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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 251

Cover image of 'Skin (cutaneous) B-cell lymphoma'

Skin (cutaneous) B-cell lymphoma (April 2019)

Lymphoma Action

Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheeet is about a rare type of skin lymphoma called B-cell skin lymphoma (also known as cutaneous B-cell lymphoma or CBCL). It covers the folloiwing topics: What is B-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of B-cell skin lymphoma; Low-grade B-cell skin lymphoma; High-grade B-cell skin lymphoma; Outlook; Follow-up; Research and clinical trials.

Cover image of 'Skin (cutaneous) T-cell lymphoma'

Skin (cutaneous) T-cell lymphoma (April 2019)

Lymphoma Action

Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheet is about the most common group of skin lymphomas, T-cell skin lymphomas and covers: What is T-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of T-cell skin lymphoma including mycosis fungoides and Sézary syndrome; Outlook; Follow-up; Research and clinical trials.

Cover image of 'Living with skin lymphoma'

Living with skin lymphoma (April 2019)

Lymphoma Action

This factsheet has advice and support to help you manage symptoms and to live well with skin (cutaneous) lymphoma. It overs the following topics: Alleviating itching and dryness; Minimising skin irritation; Treating an infection; Controlling your temperature; Managing pain; Improving the appearance of your skin; Day-to-day life.

Cover image of 'Treatments for skin lymphoma'

Treatments for skin lymphoma (April 2019)

Lymphoma Action

This factsheet has information about the different treatments used for skin (cutaneous) lymphomas. It covers the following: How are skin lymphomas treated?; Active monitoring; Topical (skin-directed) treatments; Light treatment (phototherapy); Radiotherapy; Systemic (whole body) treatments; Stem cell transplants; Research and future treatments.

Cover image of 'Skin lymphoma'

Skin lymphoma (April 2019)

Lymphoma Action

Skin lymphoma (cutaneous lymphoma) is a rare condition that can be hard to diagnose. This factsheet may be helpful if you are worried you could have skin lymphoma or if your doctor suspects that you may have it. It covers: What is skin lymphoma?; Who gets it?; What does it look like?; Diagnosis; After diagnosis; If it isn’t skin lymphoma.

Cover image of 'Dry, sore and itchy skin'

Dry, sore and itchy skin (June 2019)

Lymphoma Action

Skin problems can be a symptom of lymphoma. They can also be a side effect of some treatments. This factsheet has suggestions to help you manage dry, sore and itchy skin. Contents: Skin problems as a symptom of lymphoma; Skin problems as a side effect of treatment; Managing sore, dry and itchy skin.

Cover image of 'Anaplastic large cell lymphoma (ALCL)'

Anaplastic large cell lymphoma (ALCL) (August 2019)

Lymphoma Action

ALCL can be cutaneous (found only in the skin) or systemic (affecting the whole body). This information sheet is about systemic ALCL.  

Cover image of 'Steroids'

Steroids (April 2019)

Lymphoma Action

Steroids are often part of treatment for Hodgkin and non-Hodgkin lymphoma, including cutaneous (skin) lymphoma. This factsheet explains what steroids are, when and how they might be given, possible side effects, and the precautions that people should take when they are on steroids.

Cover image of 'Coping with common symptoms of lymphoma'

Coping with common symptoms of lymphoma (November 2018)

Lymphoma Action

This factsheet has general guidance for coping with some of the symptoms of lymphoma, including: swollen lymph nodes; fatigue;  weight loss; night sweats; itching; pain; skin symptoms; swollen arms or legs; and coping with your emotions.

Cover image of 'Symptoms of lymphoma'

Symptoms of lymphoma (November 2018)

Lymphoma Action

This information gives details about the symptoms of lymphoma and the possible reasons for them: B symptoms; swollen lymph nodes; fatigue; unexplained weight loss; night sweats; itching; fever; difficulty getting over infections; chest symptoms; abdominal (tummy) symptoms; pain; skin symptoms; brain and nerve symptoms; swelling in the arms or legs; anaemia (low red blood cells). 

Cover image of 'Low-grade non-Hodgkin lymphoma'

Low-grade non-Hodgkin lymphoma (September 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of low-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what to expect during and after treatment.

Cover image of 'Grey zone, double-hit, triple-hit, and high-grade B-cell lymphomas, not otherwise specified (NOS)'

Grey zone, double-hit, triple-hit, and high-grade B-cell lymphomas, not otherwise specified (NOS) (April 2020)

Lymphoma Action

This factsheet is about rare types of high-grade B-cell lymphoma that are difficult to classify: grey zone lymphoma; double-hit and triple-hit lymphoma; and high-grade B-cell lymphoma, not otherwise specified (NOS). It covers the following topics:  What types of high-grade B-cell lymphoma are difficult to classify?; Grey zone lymphoma; Double-hit and triple-hit lymphoma; High-grade B-cell lymphoma, not otherwise specified (NOS); Treatment; Finding information.

