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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 618

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia Care

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'Understanding stem cell transplants using your own cells (autologous)'

Understanding stem cell transplants using your own cells (autologous) (January 2020)

Macmillan Cancer Support

This booklet is about having a stem cell transplant using your own cells. It is for anyone who is going to have this treatment and there is also information for carers, family members and friends. The booklet explains what an autologous stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Meningioma (in adults). What you need to know'

Meningioma (in adults). What you need to know (January 2020)

The Brain Tumour Charity

This leaflet gives an overview of meningiomas in adults and how they are treated and answers some of the questions you may have about this type of tumour.

Cover image of 'Fatigue and brain tumours'

Fatigue and brain tumours (January 2020)

The Brain Tumour Charity

This leaflet aims to help patients understand why they may have less energy. It explains what cancer-related fatigue is and describes the symptoms and possible causes. It has suggestions for coping with fatigue and answers some commonly asked questions and also offers some practical suggestions for coping with the emotional and physical effects of fatigue.

Cover image of 'Helping your child through their stem cell transplant'

Helping your child through their stem cell transplant (August 2020)

Anthony Nolan

This booklet is for anyone with a child who needs a stem cell transplant (sometimes also called a bone marrow transplant). It will help you understand why they need one, what will happen to them and how to look after them as they recover. It will also help you answer any questions your child might have about what they’re going through. It is a supplement to our children’s activity books: Going to hospital for my stem cell transplant; Having my stem cell transplant; and Coming home after my stem cell transplant. 

Cover image of 'Going back to work after your stem cell transplant'

Going back to work after your stem cell transplant (September 2020)

Anthony Nolan

Returning to work after a stem cell transplant can be an important milestone on the road to recovery. For many people, work can help them get back into their everyday life and give them different focus away from the medical world of a transplant. But returning to work isn’t always straightforward. After a transplant, you’ll be recovering physically and emotionally from major treatment. You may need to make adjustments to the way you work, and take things gradually. For some people, going back to work isn’t always possible. We’ve put together this booklet to help you prepare for and manage work after a transplant. It might also be useful if you’re a carer, family member or supporter 

Cover image of 'HPV vaccine'

HPV vaccine (March 2020)

Jo's Cervical Cancer Trust

This booklet describes HPV (human papillomavirus) and how the vaccine works. It explains where girls can get the vaccine, how effective it is and the possible side effects.

Cover image of 'An essential guide to dealing with infections'

An essential guide to dealing with infections (March 2020)

Anthony Nolan

One of the most common side effects after a stem cell transplant is infection and although it is an expected part of recovery, it can also be challenging. This booklet highlights when you might get infections, the symptoms to look out for and how infections are treated as well as how to look after yourself and prevent infections in both your short and long term recovery. 

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (July 2020)

Breast Cancer Now

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'Docetaxel (Taxotere)'

Docetaxel (Taxotere) (October 2020)

Breast Cancer Now

This factsheet explains briefly what Taxotere® is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'Having a matched unrelated donor (MUD) stem cell transplant'

Having a matched unrelated donor (MUD) stem cell transplant (June 2020)

Anthony Nolan

A brief guide to a type of stem cell or bone marrow transplant called a matched unrelated donor or MUD transplant. It describes who can have this type of transplant, how it works, the possible side effects and where to find further information and support.

Cover image of 'A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma'

A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma (September 2020)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. We hope it answers some of your questions and helps you to cope with some of the feelings you may have. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Work and stem cell transplants. Information for employers'

Work and stem cell transplants. Information for employers (September 2020)

Anthony Nolan

Working after a stem cell transplant can be a big milestone on your employee’s road to recovery. It can be an important part of making them feel ‘normal’ again and give them a different focus away from the medical world of a transplant. But returning to work isn’t always straightforward. After a transplant, your employee will be recovering physically and emotionally from major treatment. They may need to make adjustments to the way they work and take things gradually. We’ve put together this booklet to help you support your employee, before and after their transplant. 

