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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 243

Cover image of 'Practical advice for parents and carers of children with lymphoma'

Practical advice for parents and carers of children with lymphoma (November 2018)

Lymphoma Action

This factsheet covers common practical concerns of parents and carers looking after children and young people with lymphoma: When your child is diagnosed; Telling your child; Where your child will be treated; Changes to expect at home; If your child becomes unwell at home; Your child’s diet during treatment; Going back to school; Looking after yourself; Further information and support.

Cover image of 'Bone marrow biopsy'

Bone marrow biopsy (April 2018)

Lymphoma Action

This factsheet describes why a bone marrow test might be carried out and what happens before, during and after the test.

Cover image of 'Lymphoma in young people'

Lymphoma in young people (November 2018)

Lymphoma Action

A factsheet for young people up to the age of 24. It covers the different types of lymphoma in young people, their symptoms, the tests needed, treatment options and their possible side effects, and what happens when treatment is finished.

Cover image of 'Blood tests'

Blood tests (April 2018)

Lymphoma Action

This factsheet is about blood tests you might have before and after being diagnosed with lymphoma. 

Cover image of 'CNS lymphoma'

CNS lymphoma (April 2018)

Lymphoma Action

Lymphoma can sometimes affect the central nervous system (the brain, spinal cord and eyes). This factsheet describes what it is, the differnt types, who gets CNS lymphoma and the causes, the symptoms, diagnosis, and staging, outlook, treatment, relapsed and refractory CNS lymphoma, and living with and after CNS lymphoma.

Cover image of 'Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL)'

Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) (November 2018)

Lymphoma Action

Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) are different forms of the same disease. They are treated in the same way. CLL is used to refer to both forms in this booklet, except where there are important differences and SLL is discussed separately. This booklet explains what CLL is, how it is diagnosed and treated, and has tips on living with CLL. 

Cover image of 'Recovery after treatment'

Recovery after treatment (May 2018)

Lymphoma Action

It can be difficult to know what to expect when you finish treatment for lymphoma. This factsheet is about your recovery from the side effects that may have affected your body during treatment. Contents: The recovery package; How soon will I feel better?; Symptoms to look out for; Late effects of treatment.

Cover image of 'Early menopause'

Early menopause (April 2018)

Lymphoma Action

Early menopause is a side effect that can affect some women who have been treated for lymphoma. This factsheet answers some of the questions that women may have, including: what early menopause is; lymphoma and early menopause; likelihood of early menopause; smptoms; long-term effects; diagnosis; treatment; what women can do to help themselves; FAQs.

Cover image of 'Radiotherapy'

Radiotherapy (April 2018)

Lymphoma Action

This factsheet is about radiotherapy treatment for lymphoma. Contents include: Quick overview; What is radiotherapy?; Radiotherapy for lymphoma; Types of radiotherapy; Where will I have radiotherapy?; Radiotherapy dose; Planning radiotherapy; Having radiotherapy; Side effects; Late effects; Follow-up; FAQs.

Cover image of 'Clinical trials for lymphoma'

Clinical trials for lymphoma (December 2018)

Lymphoma Action

This booklet aims to explain what clinical trials are and what they might involve. It also describes some recent trials of importance for people with lymphoma. It includes the personal experiences of four people who took part in clinical trials for lymphoma.

Cover image of 'Ultrasound scan'

Ultrasound scan (April 2018)

Lymphoma Action

This factsheet describes the use of ultrasound scans in the diagnosis of lymphoma. It explains why the test is used and describes what happens during the scan.

Cover image of 'Immunoglobulin replacement therapy'

Immunoglobulin replacement therapy (April 2018)

Lymphoma Action

Some people with lymphoma need an infusion of immunoglobulins to strengthen their immune system if their own antibody levels are low. People with chronic lymphocytic leukaemia (CLL) or who have had an allogeneic (donor) stem cell transplant are most likely to have this treatment. This factsheet explains what immunoglobulin replacement therapy id, who might need it, how it is gives, possible side effects, and what happens after treatment.  

Cover image of 'Blood transfusions'

Blood transfusions (April 2018)

Lymphoma Action

This factsheet aims to answer the most common questions that people with lymphoma have about blood transfusion, including what it is, who might need one, having a blood transfusion, safety, and irradiated blood.

