Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 193

Cover image of 'Surgery [Arabic]'

Surgery [Arabic] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Urdu]'

Surgery [Urdu] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Surgery [Bengali]'

Surgery [Bengali] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

Cover image of 'Surgery [Romanian]'

Surgery [Romanian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'Diet and pancreatic cancer'

Diet and pancreatic cancer (January 2020)

Pancreatic Cancer UK

This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It has information on how to manage these problems, including how to take pancreatic enzyme replacement therapy. 

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers'

Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers (March 2020)

Colostomy UK

This booklet is for anyone responsible for caring for someone with a stoma. It briefly describes what a stoma is and why people have stoma surgery, then covers the practical aspects of caring for someone with a stoma. This includes everything from ordering medical supplies and disposing of waste, to diet, changing a stoma bag and recognising some of the common problems, such as sore skin. It also considers the concerns that people with stomas have and how these can impact on their physical and mental wellbeing. 

Cover image of 'About stoma reversal'

About stoma reversal (April 2020)

Bowel Cancer UK

This factsheet is about having surgery to reverse your stoma. It explains what a stoma reversal is, possible complications and what to expect after the operation. 

Cover image of 'Understanding rectal cancer'

Understanding rectal cancer (April 2020)

Macmillan Cancer Support

This booklet is about rectal cancer. The rectum is part of the bowel. We have separate information about small bowel cancer, colon cancer and anal cancer. The booklet explains what rectal cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. When we mention bowel cancer in this booklet, this includes rectal cancer. 

Cover image of 'Understanding colon cancer'

Understanding colon cancer (April 2020)

Macmillan Cancer Support

This booklet is about colon cancer. The colon is part of the bowel. We have separate information about small bowel cancer, rectal cancer and anal cancer. The booklet explains what colon cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. When we mention bowel cancer in this booklet, this includes colon cancer.  

Cover image of 'Understanding anal cancer'

Understanding anal cancer (April 2020)

Macmillan Cancer Support

This booklet is about anal cancer. The anus is part of the large bowel, which includes the colon and rectum. We have separate booklets about colon cancer and rectal cancer. The booklet explains what anal cancer is, and how it is diagnosed and treated. It also talks about your feelings when you are diagnosed with cancer and has practical advice on dealing with work and finances. 

Cover image of 'Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma'

Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma (June 2020)

Macmillan Cancer Support

This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'Understanding secondary cancer in the liver'

Understanding secondary cancer in the liver (June 2020)

Macmillan Cancer Support

This booklet is about secondary cancer in the liver. This is cancer that has spread to the liver from somewhere else in the body. It is for anyone who has been diagnosed with secondary cancer in the liver. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of secondary cancer in the liver. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'My lung surgery'

My lung surgery (August 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and surgery is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment. It discusses the types of surgery, what happens before, during and after surgery, and returning home.

Cover image of 'Pain and discomfort following stoma surgery'

Pain and discomfort following stoma surgery (July 2019)

Colostomy Association

This leaflet describes what may cause pain and discomfort following Hartmann's procedure or loop stoma or abdomino-perineal excision of the rectum (APER), coping strategies and treatments available. Patients share their experiences.

Cover image of 'Stents and bypass surgery for pancreatic cancer'

Stents and bypass surgery for pancreatic cancer (February 2019)

Pancreatic Cancer UK

This fact sheet is for people with pancreatic cancer who are having a stent or bypass surgery. These treatments help symptoms caused by the cancer blocking the bile duct or duodenum. Family members may also find it helpful. It describes what the treatments involve, possible side effects, how they can affect your diet, and recovering afterwards.

Cover image of 'Rectal discharge following stoma surgery'

Rectal discharge following stoma surgery (July 2019)

Colostomy UK

This leaflet explains why rectal discharge might occur following a colostomy and describes some of the management techniques and coping mechanisms that might help.

Cover image of 'Exercises after breast cancer surgery'

Exercises after breast cancer surgery (April 2019)

Breast Cancer Care

This leaflet explains why exercise is necessary after breast surgery, when to start exercising, and how long to carry on. It opens out into a poster that demonstrates exercises for the days and weeks after surgery.

