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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1190

Cover image of 'Behaviour and personality change. A resource to help you understand and manage behaviour and personality change when living with a brain tumour'

Behaviour and personality change. A resource to help you understand and manage behaviour and personality change when living with a brain tumour (January 2020)

Brainstrust

Up 60% of people diagnosed with a brain tumour experience behaviour and personality changes (BPC). This booklet covers: understanding BPC; what we mean by BPC; causes; symptoms; how BPC is manifested; how it is measured; mood journals; strategies to help people cope; and treatment options and self-help strategies. It also has information for carers, details of who can help, and questions to ask.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'Radiotherapy after breast surgery. A guide for patients and their families'

Radiotherapy after breast surgery. A guide for patients and their families (February 2020)

Christie Hospital NHS Trust

This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.

Cover image of 'Brentuximab vedotin'

Brentuximab vedotin (April 2020)

Lymphoma Action

Brentuximab vedotin is a targeted drug used in the treatment of certain types of lymphoma. This factsheets explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Venetoclax'

Venetoclax (February 2020)

Lymphoma Action

Venetoclax is a targeted drug used in the treatment of certain types of low-grade (slow-growing) lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Newer antibodies against CD20'

Newer antibodies against CD20 (April 2020)

Lymphoma Action

Newer antibodies against CD20 are beginning to offer alternatives to rituximab for some people with lymphoma. This factsheet covers: antibodies targeting CD20; ofatumumab (Arzerra®); obinutuzumab (Gazyvaro®). It considers who can have these antibodies, how they are given, possible side effects.

Cover image of 'Chemotherapy regimens for lymphoma'

Chemotherapy regimens for lymphoma (February 2020)

Lymphoma Action

This information sheet is about chemotherapy regimens (combinations of drugs) for lymphoma. It covers: What is a chemotherapy regimen?; Common chemotherapy regimens for lymphoma; Which chemotherapy regimen might I have?; Side effects of chemotherapy regimens. Includes a list of the most common chemotherapy regimens for lymphoma. 

Cover image of 'CAR-T cell treatments'

CAR-T cell treatments (January 2020)

Myeloma UK

This factsheet has information on CAR-T cell treatments, which are being investigated in myeloma. It explains what CAR-T cell treatments are, how they work, and the current evidence to support their use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of CAR-T cell treatments in the UK.

Cover image of 'Ipilimumab [Polish]'

Ipilimumab [Polish] (January 2020)

Macmillan Cancer Support

Ipilimumab is a targeted therapy drug used to treat advanced melanoma. This describes how it works, how it is given, and some of the possible side-effects.

Cover image of 'Capecitabine (Xeloda®) [Polish]'

Capecitabine (Xeloda®) [Polish] (January 2020)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and some of the possible side-effects.

Cover image of 'Hydroxycarbamide (Hydrea®) [Bulgarian]'

Hydroxycarbamide (Hydrea®) [Bulgarian] (2020)

Macmillan Cancer Support

Hydroxycarbamide (also known as hydroxyurea) is used to treat chronic myeloid leukaemia, cervical cancer, and some pre-cancerous conditions. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Paclitaxel and carboplatin [Chinese, Traditional]'

Paclitaxel and carboplatin [Chinese, Traditional] (2020)

Macmillan Cancer Support

Paclitaxel (Taxol®) and carboplatin is a combination chemotherapy regime used to treat cancer of the ovary and cancer of the lung. This factsheet describes the drugs, how they are given and the possible side-effects.

Cover image of 'Going back to work after your stem cell transplant'

Going back to work after your stem cell transplant (September 2020)

Anthony Nolan

Returning to work after a stem cell transplant can be an important milestone on the road to recovery. For many people, work can help them get back into their everyday life and give them different focus away from the medical world of a transplant. But returning to work isn’t always straightforward. After a transplant, you’ll be recovering physically and emotionally from major treatment. You may need to make adjustments to the way you work, and take things gradually. For some people, going back to work isn’t always possible. We’ve put together this booklet to help you prepare for and manage work after a transplant. It might also be useful if you’re a carer, family member or supporter 

Cover image of 'Understanding stem cell transplants using your own cells (autologous)'

Understanding stem cell transplants using your own cells (autologous) (January 2020)

Macmillan Cancer Support

This booklet is about having a stem cell transplant using your own cells. It is for anyone who is going to have this treatment and there is also information for carers, family members and friends. The booklet explains what an autologous stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Understanding stem cell transplants using donor cells (allogeneic)'

Understanding stem cell transplants using donor cells (allogeneic) (January 2020)

Macmillan Cancer Support

This booklet is for anyone who is going to have a donor stem cell transplant.There is also information for carers, family members and friends. The booklet explains what a donor stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'An essential guide to dealing with infections'

An essential guide to dealing with infections (March 2020)

Anthony Nolan

One of the most common side effects after a stem cell transplant is infection and although it is an expected part of recovery, it can also be challenging. This booklet highlights when you might get infections, the symptoms to look out for and how infections are treated as well as how to look after yourself and prevent infections in both your short and long term recovery. 