Cover image of 'The lymphatic system'

The lymphatic system (April 2018)

Lymphoma Action

Lymphoma is a cancer of the lymphatic system. The lymphatic system is part of your immune system, which helps protect you from infection. It is spread throughout your body, like blood vessels, and has many different parts. This factsheet describes the different parts of the lymphatic system and what they do: What is the lymphatic system?; Lymph; Lymph nodes; Bone marrow; Thymus; Spleen; Tonsils and adenoid; Mucosa-associated lymphoid tissue; The lymphatic system and lymphoma. 

Cover image of 'Information about skin cancer for patients with an organ transplant'

Information about skin cancer for patients with an organ transplant (June 2018)

British Association of Dermatologists

This factsheet aims to help you understand the risk of developing skin cancer after receiving an organ transplant. It explains the importance of early detection and treatment of skin cancers. It describes the main types of precancerous and cancerous skin growths, how you can reduce the risk of getting skin cancer, and how skin cancer can be treated. 

Cover image of 'Follicular lymphoma [Polish]'

Follicular lymphoma [Polish] (January 2018)

Macmillan Cancer Support

Follicular lymphoma is a specific type of non-Hodgkin lymphoma. This factsheet describes the signs and symptoms, the stages, diagnosis, and treatment.

Cover image of 'Understanding non-Hodgkin lymphoma'

Understanding non-Hodgkin lymphoma (January 2018)

Macmillan Cancer Support

This booklet aims to provide a better understanding of non-Hodgkin lymphomas, their diagnosis and treatment. It also has sections on feelings and sources of practical and financial support. Includes details of useful organisations.

Cover image of 'Menopausal symptoms and breast cancer'

Menopausal symptoms and breast cancer (March 2018)

Breast Cancer Care

A booklet for women who are experiencing menopausal symptoms after breast cancer treatment. It has advice on treatments (prescription drugs and complementary therapies) and practical measures for coping with hot flushes, vaginal dryness, loss of libido, mood swings, joint pain and risk of osteoporosis. Includes details of further support.

Cover image of 'Cryotherapy'

Cryotherapy (March 2018)

British Association of Dermatologists

This factsheet aims to help you understand more about cryotherapy, which may be used to treat basal cell carcinoma. It explains what cryotherapy is and what is involved and describes the potential side effects. 

Cover image of 'ABVD [Bulgarian]'

ABVD [Bulgarian] (May 2018)

Macmillan Cancer Support

Information from the Macmillan Cancer Support website translated into Bulgarian. ABVD chemotherapy is a combination treatment used to treat Hodgkin Lymphoma. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'Diffuse large B-cell lymphoma [Kurdish]'

Diffuse large B-cell lymphoma [Kurdish] (2018)

Macmillan Cancer Support

Diffuse large B-cell lymphoma is a specific type of non-Hodgkin lymphoma. This factsheet describes the signs and symptoms, staging, grading, diagnosis and treatment.

Cover image of 'Melanoma in situ'

Melanoma in situ (August 2018)

British Association of Dermatologists

This factsheet aims to help you understand more about melanoma in situ - the earliest stage of melanoma. It explains what it is, what causes it, the treatment options, and where to find more information.

Cover image of 'R-CHOP chemotherapy [Romanian]'

R-CHOP chemotherapy [Romanian] (October 2018)

Macmillan Cancer Support

R-CHOP is a combination treatment used to treat non-Hodgkin lymphoma (NHL). This factsheet describes the drugs used, how they are given and the possible side-effects.

Cover image of 'MGUS [Polish]'

MGUS [Polish] (July 2018)

Macmillan Cancer Support

Information from the Macmillan Cancer Support website translated into Polish. MGUS (monoclonal gammopathy of unknown significance) is a non-cancerous condition but there is a small risk it developing into a blood cancer, such as myeloma or lymphoma. This information explains what MGUS is, the causes, diagnosis, and treatment and follow up.

Cover image of 'Ifosfamide [French]'

Ifosfamide [French] (March 2018)

Macmillan Cancer Support

Ifosfamide is a chemotherapy drug used to treat different cancers including testicular cancer and some types of soft tissue and bone sarcoma. It may also be used to treat other cancers.This factsheet describes how it is given and the possible side-effects.

