We understand that people with cancer are worried about coronavirus. Here is the latest guidance. We will update it regularly.

Publications directory

Need to talk? Call us free*
0800 808 00 00 7 days a week, 8am-8pm

The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 126

Cover image of 'Wilms' tumour'

Wilms' tumour (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'My child's Wilms' tumour has come back'

My child's Wilms' tumour has come back (August 2016)

Children's Cancer and Leukaemia Group

This factsheet is for parents of a child whose Wilms' tumour has come back (relapsed). It discusses the different treatment options that may be available.

Cover image of 'My child has a kidney tumour. Information and support for parents'

My child has a kidney tumour. Information and support for parents (August 2016)

Children's Cancer and Leukaemia Group

This booklet provides general information about kidney cancer (renal tumours) that occur in children.

Cover image of 'Katie's garden. A little girl's experiences of cancer'

Katie's garden. A little girl's experiences of cancer (January 2010)

Fiona Adams

In this illustrated booklet Katie tells how she is diagnosed with Wilm's tumour and describes her stay in hospital for treatment.

Cover image of 'Behaviour and personality change. A resource to help you understand and manage behaviour and personality change when living with a brain tumour'

Behaviour and personality change. A resource to help you understand and manage behaviour and personality change when living with a brain tumour (January 2020)

Brainstrust

Up 60% of people diagnosed with a brain tumour experience behaviour and personality changes (BPC). This booklet covers: understanding BPC; what we mean by BPC; causes; symptoms; how BPC is manifested; how it is measured; mood journals; strategies to help people cope; and treatment options and self-help strategies. It also has information for carers, details of who can help, and questions to ask.

Cover image of 'Meningioma (in adults). What you need to know'

Meningioma (in adults). What you need to know (January 2020)

The Brain Tumour Charity

This leaflet gives an overview of meningiomas in adults and how they are treated and answers some of the questions you may have about this type of tumour.

Cover image of 'Fatigue and brain tumours'

Fatigue and brain tumours (January 2020)

The Brain Tumour Charity

This leaflet aims to help patients understand why they may have less energy. It explains what cancer-related fatigue is and describes the symptoms and possible causes. It has suggestions for coping with fatigue and answers some commonly asked questions and also offers some practical suggestions for coping with the emotional and physical effects of fatigue.

Cover image of 'Driving'

Driving (June 2019)

Brainstrust

This factsheet provides information on the law around driving with a medical condition, the process when involving the DVLA and your medical team, and organisations that may be able to help.

Cover image of 'How do I know if information on the web is reliable?'

How do I know if information on the web is reliable? (July 2019)

Brainstrust

Access to the internet at the tips of our fingers has made getting hold of information quicker and easier than ever, but how can you know what sources to trust? Misinformation spreads fast online, and is sometimes shared by people with a large following. This factsheet will help you to understand what reliable websites look like, establish fact from fiction online and stop feeling overwhelmed by the volume of information available.

Cover image of 'How to deal with the overwhelm'

How to deal with the overwhelm (January 2019)

Brainstrust

If you are a patient living with a brain tumour, the change in your situation may be difficult to deal with and there may also be changes in your ability to function as you used to. This factsheet has tips to help you cope.

Cover image of 'Finances and benefits'

Finances and benefits (November 2019)

Brainstrust

No longer being able to work, new and expensive mobility requirements, having to travel long distances to get to hospital – whatever the reasons for you, having a brain tumour can be a huge financial strain. This factsheet finances and benefits that could support you and your family.

Cover image of 'Immunotherapy: DCVax® - information for patients and carers'

Immunotherapy: DCVax® - information for patients and carers (January 2019)

Brainstrust

Brain tumour immunotherapy, particularly DCVax®, is gaining an increasing amount of media coverage and interest. This Know How explains what immunotherapy is, what DCVax® is, and the current state of research and evidence to date. 

Cover image of 'Cannabinoids – information for patients and carers'

Cannabinoids – information for patients and carers (January 2019)

Brainstrust

This factsheet explains the difference between Cannabidiol (CBD) and cannabis oil, the evidence to date, and the current legal status.

Cover image of 'Looking after yourself. A guide for partners and family members'

Looking after yourself. A guide for partners and family members (2019)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Guidance for those caring for, or close to, someone living with an endocrine tumour.