Cover image of 'Surgery to remove pancreatic cancer'

Surgery to remove pancreatic cancer (March 2019)

Pancreatic Cancer UK

This factsheet is for people diagnosed with pancreatic cancer who are having surgery to remove the cancer. Family members may also find it helpful. We describe the different types of surgery to remove pancreatic cancer, how to prepare for your operation, what to expect, and recovery afterwards. This factsheet does not cover surgery for pancreatic neuroendocrine tumours (PNETs).  

Cover image of 'Understanding your small cell lung cancer'

Understanding your small cell lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet explains what small cell lung cancer is, and addresses common questions and concerns. 

Cover image of 'Pancreatic cancer. Surgery to remove pancreatic cancer. An Easy Read booklet'

Pancreatic cancer. Surgery to remove pancreatic cancer. An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain surgery to remove pancreatic cancer. 

Cover image of 'Newly diagnosed pack'

Newly diagnosed pack (2019)

Pancreatic Cancer UK

The newly diagnosed pack is for people recently diagnosed with pancreatic cancer. It contains the following publications: An overview of diagnosis and treatment, Diet and pancreatic cancer, Chemotherapy for pancreatic cancer, We're here for you leaflet and our Patient Charter. Depending on your situation we will also include: Surgery for operable pancreatic cancer, Stents and bypass surgery or Caring for someone with pancreatic cancer. 

Cover image of 'Active ostomates. Sport and fitness after stoma surgery'

Active ostomates. Sport and fitness after stoma surgery (November 2019)

Colostomy UK

Adapting to life with a stoma can be challenging and the thought of exercise may well be the last thing on your mind as you recover from surgery. This booklet has advice on exercises to try and how to manage your stoma while exercising or playing sport.

Cover image of 'Know your prostate. A guide to common prostate problems'

Know your prostate. A guide to common prostate problems (June 2019)

Prostate Cancer UK

This booklet is aimed at anyone who wants to know more about the prostate gland. It describes what the prostate gland is, the changes to look out for, benign prostatic hyperplasia, prostatitis and prostate cancer (what it is, the symptoms, the risk factors and what will happen at the doctors). A summary of this information is also available as a Z-card 'Know your prostate. A quick guide.'

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (August 2019)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'Stoma reversal'

Stoma reversal (July 2019)

Colostomy UK

This leaflet describes the different types of stoma and the surgical techniques involved in their reversal. It also considers the advantages and possible problems associated with a reversal and suggests a simple checklist to ensure you make the appropriate decision for you.

Cover image of 'Pancreatic cancer. Treatment if you can't have surgery. An Easy Read booklet'

Pancreatic cancer. Treatment if you can't have surgery. An Easy Read booklet (July 2019)

Pancreatic Cancer UK

Easy read information using pictures and simple words to explain treatments if you can’t have surgery, including chemotherapy and stents. 

Cover image of 'Understanding breast cancer in women [Audio CD]'

Understanding breast cancer in women [Audio CD] (January 2019)

Macmillan Cancer Support

Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Total penectomy'

Total penectomy (March 2019)

Orchid – Fighting Male Cancer

This leaflet describes the aftercare, including catheters, and possible complications of a total penectomy

Cover image of 'Clinical diagnosis'

Clinical diagnosis (November 2019)

Orchid – Fighting Male Cancer

This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.

Cover image of 'Living with a stoma. Information for ostomates and their carers'

Living with a stoma. Information for ostomates and their carers (July 2019)

Colostomy UK

This booklet describes what happens after the operation, how to look after a stoma, the early days at home, and getting back to normal. It also advice on exercise and what to eat.

Cover image of 'Glans resurfacing and split skin graft/Glansectomy'

Glans resurfacing and split skin graft/Glansectomy (March 2019)

Orchid – Fighting Male Cancer

This information sheet describes glans resurfacing and glansectomy,  how surgery is carried out, aftercare, and possible complications.

Cover image of 'Adrenocortical carcinoma - AAC. Patient information for adult patients'

Adrenocortical carcinoma - AAC. Patient information for adult patients (October 2019)

Adrenocortical Cancer Support and Information

Guidance for people with adrenocortical carcinoma (AAC). Describes what AAC is, its symptoms, diagnosis, and treatment options.

Cover image of 'Understanding brain metastasis and lung cancer'

Understanding brain metastasis and lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available. 