Cover image of 'Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges'

Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges (2020)

Jessica Kingsley Publishers

Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about. Written from a dual perspective- that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared. Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery. Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects. (Pub;lisher)

Cover image of 'The circle. A young adult's journey with cancer'

The circle. A young adult's journey with cancer (2020)

Independently published

Cancer. It's a word associated with an unrivalled sense of dread, but also one that unites us in a variety of painful and unexpected ways. I, like many others, did my best to remain ignorant of the unpleasant truths surrounding this illness until at just the age of 19 I was diagnosed with Ewing's Sarcoma, a rare bone cancer. This compiled journal is a record of my experiences as part of a group that can often be underrepresented in the public's approach to cancer. Follow me from the beginning to the end of this at times dire journey, where I do my best to learn what I can to share with the world about how we can better fight this illness on the psychological plain. If you or a loved one are in a similar situation, or perhaps you're looking to simply satisfy morbid curiosity, then partake in a unique account on one young man's experience with one of humanity's greatest killers. (Author) 

Cover image of 'Eating problems and cancer'

Eating problems and cancer (August 2020)

Macmillan Cancer Support

Many people have eating problems during and after cancer treatment. This can be related to the cancer or to the side effects of cancer treatments. This booklet talks about some common eating problems and why they might happen. It also suggests some practical ways to manage them. There is also information for carers, family members and friends. 

Cover image of 'Life after cancer treatment'

Life after cancer treatment (July 2020)

Macmillan Cancer Support

This booklet is about coping after cancer treatment finishes, including managing side effects, follow-up care, and making healthy lifestyle changes. It is for people who are preparing for life after cancer treatment. 

Cover image of 'Diabetes and cancer treatment [in press]'

Diabetes and cancer treatment [in press] (January 2020)

Macmillan Cancer Support|Diabetes UK

This booklet is for anyone who has cancer and also has diabetes. You may also want to read it if you have been told your cancer treatment may increase your risk of developing diabetes. It explains how some tests and cancer treatments can affect your diabetes and make it difficult to control your blood sugar. It also has some tips to help you cope with the side effects of cancer treatment if you have diabetes.

Cover image of 'What to do after cancer treatment ends: 10 top tips'

What to do after cancer treatment ends: 10 top tips (July 2020)

Macmillan Cancer Support

This leaflet is about what to expect and where to get further support after cancer treatment ends. It gives suggestions to help you get the best care and support available and make healthy lifestyle choices. 

Cover image of 'Travel and cancer'

Travel and cancer (January 2020)

Macmillan Cancer Support

This booklet is about travelling abroad when you have cancer. There is also information for family, friends and carers. The booklet talks about the benefits of travel and how you can prepare for a trip abroad. It also gives tips on finding travel insurance and taking care while you are away. Includes details of useful organisations.

Cover image of 'Late effects of lymphoma treatment'

Late effects of lymphoma treatment (May 2019)

Lymphoma Action

Late effects are health problems that may develop months or years after treatment for lymphoma. This factsheet explains some of the potential late effects of lymphoma treatment, and who might get them. It covers second cancers, heart disease, lung problems, hormone problems and how to reduce your risk.

Cover image of 'Life at home'

Life at home (2019)

BUPA

This booklet looks at some of the side-effects of different types of cancer treatments. It also offers ideas for small ways children may like to help out at home.  

Cover image of 'Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment'

Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment (April 2019)

Children's Cancer and Leukaemia Group

Hair loss is a common side effect of treatment for childhood cancer, but its impact can be significant. This animation tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.

Cover image of 'Eating – help yourself. A guide for patients and their carers'

Eating – help yourself. A guide for patients and their carers (February 2019)

Christie Hospital NHS Trust

Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.

