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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Myeloma UK
This Infoguide contains information about the range of different tests and investigations that are done as part of the process of diagnosing myeloma, and later in the course of the disease. It covers why and when the tests are done, and what they entail.
Anthony Nolan
This booklet for anyone thinking about donating their stem cells to a relative who needs a transplant to treat a blood cancer or blood disorder. It will explain why a donation is needed and what happens at each step of the process.
Blood Cancer UK
This factsheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells.
Myeloma UK
High-dose therapy and stem cell transplantation is a treatment option for many people who have myeloma. This booklet explains what high-dose therapy and stem cell transplantation is, why it is needed, and the advantages and disadvantages of this treatment. It also discusses what will happen during the procedure, what to do on returning home, and feelings and relationships.
Anthony Nolan
Losing someone close after a stem cell transplant can be devastating. Although it is a challenging treatment, there is often a lot of hope that it will give a long-term remission. Bereavement is a personal experience and there is no right or wrong way to grieve. This guide was developed with people who lost a partner or family member after a stem cell transplant. The post-transplant experience leading up to the bereavement can leave you with questions and emotions; this guide aims to help you identify those emotions and answer some of your questions.
Anthony Nolan
A short illustrated guide to what happens next if you or someone you know needs a stem cell transplant.
Anthony Nolan
A booklet for anyone about to have a stem cell or bone marrow transplant. It will help you prepare for your stay in one of your hospital or transplant centre’s protective isolation units. It’s been written with guidance and advice from patients and specialist healthcare professionals.
Children's Cancer and Leukaemia Group
This factsheet is written to help explain what is involved when you undergo a peripheral blood stem cell (PBSC) harvest. It explains what haematopoietic stem cells are, why they are collected, and what happens before, during and after the harvest.
Children's Cancer and Leukaemia Group
A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.
Lymphoma Action
Some people with lymphoma need an infusion of immunoglobulins to strengthen their immune system if their own antibody levels are low. People with chronic lymphocytic leukaemia (CLL) or who have had an allogeneic (donor) stem cell transplant are most likely to have this treatment. This factsheet explains what immunoglobulin replacement therapy id, who might need it, how it is gives, possible side effects, and what happens after treatment.
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