Cover image of 'What is lymphoma?'

What is lymphoma? (March 2020)

Lymphoma Action

An overview of how cancer develops and what lymphoma is. 

Cover image of 'Lymphoma during pregnancy'

Lymphoma during pregnancy (February 2020)

Lymphoma Action

This factsheet is about treatment for lymphoma during pregnancy. It covers the following: How common is lymphoma during pregnancy; Lymphoma diagnosis during pregnancy; Treatment during pregnancy; Frequently asked questions (FAQs).

Cover image of 'What happens if lymphoma relapses?'

What happens if lymphoma relapses? (February 2020)

Lymphoma Action

This factsheet gives an overview of what happens if lymphoma comes back (relapses) or doesn’t respond to treatment (refractory lymphoma). It covers: What is relapsed or refractory lymphoma? Who might experience relapse? How will I know if my lymphoma has relapsed? What happens if lymphoma relapses? How is relapsed or refractory lymphoma treated? What happens if there is no further treatment for my lymphoma?

Cover image of 'Rituximab for lymphoma'

Rituximab for lymphoma (February 2020)

Lymphoma Action

This factsheet is about the monoclonal antibody rituximab in the treatment of lymphoma. It tells you how rituximab works, who might be given it and what to expect during treatment. 

Cover image of 'Nodal marginal zone lymphoma'

Nodal marginal zone lymphoma (January 2020)

Lymphoma Action

This factsheet is about nodal marginal zone lymphoma – a rare, slow-growing type of non-Hodgkin lymphoma. Contents: What is nodal marginal zone lymphoma?; Who gets nodal marginal zone lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Transformation; Follow-up; Relapsed and refractory nodal marginal zone lymphoma; Research and targeted treatments.

Cover image of 'Splenic marginal zone lymphoma'

Splenic marginal zone lymphoma (January 2020)

Lymphoma Action

Splenic marginal zone lymphoma is a slow-growing type of non-Hodgkin lymphoma that develops in the spleen. This factsheet covers the following topics: What is splenic marginal zone lymphoma?; Who gets splenic marginal zone lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Transformation; Follow-up; Relapsed or refractory splenic marginal zone lymphoma; Research and targeted treatments.

Cover image of 'MALT lymphoma (extranodal marginal zone lymphoma)'

MALT lymphoma (extranodal marginal zone lymphoma) (January 2020)

Lymphoma Action

This factsheet is about MALT lymphoma – a slow-growing type of non-Hodgkin lymphoma. It most commonly develops in the stomach (gastric MALT lymphoma) but can develop in other parts of the body (non-gastric MALT lymphoma). Contents: What is MALT lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Follow-up; Relapsed and refractory MALT lymphoma; Research and targeted treatments.

Cover image of 'Brentuximab vedotin'

Brentuximab vedotin (April 2020)

Lymphoma Action

Brentuximab vedotin is a targeted drug used in the treatment of certain types of lymphoma. This factsheets explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Other targeted drugs for lymphoma'

Other targeted drugs for lymphoma (February 2020)

Lymphoma Action

This factsheet is about some of the other targeted drugs approved for people with lymphoma. It explains what types of targeted drugs are available: radioimmunotherapy; cell signal blockers; proteasome inhibitors; and immunomodulators.

Cover image of 'Targeted drugs for lymphoma'

Targeted drugs for lymphoma (January 2020)

Lymphoma Action

This factsheet is about targeted drugs: What are targeted drugs?; Who can have targeted drugs?; What targeted drugs are approved for lymphoma?; Lymphoma research and drugs in development.

Cover image of 'Caring for someone who has lymphoma'

Caring for someone who has lymphoma (February 2020)

Lymphoma Action

A carer is someone who looks after a person with an illness or disability without getting paid for it. You are a carer if you’re looking after a relative or a friend with lymphoma. This factsheet outlines the kind of help a carer might provide and lists sources of specialist support available to carers. Contents: Am I a carer?; Offering emotional support; Offering practical support; What if someone doesn’t accept help?; Emotional impact of being a carer; Emotional support for you as a care; Practical support for you as a carer.

Cover image of 'Chemotherapy regimens for lymphoma'

Chemotherapy regimens for lymphoma (February 2020)

Lymphoma Action

This information sheet is about chemotherapy regimens (combinations of drugs) for lymphoma. It covers: What is a chemotherapy regimen?; Common chemotherapy regimens for lymphoma; Which chemotherapy regimen might I have?; Side effects of chemotherapy regimens. Includes a list of the most common chemotherapy regimens for lymphoma. 

