Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 243

Cover image of 'Stage 1B melanoma'

Stage 1B melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 1B melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 4 melanoma'

Stage 4 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 4 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Stage 1A melanoma'

Stage 1A melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 1A melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'The man manual. Men's health made easy'

The man manual. Men's health made easy (February 2019)

Haynes Publishing for Men's Health Forum

One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)

Cover image of 'Stage 3 melanoma'

Stage 3 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 3 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia Care

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment'

Feel more like you. Expert advice on caring for your skin, nails and hair during cancer treatment (September 2019)

Macmillan Cancer Support

This booklet explains how certain cancer treatments can cause changes to your appearance. It is for people who have had changes to their skin, nails and hair because of cancer treatment. It gives advice on how to manage these changes to help you feel more like you again. We hope it helps you deal with some of the questions or feelings you may have. 

Cover image of 'Stage 2 melanoma'

Stage 2 melanoma (February 2019)

British Association of Dermatologists

This factsheet describes stage 2 melanoma, including what it is, investigations and treatments, and where to find out more information. It has been prepared in response to some of the questions people with melanoma often ask. 

Cover image of 'R-CHOP chemotherapy [Slovak]'

R-CHOP chemotherapy [Slovak] (October 2019)

Macmillan Cancer Support

R-CHOP is a combination treatment used to treat non-Hodgkin lymphoma (NHL). This factsheet describes the drugs used, how they are given and the possible side-effects.

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia Care

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients'

Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients (October 2019)

Leukaemia Care

This booklet describes T-cell-leukaemia/lymphoma (ATL) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with ATL and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'All about leukaemia [Easy read]'

All about leukaemia [Easy read] (September 2019)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Understanding melanoma and treatment with surgery'

Understanding melanoma and treatment with surgery (July 2019)

Macmillan Cancer Support

This booklet is about a type of skin cancer called melanoma. It includes information about melanoma, how it is diagnosed and how it is treated with surgery. 

Cover image of 'Understanding melanoma. Lymph node assessment and treatment'

Understanding melanoma. Lymph node assessment and treatment (July 2019)

Macmillan Cancer Support

Information for people whose melanoma has spread to the lymph nodes. 

Cover image of 'Understanding melanoma that has come back in the same area'

Understanding melanoma that has come back in the same area (July 2019)

Macmillan Cancer Support

Information for people whose melanoma has come back in the same area (a local recurrence or recurrent melanoma).

Cover image of 'Understanding advanced melanoma'

Understanding advanced melanoma (July 2019)

Macmillan Cancer Support

This booklet explains melanoma that has spread to another area (advanced or metastatic melanoma). It describes advanced melanoma, the signs and symptoms, diagnosis and staging, and the treatment options. It also discusses coping with the symptoms of advanced melanoma and the side effects of treatment, feelings and emotions and lists further sources of support.

Cover image of 'Be safe in the sun'

Be safe in the sun (July 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about how to reduce your risk of cancer. This booklet talks about how to be safe in the sun.  

Cover image of 'Sore mouth or gut (mucositis)'

Sore mouth or gut (mucositis) (December 2019)

Blood Cancer UK

Mucositis is a condition that affects your mucous membrane, the thin skin that covers and protects the inside surface of parts of your body. It can be a painful side effect of chemotherapy or radiotherapy. This factsheet explains how it is caused and who gets it, and describes the signs and symptoms, and how to look after yourself.

Cover image of 'Let's stay safe in the sun'

Let's stay safe in the sun (June 2019)

Cancer Research UK

Information about how to enjoy being in the sun safely and reduce the risk of skin cancer.

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2019)

Blood Cancer UK

Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support. 

Cover image of 'Pampering therapy'

Pampering therapy (April 2019)

Look Good...Feel Better

Information about Look Good Feel Better with details of workshop locations in the UK.

Cover image of 'Tom has lymphoma'

Tom has lymphoma (November 2018)

CLIC Sargent|Lymphoma Action

Tom is ten years old when he is diagnosed with lymphoma. This illustrated, colour storybook for parents to read with their children describes what happens when he has to go to the hospital for tests and treatment. The story follows Tom from when he first feels ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'Mantle cell lymphoma'

Mantle cell lymphoma (April 2018)

Lymphoma Action

This factsheet is about mantle cell lymphoma, an uncommon type of lymphoma that usually behaves like a high-grade (fast-growing) lymphoma. Contents: Quick overview; What is mantle cell lymphoma?;  Who gets mantle cell lymphoma and why?;  Symptoms; Diagnosis and staging; Outlook; Treatment; Relapsed and refractory mantle cell lymphoma.

