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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 135

Cover image of 'Telling your employer'

Telling your employer (September 2017)

The Brain Tumour Charity

This factsheet aims to help people look at the pros and cons of telling their employer about their, or their loved one's, diagnosis, and how to go about it. 

Cover image of 'Mary has a brain tumour [Welsh]'

Mary has a brain tumour [Welsh] (March 2017)

CLIC Sargent

Mary is five years old when she is diagnosed with a brain tumour. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Mary from first feeling ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Possible effects of brain tumours and their treatment for adults'

Possible effects of brain tumours and their treatment for adults (September 2017)

The Brain Tumour Charity

A poster to help people with a brain tumour make their employer or colleagues aware of the possible effects of brain tumours and their treatment.

Cover image of 'Employment adjustments'

Employment adjustments (September 2017)

The Brain Tumour Charity

This sheet gives examples of 'reasonable adjustments' that can be made in the workplace according to the side effects that you are experiencing. You can use these suggestions to start a conversation with your employer about things that can help you in the workplace.

Cover image of 'Mary has a brain tumour'

Mary has a brain tumour (September 2017)

CLIC Sargent

Mary is five years old when she is diagnosed with a brain tumour. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Mary from first feeling ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Lucy has a tumour'

Lucy has a tumour (September 2017)

CLIC Sargent

Lucy is five years old when she is diagnosed with cancer. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Lucy from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'Understanding lung cancer'

Understanding lung cancer (December 2017)

Macmillan Cancer Support

This booklet has detailed information on the causes of lung cancer, symptoms, diagnosis, and treatment options. Includes information on clinical trials and issues such as feelings, talking to children, and financial support. 

Cover image of 'Lucy has a tumour [Welsh]'

Lucy has a tumour [Welsh] (March 2017)

CLIC Sargent

Lucy is five years old when she is diagnosed with cancer. This illustrated, colour storybook describes what happens when she has to go to the hospital for tests and treatment. The story follows Lucy from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'Brain tumour. A guide for patients and carers'

Brain tumour. A guide for patients and carers (March 2017)

Brain and Spine Foundation

This booklet provides information on brain tumours in adults and focuses on primary brain tumours. It describes brain tumours and provides information on common symptoms, tests and investigations and possible treatments. It also provides information on rehabilitation and returning to everyday activities.

Cover image of 'Spinal tumours. A guide for patients and carers'

Spinal tumours. A guide for patients and carers (May 2017)

Brain and Spine Foundation

This booklet provides information on spinal tumours in adults. It provides information on common symptoms, tests and investigations, and possible treatments. It also provides information on recovery and returning to everyday activities.  

Cover image of 'About brain tumours'

About brain tumours (September 2017)

The Brain Tumour Charity

This booklet explains what a brain tumour is, how they are graded, and the different types. It also considers possible causes and risk factors, and treatment options.

Cover image of 'The little white book. South East Scotland. A directory of resources to help people affected by a brain tumour'

The little white book. South East Scotland. A directory of resources to help people affected by a brain tumour (April 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in South East Scotland.

Cover image of 'The little white book. Glasgow and surrounding areas. A directory of resources to help people
affected by a brain tumour'

The little white book. Glasgow and surrounding areas. A directory of resources to help people affected by a brain tumour (May 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Glasgow and the surrounding areas.

Cover image of 'The little white book. Tees Valley and surrounding areas. A directory of resources to help people affected by a brain tumour'

The little white book. Tees Valley and surrounding areas. A directory of resources to help people affected by a brain tumour (November 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in the Tees Valley and surrounding areas 

Cover image of 'The little white book. Greater London. A directory of resources to help people affected by a brain tumour'

The little white book. Greater London. A directory of resources to help people affected by a brain tumour (May 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Greater London.

Cover image of 'My radiotherapy book. Information to help you understand the treatment'

My radiotherapy book. Information to help you understand the treatment (January 2016)

Brainstrust

This leaflet describes the range of radiotherapy treatments currently available to treat brain tumours. It aims to help people understand what is the most appropriate and best treatment for their type of brain tumour.

