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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 243

Cover image of 'Understanding stem cell transplants using donor cells (allogeneic)'

Understanding stem cell transplants using donor cells (allogeneic) (January 2020)

Macmillan Cancer Support

This booklet is for anyone who is going to have a donor stem cell transplant.There is also information for carers, family members and friends. The booklet explains what a donor stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Talking to children about lymphoma'

Talking to children about lymphoma (June 2020)

Lymphoma Action

Guidance for people with lymphoma on what to tell their children and where to find other resources: Should I tell my child?; How can I talk to my child about lymphoma?; What should I say?; Keep communication open; Older children and teenagers; If someone close to you has lymphoma: animations for children; Resources.

Cover image of 'Spot skin cancer early'

Spot skin cancer early (May 2020)

Cancer Research UK

This leaflet describes the early signs of skin cancer and includes photographs to help spot the signs.

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers'

Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers (March 2020)

Colostomy UK

This booklet is for anyone responsible for caring for someone with a stoma. It briefly describes what a stoma is and why people have stoma surgery, then covers the practical aspects of caring for someone with a stoma. This includes everything from ordering medical supplies and disposing of waste, to diet, changing a stoma bag and recognising some of the common problems, such as sore skin. It also considers the concerns that people with stomas have and how these can impact on their physical and mental wellbeing. 

Cover image of 'Sun safety and skin cancer. The facts, prevention and early detection'

Sun safety and skin cancer. The facts, prevention and early detection (2019)

SKCIN: The Karen Clifford Skin Cancer Charity

Leaflet with information about skin cancer and how to avoid it, including: sunburn; sunbeds; protecting young children; choosing the right sunscreen; applying sunscreen; at risk groups; types of skin cancer.

Cover image of 'Intestinal T-cell lymphomas'

Intestinal T-cell lymphomas (August 2019)

Lymphoma Action

Intestinal T-cell lymphomas are rare types of T-cell lymphoma that develop in the small bowel; they include enteropathy-associated T-cell lymphoma (EATL) and monomorphic epitheliotropic intestinal T-cell lymphoma (MEITL). This factsheet explains what intestinal T-cell lymphoma is and who gets it, and describes the symptoms, treatment, relapsed or refractory intestinal T-cell lymphoma, research, and targeted treatments.

Cover image of 'T-cell lymphomas'

T-cell lymphomas (August 2019)

Lymphoma Action

An overview of T-cell lymphomas – non-Hodgkin lymphomas that develop from a type of white blood cell called a T lymphocyte or T cell. Contents: What are T-cell lymphomas?; Who gets T-cell lymphomas?; Symptoms; Diagnosis and staging; Types of T-cell lymphoma; Outlook; Treatment; Follow-up.

Cover image of 'Glans resurfacing and split skin graft/Glansectomy'

Glans resurfacing and split skin graft/Glansectomy (March 2019)

Orchid – Fighting Male Cancer

This information sheet describes glans resurfacing and glansectomy,  how surgery is carried out, aftercare, and possible complications.

Cover image of 'Post-transplant lymphoproliferative disorder (PTLD)'

Post-transplant lymphoproliferative disorder (PTLD) (April 2019)

Lymphoma Action

Post-transplant lymphoproliferative disorders (PTLD) are lymphomas that can develop in people who are taking treatment to dampen their immune system after a transplant. This factsheet covers: What is PTLD?; What causes PTLD?; Who might get PTLD?; Symptoms of PTLD; Treatment for PTLD; Risks associated with PTLD.

Cover image of 'Treatment for lymphoma'

Treatment for lymphoma (May 2019)

Lymphoma Action

Different lymphomas may need different treatment. This information sheet gives you a brief overview of treatment for lymphoma and tells you where to find more information.

Cover image of 'Thrombocytopenia (low platelets)'

Thrombocytopenia (low platelets) (February 2019)

Lymphoma Action

People with lymphoma sometimes have thrombocytopenia because of the lymphoma itself or as a side effect of treatment. This can put them at a higher risk of bleeding and bruising. This factsheet explains what thrombocytopenia is and why people with lymphoma get thrombocytopenia and describes the symptoms, treatment and how to reduce the risk of bleeding.