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia Care

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (July 2020)

Breast Cancer Now

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients'

FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients (January 2020)

Leukaemia Care

FLAG-Ida is a combination chemotherapy regimen used in the treatment of acute myeloid leukaemia (AML). It consists of fludarabine, high dose cytarabine (Ara-C0), idarubicin and granulocyte-colony stimulating factor (G-CSF). This booklet explains the drugs, who may be eligible to receive this treatment, how FLAG-Ida is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'Having a matched unrelated donor (MUD) stem cell transplant'

Having a matched unrelated donor (MUD) stem cell transplant (June 2020)

Anthony Nolan

A brief guide to a type of stem cell or bone marrow transplant called a matched unrelated donor or MUD transplant. It describes who can have this type of transplant, how it works, the possible side effects and where to find further information and support.

Cover image of 'Docetaxel (Taxotere)'

Docetaxel (Taxotere) (October 2020)

Breast Cancer Now

This factsheet explains briefly what Taxotere® is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma'

A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma (September 2020)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. We hope it answers some of your questions and helps you to cope with some of the feelings you may have. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Work and stem cell transplants. Information for employers'

Work and stem cell transplants. Information for employers (September 2020)

Anthony Nolan

Working after a stem cell transplant can be a big milestone on your employee’s road to recovery. It can be an important part of making them feel ‘normal’ again and give them a different focus away from the medical world of a transplant. But returning to work isn’t always straightforward. After a transplant, your employee will be recovering physically and emotionally from major treatment. They may need to make adjustments to the way they work and take things gradually. We’ve put together this booklet to help you support your employee, before and after their transplant. 

Cover image of 'Life after cancer treatment'

Life after cancer treatment (July 2020)

Macmillan Cancer Support

This booklet is about coping after cancer treatment finishes, including managing side effects, follow-up care, and making healthy lifestyle changes. It is for people who are preparing for life after cancer treatment. 

Cover image of 'Diabetes and cancer treatment [in press]'

Diabetes and cancer treatment [in press] (January 2020)

Macmillan Cancer Support|Diabetes UK

This booklet is for anyone who has cancer and also has diabetes. You may also want to read it if you have been told your cancer treatment may increase your risk of developing diabetes. It explains how some tests and cancer treatments can affect your diabetes and make it difficult to control your blood sugar. It also has some tips to help you cope with the side effects of cancer treatment if you have diabetes.

Cover image of 'What to do after cancer treatment ends: 10 top tips'

What to do after cancer treatment ends: 10 top tips (July 2020)

Macmillan Cancer Support

This leaflet is about what to expect and where to get further support after cancer treatment ends. It gives suggestions to help you get the best care and support available and make healthy lifestyle choices. 

Cover image of 'Eating problems and cancer'

Eating problems and cancer (August 2020)

Macmillan Cancer Support

Many people have eating problems during and after cancer treatment. This can be related to the cancer or to the side effects of cancer treatments. This booklet talks about some common eating problems and why they might happen. It also suggests some practical ways to manage them. There is also information for carers, family members and friends. 

Cover image of 'Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges'

Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges (2020)

Jessica Kingsley Publishers

Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about. Written from a dual perspective- that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared. Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery. Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects. (Pub;lisher)

Cover image of 'Travel and cancer'

Travel and cancer (January 2020)

Macmillan Cancer Support

This booklet is about travelling abroad when you have cancer. There is also information for family, friends and carers. The booklet talks about the benefits of travel and how you can prepare for a trip abroad. It also gives tips on finding travel insurance and taking care while you are away. Includes details of useful organisations.

Cover image of 'Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment'

Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment (April 2019)

Children's Cancer and Leukaemia Group

Hair loss is a common side effect of treatment for childhood cancer, but its impact can be significant. This animation tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.

Cover image of 'Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet'

Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet (March 2019)

Christie Hospital NHS Trust

Some illnesses or treatments may make swallowing difficult. This booklet has ideas on how to prepare soft or liquidised foods and how to make food more nourishing by enriching it with dairy produce, fats, sugars and fortified milk. Includes meal suggestions.

Cover image of 'Eating – help yourself. A guide for patients and their carers'

Eating – help yourself. A guide for patients and their carers (February 2019)

Christie Hospital NHS Trust

Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.

Cover image of 'Late effects of lymphoma treatment'

Late effects of lymphoma treatment (May 2019)

Lymphoma Action

Late effects are health problems that may develop months or years after treatment for lymphoma. This factsheet explains some of the potential late effects of lymphoma treatment, and who might get them. It covers second cancers, heart disease, lung problems, hormone problems and how to reduce your risk.

Cover image of 'Are you having or have you ever had pelvic radiotherapy?'

Are you having or have you ever had pelvic radiotherapy? (February 2019)

Pelvic Radiation Disease Association

Credit-card leaflet, with general information about the symptoms of pelvic radiation disease. 