Cover image of 'The little white book. North West Children’s. A directory of resources to help children affected by a brain tumour'

The little white book. North West Children’s. A directory of resources to help children affected by a brain tumour (October 2016)

Brainstrust

A directory of support services and resources for children with a brain tumour in the North West of England.

Cover image of 'The little white book. Mersyside. A directory of resources to help people affected by a brain tumour'

The little white book. Mersyside. A directory of resources to help people affected by a brain tumour (April 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Merseyside.

Cover image of 'The little white book. Greater Manchester. A directory of resources to help people  affected by a brain tumour'

The little white book. Greater Manchester. A directory of resources to help people affected by a brain tumour (October 2016)

Brainstrust

A directory of support services and resources for people with a brain tumour in Greater Manchester.

Cover image of 'Travelling and brain tumours'

Travelling and brain tumours (April 2016)

The Brain Tumour Charity

This factsheet aims to give an overview of some of the options and help available for people who have or have had a brain tumour. It covers travelling locally and for medical appointments, travelling abroad and travel insurance companies. Includes details of resources about travelling and related issues that may be helpful.

Cover image of 'Germ cell tumours'

Germ cell tumours (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what a germ cell tumour is and describes the signs, symptoms, tests and treatment options.

Cover image of 'Patient guide to brain tumour treatment and services'

Patient guide to brain tumour treatment and services (2016)

The Brain Tumour Charity

Finding out that you have a brain tumour is a frightening and overwhelming experience for anyone. You may feel as though your whole world has been turned upside down. This booklet aims to guide you through the system, answer your questions, and outlines some basic aspects of care that everyone should expect when they’re diagnosed with a brain tumour. 

Cover image of 'The butterfly within. A triathlete's race against a brain tumour'

The butterfly within. A triathlete's race against a brain tumour (2016)

Book Guild Publishing

"The butterfly within" follows Special Educational Needs PE teacher and international triathlete Rachel Bown through a year which changes her life forever. It begins on the day she is diagnosed with a brain tumour and finishes when she proudly returns to racing for Team GB. The reader is taken on a roller coaster ride of emotions. We witness hope exploring new depths and determination reaching new heights. She writes about the characters she meets along the way and how they have helped her to become the person she is today. Throughout her story, Rachel recognises the love of those closest to her and understands fully how lucky she is to have their unwavering support. Her focus is always on embracing the life she has been given and defying the so-called insurmountable. Rachel's humorous outlook will have the reader laughing with her wit and honesty; and perhaps shedding a few tears at the low points of her story. Fundamentally, she wants to show that people are good and kind and that if you have faith, there is always hope. A truly inspirational story as Rachel fights her tumour with everything she's got! (Publisher)

Cover image of 'Living with Timmy'

Living with Timmy (2016)

Self-published using CreateSpace Independent Publishing Platform

The writer’s personal story, who on the threshold of retirement, is diagnosed with a rare brain tumour. How will he cope as he uncovers more and more detail about the tumour? Does he opt for risky brain surgery or for a “watch and wait” strategy? And will his life ever be the same again? Follow his personal journey from diagnosis to the present day in this story. (Publisher)

Cover image of 'Pear shaped'

Pear shaped (2015)

Self-published using CreateSpace Independent Publishing Platform

Adam is a 44-year-old London lawyer and father of three. Completely out of the blue, and for no reason other than sheer dumb chance, he was diagnosed with a rare and aggressive brain tumour. Adam has endured radiotherapy and chemotherapy which were preceded by major brain surgery to remove the tumour - helpfully described by his surgeon as being the size and shape of a pear. Using the blackest of humour, this book charts Adam's journey from normality to having a disease regularly described as a “death sentence”. How will he cope with the treatment? How will his relationship with family and friends be affected? Most important of all, how will his hair come through this? Quite simply, it is the funniest book so far this year about brain cancer. Warning - this book is intended for mature audiences due to the subject matter and use of strong language. (Publisher)

Cover image of 'Cancer determination and me'

Cancer determination and me (2015)

