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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1092

Cover image of 'A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma'

A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma (September 2020)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. We hope it answers some of your questions and helps you to cope with some of the feelings you may have. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Chemotherapy regimens for lymphoma'

Chemotherapy regimens for lymphoma (February 2020)

Lymphoma Action

This information sheet is about chemotherapy regimens (combinations of drugs) for lymphoma. It covers: What is a chemotherapy regimen?; Common chemotherapy regimens for lymphoma; Which chemotherapy regimen might I have?; Side effects of chemotherapy regimens. Includes a list of the most common chemotherapy regimens for lymphoma. 

Cover image of 'CAR-T cell treatments'

CAR-T cell treatments (January 2020)

Myeloma UK

This factsheet has information on CAR-T cell treatments, which are being investigated in myeloma. It explains what CAR-T cell treatments are, how they work, and the current evidence to support their use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of CAR-T cell treatments in the UK.

Cover image of 'Targeted drugs for lymphoma'

Targeted drugs for lymphoma (January 2020)

Lymphoma Action

This factsheet is about targeted drugs: What are targeted drugs?; Who can have targeted drugs?; What targeted drugs are approved for lymphoma?; Lymphoma research and drugs in development.

Cover image of 'Work and stem cell transplants. Information for employers'

Work and stem cell transplants. Information for employers (September 2020)

Anthony Nolan

Working after a stem cell transplant can be a big milestone on your employee’s road to recovery. It can be an important part of making them feel ‘normal’ again and give them a different focus away from the medical world of a transplant. But returning to work isn’t always straightforward. After a transplant, your employee will be recovering physically and emotionally from major treatment. They may need to make adjustments to the way they work and take things gradually. We’ve put together this booklet to help you support your employee, before and after their transplant. 

Cover image of 'Newer antibodies against CD20'

Newer antibodies against CD20 (April 2020)

Lymphoma Action

Newer antibodies against CD20 are beginning to offer alternatives to rituximab for some people with lymphoma. This factsheet covers: antibodies targeting CD20; ofatumumab (Arzerra®); obinutuzumab (Gazyvaro®). It considers who can have these antibodies, how they are given, possible side effects.

Cover image of 'Other targeted drugs for lymphoma'

Other targeted drugs for lymphoma (February 2020)

Lymphoma Action

This factsheet is about some of the other targeted drugs approved for people with lymphoma. It explains what types of targeted drugs are available: radioimmunotherapy; cell signal blockers; proteasome inhibitors; and immunomodulators.

Cover image of 'Diet and breast cancer'

Diet and breast cancer (January 2020)

Breast Cancer Now

A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.

Cover image of 'Surgery'

Surgery (January 2020)

Macmillan Cancer Support

This factsheet explains why surgery may be used to treat cancer. It describes how the surgery is carried out, what happens before and after an operation, and the possible long-term complications, such as lymphoedema.

Cover image of 'Inflammatory breast cancer'

Inflammatory breast cancer (February 2020)

Breast Cancer Now

This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.

Cover image of 'Surgery [Welsh]'

Surgery [Welsh] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Russian]'

Surgery [Russian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Young person's guide to lymphoma'

Young person's guide to lymphoma (January 2020)

Lymphoma Action

Comprehensive booklet for young people with lymphoma. 

Cover image of 'Surgery [Urdu]'

Surgery [Urdu] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Surgery [Arabic]'

Surgery [Arabic] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Polish]'

Surgery [Polish] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Portuguese]'

Surgery [Portuguese] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Chinese, Traditional]'

Surgery [Chinese, Traditional] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Romanian]'

Surgery [Romanian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Surgery [Punjabi]'

Surgery [Punjabi] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English language version.

Cover image of 'Surgery [Gujarati]'

Surgery [Gujarati] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

Cover image of 'Surgery [Bengali]'

Surgery [Bengali] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

Cover image of 'Secondary breast cancer in the brain'

Secondary breast cancer in the brain (August 2020)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the brain that has spread from the breast. It describes what secondary breast cancer in the brain is, what the symptoms are, and the investigations. Briefly outlines the treatment options. Lists useful organisations.