Cover image of 'Adult T-cell leukaemia/lymphoma (ATL)'

Adult T-cell leukaemia/lymphoma (ATL) (August 2019)

Lymphoma Action

This factsheet is about adult T-cell leukaemia/lymphoma (ATL), a rare type of T-cell lymphoma associated with the HTLV-1 virus. It covers: What is ATL?; Who gets it?; Symptoms; Treatment; Relapsed and refractory ATL; Research and targeted treatments. 

Cover image of 'Questions about clinical trials'

Questions about clinical trials (July 2019)

Lymphoma Action

Frequently asked questions and answers about taking part in a clinical trial.

Cover image of 'Diffuse large B-cell lymphoma (DLBCL)'

Diffuse large B-cell lymphoma (DLBCL) (July 2019)

Lymphoma Action

Diffuse large B-cell lymphoma (DLBCL) is a high-grade non-Hodgkin lymphoma. This factsheet describes what it is, who gets it, the symptoms, diagnosis and staging, the types of DLBCL, the outlook, treatment, follow-up, relapsed or refractory DLBCL, and research and targeted treatments

Cover image of 'Non-Hodgkin lymphoma'

Non-Hodgkin lymphoma (April 2019)

Lymphoma Action

An overview of non-Hodgkin lymphoma (NHL), including: What is non-Hodgkin lymphoma?; Who gets non-Hodgkin lymphoma?; Types of non-Hodgkin lymphoma. 

Cover image of 'Bowel problems'

Bowel problems (August 2019)

Lymphoma Action

Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).

Cover image of 'Lymphoma and HIV'

Lymphoma and HIV (April 2019)

Lymphoma Action

This factsheet gives an overview of human immunodeficiency virus (HIV) and lymphoma. It is for people who have HIV and want to know more about their risk of developing lymphoma, or who have been diagnosed with lymphoma and want more information about what happens next and where to go for more information and support. It covers the following topics: About HIV and lymphoma; Being diagnosed with lymphoma and HIV; Types of lymphoma; Symptoms; Treatment; Outlook; Relapse; Looking after yourself; After treatment for lymphoma; Further information and support.

Cover image of 'CAR T cells'

CAR T cells (October 2019)

Lymphoma Action

CAR T-cell therapy, is a type of targeted treatment used for certain types of high-grade (fast-growing) lymphoma. This factsheet explains what CAR T cells are, who can have them and how they are given, the benefits, and the possible side effects.

Cover image of 'Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS)'

Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS) (August 2019)

Lymphoma Action

When a T-cell lymphoma doesn’t fit into any particular category of T-cell lymphoma, it is called peripheral T-cell lymphoma not otherwise specified (PTCL-NOS). This factsheet covers: What is PTCL-NOS?; Who gets it?; Symptoms; Treatment; Relapsed or refractory PTCL-NOS; Research and targeted treatments.

Cover image of 'The emotional impact of living with lymphoma'

The emotional impact of living with lymphoma (August 2019)

Lymphoma Action

Adjusting to life with, and after, lymphoma can have a significant impact on emotional wellbeing. Each person has their own, unique experience of lymphoma. This factsheet covers the following area: Feelings after a lymphoma diagnosis; Coping with waiting; The impact of having treatment for lymphoma; Your feelings after finishing treatment for lymphoma; Depression; Coping with difficult feelings; Counselling; Life after treatment: finding your ‘new normal’; Other sources of support.

Cover image of 'Biopsy'

Biopsy (July 2019)

Lymphoma Action

This information sheet describes different types of biopsy and what to expect.

Cover image of 'Splenectomy (having your spleen removed)'

Splenectomy (having your spleen removed) (March 2019)

Lymphoma Action

This factsheet has information for people with lymphoma who have had their spleen removed. It describes the function of the spleen, what happens when it is removed and how to reduce the risk of infection.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (April 2019)

Lymphoma Action

This factsheet gives an overview of Hodgkin lymphoma: what it is; who might get it; and the different types.