Cover image of 'Newer antibodies against CD20'

Newer antibodies against CD20 (April 2020)

Lymphoma Action

Newer antibodies against CD20 are beginning to offer alternatives to rituximab for some people with lymphoma. This factsheet covers: antibodies targeting CD20; ofatumumab (Arzerra®); obinutuzumab (Gazyvaro®). It considers who can have these antibodies, how they are given, possible side effects.

Cover image of 'Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL)'

Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) (February 2020)

Lymphoma Action

Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) are different forms of the same disease and are treated in the same way. CLL is used to refer to both forms of disease, except where there are important differences. This factsheet descrives what CLL is, who gets it, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapse, research and targeted treatments, transformation, and living with CLL 

Cover image of 'Young person's guide to lymphoma'

Young person's guide to lymphoma (January 2020)

Lymphoma Action

Comprehensive booklet for young people with lymphoma. 

Cover image of 'Diffuse large B-cell lymphoma [Polish]'

Diffuse large B-cell lymphoma [Polish] (January 2020)

Macmillan Cancer Support

Diffuse large B-cell lymphoma is a specific type of non-Hodgkin lymphoma. This factsheet describes the signs and symptoms, staging, grading, diagnosis and treatment.

Cover image of 'Understanding stem cell transplants using your own cells (autologous)'

Understanding stem cell transplants using your own cells (autologous) (January 2020)

Macmillan Cancer Support

This booklet is about having a stem cell transplant using your own cells. It is for anyone who is going to have this treatment and there is also information for carers, family members and friends. The booklet explains what an autologous stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Understanding stem cell transplants using donor cells (allogeneic)'

Understanding stem cell transplants using donor cells (allogeneic) (January 2020)

Macmillan Cancer Support

This booklet is for anyone who is going to have a donor stem cell transplant.There is also information for carers, family members and friends. The booklet explains what a donor stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Sun safety and skin cancer. The facts, prevention and early detection'

Sun safety and skin cancer. The facts, prevention and early detection (2019)

SKCIN: The Karen Clifford Skin Cancer Charity

Leaflet with information about skin cancer and how to avoid it, including: sunburn; sunbeds; protecting young children; choosing the right sunscreen; applying sunscreen; at risk groups; types of skin cancer.

Cover image of 'Intestinal T-cell lymphomas'

Intestinal T-cell lymphomas (August 2019)

Lymphoma Action

Intestinal T-cell lymphomas are rare types of T-cell lymphoma that develop in the small bowel; they include enteropathy-associated T-cell lymphoma (EATL) and monomorphic epitheliotropic intestinal T-cell lymphoma (MEITL). This factsheet explains what intestinal T-cell lymphoma is and who gets it, and describes the symptoms, treatment, relapsed or refractory intestinal T-cell lymphoma, research, and targeted treatments.

Cover image of 'T-cell lymphomas'

T-cell lymphomas (August 2019)

Lymphoma Action

An overview of T-cell lymphomas – non-Hodgkin lymphomas that develop from a type of white blood cell called a T lymphocyte or T cell. Contents: What are T-cell lymphomas?; Who gets T-cell lymphomas?; Symptoms; Diagnosis and staging; Types of T-cell lymphoma; Outlook; Treatment; Follow-up.

Cover image of 'Glans resurfacing and split skin graft/Glansectomy'

Glans resurfacing and split skin graft/Glansectomy (March 2019)

Orchid – Fighting Male Cancer

This information sheet describes glans resurfacing and glansectomy,  how surgery is carried out, aftercare, and possible complications.

Cover image of 'Treatment for lymphoma'

Treatment for lymphoma (May 2019)

Lymphoma Action

Different lymphomas may need different treatment. This information sheet gives you a brief overview of treatment for lymphoma and tells you where to find more information.

Cover image of 'Post-transplant lymphoproliferative disorder (PTLD)'

Post-transplant lymphoproliferative disorder (PTLD) (April 2019)

Lymphoma Action

Post-transplant lymphoproliferative disorders (PTLD) are lymphomas that can develop in people who are taking treatment to dampen their immune system after a transplant. This factsheet covers: What is PTLD?; What causes PTLD?; Who might get PTLD?; Symptoms of PTLD; Treatment for PTLD; Risks associated with PTLD.

Cover image of 'Thrombocytopenia (low platelets)'

Thrombocytopenia (low platelets) (February 2019)

Lymphoma Action

People with lymphoma sometimes have thrombocytopenia because of the lymphoma itself or as a side effect of treatment. This can put them at a higher risk of bleeding and bruising. This factsheet explains what thrombocytopenia is and why people with lymphoma get thrombocytopenia and describes the symptoms, treatment and how to reduce the risk of bleeding.

