictions and self-loathing, the early grave was looking more likely than the millionaire life I dreamed of. Getting back to work and experiencing new cultures helped to put me back on track. Rather than dwell on my own self-pity I drew inspiration from the world and people around me until finally I'd gotten hold of a normal life. A normal life that didn't last long. The townships in Africa, the petrol bombings, murders and car crashes that I'd witnessed in such a small space of time; none of them came close to the next chapter in my life. Finding out I would be a dad was one thing, but triplets? The path forward from there on in would prove to be chaotic but truly magical. The joys of a becoming a triplet father from that astonishing moment of the baby scan through to the events of the birth and beyond, coupled with the devastating deaths of good friends taught me the true meaning of life. But all that was the easy bit… (Publisher) 

Cover image of 'A brain tumour's travel tale'

A brain tumour's travel tale (2014)

Lulu.com

This is the diary of Claire Bullimore, who was diagnosed at the age of 25 with a life-threatening intraventricular meningioma, in other words a brain tumour the size of a grapefruit! It is not always easy for a person on the outside to see what is really happening to someone affected by a traumatic experience such as this. The book shows the true emotion of someone dealing with the hardships of a brain tumour, surgery, recovery and then the scars inside and out. Written as a series of diary entries you will feel like you are there on the journey. There is love, friendship and courage - you will cry, laugh, find things you didn't know before. This book can help families and friends or other outsiders to see what a brain tumour survivor really wants you to know. (Publisher)

Cover image of 'Until further notice, I am alive'

Until further notice, I am alive (2014)

Granta Books

In 2008, Tom Lubbock was diagnosed with a brain tumour, and told he had only one or two years to live. In this remarkable record of those years, lived out in three-month intervals between scans, he examines the question of how to live with death in sight. As the tumour progressed, Tom engaged intensely and imaginatively with work, art, friends, and his wife and their young son, while trying to remain focused on the fact of his impending death. His tumour was located in the area of the brain associated with language, and he describes losing control over the spoken and written word and the resources he drew on to keep communicating; a struggle which brought him ever closer to the mysteries of the origin of speech. As the Independent's chief art critic, he was renowned for the clarity and unconventionality of his writing, and the same fierce intelligence permeates this extraordinary memoir. This is a book written by a man wholly engaged with life even as it ends. (Publisher)

Cover image of 'The iceberg. A memoir'

The iceberg. A memoir (2014)

Atlantic Books

In 2008 the art critic Tom Lubbock was diagnosed with a brain tumour. The tumour was located in the area controlling speech and language, and would eventually rob him of the ability to speak. He died early in 2011. Marion Coutts was his wife. In short bursts of beautiful, textured prose, Coutts describes the eighteen months leading up to her partner's death. This book is an account of a family unit, man, woman, young child, under assault, and how the three of them fought to keep it intact. Written with extraordinary narrative force and power, The Iceberg is almost shocking in its rawness. It charts the deterioration of Tom's speech even as it records the developing language of his child. Fury, selfishness, grief, indignity and impotence are all examined and brought to light. Yet out of this comes a rare story about belonging, an 'adventure of being and dying'. This book is a celebration of each other, friends, family, art, work, love and language. (Publisher)

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