Cover image of 'Stents and bypass surgery for pancreatic cancer'

Stents and bypass surgery for pancreatic cancer (February 2019)

Pancreatic Cancer UK

This fact sheet is for people with pancreatic cancer who are having a stent or bypass surgery. These treatments help symptoms caused by the cancer blocking the bile duct or duodenum. Family members may also find it helpful. It describes what the treatments involve, possible side effects, how they can affect your diet, and recovering afterwards.

Cover image of 'My lung surgery'

My lung surgery (August 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and surgery is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment. It discusses the types of surgery, what happens before, during and after surgery, and returning home.

Cover image of 'Are you having or have you ever had pelvic radiotherapy?'

Are you having or have you ever had pelvic radiotherapy? (February 2019)

Pelvic Radiation Disease Association

Credit-card leaflet, with general information about the symptoms of pelvic radiation disease. 

Cover image of 'Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet'

Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet (March 2019)

Christie Hospital NHS Trust

Some illnesses or treatments may make swallowing difficult. This booklet has ideas on how to prepare soft or liquidised foods and how to make food more nourishing by enriching it with dairy produce, fats, sugars and fortified milk. Includes meal suggestions.

Cover image of 'Treated for cancer and living with the consequences?'

Treated for cancer and living with the consequences? (February 2019)

Pelvic Radiation Disease Association

Information about pelvic radiation disease and the work of the Pelvic Radiation Disease Association.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (November 2019)

Lymphoma Action

This comprehensive booklet discusses Hodgkin lymphoma in detail.

Cover image of 'Radiotherapy'

Radiotherapy (January 2019)

Myeloma UK

This Infosheet explains what radiotherapy is, how it is used in the treatment of myeloma, how it is given and what the possible side effects of this treatment are. 

Cover image of 'Radiotherapy for pancreatic cancer'

Radiotherapy for pancreatic cancer (September 2019)

Pancreatic Cancer UK

This factsheet is for people with pancreatic cancer who are having radiotherapy. It explains the different types of radiotherapy, how it is given and the side effects.

Cover image of 'Living with hormone therapy. A guide for men with prostate cancer'

Living with hormone therapy. A guide for men with prostate cancer (June 2019)

Prostate Cancer UK

This booklet is for men who are having hormone therapy. It describes the different types of hormone therapy, how they work and what the treatment involves. It also includes information about the possible side-effects and how to manage them.

Cover image of 'Having chimeric antigen receptor T-cell (CAR T-CELL) therapy'

Having chimeric antigen receptor T-cell (CAR T-CELL) therapy (September 2019)

Anthony Nolan

A brief guide to a type of therapy you may receive if your stem cell transplant, or other treatment, is unsuccessful. It describes what chimeric antigen receptor T-cell (CAR T-cell) therapy is, how your own cells are used to make it, the possible side effects, and where to go for further information and support.

Cover image of 'POEMS syndrome'

POEMS syndrome (March 2019)

Myeloma UK

POEMS syndrome is a rare disorder that can affect multiple systems in the body. It is named after five common features of the syndrome: polyneuropathy (also known as peripheral neuropathy); organomegaly (enlargement of organs, such as the liver, spleen or lymph nodes); endocrinopathy (abnormal function of endocrine glands); monoclonal plasma cell disorder; and skin changes. This factsheet explains what POEMS syndrome is, how it is diagnosed and how it is treated and managed.

Cover image of 'Chemotherapy for lung cancer'

Chemotherapy for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet was produced in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Having a donor lymphocyte infusion (DLI)'

Having a donor lymphocyte infusion (DLI) (July 2019)

Anthony Nolan

A brief guide to a type of treatment you may receive after your stem cell transplant. It describes what a DLI is, why you might need one, the possible side effects, and where to get support and further information.

Cover image of 'Fatigue and myeloma'

Fatigue and myeloma (July 2019)

Myeloma UK

This Infoguide will help you understand the causes of myeloma-related fatigue, provide you with information about the different ways of treating and managing myeloma-related fatigue and help you and your family cope with the effects. 

