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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 628

Cover image of 'Thinking difficulties (cognitive impairment)'

Thinking difficulties (cognitive impairment) (September 2019)

The Brain Tumour Charity

Many people diagnosed with a brain tumour will have some form of cognitive impairment (difficulties with their thinking abilities), due to the presence of the tumour and the pressure it puts on the brain. This leaflet describes the types of impairment that might develop and how they are affected by the location of the tumour, treatment and drugs, and by emotional and psychological factors.

Cover image of 'The two faces of cancer'

The two faces of cancer (2019)

Troubador Publishing

Half of the UK population will receive a diagnosis of cancer at some point in their lives and most people will know someone who has been affected by this complex disease. Drawing from her three personal experiences with cancer alongside her professional experience as a counsellor and personal coach, Rebecca Brazier chronicles her journey through diagnosis, treatment and recovery. When talking about cancer we tend to think about the physical side effects of treatment. Although medical advances are saving and extending lives, less consideration is given to the emotional and psychological trauma which cancer creates. The Two Faces of Cancer describes and addresses this trauma and explores why cancer is difficult to recover from both personally and within society. It describes the devastation and powerful feelings cancer created for Rebecca and how she channelled these to create a meaningful life. It also draws from Rebecca's professional knowledge to analyse the emotional and psychological impact of cancer and to suggest routes to recovery. (Publisher)

Cover image of 'The cancer roller coaster. How to manage the emotional and mental impact'

The cancer roller coaster. How to manage the emotional and mental impact (2019)

Librotas

Two days after celebrating her 50th birthday, Juliette Chan had an unexpected birthday present: bowel cancer. Luckily, they caught it early, but once the treatment was over, the psychological side-effects surfaced. For many months, Juliette was adrift and felt lost. It seemed that everything in her life was up for review and she struggled to gain clarity about what to do next. There were many questions, such as: When will I feel normal again; Why am I not as motivated as before; Will the cancer come back; Why am I mentally exhausted. It took her a while to realise that the cancer had caused a whole load of losses: loss of trust in her body, self-image as a fit and healthy person, energy, confidence, motivation, income and much more. And that’s when the penny dropped; she was grieving. Cancer not only involves coping with the physical disease and treatment – it also means experiencing and dealing with hidden losses that will affect how you view and live your life. Every time you experience a loss, there is an emotional response: grief. Most people only associate grief with bereavement but it is in fact a natural reaction to any and all losses, including the hidden and intangible losses you face with cancer. Anyone who has or has had cancer, as well as their family and friends, will experience grief – because life has changed. This can show up as anger, frustration, anxiety, ‘depression’, fear, sadness, for example. If left unchecked or suppressed, grief will affect your mental health and emotional wellbeing. It doesn’t have to be like this; it is possible to take care of the emotional and mental impact of cancer and to live well. In her easy, relaxed style of writing, Juliette explains the emotional and mental impact of cancer and highlights the limitations of Mindfulness and positive thinking. She has also included a workbook with simple practical exercises that help to release the psychological side-effects and provide clarity. You can also read the candid stories of eight others who faced cancer: Robert describes his initial feelings of shock on diagnosis and how others helped him to cope, whereas Meena recounts going it alone; Petra shares how she continued to run throughout her treatment, and Susan talks movingly about the seemingly endless decision-making from diagnosis onwards; Mary, Tony and June recount their unique experiences of the same cancer

Cover image of 'Ovarian cancer and sexuality'

Ovarian cancer and sexuality (May 2018)

Ovacome

This factsheet has information and advice about sexuality during and after treatment for ovarian cancer. It covers topics such as sexual relations, psychological and emotional effects, and the physical effects that can affect sexual response.

Cover image of 'A guide to life after oesophageal/gastric surgery - oesophagectomy and gastrectomy'

A guide to life after oesophageal/gastric surgery - oesophagectomy and gastrectomy (November 2017)

The Oesophageal Patients Association

This booklet has been written for people who have had an oesophagectomy or a gastrectomy. It describes the operation and recovery, how the surgery may affect eating and drinking, and the possible problems that may arise, such as dumping, gastric retention, acid regurgitation, or diarrhoea. It has advice on life after surgery; for example, driving, sleep, relationships, and going back to work, and concludes with suggestions for small meals, snacks and nutritious drinks.