Cover image of 'Secondary breast cancer in the lung'

Secondary breast cancer in the lung (February 2020)

Breast Cancer Now

This booklet is for anyone diagnosed with secondary lung cancer that has spread from the breast. It describes what secondary breast cancer in the lung is, the symptoms and how they can be managed, the investigations that may be needed, and the treatment options.

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2020)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public'

Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public (January 2020)

National Institute for Health and Care Excellence (NICE)

Information about palbociclib (Ibrance), with fulvestrant, which is available through the Cancer Drugs Fund, and which may be used to treat hormone receptor-positive, HER2-negative, advanced breast cancer.

Cover image of 'Capecitabine (Xeloda®) [Polish]'

Capecitabine (Xeloda®) [Polish] (January 2020)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and some of the possible side-effects.

Cover image of 'Ipilimumab [Polish]'

Ipilimumab [Polish] (January 2020)

Macmillan Cancer Support

Ipilimumab is a targeted therapy drug used to treat advanced melanoma. This describes how it works, how it is given, and some of the possible side-effects.

Cover image of 'Nivolumab (OPDIVO®)  [Polish]'

Nivolumab (OPDIVO®) [Polish] (January 2020)

Macmillan Cancer Support

Nivolumab (OPDIVO®) is a targeted therapy drug used to treat melanoma, non-small cell lung cancer or kidney (renal cell) cancer. 

Cover image of 'Hydroxycarbamide (Hydrea®) [Bulgarian]'

Hydroxycarbamide (Hydrea®) [Bulgarian] (2020)

Macmillan Cancer Support

Hydroxycarbamide (also known as hydroxyurea) is used to treat chronic myeloid leukaemia, cervical cancer, and some pre-cancerous conditions. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Paclitaxel and carboplatin [Chinese, Traditional]'

Paclitaxel and carboplatin [Chinese, Traditional] (2020)

Macmillan Cancer Support

Paclitaxel (Taxol®) and carboplatin is a combination chemotherapy regime used to treat cancer of the ovary and cancer of the lung. This factsheet describes the drugs, how they are given and the possible side-effects.

Cover image of 'Diffuse large B-cell lymphoma [Polish]'

Diffuse large B-cell lymphoma [Polish] (January 2020)

Macmillan Cancer Support

Diffuse large B-cell lymphoma is a specific type of non-Hodgkin lymphoma. This factsheet describes the signs and symptoms, staging, grading, diagnosis and treatment.

Cover image of 'Holistic needs assessment. Planning your care and support'

Holistic needs assessment. Planning your care and support (July 2020)

Macmillan Cancer Support

This leaflet is about a Holistic Needs Assessment (HNA). An HNA identifies any concerns you may have when you are diagnosed with cancer. These may be physical, emotional, practical, financial and spiritual. The leaflet talks about what happens at an HNA and has information about making a care plan. 

Cover image of 'Help with the cost of cancer in England, Scotland, Wales and Northern Ireland'

Help with the cost of cancer in England, Scotland, Wales and Northern Ireland (March 2020)

Macmillan Cancer Support

This booklet is about getting benefits and other financial help if you are affected by cancer in England, Scotland, Wales or Northern Ireland. It is for anyone living with cancer and their family, friends and carers. It explains the types of financial help you could get and how to claim this support. It also tells you who to contact for further help, including Macmillan’s welfare rights advisers.

Cover image of 'Understanding stem cell transplants using your own cells (autologous)'

Understanding stem cell transplants using your own cells (autologous) (January 2020)

Macmillan Cancer Support

This booklet is about having a stem cell transplant using your own cells. It is for anyone who is going to have this treatment and there is also information for carers, family members and friends. The booklet explains what an autologous stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Understanding stem cell transplants using donor cells (allogeneic)'

Understanding stem cell transplants using donor cells (allogeneic) (January 2020)

Macmillan Cancer Support

This booklet is for anyone who is going to have a donor stem cell transplant.There is also information for carers, family members and friends. The booklet explains what a donor stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia Care

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'Acute promyelocytic leukaemia (APL). A guide for patients'

Acute promyelocytic leukaemia (APL). A guide for patients (January 2020)

Leukaemia Care

Acute promyelocytic leukaemia (APL) is a rare sub-type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, and treatment options. It also covers practical issues of living with APL and how to talk to your haematologist, family and friends.