Self-published using AuthorHouse

The author was once an all round sportsman keeping fit and healthy until one day he was diagnosed with a brain tumour. This book is about what he had and what he has been through and how he came out fighting and mainly how motivated he was. How he used to just try to get up and do things in this book are all his feelings of what he has been through. It is strange because his life and his perspective on life have changed dramatically since he was diagnosed with a brain tumour. He has missed a lot of school and study time because of the intense and lengthy treatment he received. He had to Re-learn basic skills, especially basic physical skills that most people take for granted, such as writing, walking and other every day activities. He believes that this experience has made him a more determined and motivated person. He had to work very hard to get his life back but he never complained or gives in. The words that got him through everything where 'No pain no gain' and he will look forward to using his inner strength as he go forward in life. He wants to pass this book around the world for people to understand that no matter how hard life is or how hard you fight to beat an illness. If you want something that bad YOU CAN DO IT... (Publisher)

Cover image of 'Brain tumours for dummys'

Brain tumours for dummys (2015)

Self-published using CreateSpace Independent Publishing Platform

Thinking nothing of an epileptic seizure, my carefree and single-thinking lifestyle continued as usual. That was until the results of the scan. A brain tumour stopped me in my tracks. Suddenly I had to rely on others. Moving out of my crime-ridden area was supposed to be a positive move towards recovery following the most mind bending experience of "awake" brain surgery. But Sarah and I couldn't have been more wrong. Our new home was in the flat beneath the neighbours from hell. Radiotherapy may have been easy if it hadn’t been for the scum determined to make our lives a misery, sending me to the brink of despair. With a lifestyle that featured an unhealthy amount of alcohol and facing up to my addictions and self-loathing, the early grave was looking more likely than the millionaire life I dreamed of. Getting back to work and experiencing new cultures helped to put me back on track. Rather than dwell on my own self-pity I drew inspiration from the world and people around me until finally I'd gotten hold of a normal life. A normal life that didn't last long. The townships in Africa, the petrol bombings, murders and car crashes that I'd witnessed in such a small space of time; none of them came close to the next chapter in my life. Finding out I would be a dad was one thing, but triplets? The path forward from there on in would prove to be chaotic but truly magical. The joys of a becoming a triplet father from that astonishing moment of the baby scan through to the events of the birth and beyond, coupled with the devastating deaths of good friends taught me the true meaning of life. But all that was the easy bit… (Publisher) 

Cover image of 'A brain tumour's travel tale'

A brain tumour's travel tale (2014)

Lulu.com

This is the diary of Claire Bullimore, who was diagnosed at the age of 25 with a life-threatening intraventricular meningioma, in other words a brain tumour the size of a grapefruit! It is not always easy for a person on the outside to see what is really happening to someone affected by a traumatic experience such as this. The book shows the true emotion of someone dealing with the hardships of a brain tumour, surgery, recovery and then the scars inside and out. Written as a series of diary entries you will feel like you are there on the journey. There is love, friendship and courage - you will cry, laugh, find things you didn't know before. This book can help families and friends or other outsiders to see what a brain tumour survivor really wants you to know. (Publisher)

Cover image of 'Until further notice, I am alive'

Until further notice, I am alive (2014)

Granta Books

In 2008, Tom Lubbock was diagnosed with a brain tumour, and told he had only one or two years to live. In this remarkable record of those years, lived out in three-month intervals between scans, he examines the question of how to live with death in sight. As the tumour progressed, Tom engaged intensely and imaginatively with work, art, friends, and his wife and their young son, while trying to remain focused on the fact of his impending death. His tumour was located in the area of the brain associated with language, and he describes losing control over the spoken and written word and the resources he drew on to keep communicating; a struggle which brought him ever closer to the mysteries of the origin of speech. As the Independent's chief art critic, he was renowned for the clarity and unconventionality of his writing, and the same fierce intelligence permeates this extraordinary memoir. This is a book written by a man wholly engaged with life even as it ends. (Publisher)

Cover image of 'The iceberg. A memoir'

The iceberg. A memoir (2014)

Atlantic Books

In 2008 the art critic Tom Lubbock was diagnosed with a brain tumour. The tumour was located in the area controlling speech and language, and would eventually rob him of the ability to speak. He died early in 2011. Marion Coutts was his wife. In short bursts of beautiful, textured prose, Coutts describes the eighteen months leading up to her partner's death. This book is an account of a family unit, man, woman, young child, under assault, and how the three of them fought to keep it intact. Written with extraordinary narrative force and power, The Iceberg is almost shocking in its rawness. It charts the deterioration of Tom's speech even as it records the developing language of his child. Fury, selfishness, grief, indignity and impotence are all examined and brought to light. Yet out of this comes a rare story about belonging, an 'adventure of being and dying'. This book is a celebration of each other, friends, family, art, work, love and language. (Publisher)