Cover image of 'Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL)'

Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL) (August 2019)

Lymphoma Action

Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL) are thought to develop from the same type of cell and are treated in the same way. This factsheet describes what they are, who gets them, the symptoms, treatment, relapsed and refractory AITL and FTCL, and research and targeted treatments

Cover image of 'Follicular lymphoma'

Follicular lymphoma (October 2019)

Lymphoma Action

This factsheet is about follicular lymphoma, the most common type of low-grade non-Hodgkin lymphoma (NHL). Contents include: Quick overview; What is follicular lymphoma?; Who gets follicular lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Paediatric follicular lymphoma; Follow-up; Transformation; Relapse; Research and targeted treatments.

Cover image of 'Treatment for lymphoma [Easy read]'

Treatment for lymphoma [Easy read] (January 2019)

Lymphoma Action

This booklet covers what treatment is, what chemotherapy, radiotherapy and stem cell transplants are, and what side effects you might get from treatment. 

Cover image of 'Complementary therapy'

Complementary therapy (June 2019)

Lymphoma Action

This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.

Cover image of 'Extranodal NK-T-cell lymphoma, nasal type'

Extranodal NK-T-cell lymphoma, nasal type (August 2019)

Lymphoma Action

This factsheet is about extranodal NK/T-cell lymphoma, nasal type – a rare lymphoma associated with Epstein-Barr virus (EBV) infection, which usually develops in the nose. It covers: What is extranodal NK/T-cell lymphoma? Who gets it? Symptoms; Treatment; Relapsed or refractory extranodal NK/T-cell lymphoma; Research and targeted treatments.

Cover image of 'Self (autologous) stem cell transplants'

Self (autologous) stem cell transplants (July 2019)

Lymphoma Action

This factsheet is about stem cell transplants that use your own stem cells (autologous stem cell transplants). It covers: What is a self (autologous) stem cell transplant?; Who might have one?; What does it involve?; What are the risks?; Follow-up; Recovery. 

Cover image of 'Hepatosplenic T-cell lymphoma'

Hepatosplenic T-cell lymphoma (August 2019)

Lymphoma Action

Hepatosplenic T-cell lymphoma is a rare type of lymphoma that affects the liver and spleen. This factsheet covers the following topics: What is hepatosplenic T-cell lymphoma?; Who gets it?; Symptoms; Treatment; Relapsed or refractory hepatosplenic T-cell lymphoma; Research and targeted treatments.

Cover image of 'Idelalisib'

Idelalisib (October 2019)

Lymphoma Action

Idelalisib is a targeted drug used in the treatment of certain types of lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Antibody therapy for lymphoma (including rituximab)'

Antibody therapy for lymphoma (including rituximab) (February 2019)

Lymphoma Action

This factsheet explains what antibody therapy is and how it is used to treat lymphoma.

Cover image of 'Ibrutinib'

Ibrutinib (November 2019)

Lymphoma Action

This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.

Cover image of 'Watch and wait for lymphoma [Easy read]'

Watch and wait for lymphoma [Easy read] (January 2019)

Lymphoma Action

This booklet covers what watch and wait is, who might go on watch and wait and what happens at your check-ups with your doctors. 

Cover image of 'Reduced fertility'

Reduced fertility (April 2019)

Lymphoma Action

This factsheet gives an overview of the risks to fertility associated with common lymphoma treatments. It outlines methods to help preserve fertility before treatment. Topics include: chemotherapy and fertility; radiotherapy and fertility; targeted therapies and fertility; preserving fertility; planning a family after lymphoma treatment; ways to help you conceive if you have fertility difficulties; emotional support; useful resources and organisations

Cover image of 'Fatigue'

Fatigue (November 2019)

Lymphoma Action

Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2019)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'Anaemia'

Anaemia (February 2019)

Lymphoma Action

Many people with lymphoma are affected by anaemia at some point during their illness, either because of the lymphoma itself or as a side effect of the treatment they are having. This factsheet describes what anaemia is and what causes it, why haemoglobin is important and how much you should have, the symptoms of anaemia, and its treatment.