Cover image of 'FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients'

FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients (January 2020)

Leukaemia Care

FLAG-Ida is a combination chemotherapy regimen used in the treatment of acute myeloid leukaemia (AML). It consists of fludarabine, high dose cytarabine (Ara-C0), idarubicin and granulocyte-colony stimulating factor (G-CSF). This booklet explains the drugs, who may be eligible to receive this treatment, how FLAG-Ida is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma'

Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma (June 2020)

Macmillan Cancer Support

This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges'

Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges (2020)

Jessica Kingsley Publishers

Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about. Written from a dual perspective- that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared. Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery. Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects. (Pub;lisher)

Cover image of 'Travel and cancer'

Travel and cancer (January 2020)

Macmillan Cancer Support

This booklet is about travelling abroad when you have cancer. There is also information for family, friends and carers. The booklet talks about the benefits of travel and how you can prepare for a trip abroad. It also gives tips on finding travel insurance and taking care while you are away. Includes details of useful organisations.

Cover image of 'My chemotherapy journey'

My chemotherapy journey (2020)

Ken Harwood

The author was diagnosed in 2019 with a low-grade non-Hodgkin lymphoma and this is his day-by-day account of his chemotherapy journey over a six month period.

Cover image of 'Understanding colon cancer'

Understanding colon cancer (April 2020)

Macmillan Cancer Support

This booklet is about colon cancer. The colon is part of the bowel. We have separate information about small bowel cancer, rectal cancer and anal cancer. The booklet explains what colon cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. When we mention bowel cancer in this booklet, this includes colon cancer.  

Cover image of 'Understanding secondary cancer in the liver'

Understanding secondary cancer in the liver (June 2020)

Macmillan Cancer Support

This booklet is about secondary cancer in the liver. This is cancer that has spread to the liver from somewhere else in the body. It is for anyone who has been diagnosed with secondary cancer in the liver. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of secondary cancer in the liver. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'Eating problems and cancer'

Eating problems and cancer (August 2020)

Macmillan Cancer Support

Many people have eating problems during and after cancer treatment. This can be related to the cancer or to the side effects of cancer treatments. This booklet talks about some common eating problems and why they might happen. It also suggests some practical ways to manage them. There is also information for carers, family members and friends. 

Cover image of 'The building-up diet'

The building-up diet (August 2020)

Macmillan Cancer Support

This booklet is for people who may be finding it difficult to maintain their weight during and after cancer treatment. It explains the different food types and has suggestions on how to get more energy and protein in your diet. It also  includes some meal ideas and some shopping list suggestions. These may help you when preparing meals. 

Cover image of 'Healthy eating and cancer'

Healthy eating and cancer (August 2020)

Macmillan Cancer Support

Many people want to make positive changes to their lives when they have been diagnosed with cancer. Taking steps to live a healthier lifestyle is often a major part of these changes. This booklet is for people living with cancer or after cancer treatment who want to know more about a healthy diet. It explains why diet is important and has tips on how to eat well and keep to a healthy weight. It also answers some common questions about diet and cancer.

Cover image of 'Understanding anal cancer'

Understanding anal cancer (April 2020)

Macmillan Cancer Support

This booklet is about anal cancer. The anus is part of the large bowel, which includes the colon and rectum. We have separate booklets about colon cancer and rectal cancer. The booklet explains what anal cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. 

Cover image of 'Understanding rectal cancer'

Understanding rectal cancer (April 2020)

Macmillan Cancer Support

This booklet is about rectal cancer. The rectum is part of the bowel. We have separate information about small bowel cancer, colon cancer and anal cancer. The booklet explains what rectal cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. When we mention bowel cancer in this booklet, this includes rectal cancer. 

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