Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 618

Cover image of 'Radiotherapy'

Radiotherapy (January 2019)

Myeloma UK

This Infosheet explains what radiotherapy is, how it is used in the treatment of myeloma, how it is given and what the possible side effects of this treatment are. 

Cover image of 'Radiotherapy for pancreatic cancer'

Radiotherapy for pancreatic cancer (September 2019)

Pancreatic Cancer UK

This factsheet is for people with pancreatic cancer who are having radiotherapy. It explains the different types of radiotherapy, how it is given and the side effects.

Cover image of 'Living with hormone therapy. A guide for men with prostate cancer'

Living with hormone therapy. A guide for men with prostate cancer (June 2019)

Prostate Cancer UK

This booklet is for men who are having hormone therapy. It describes the different types of hormone therapy, how they work and what the treatment involves. It also includes information about the possible side-effects and how to manage them.

Cover image of 'Having chimeric antigen receptor T-cell (CAR T-CELL) therapy'

Having chimeric antigen receptor T-cell (CAR T-CELL) therapy (September 2019)

Anthony Nolan

A brief guide to a type of therapy you may receive if your stem cell transplant, or other treatment, is unsuccessful. It describes what chimeric antigen receptor T-cell (CAR T-cell) therapy is, how your own cells are used to make it, the possible side effects, and where to go for further information and support.

Cover image of 'POEMS syndrome'

POEMS syndrome (March 2019)

Myeloma UK

POEMS syndrome is a rare disorder that can affect multiple systems in the body. It is named after five common features of the syndrome: polyneuropathy (also known as peripheral neuropathy); organomegaly (enlargement of organs, such as the liver, spleen or lymph nodes); endocrinopathy (abnormal function of endocrine glands); monoclonal plasma cell disorder; and skin changes. This factsheet explains what POEMS syndrome is, how it is diagnosed and how it is treated and managed.

Cover image of 'Chemotherapy for lung cancer'

Chemotherapy for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet was produced in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Having a donor lymphocyte infusion (DLI)'

Having a donor lymphocyte infusion (DLI) (July 2019)

Anthony Nolan

A brief guide to a type of treatment you may receive after your stem cell transplant. It describes what a DLI is, why you might need one, the possible side effects, and where to get support and further information.

Cover image of 'Fatigue and myeloma'

Fatigue and myeloma (July 2019)

Myeloma UK

This Infoguide will help you understand the causes of myeloma-related fatigue, provide you with information about the different ways of treating and managing myeloma-related fatigue and help you and your family cope with the effects. 

Cover image of 'Patient diary'

Patient diary (March 2019)

Myeloma UK

This diary has been designed to do just that; to give you a place to write down your thoughts, how you are feeling and any questions you may have. It will help you stay informed and keep track of important information related to your myeloma and its treatment. It may also help you and your doctor and nurse communicate more easily about your myeloma, your treatment and any questions or concerns that you may have. 

Cover image of 'Early prostate cancer explained'

Early prostate cancer explained (October 2019)

Prostate Scotland

This booklet has detailed information about early prostate cancer, and is aimed at helping men, their partners and families understand about prostate cancer, the tests, investigations and treatment options and help them decide on the treatment that suits them best.

Cover image of 'Ixazomib (Ninlaro®)'

Ixazomib (Ninlaro®) (January 2019)

Myeloma UK

This treatment guide contains information about ixazomib, a drug used in the treatment of myeloma. It describes briefly what it is, how it works, how it is given, and possible side-effects.

Cover image of 'Permanent seed brachytherapy'

Permanent seed brachytherapy (March 2019)

Prostate Cancer UK

This factsheet describes how permanent seed brachytherapy may be used to treat prostate cancer, who can have it, the advantages and disadvantages, what happens after treatment, and the possible side effects. It does not describe external beam radiotherapy or high dose rate brachytherapy.

Cover image of 'Vertebral compression fractures in myeloma'

Vertebral compression fractures in myeloma (September 2019)

Myeloma UK

This Infoguide has information about vertebral compression fractures (VCFs), how and why they occur in myeloma, and how they are treated. It also includes information on two surgical procedures used in the treatment of VCFs: percutaneous vertebroplasty and balloon kyphoplasty. 