Cover image of 'How to handle conflict'

How to handle conflict (January 2019)

Brainstrust

Living with a brain tumour can cause stress and this can cause emotions to run high. This factsheet has tips to help solve conflict.

Cover image of 'Returning to work'

Returning to work (January 2019)

Brainstrust

Guidance on returning to work after treatment, or when your caring role has ended.

Cover image of 'How to get a second opinion'

How to get a second opinion (January 2019)

Brainstrust

This factsheet describes the pros and cons of a second opinion, clarifies the options, and explains how to seek another opinion.

Cover image of 'Going home after brain tumour surgery. A discharge guide for people with a brain tumour'

Going home after brain tumour surgery. A discharge guide for people with a brain tumour (July 2019)

The Brain Tumour Charity

Going home after brain tumour surgery can feel quite overwhelming. We know there can be a lot of information to process and you may find that you have more questions, or need additional information or support. This leaflet provides information and answers to questions often asked by people after brain tumour surgery.

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'Brain tumour biomarkers. What you need to know'

Brain tumour biomarkers. What you need to know (July 2019)

The Brain Tumour Charity

This leaflet explains what biomarkers are and how they may be used in the management of brain tumours.

Cover image of 'Coping with thinking difficulties (cognitive impairment)'

Coping with thinking difficulties (cognitive impairment) (September 2019)

The Brain Tumour Charity

This leaflet explains what is meant by cognitive impairment and has suggestions to help people cope.

Cover image of 'Thinking difficulties (cognitive impairment)'

Thinking difficulties (cognitive impairment) (September 2019)

The Brain Tumour Charity

Many people diagnosed with a brain tumour will have some form of cognitive impairment (difficulties with their thinking abilities), due to the presence of the tumour and the pressure it puts on the brain. This leaflet describes the types of impairment that might develop and how they are affected by the location of the tumour, treatment and drugs, and by emotional and psychological factors.

Cover image of 'Ependymoma (in children). What you need to know'

Ependymoma (in children). What you need to know (July 2019)

The Brain Tumour Charity

This leaflet gives an overview of ependymoma in children and answers questions you may have about this type of tumour.

Cover image of 'Coping with speech and language difficulties'

Coping with speech and language difficulties (August 2019)

The Brain Tumour Charity

This leaflet has tips for dealing with speech and language difficulties from people affected by a brain tumour and from healthcare professionals specialised in treating brain tumours. 

Cover image of 'Speech and language difficulties'

Speech and language difficulties (September 2019)

The Brain Tumour Charity

This leaflet explains how brain tumours can affect communication. It describes the communication difficulties that someone with a brain tumour may experience, and the emotional difficulties that this may cause for them and their family and friends.

Cover image of 'Coping with depression and low mood'

Coping with depression and low mood (October 2019)

The Brain Tumour Charity

This leaflet has suggestions to help you cope with low mood and depression.

Cover image of 'Personality changes'

Personality changes (September 2019)

The Brain Tumour Charity

This leaflet describes personality changes that may occur in brain tumour patients and the reasons behind these changes. It has advice on coping with personality changes and sources of support.

Cover image of 'Proton beam therapy and brain tumours'

Proton beam therapy and brain tumours (October 2019)

The Brain Tumour Charity

Proton Beam Therapy (PBT) is a highly specialised form of radiotherapy that is more targeted than conventional radiotherapy. This means it causes less damage to the healthy tissue of the brain and so causes fewer side-effects. However, PBT is only suitable for a few types of brain tumour and, in most cases, does not lead to better outcomes than conventional radiotherapy. This factsheet describes PBT and how does it compare to conventional radiotherapy, who can have it, what it involves and side-effects, and answers some commonly asked questions.

Cover image of 'Being a carer'

Being a carer (July 2019)

The Brain Tumour Charity

This leaflet has suggestions to help carers manage their role, such as having a break, and getting practical and emotional support.

Cover image of 'Diet and nutrition'

Diet and nutrition (December 2019)

The Brain Tumour Charity

This leaflet is for anyone receiving treatment or who has recently completed their treatment.There’s no specific food or type of diet that can control or treat brain tumours, but controlling your diet may help to improve your quality of life and manage the side-effects of treatment, such as dry mouth, nausea, poor appetite, and weight loss.