Cover image of 'Talking to children about lymphoma'

Talking to children about lymphoma (July 2019)

Lymphoma Action

Guidance for people with lymphoma on what to tell their children and where to find other resources: Should I tell my child?; How can I talk to my child about lymphoma?; What should I say?; Keep communication open; Older children and teenagers; If someone close to you has lymphoma: animations for children; Resources.

Cover image of 'Bowel problems'

Bowel problems (August 2019)

Lymphoma Action

Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).

Cover image of 'Adult T-cell leukaemia/lymphoma (ATL)'

Adult T-cell leukaemia/lymphoma (ATL) (August 2019)

Lymphoma Action

This factsheet is about adult T-cell leukaemia/lymphoma (ATL), a rare type of T-cell lymphoma associated with the HTLV-1 virus. It covers: What is ATL?; Who gets it?; Symptoms; Treatment; Relapsed and refractory ATL; Research and targeted treatments. 

Cover image of 'Diffuse large B-cell lymphoma (DLBCL)'

Diffuse large B-cell lymphoma (DLBCL) (July 2019)

Lymphoma Action

Diffuse large B-cell lymphoma (DLBCL) is a high-grade non-Hodgkin lymphoma. This factsheet describes what it is, who gets it, the symptoms, diagnosis and staging, the types of DLBCL, the outlook, treatment, follow-up, relapsed or refractory DLBCL, and research and targeted treatments

Cover image of 'The emotional impact of living with lymphoma'

The emotional impact of living with lymphoma (August 2019)

Lymphoma Action

Adjusting to life with, and after, lymphoma can have a significant impact on emotional wellbeing. Each person has their own, unique experience of lymphoma. This factsheet covers the following area: Feelings after a lymphoma diagnosis; Coping with waiting; The impact of having treatment for lymphoma; Your feelings after finishing treatment for lymphoma; Depression; Coping with difficult feelings; Counselling; Life after treatment: finding your ‘new normal’; Other sources of support.

Cover image of 'Splenectomy (having your spleen removed)'

Splenectomy (having your spleen removed) (March 2019)

Lymphoma Action

This factsheet has information for people with lymphoma who have had their spleen removed. It describes the function of the spleen, what happens when it is removed and how to reduce the risk of infection.

Cover image of 'Anaemia'

Anaemia (February 2019)

Lymphoma Action

Many people with lymphoma are affected by anaemia at some point during their illness, either because of the lymphoma itself or as a side effect of the treatment they are having. This factsheet describes what anaemia is and what causes it, why haemoglobin is important and how much you should have, the symptoms of anaemia, and its treatment.

Cover image of 'Questions about clinical trials'

Questions about clinical trials (July 2019)

Lymphoma Action

Frequently asked questions and answers about taking part in a clinical trial.

Cover image of 'Lymphoma and HIV'

Lymphoma and HIV (April 2019)

Lymphoma Action

This factsheet gives an overview of human immunodeficiency virus (HIV) and lymphoma. It is for people who have HIV and want to know more about their risk of developing lymphoma, or who have been diagnosed with lymphoma and want more information about what happens next and where to go for more information and support. It covers the following topics: About HIV and lymphoma; Being diagnosed with lymphoma and HIV; Types of lymphoma; Symptoms; Treatment; Outlook; Relapse; Looking after yourself; After treatment for lymphoma; Further information and support.

Cover image of 'Reduced fertility'

Reduced fertility (April 2019)

Lymphoma Action

This factsheet gives an overview of the risks to fertility associated with common lymphoma treatments. It outlines methods to help preserve fertility before treatment. Topics include: chemotherapy and fertility; radiotherapy and fertility; targeted therapies and fertility; preserving fertility; planning a family after lymphoma treatment; ways to help you conceive if you have fertility difficulties; emotional support; useful resources and organisations

Cover image of 'CAR T cells'

CAR T cells (October 2019)

Lymphoma Action

CAR T-cell therapy, is a type of targeted treatment used for certain types of high-grade (fast-growing) lymphoma. This factsheet explains what CAR T cells are, who can have them and how they are given, the benefits, and the possible side effects.

Cover image of 'Exercise and physical activity'

Exercise and physical activity (June 2019)

Lymphoma Action

Physical activity can improve your physical and emotional health. This factsheet covers physical activity before, during and after treatment for lymphoma. It has tips to help you build physical activity into your day-to-day life in ways that are safe for you. 

Cover image of 'Non-Hodgkin lymphoma'

Non-Hodgkin lymphoma (April 2019)

Lymphoma Action

An overview of non-Hodgkin lymphoma (NHL), including: What is non-Hodgkin lymphoma?; Who gets non-Hodgkin lymphoma?; Types of non-Hodgkin lymphoma. 

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