Cover image of 'Radiotherapy for advanced prostate cancer'

Radiotherapy for advanced prostate cancer (March 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer who would like to know more about treatment with palliative radiotherapy. It explains who can have palliative radiotherapy, how it treats advanced prostate cancer and the advantages and disadvantages. It covers external beam radiotherapy and internal radiotherapy (radioisotopes), describing what the treatment involves and the side effects. It does not cover the treatment of localised or locally-advanced prostate cancer.

Cover image of 'Thrombocytopenia and myeloma'

Thrombocytopenia and myeloma (April 2019)

Myeloma UK

This factsheet explains what thrombocytopenia is, the causes and symptoms, and how it is diagnosed, monitored and treated. It also has some tips for self-management. 

Cover image of 'Metastatic spinal cord compression (MSCC)'

Metastatic spinal cord compression (MSCC) (February 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer that has spread to the bones. It explains what metastatic spinal cord compression is and describes the risk of developing it, the symptoms and the treatment options.

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Managing stress'

Managing stress (June 2019)

Lymphoma Action

Living with lymphoma can cause a great deal of stress, whether you have been diagnosed or someone close to you has. This factsheet outlines common signs of stress and offers practical tips to help you manage it. Contents: What is stress?; What circumstances bring stress?; Can stress make my lymphoma worse?; Managing stress; Living with and beyond lymphoma. 

Cover image of 'Questions to ask'

Questions to ask (November 2019)

Lymphoma Action

Questions for people to ask their medical team: Questions about your lymphoma; Questions about tests and scans; Questions about staging; Questions about active monitoring (‘watch and wait’); Questions about treatment; Questions about side effects of treatment; Questions about effects of treatment on other areas of your life; Questions about clinical trials; Questions about ending treatment; Questions about follow-up; Questions about relapse. 

Cover image of 'Daratumumab (Darzalex®)'

Daratumumab (Darzalex®) (January 2019)

Myeloma UK

Daratumumab, also known as Darzalex®, is a monoclonal antibody drug used in the treatment of myeloma. This booklet describes what it is, how it works, how it is given, and the possible side-effects.

Cover image of 'Steroids'

Steroids (April 2019)

Lymphoma Action

Steroids are often part of treatment for Hodgkin and non-Hodgkin lymphoma, including cutaneous (skin) lymphoma. This factsheet explains what steroids are, when and how they might be given, possible side effects, and the precautions that people should take when they are on steroids.

Cover image of 'Thalidomide'

Thalidomide (January 2019)

Myeloma UK

This treatment guide has information about thalidomide, a drug used in the treatment of myeloma. It explains  what it is, how it works, and how it is given, and describes the possible side-effects.

Cover image of 'Immunotherapy in myeloma'

Immunotherapy in myeloma (November 2019)

Myeloma UK

This factsheet has information on on immunotherapy, a type of treatment being investigated in myeloma. It explains what imunotherapy treatment is, how it works, and the current evidence to support its use in the treatment of myeloma. It describes the main immunotherapies (monoclonal antibody drugs; CAR-T cell treatments; and oncolytic viruses) and their known possible side-effects, and the availability of immunotherapy treatment in the UK.

Cover image of 'Dry, sore and itchy skin'

Dry, sore and itchy skin (June 2019)

Lymphoma Action

Skin problems can be a symptom of lymphoma. They can also be a side effect of some treatments. This factsheet has suggestions to help you manage dry, sore and itchy skin. Contents: Skin problems as a symptom of lymphoma; Skin problems as a side effect of treatment; Managing sore, dry and itchy skin.

Cover image of 'Ibrutinib'

Ibrutinib (November 2019)

Lymphoma Action

This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.

Cover image of 'What to expect. What is it like to be treated with proton beam therapy?'

What to expect. What is it like to be treated with proton beam therapy? (January 2019)

Brainstrust

This leaflet describes what happens when proton beam therapy is given, and the possible side effects. 

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2019)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'Bortezomib (Velcade®)'

Bortezomib (Velcade®) (January 2019)

Myeloma UK

Bortezomib, also known as Velcade®, is a proteasome inhibitor drug used in the treatment of myeloma. This factsheet describes what it is, how it works, how it is given, and possible side-effects.

Cover image of 'Zoledronic acid for primary breast cancer'

Zoledronic acid for primary breast cancer (April 2019)

Breast Cancer Care

Zoledronic acid is a drug that’s given to reduce the risk of breast cancer spreading to the bones and other parts of the body. This booklet explains what it is, who might be offered it and the side effects it can cause.