Cover image of 'Having a stem cell transplant'

Having a stem cell transplant (July 2019)

Lymphoma Action

Stem cell transplants are an intensive form of treatment that involve a number of steps. This factsheet outlines the main steps in self (autologous) and donor (allogeneic) stem cell transplants: Preparation; Collecting the stem cells; High-dose anti-cancer therapy (conditioning); Stem cell infusion; Waiting for your blood counts to recover (engraftment).

Cover image of 'Classical Hodgkin lymphoma'

Classical Hodgkin lymphoma (April 2019)

Lymphoma Action

This factsheet is about classical Hodgkin lymphoma. It describes what it is, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapsed and refractory classical Hodgkin lymphoma, and research.

Cover image of 'About clinical trials'

About clinical trials (July 2019)

Lymphoma Action

This factsheet is about clinical trials for lymphoma: what they are, why they are done, how they are organised and what they involve for those who take part. 

Cover image of 'Donor (allogeneic) stem cell transplants'

Donor (allogeneic) stem cell transplants (July 2019)

Lymphoma Action

This information is about allogeneic (donor) stem cell transplants for people with lymphoma. It explains what a donor (allogeneic) stem cell transplant is, who might have one, what is involved, the risks and what happens afterwards?

Cover image of 'Women's health guide'

Women's health guide (2019)

World Cancer Research Fund

Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, dietary supplements, alcohol, and physical activity. Includes brief information on the most common symptoms of breast, bowel, lung, womb, ovarian, cervical and skin cancer and information on screening tests where applicable.

Cover image of 'Staging of lymphoma'

Staging of lymphoma (April 2019)

Lymphoma Action

This factsheet is about staging of Hodgkin lymphoma and non-Hodgkin lymphoma. Staging is used to work out which parts of your body are affected by lymphoma. It covers: What is staging?; Staging of lymphoma in adults; Staging of lymphoma in children; ‘Early’ stage and ‘advanced’ stage lymphoma.

Cover image of 'Exercise and physical activity'

Exercise and physical activity (June 2019)

Lymphoma Action

Physical activity can improve your physical and emotional health. This factsheet covers physical activity before, during and after treatment for lymphoma. It has tips to help you build physical activity into your day-to-day life in ways that are safe for you. 

Cover image of 'Stem cell transplants'

Stem cell transplants (July 2019)

Lymphoma Action

An overview of stem cell transplants in the treatment of lymphoma. The factsheet outlines the difference between a self (autologous) stem cell transplant and a donor (allogeneic) stem cell transplant. Contents: What are stem cells?; What is a stem cell transplant?; Why are stem cell transplants used?; When are stem cell transplants used?; Self (‘autologous’) and donor (‘allogeneic’) stem cell transplants.

Cover image of 'Peripheral neuropathy'

Peripheral neuropathy (April 2019)

Lymphoma Action

Peripheral neuropathy may be a side-effect of chemotherapy. This factsheet describes peripheral neuropathy, the chemotherapy drugs that most commonly cause it, the symptoms and diagnosis, reducing the risk and managing the symptoms.

Cover image of 'Day-to-day living'

Day-to-day living (June 2019)

Lymphoma Action

Living with lymphoma can have an impact on day-to-day life. This factsheet tells you where you can find out more and get help with everyday practicalities: working; studying; driving and getting around; finances; sleeping; hobbies and interests; smoking and drugs; vaccinations; organising your paperwork.

Cover image of 'Growth factors'

Growth factors (February 2019)

Lymphoma Action

This factsheet is about blood cell growth factors, specifically granulocyte-colony stimulating factor (G-CSF), which may be given as part of treatment for lymphoma. It explains what growth factors are, when they can be used, how they are given, and possible side effects.

Cover image of 'Managing stress'

Managing stress (June 2019)

Lymphoma Action

Living with lymphoma can cause a great deal of stress, whether you have been diagnosed or someone close to you has. This factsheet outlines common signs of stress and offers practical tips to help you manage it. Contents: What is stress?; What circumstances bring stress?; Can stress make my lymphoma worse?; Managing stress; Living with and beyond lymphoma. 

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