Cover image of 'Early prostate cancer explained'

Early prostate cancer explained (October 2019)

Prostate Scotland

This booklet has detailed information about early prostate cancer, and is aimed at helping men, their partners and families understand about prostate cancer, the tests, investigations and treatment options and help them decide on the treatment that suits them best.

Cover image of 'Ovarian cancer and stomas'

Ovarian cancer and stomas (June 2019)

Target Ovarian Cancer|Colostomy UK

Our expert mini guide is for you if you have a stoma or may get one after ovarian cancer surgery. Based on the latest evidence and full of insights from people who understand what you're going through, this guide explores what a stoma is and does and offers practical tips for overcoming common concerns. 

Cover image of 'Follow-up after prostate cancer treatment. What happens next?'

Follow-up after prostate cancer treatment. What happens next? (July 2019)

Prostate Cancer UK

This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (November 2019)

Lymphoma Action

This comprehensive booklet discusses Hodgkin lymphoma in detail.

Cover image of 'Your body, intimacy and sex'

Your body, intimacy and sex (November 2019)

Breast Cancer Now

Breast cancer and its treatments can cause many physical and emotional changes. This booklet outlines how these changes can alter the way you feel about your body, and how they may affect sex and intimacy. The booklet covers many topics including getting used to changes to your body, how breast cancer and its treatments may affect your sex life or intimate relationships, and offers tips on sex and intimacy after treatment. 

Cover image of 'Your pathway. A guide to bowel cancer treatment'

Your pathway. A guide to bowel cancer treatment (May 2019)

Bowel Cancer UK

This booklet is for anyone diagnosed with bowel cancer and their family and friends. It gives an overview of what bowel cancer is, how it is treated, the common treatment side effects and what happens when treatment finishes. 

Cover image of 'Understanding melanoma and treatment with surgery'

Understanding melanoma and treatment with surgery (July 2019)

Macmillan Cancer Support

This booklet is about a type of skin cancer called melanoma. It includes information about melanoma, how it is diagnosed and how it is treated with surgery. 

Cover image of 'Minimal access radical prostatectomy for prostate cancer'

Minimal access radical prostatectomy for prostate cancer (February 2019)

Prostate Scotland

This booklet is to help men whose cancer has not spread beyond the prostate understand more about minimal access surgery to remove the prostate (also known as robotic assisted radical prostatectomy and laparoscopic radical prostatectomy). It covers what it is, who it’s suitable for, what happens and the advantages and drawbacks of this type of treatment. It may help men decide if this might be the right treatment choice for them.

Cover image of 'Eating well. A guide to diet and bowel cancer'

Eating well. A guide to diet and bowel cancer (May 2019)

Bowel Cancer UK

This booklet has information about how food can affect your symptoms during and after bowel cancer treatment. After treatment, you may find you can’t eat the same foods as you did before. These changes may be temporary or they may be longer-lasting. 

Cover image of 'Going home after brain tumour surgery. A discharge guide for people with a brain tumour'

Going home after brain tumour surgery. A discharge guide for people with a brain tumour (July 2019)

The Brain Tumour Charity

Going home after brain tumour surgery can feel quite overwhelming. We know there can be a lot of information to process and you may find that you have more questions, or need additional information or support. This leaflet provides information and answers to questions often asked by people after brain tumour surgery.

Cover image of 'Understanding ductal carcinoma in situ (DCIS)'

Understanding ductal carcinoma in situ (DCIS) (January 2019)

Macmillan Cancer Support

This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.

Cover image of 'Ductal carcinoma in situ (DCIS) [Italian]'

Ductal carcinoma in situ (DCIS) [Italian] (January 2019)

Macmillan Cancer Support

A translation of selected pages from the Macmillan Cancer Support booklet “Understanding ductal carcinoma in situ (MAC12870_E04_N) into Italian, including what it is and surgery.

Cover image of 'Understanding breast cancer in women'

Understanding breast cancer in women (January 2019)

Macmillan Cancer Support

This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.

Cover image of 'Understanding secondary cancer in the bone'

Understanding secondary cancer in the bone (April 2019)

Macmillan Cancer Support

This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help. 

Cover image of 'Cancer and pregnancy'

Cancer and pregnancy (November 2019)

Macmillan Cancer Support|Mummy's Star

This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you. 

Cover image of 'Heart health and cancer treatment'

Heart health and cancer treatment (February 2019)

Macmillan Cancer Support and British Heart Foundation

Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.

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