Cover image of 'Treatment for lymphoma [Easy read]'

Treatment for lymphoma [Easy read] (January 2019)

Lymphoma Action

This booklet covers what treatment is, what chemotherapy, radiotherapy and stem cell transplants are, and what side effects you might get from treatment. 

Cover image of 'Living with hormone therapy. A guide for men with prostate cancer'

Living with hormone therapy. A guide for men with prostate cancer (June 2019)

Prostate Cancer UK

This booklet is for men who are having hormone therapy. It describes the different types of hormone therapy, how they work and what the treatment involves. It also includes information about the possible side-effects and how to manage them.

Cover image of 'Stents and bypass surgery for pancreatic cancer'

Stents and bypass surgery for pancreatic cancer (February 2019)

Pancreatic Cancer UK

This fact sheet is for people with pancreatic cancer who are having a stent or bypass surgery. These treatments help symptoms caused by the cancer blocking the bile duct or duodenum. Family members may also find it helpful. It describes what the treatments involve, possible side effects, how they can affect your diet, and recovering afterwards.

Cover image of 'Deciding on treatment: a step on your journey'

Deciding on treatment: a step on your journey (July 2019)

Prostate Scotland

Guidance for men who are making a decision about treatment. Includes a chart with brief details of the treatments, what's involved and potential side effects.

Cover image of 'Permanent seed brachytherapy'

Permanent seed brachytherapy (March 2019)

Prostate Cancer UK

This factsheet describes how permanent seed brachytherapy may be used to treat prostate cancer, who can have it, the advantages and disadvantages, what happens after treatment, and the possible side effects. It does not describe external beam radiotherapy or high dose rate brachytherapy.

Cover image of 'Your pathway. A guide to bowel cancer treatment'

Your pathway. A guide to bowel cancer treatment (May 2019)

Bowel Cancer UK

This booklet is for anyone diagnosed with bowel cancer and their family and friends. It gives an overview of what bowel cancer is, how it is treated, the common treatment side effects and what happens when treatment finishes. 

Cover image of 'Living well. After bowel cancer treatment'

Living well. After bowel cancer treatment (August 2019)

Bowel Cancer UK

The information in this booklet is for anyone who has had treatment for bowel cancer. It may also be helpful for family and friends. It describes follow-up care, possible side effects from treatment, and some of the feelings people might have after finishing treatment. It also explains how a healthy lifestyle can help and your rights are work. 

Cover image of 'Chemotherapy for lung cancer'

Chemotherapy for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet was produced in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Eating well when eating becomes difficult. Support your health during cancer treatment'

Eating well when eating becomes difficult. Support your health during cancer treatment (April 2019)

Penny Brohn UK

This booklet aims to address some of the common difficulties that people may experience with eating during cancer treatment. It has advice and tips to help cope with the common effects of chemotherapy, radiotherapy, immunotherapy and hormonal therapy, such as oral thrush, sore or dry mouth, swallowing difficulties, taste changes, nausea, constipation, diarrhoea, and tenesmus.

Cover image of 'Radiotherapy for pancreatic cancer'

Radiotherapy for pancreatic cancer (September 2019)

Pancreatic Cancer UK

This factsheet is for people with pancreatic cancer who are having radiotherapy. It explains the different types of radiotherapy, how it is given and the side effects.

Cover image of 'Having a donor lymphocyte infusion (DLI)'

Having a donor lymphocyte infusion (DLI) (July 2019)

Anthony Nolan

A brief guide to a type of treatment you may receive after your stem cell transplant. It describes what a DLI is, why you might need one, the possible side effects, and where to get support and further information.

Cover image of 'What to expect. What is it like to be treated with proton beam therapy?'

What to expect. What is it like to be treated with proton beam therapy? (January 2019)

Brainstrust

This leaflet describes what happens when proton beam therapy is given, and the possible side effects. 

Cover image of 'My lung surgery'

My lung surgery (August 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and surgery is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment. It discusses the types of surgery, what happens before, during and after surgery, and returning home.

Cover image of 'Patient diary'

Patient diary (March 2019)

Myeloma UK

This diary has been designed to do just that; to give you a place to write down your thoughts, how you are feeling and any questions you may have. It will help you stay informed and keep track of important information related to your myeloma and its treatment. It may also help you and your doctor and nurse communicate more easily about your myeloma, your treatment and any questions or concerns that you may have. 

Cover image of 'Having chimeric antigen receptor T-cell (CAR T-CELL) therapy'

Having chimeric antigen receptor T-cell (CAR T-CELL) therapy (September 2019)

Anthony Nolan

A brief guide to a type of therapy you may receive if your stem cell transplant, or other treatment, is unsuccessful. It describes what chimeric antigen receptor T-cell (CAR T-cell) therapy is, how your own cells are used to make it, the possible side effects, and where to go for further information and support.

Cover image of 'Thrombocytopenia and myeloma'

Thrombocytopenia and myeloma (April 2019)

Myeloma UK

This factsheet explains what thrombocytopenia is, the causes and symptoms, and how it is diagnosed, monitored and treated. It also has some tips for self-management. 

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