Cover image of 'Tom has lymphoma [Welsh]'

Tom has lymphoma [Welsh] (November 2018)

CLIC Sargent|Lymphoma Action

Tom is ten years old when he is diagnosed with lymphoma. This illustrated, colour storybook for parents to read with their children describes what happens when he has to go to the hospital for tests and treatment. The story follows Tom from when he first feels ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Pembrolizumab (Keytruda®) [Chinese, Traditional]'

Pembrolizumab (Keytruda®) [Chinese, Traditional] (May 2018)

Macmillan Cancer Support

Pembrolizumab (Keytruda®) is used to treat melanoma that has spread or cannot be removed (advanced melanoma). It is also used for non-small cell lung cancer, Hodgkin lymphoma, and bladder cancer. This factsheet describes how it works, how it is given, and the possible side-effects.

Cover image of 'Pelvic radiotherapy in women [Polish]'

Pelvic radiotherapy in women [Polish] (September 2018)

Macmillan Cancer Support

A translation of selected pages (6-39: The pelvis; radiotherapy; how radiotherapy might affect you; tiredness; effects on the skin, bladder, bowel, vagina; finding a toilet in a hurry; effects on sex life and fertility; early menopause) from Macmillan Cancer Support’s booklet “Pelvic radiotherapy in women. Managing the side effects" [MAC13944_E03_N].

Cover image of 'The emotional impact of a blood cancer. A guide for patients'

The emotional impact of a blood cancer. A guide for patients (October 2018)

Leukaemia Care

This booklet describes some of the more challenging emotional responses you may experience as you adjust to life following a diagnosis of blood cancer. It must be noted that this information is mainly written in the context of acute leukaemia and is for those who are receiving intensive treatment. However, anyone with a blood cancer diagnosis may find this information useful.

Cover image of 'Understanding lymphoedema'

Understanding lymphoedema (August 2018)

Macmillan Cancer Support

This booklet is about lymphoedema. It is for anyone who has lymphoedema, or is at risk of developing it. It may also be helpful for family members, friends or carers. The booklet explains the signs and symptoms of lymphoedema and how you may be able to reduce your risk of it developing. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'Pelvic radiotherapy in women. Managing side effects during treatment'

Pelvic radiotherapy in women. Managing side effects during treatment (September 2018)

Macmillan Cancer Support

This booklet is for women who are having, or are going to have, radiotherapy to the pelvic area. The pelvic area is the lower part of the tummy (abdomen), between the hips. The booklet explains: side effects that may happen during, or shortly after, pelvic radiotherapy; how side effects can be controlled or reduced; what you can do to help yourself.

Cover image of 'Pelvic radiotherapy in men - managing side effects during treatment'

Pelvic radiotherapy in men - managing side effects during treatment (September 2018)

Macmillan Cancer Support

This booklet has information about the side effects of pelvic radiotherapy during treatment. There is a separate booklet for men experiencing late effects (Managing the late effects of pelvic radiotherapy in men).

Cover image of 'Coping with hair loss'

Coping with hair loss (October 2018)

Macmillan Cancer Support

This booklet is about hair loss. It is for anyone coping with changes to their hair during and after cancer treatment. It explains how cancer treatment may affect your hair, how to prepare for and cope with hair loss, and what to expect after treatment finishes.

Cover image of 'Waldenstrom macroglobulinaemia (WM)'

Waldenstrom macroglobulinaemia (WM) (November 2018)

Blood Cancer UK

Waldenström macroglobulinaemia (WM) is a slow-growing and rare form of blood cancer. It happens when certain blood cells called plasma cells develop in an unusual way in your bone marrow. This fact sheet explains what WM is, how it’s diagnosed and treated, and suggests where to go for more information. 

Cover image of 'High-grade non-Hodgkin lymphoma (NHL). A guide to DLBCL and other fast-growing non-Hodgkin lymphomas'

High-grade non-Hodgkin lymphoma (NHL). A guide to DLBCL and other fast-growing non-Hodgkin lymphomas (June 2018)

Blood Cancer UK

A booklet for people affected by high-grade non-Hodgkin lymphoma (NHL). 

Cover image of 'Low-grade non-Hodgkin lymphoma (NHL). A guide to follicular lymphoma and other slow-growing non-Hodgkin lymphomas'

Low-grade non-Hodgkin lymphoma (NHL). A guide to follicular lymphoma and other slow-growing non-Hodgkin lymphomas (August 2018)

Blood Cancer UK

This booklet is for people affected by low-grade non-Hodgkin lymphoma (NHL). It mainly covers the most common type of low-grade NHL, follicular NHL.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (January 2018)

Blood Cancer UK

This booklet provides information about Hodgkin lymphoma, including the incidence, stages, causes, signs and symptoms, diagnosis, and treatment.

