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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Children's Cancer and Leukaemia Group|Neuroblastoma UK
This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. We hope it answers some of your questions and helps you to cope with some of the feelings you may have. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.
Lymphoma Action
This information sheet is about chemotherapy regimens (combinations of drugs) for lymphoma. It covers: What is a chemotherapy regimen?; Common chemotherapy regimens for lymphoma; Which chemotherapy regimen might I have?; Side effects of chemotherapy regimens. Includes a list of the most common chemotherapy regimens for lymphoma.
Myeloma UK
This factsheet has information on CAR-T cell treatments, which are being investigated in myeloma. It explains what CAR-T cell treatments are, how they work, and the current evidence to support their use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of CAR-T cell treatments in the UK.
Lymphoma Action
This factsheet is about targeted drugs: What are targeted drugs?; Who can have targeted drugs?; What targeted drugs are approved for lymphoma?; Lymphoma research and drugs in development.
Anthony Nolan
Working after a stem cell transplant can be a big milestone on your employee’s road to recovery. It can be an important part of making them feel ‘normal’ again and give them a different focus away from the medical world of a transplant. But returning to work isn’t always straightforward. After a transplant, your employee will be recovering physically and emotionally from major treatment. They may need to make adjustments to the way they work and take things gradually. We’ve put together this booklet to help you support your employee, before and after their transplant.
Lymphoma Action
Newer antibodies against CD20 are beginning to offer alternatives to rituximab for some people with lymphoma. This factsheet covers: antibodies targeting CD20; ofatumumab (Arzerra®); obinutuzumab (Gazyvaro®). It considers who can have these antibodies, how they are given, possible side effects.
Lymphoma Action
This factsheet is about some of the other targeted drugs approved for people with lymphoma. It explains what types of targeted drugs are available: radioimmunotherapy; cell signal blockers; proteasome inhibitors; and immunomodulators.
Breast Cancer Now
A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.
Macmillan Cancer Support
This factsheet explains why surgery may be used to treat cancer. It describes how the surgery is carried out, what happens before and after an operation, and the possible long-term complications, such as lymphoedema.
Breast Cancer Now
This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.
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