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2018)

Lymphoma Action

Burkitt lymphoma is a very fast-growing type of high-grade non-Hodgkin lymphoma (NHL). This factsheet is mainly about the sporadic form, which is the most common form of Burkitt lymphoma in the UK. It has a quick overview of Burkitt lymphoma and describes what it is, the causes, symptoms, diagnosis, staging, treatment, follow-up, and relapsed or refractory Burkitt lymphoma.

Cover image of 'The immune system'

The immune system (April 2018)

Lymphoma Action

This factsheet explains what the immue system is, how it works and the different types of cells.

Cover image of 'Chemotherapy'

Chemotherapy (April 2018)

Lymphoma Action

This factsheet explains what chemotherapy is, and why and how it is used to treat lymphoma. It also describes the immediate and long-term side-effects. Includes a list of the commonly used chemotherapy regimens for lymphoma.

Cover image of 'Lymphoma with other health conditions'

Lymphoma with other health conditions (June 2018)

Lymphoma Action

Having another long-term health condition, being older (over 60) or being frail can affect what treatment you may receive for your lymphoma. This factsheet covers the following topics: Common long-term health conditions; Lymphoma treatment and health conditions; Lymphoma treatment and age; Adapting treatment; Support; Understanding your treatment options.

Cover image of 'Neutropenia'

Neutropenia (July 2018)

Lymphoma Action

Many people with lymphoma – and other cancers – are affected by neutropenia at some point during their illness and treatment. Having neutropenia increases the risk of infection. This factsheet describes neutropenia and ts effects, risk factors, treatment and neutropenic diet.

Cover image of 'Lymphoma and the immune system'

Lymphoma and the immune system (April 2018)

Lymphoma Action

This factsheet describes how the immune system is affected by lymphoma and how the immune system may be used to treat lymphoma.

Cover image of 'Chemo brain (cancer-related cognitive impairment)'

Chemo brain (cancer-related cognitive impairment) (April 2018)

Lymphoma Action

This factsheet describes what cancer-related cognitive disorder is, who gets it, the causes, signs, how it is assessed and treated, and how to cope with it.

Cover image of 'Lymphoma drug development, approval and funding'

Lymphoma drug development, approval and funding (October 2018)

Lymphoma Action

This factsheet explains why drug development takes so long, why drugs are so expensive and how you can find out if a drug might be funded on the NHS. 

Cover image of 'Nausea and vomiting'

Nausea and vomiting (April 2018)

Lymphoma Action

Lymphoma treatment may cause nausea and vomiting (sickness). This factsheet has practical advice to help manage and cope with these side effects, including: sickness as a side effect of chemotherapy, radiotherapy, and biological therapy; acute, anticipatory and delayed sickness; managing sickness; tips to help with eating and drinking; other practical suggestions.

Cover image of 'Checkpoint inhibitors'

Checkpoint inhibitors (October 2018)

Lymphoma Action

Checkpoint inhibitors are a type of targeted drug used in the treatment of certain types of lymphoma. This factsheet explains what they are, who can have them and how they are given, the benefits and possible side effects.

Cover image of 'Scans: X-ray, CT, PET and MRI'

Scans: X-ray, CT, PET and MRI (November 2018)

Lymphoma Action

Overview of scans (X-rays, Computed tomography (CT), Positron-emission tomography (PET), Magnetic resonance imaging (MRI)), including what happens before, during and after each procedure.

Cover image of 'Risk of infection'

Risk of infection (October 2018)

Lymphoma Action

People with lymphoma are more likely to get infections than other people. This factsheet explains what signs of infection to look out for and what steps you can take to reduce your risk. Contents: What is infection?; Risk of infection; Signs of infection; What to do if you suspect an infection; Preventing infections; Food safety.

Cover image of 'Your medical team'

Your medical team (April 2018)

Lymphoma Action

If you have lymphoma, your care and treatment are planned and managed by a team of health professionals, known as a multi-disciplinary team (MDT). This factsheet covers the multi-disciplinary team, key workers, and MDT members.

Cover image of 'Active monitoring ('watch and wait') for lymphoma'

Active monitoring ('watch and wait') for lymphoma (June 2018)

Lymphoma Action

Many people with low-grade (slow-growing) non-Hodgkin lymphoma have periods of active monitoring (also referred to as watch and wait or active surveillance) where they do not have treatment for their lymphoma. It can be difficult knowing you have an illness, but are not having treatment. This booklet explains what active monitoring is and why it might be offered to you. It also provides tips on coping well and there is space for notes.