Cover image of 'Mouth care'

Mouth care (March 2019)

Myeloma UK

People with myeloma can develop sore (mucositis) or dry mouths. This factsheet explains the reasons why this may occur and describes the symptoms of mucositis and oral thrush, prevention and treatment. Includes tips for self-management.

Cover image of 'Sore mouth (oral mucositis)'

Sore mouth (oral mucositis) (June 2019)

Lymphoma Action

Many people experience problems with their mouth following chemotherapy or radiotherapy. This factsheet has tips on oral hygiene and diet.

Cover image of 'Fatigue'

Fatigue (November 2019)

Lymphoma Action

Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.

Cover image of 'Caring for someone with pancreatic cancer. Information for families and carers'

Caring for someone with pancreatic cancer. Information for families and carers (August 2019)

Pancreatic Cancer UK

This booklet is for family members of someone with pancreatic cancer. It includes information on managing symptoms and side effects, and accessing the right care and support.

Cover image of 'Sex and fertility'

Sex and fertility (November 2019)

Orchid – Fighting Male Cancer

This leaflet describes sperm banking and how different treatment options for testicular cancer may affect a man’s fertility.

Cover image of 'Chemotherapy'

Chemotherapy (November 2019)

Orchid – Fighting Male Cancer

This leaflet describes how chemotherapy may be used to treat localised and non-localised testicular cancer, and the possible side-effects..

Cover image of 'Radiotherapy for primary breast cancer'

Radiotherapy for primary breast cancer (May 2019)

Breast Cancer Care

This booklet describes radiotherapy for primary (early) breast cancer. It explains what radiotherapy is, why it might be needed, how it is given, what to expect, treatment planning, and the possible side-effects. 

Cover image of 'Selinexor'

Selinexor (July 2019)

Myeloma UK

Selinexor is the first in a new family of drugs known as Selective Inhibitor of Nuclear Export (SINE™) compounds. This factsheet explains what it is, how it works, and how it is given. It also describes the evidence (clinical trials) to date, the possible side-effects, and the availability of Selinexor in the UK.

Cover image of 'Cyclophosphamide'

Cyclophosphamide (January 2019)

Myeloma UK

Cyclophosphamide is a chemotherapy drug used in the treatment of myeloma. It belongs to a class of chemotherapy drugs called alkylating agents. This factsheet describes what it is, how it works, how it is given, and possible side-effects.

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'Complementary therapies'

Complementary therapies (August 2019)

Ovacome

This briefing looks at the complementary therapies that are most commonly used by people with ovarian cancer, how they can help to manage treatment side effects and improve quality of life.

Cover image of 'Hair loss'

Hair loss (September 2019)

Lymphoma Action

Some lymphoma treatments can cause your hair to thin or fall out. Knowing what to expect and what you can do about it may help you cope with losing your hair. This factsheet has advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the options you may wish to consider until your hair grows back. 

Cover image of 'Sodium clodronate for primary breast cancer'

Sodium clodronate for primary breast cancer (April 2019)

Breast Cancer Care

This booklet is about the bisphosphonate sodium clodronate given to reduce the risk of breast cancer spreading to the bones and other parts of the body. IIt explains what it is, who might be offered it and the side effects it can cause. 

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'Melflufen (Ygalo®)'

Melflufen (Ygalo®) (December 2019)

Myeloma UK

Melflufen is a new drug being investigated in the treatment of myeloma. It is a derivative of the chemotherapy drug melphalan. This factsheet explains what melflufen is, how it works, and the current evidence to support its use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of melflufen in the UK.

Cover image of 'Prednisolone'

Prednisolone (January 2019)

Myeloma UK

Prednisolone is a steroid drug used in the treatment of myeloma. It belongs to a class of steroids called glucocorticoids. This factsheet describes what it is, how it works, how it is given, and the possible side-effects.

Cover image of 'Pertuzumab with Perjeta'

Pertuzumab with Perjeta (April 2019)

Breast Cancer Care

This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.

Cover image of 'Bowel problems'

Bowel problems (August 2019)

Lymphoma Action

Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).

Cover image of 'Pomalidomide (Imnovid®)'

Pomalidomide (Imnovid®) (January 2019)

Myeloma UK

Pomalidomide, also known as Imnovid®, is an immunomodulatory drug used in the treatment of myeloma. This treatment guide describes how it works, how it is given and the possible side effects.

Cover image of 'Reducing the risk of lymphoedema'

Reducing the risk of lymphoedema (April 2019)

Breast Cancer Care

This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).

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