Cover image of 'Patient diary'

Patient diary (March 2019)

Myeloma UK

This diary has been designed to do just that; to give you a place to write down your thoughts, how you are feeling and any questions you may have. It will help you stay informed and keep track of important information related to your myeloma and its treatment. It may also help you and your doctor and nurse communicate more easily about your myeloma, your treatment and any questions or concerns that you may have. 

Cover image of 'Early prostate cancer explained'

Early prostate cancer explained (October 2019)

Prostate Scotland

This booklet has detailed information about early prostate cancer, and is aimed at helping men, their partners and families understand about prostate cancer, the tests, investigations and treatment options and help them decide on the treatment that suits them best.

Cover image of 'Ixazomib (Ninlaro®)'

Ixazomib (Ninlaro®) (January 2019)

Myeloma UK

This treatment guide contains information about ixazomib, a drug used in the treatment of myeloma. It describes briefly what it is, how it works, how it is given, and possible side-effects.

Cover image of 'Permanent seed brachytherapy'

Permanent seed brachytherapy (March 2019)

Prostate Cancer UK

This factsheet describes how permanent seed brachytherapy may be used to treat prostate cancer, who can have it, the advantages and disadvantages, what happens after treatment, and the possible side effects. It does not describe external beam radiotherapy or high dose rate brachytherapy.

Cover image of 'Vertebral compression fractures in myeloma'

Vertebral compression fractures in myeloma (September 2019)

Myeloma UK

This Infoguide has information about vertebral compression fractures (VCFs), how and why they occur in myeloma, and how they are treated. It also includes information on two surgical procedures used in the treatment of VCFs: percutaneous vertebroplasty and balloon kyphoplasty. 

Cover image of 'Radiotherapy for advanced prostate cancer'

Radiotherapy for advanced prostate cancer (March 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer who would like to know more about treatment with palliative radiotherapy. It explains who can have palliative radiotherapy, how it treats advanced prostate cancer and the advantages and disadvantages. It covers external beam radiotherapy and internal radiotherapy (radioisotopes), describing what the treatment involves and the side effects. It does not cover the treatment of localised or locally-advanced prostate cancer.

Cover image of 'Thrombocytopenia and myeloma'

Thrombocytopenia and myeloma (April 2019)

Myeloma UK

This factsheet explains what thrombocytopenia is, the causes and symptoms, and how it is diagnosed, monitored and treated. It also has some tips for self-management. 

Cover image of 'Metastatic spinal cord compression (MSCC)'

Metastatic spinal cord compression (MSCC) (February 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer that has spread to the bones. It explains what metastatic spinal cord compression is and describes the risk of developing it, the symptoms and the treatment options.

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults'

Stem cell transplant. A guide to donor (allogeneic) stem cell transplantation for teenagers and young adults (February 2019)

Children's Cancer and Leukaemia Group

This guide describes stem cells and explains what a stem cell transplantation is, why it might be necessary, and the different types of transplants. It also describes the process of finding a donor, the pre-transplant operation, the transplant team, what to bring to hospital, preparing to receive a bone marrow transplant, what happens during the transplant and afterwards, the side-effects, getting ready to go home and getting back to normal. Includes details of useful organisations and a glossary.

Cover image of 'Managing stress'

Managing stress (June 2019)

Lymphoma Action

Living with lymphoma can cause a great deal of stress, whether you have been diagnosed or someone close to you has. This factsheet outlines common signs of stress and offers practical tips to help you manage it. Contents: What is stress?; What circumstances bring stress?; Can stress make my lymphoma worse?; Managing stress; Living with and beyond lymphoma. 

Cover image of 'Questions to ask'

Questions to ask (November 2019)

Lymphoma Action

Questions for people to ask their medical team: Questions about your lymphoma; Questions about tests and scans; Questions about staging; Questions about active monitoring (‘watch and wait’); Questions about treatment; Questions about side effects of treatment; Questions about effects of treatment on other areas of your life; Questions about clinical trials; Questions about ending treatment; Questions about follow-up; Questions about relapse. 

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