Cover image of 'Lymphoma in children'

Lymphoma in children (November 2018)

Lymphoma Action

This factsheet about lymphoma in children (0 to 14 years old) is primarily intended for parents and carers and covers: What is lymphoma?; Types of lymphoma in children; Symptoms; Tests; Outlook; Treatment; Side effects and late effects of treatment; Relapsed and refractory lymphoma; After treatment; Further information and support.

Cover image of 'Follow-up appointments'

Follow-up appointments (October 2018)

Lymphoma Action

This factsheet explains what to expect from follow-up appointments and how to prepare for them. It is relevant to people of all ages, although follow-up in children, teenagers and young adults may include some additional checks on development and growth. Contents: Follow-up after treatment; What are follow-up appointments for?; Before follow-up appointments; What happens at follow-up appointments?; When will my follow-up finish?.

Cover image of 'Lumbar puncture'

Lumbar puncture (April 2018)

Lymphoma Action

This factsheet describes what a lumbar puncture is, how it is done and why it might be needed.

Cover image of 'Being referred for tests and scans'

Being referred for tests and scans (April 2018)

Lymphoma Action

This factsheet briefly covers the tests the GP can do, how long will does it take to get a hospital appointment, and being referred to a local hospital.

Cover image of 'Self-management and remote monitoring'

Self-management and remote monitoring (October 2018)

Lymphoma Action

More and more people are living longer after a diagnosis of lymphoma. This has prompted some hospitals to change the way they organise long-term management and follow-up for people who have finished treatment. This factsheet explains how self-management support and remote monitoring may be used for people who have finished treatment. It covers: Self-management; Self-management support; Remote monitoring; When to book an appointment; Life on self-management and remote monitoring.

Cover image of 'Causes of lymphoma'

Causes of lymphoma (April 2018)

Lymphoma Action

Information about the causes of lymphoma, including age and sex, family history, immune system problems, infections, previous cancers, non-cancerous factors and other possible causes.

Cover image of 'Waiting for test results'

Waiting for test results (April 2018)

Lymphoma Action

It can be difficult waiting for test results. This factsheet considers topics such as: How long will I need to wait; Why do I need to wait; Coping with waiting.

Cover image of 'Foreign travel: precautions and vaccinations'

Foreign travel: precautions and vaccinations (April 2018)

Lymphoma Action

This factsheet is about safety precautions recommended if you have lymphoma and you are travelling outside the UK. It covers: General precautions when travelling abroad; Planning your trip; Preventing infection; Travel clinics; Travel vaccination; Malaria and mosquitoes.

Cover image of 'Nodular lymphocyte-predominant Hodgkin lymphoma'

Nodular lymphocyte-predominant Hodgkin lymphoma (June 2018)

Lymphoma Action

Nodular lymphocyte-predominant Hodgkin lymphoma (NLPHL) is an uncommon type of Hodgkin lymphoma. This factsheet covers: What is NLPHL?; Who gets NLPHL and why?; Symptoms; Diagnosis and staging; Outlook; Treatment; Relapse; Transformation; Research.

Cover image of 'Transformation of lymphoma'

Transformation of lymphoma (April 2018)

Lymphoma Action

Low-grade (slow-growing) lymphoma can sometimes transform (change) into a faster-growing type of lymphoma. This factsheet explains what transformation is, who could be affected, and why and when it happens. It also describes the symptoms, treatment options and outlook.

Cover image of 'Practical advice for young people with lymphoma'

Practical advice for young people with lymphoma (November 2018)

Lymphoma Action

Practical advice on issues that often concern teenagers and young adults (up to 24 years old) with lymphoma. It covers: After diagnosis; Where you will be treated; Your medical team; Looking after yourself; School, university and work; Relationships; After treatment.

Cover image of 'Active monitoring ('watch and wait')'

Active monitoring ('watch and wait') (April 2018)

Lymphoma Action

This factsheet explains why watchful waiting may be appropriate for some types of lymphoma and aims to answer some of the questions people might have: What is active monitoring? Why is active monitoring done? Who might have active monitoring? What happens on active monitoring? When does treatment start? Living on active monitoring.

Cover image of 'CNS prophylaxis'

CNS prophylaxis (April 2018)

Lymphoma Action

Central nervous system (CNS) prophylaxis is treatment given to prevent lymphoma spreading to the central nervous system. This factsheet explains what CNS prophylaxis is and descibes the central nervous system, who might need CNS prophylaxis and how it is given.

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