Cover image of 'Death and the elephant. How cancer saved my life'

Death and the elephant. How cancer saved my life (2018)

Unbound

12 June 1995. On his twenty-eighth birthday, Raz Shaw was a directionless gambling addict doing a telesales job that was eating up every trace of what soul he had left. The next day he would be diagnosed with stage 4 sclerosing mediastinal non-Hodgkin’s lymphoma of the large cell type. As he tells it, cancer saved his life. He was given the all-clear in March 1996, and stopped gambling for good that April. After a year away recuperating, he turned his back on the highly paid job that had devoured him and re-assimilated himself into the world of theatre that had once made him feel so alive. It took him a long time to realise quite how much these recoveries were bound up with one another – now he is ready to tell his story. Death and the Elephant is a memoir of living through and beyond illness and addiction. Blessed with the ability to find humour even in life’s darkest moments, Raz charts his struggles with irreverence and unflinching perspective. This is his story, but it’s also a universal one – an honest, funny, sometimes raw, and often inappropriate glimpse into the mind of a young man dealing with a life-threatening illness in the only way he knows how: by laughing in its face. (Publisher)

Cover image of 'P.S. I have cancer. Wrestling melanoma and falling in love'

P.S. I have cancer. Wrestling melanoma and falling in love (2018)

Poetry Space Ltd

Mark Sims, a young doctor was diagnosed with advanced skin cancer just before his 27th birthday. This is the story of his 23-month wrestle with the disease, his passion to raise awareness and funds for vital research and how he found love quite unexpectedly, while working through his bucket list. Sadly, Mark died on January 19th 2017. His book is being published posthumously. (Publisher)

Cover image of 'Skin care'

Skin care (May 2017)

Colostomy UK

Details of companies that supply skin products to help people with a stoma manage their condition.

Cover image of 'Understanding non-Hodgkin lymphoma [Audio CD]'

Understanding non-Hodgkin lymphoma [Audio CD] (2017)

Macmillan Cancer Support

This audiobook explains non-Hodgkin lymphoma, covering the causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also talks about emotional, practical and financial issues. 

Cover image of 'Skin cancer and being safe in the sun'

Skin cancer and being safe in the sun (May 2017)

Action Cancer

Z-card with facts about skin cancer and advice about staying safe in the sun.

Cover image of 'Taking care in the sun and hot weather'

Taking care in the sun and hot weather (November 2017)

Cheshire and Wirral Partnership NHS Foundation Trust

Easy read information on taking care in the sun.

Cover image of 'Side effects of cancer treatment'

Side effects of cancer treatment (January 2017)

Macmillan Cancer Support

This factsheet is about some of the side effects of cancer treatment.

Cover image of 'High-grade non-Hodgkin lymphoma'

High-grade non-Hodgkin lymphoma (June 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.

Cover image of 'Information and advice on skin cancer for patients awaiting an organ transplant'

Information and advice on skin cancer for patients awaiting an organ transplant (February 2017)

British Association of Dermatologists

People who have had an organ transplant are more at risk of developing skin cancer. This leaflet aims to help you reduce your risk by taking good care of your skin in the sun.

Cover image of 'Bowen’s disease (squamous cell carcinoma in situ)'

Bowen’s disease (squamous cell carcinoma in situ) (January 2017)

British Association of Dermatologists

This factsheet aims to help you understand more about Bowen's disease (squamous cell carcinoma in situ). It explains what it is, what causes it, what can be done about it, and where to find out more.

Cover image of 'Biosimilars for lymphoma'

Biosimilars for lymphoma (April 2017)

Lymphoma Action

This factshhet has information about biosimilars of biological medicines for lymphoma. It covers the following: What is a biosimilar?; How are biosimilars tested and approved?; Why are biosimilars developed?; Rituximab biosimilars; FAQs.

Cover image of 'Understanding donor stem cell (allogeneic) transplants [Audio CD]'

Understanding donor stem cell (allogeneic) transplants [Audio CD] (February 2017)

Macmillan Cancer Support

This audiobook gives a wide range of information about allogeneic (donor) stem cell treatment. It includes a list of helpful organisations. 

Cover image of 'Introduction to lymphoma'

Introduction to lymphoma (May 2017)

Lymphoma Action

This booklet covers what lymphoma is, the tests people might have, the treatments available, and questions to ask doctors.

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