Cover image of 'Understanding cancer of unknown primary'

Understanding cancer of unknown primary (June 2019)

Macmillan Cancer Support

Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.

Cover image of 'Depression and low mood'

Depression and low mood (October 2019)

The Brain Tumour Charity

This leaflet explains what depression is and describes the signs and symptoms and possible causes.

Cover image of 'Driving and brain tumours'

Driving and brain tumours (July 2019)

The Brain Tumour Charity

This leaflet outlines some key facts in relation to driving for people who have a brain tumour.

Cover image of 'Who's who in your clinical team?'

Who's who in your clinical team? (July 2018)

Brainstrust

A who's who of healthcare professionals involved in the care of someone with a brain tumour: GP; consultant neurosurgeon; consultant neurologist; consultant radiologist; neuro-oncologist; clinical psychologist; neuro-ophthalmologist; community neurological rehabilitation nurse; neuro-oncology clinical nurse specialist; epilepsy nurse; palliative care nurse; specialist allied health professional; disability co-ordinator (higher education). It describes the role of each professional and how they can help.

Cover image of 'Surgery for operable pancreatic cancer'

Surgery for operable pancreatic cancer (March 2018)

Pancreatic Cancer Action

This booklet for patients and carers covers surgical procedures for those who are able to have their tumour removed. It has information on the different types of surgery available and practical information about being in hospital and returning home. It also includes a section about second opinions, clinical trials and questions to ask your doctor, and a glossary to explain some of the terms used.

Cover image of 'Patient guide. Diagnosis'

Patient guide. Diagnosis (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Introduction'

Patient guide. Introduction (July 2018)

Brainstrust

Introduction to the leaflets in the Patient Guide.

Cover image of 'Patient guide. Follow-up'

Patient guide. Follow-up (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Survivorship'

Patient guide. Survivorship (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. End of life care'

Patient guide. End of life care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Palliative care'

Patient guide. Palliative care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Treatment'

Patient guide. Treatment (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Rare ovarian tumours'

Rare ovarian tumours (May 2018)

Ovacome

This factsheet describes some of the rarer ovarian cancers and how they may be treated, namely: germ cell tumours; sex-cord stromal tumours (granulosa cell tumour and Sertoli-Leydig cell tumours); small-cell carcinoma of the ovary; Brenner tumours; and Krukenberg tumours.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'What is a brain tumour?'

What is a brain tumour? (August 2018)

The Brain Tumour Charity

This factsheet explains what a brain tumour is, how they are graded, the different types of brain tumour, and the possible causes and answers some common questions you may have about brain tumours.

Cover image of 'Symptoms of a brain tumour in adults'

Symptoms of a brain tumour in adults (May 2018)

The Brain Tumour Charity

In this factsheet: What are the symptoms of a brain tumour?; Symptoms due to raised pressure within the skull; Symptoms due to location within the brain; What should I do if I think I might have a brain tumour?

Cover image of 'Head Smart. Early diagnosis of brain tumours'

Head Smart. Early diagnosis of brain tumours (2018)

The Brain Tumour Charity

Leaflet with information about the common symptoms of brain tumours in children and young people and what to do if a child is experiencing any of the symptoms. It also has information about the Headsmart campaign and details of further support.

Cover image of 'Antineoplaston therapy'

Antineoplaston therapy (January 2018)

The Brain Tumour Charity

Antineoplaston therapy is an alternative treatment available in America. This factsheet gives an overview of antineoplaston therapy and some of the literature behind the theories.

Cover image of 'Your child's health team (children with a brain tumour)'

Your child's health team (children with a brain tumour) (February 2018)

The Brain Tumour Charity

This factsheet outlines the roles of some of the health care professionals who may be part of a child’s multidisciplinary team.

Cover image of 'Chemotherapy for adults with brain tumours'

Chemotherapy for adults with brain tumours (June 2018)

The Brain Tumour Charity

This factsheet describes chemotherapy for brain tumours in adults. It describes what chemotherapy is, why it is given, how it is given, possible side-effects, and answers some common questions you may have about chemotherapy.

Sorry, no publications found.
Need to talk? Call us free*
0800 808 00 00 7 days a week, 8am-8pm