Cover image of 'Toby the teapot's daddy has a poorly lid'

Toby the teapot's daddy has a poorly lid (2014)

Paula and Richard Middleton

A short story for children that uses accessible characters to help explain to a child about a parent being diagnosed with a brain tumour. It follows Toby the teapot's daddy through the journey of the first signs and symptoms, diagnosis and treatment.

Cover image of 'My left boob. A cancer diary'

My left boob. A cancer diary (2013)

Book Guild Publishing

Diagnosed with breast cancer in her fifties, award-winning actress and glamour girl-about-town Sally Farmiloe-Neville decided to keep a diary. This is the frank and honest account of her fight to beat the tumour within, retain as much of her left breast as possible - and carry on working meanwhile. Filled with helpful advice to fellow sufferers based on her own experiences, needle-phobic Sally documents her treatment as she goes through the horrors of chemotherapy, surgery and radiotherapy, helped by a healer, a hypnotherapist and a special diet. When her trademark 'big' hair falls out she reveals how she coped by getting ‘Crystal’, a long blonde NHS wig that wowed every man she met. Her family and friends - including many famous household names - are by her side throughout, but many of them have fought their own battles with the big C and Sally documents their stories, too. Always upbeat, never sorry for herself, this is the courageous tale of one woman's struggle to regain her health. (Publisher)

Cover image of 'Tallulah tumour, friend or foe. A personal insight into a battle with a brain tumour'

Tallulah tumour, friend or foe. A personal insight into a battle with a brain tumour (2012)

Memoirs Publishing

Fiona Goldsby has emerged triumphant from the terrifying experience of suffering a serious brain tumour. She found very little written material was available to help her in her battle, so she has written Tallulah Tumour, Friend or Foe? to help others dealing with a similar diagnosis. It is intended to provide information about what the patient may expect, with hints and tips to deal with the various side effects. The information in the book will not only be helpful to patients but to caregivers and family members. And as you may guess from the title, there is plenty of humour as well. (Publisher)

Cover image of 'Not the last goodbye. Reflections on life, death, healing and cancer'

Not the last goodbye. Reflections on life, death, healing and cancer (2011)

Pan Macmillan

This is the story of an award-winning psychiatrist and neuroscientist who was diagnosed with a brain tumour by his own MRI machine at the age of thirty. It is the story of a doctor turned patient who, after overcoming cancer against the odds, started a twenty-year crusade to inform people about the disease and inspire them to take responsibility for their health. It is the story of a husband and father who is told that the cancer has returned, and that he only has a short time left. This is a story about dying. But most of all, it is a story about living. (Publisher)

Cover image of 'Ollie'

Ollie (2007)

Arrow Books Limited

Like the swallows, our son Ollie came in the spring and left in the autumn. Dancing, singing, swooping - there was something birdlike about his energy, joy and laughter - but also the fleeting, enigmatic quality of his life. When he was two he lost all his speech, as autism turned his life - and ours - into a baffling challenge. Then at four he had to face a new challenge when he almost died from leukaemia. But chemotherapy worked its magic and he made a full recovery. He was a tough survivor and nothing seemed to dim his spirit: he could light up a room and energize everyone around him. So it was a huge shock, after several cancer-free years, when a fatal brain tumour was discovered. This time his body had had enough and he died very suddenly. He was twelve. Ollie had extraordinary courage and endurance. Time after time he bounced back, determined to enjoy life. He was obstinate, mischievous, playful, flirtatious, quixotic, funny. He generated - and continues to generate - huge amounts of laughter. And he was very beautiful. We always felt that if autism had not unravelled the wiring of his neural pathways, he would have achieved extraordinary things. This is the story of the journey we made with Ollie. Unlike a mountaineer, pursuing extreme experiences out of choice, he had difficulty thrust upon him: he was forced to be brave. For me, too, the journey was far more compelling than any expedition. (Publisher)

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