Cover image of 'Pain and myeloma'

Pain and myeloma (June 2017)

Myeloma UK

This Infoguide aims to help you understand what pain is, the different types of pain and causes of pain in myeloma patients. It provides information on the different methods of pain treatment available, and gives guidance on non-medical strategies that may help to improve your pain and make living with pain a little easier.

Cover image of 'What doesn’t kill you, makes you stronger'

What doesn’t kill you, makes you stronger (2016)

Self-published using CreateSpace Independent Publishing Platform

“You’ve got cancer” – three little words that can change your life. “What Doesn’t Kill You, Makes You Stronger” is the honest, straight-from-the-heart account of one woman’s experience of hearing these three words. Right from the start, it follows every step of this journey – and it IS a journey – the tears and laughter, the ups and downs and everything in between. There is loads of information available that give you the facts about what it’s like to be diagnosed with cancer, what happens next, what the options are for treatment and a how to have a life alongside a cancer diagnosis. Most of these are written by those who have never had cancer. Not many of them share the emotional and psychological effects that being diagnosed have. This book does. It talks about the real side effects of chemo, the strange things you crave or can’t stand, the powerful friendships that develop and the fierce spirit within, which is determined to beat cancer. It’s not a “poor me” story……it’s a frank and honest account that has one purpose – to help other people who find themselves with a cancer diagnosis, to show them that what they are thinking and feeling is “OK”, that they aren’t alone and that it’s ok to have a laugh. “What Doesn’t Kill You, Makes You Stronger” – very frank, very honest and very true. (Publisher)

Cover image of 'Head, face and neck lymphoedema'

Head, face and neck lymphoedema (November 2016)

Lymphoedema Support Network

Lymphoedema of the head, face and neck may occur following surgery or radiotherapy. This leaflet describes the treatment and management options, including manual lymphatic drainage, simple lymphatic drainage, exercise, skin care, positioning and compression. Psychological distress is briefly considered.

Cover image of 'Coping with the psychological effects of illness. Strategies to manage anxiety and depression'

Coping with the psychological effects of illness. Strategies to manage anxiety and depression (2015)

Sheldon Press

Sudden, severe ill health comes as a shock and presents several challenges, most notably, loss of confidence. Suddenly people are afraid to take exercise, have sex or even go to the shops. Their entire self-image takes a battering, and this roller-coaster of uncertainty often leads to anxiety and depression. This book looks at the learning curve involved in sudden and chronic illness, and explores key ways to build psychological resilience during this time of challenge. Whether it concerns cancer, heart disease, diabetes, or a mental health condition, it explores the common psychological issues that arise when someone’s usual health and routine are disrupted, and discusses the impact of illness on relationships and family. Drawing on CBT techniques, it offers practical self-help strategies to help deal with peoples changed expectations of themselves, and with the related lifestyle changes. (Publisher)

Cover image of 'Emotional and social aspects of lymphoedema'

Emotional and social aspects of lymphoedema (September 2015)

Lymphoedema Support Network

This leaflet explores the emotions that people with lymphoedema may experience, such as anger, depression or anxiety. It also considers body image and personal, sexual and social relationships, and concludes with advice on coping with the changes that lymphoedema can bring.

Cover image of 'Coping with the psychological effects of cancer'

Coping with the psychological effects of cancer (2010)

Sheldon Press

Cancer affects more than one in three of us. Until recently, the emphasis has been on battling cancer physically. Today, there is increasing recognition of the emotional aspect of having cancer, and survivorship and its issues are hot topics. This book tackles a sensitive subject in an upfront and practical way that acknowledges the uncomfortable and painful emotions associated with cancer. (Publisher)

Cover image of 'Radiotherapy after breast surgery. A guide for patients and their families'

Radiotherapy after breast surgery. A guide for patients and their families (February 2020)

Christie Hospital NHS Trust

This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.

Cover image of 'Behaviour and personality change. A resource to help you understand and manage behaviour and personality change when living with a brain tumour'

Behaviour and personality change. A resource to help you understand and manage behaviour and personality change when living with a brain tumour (January 2020)

Brainstrust

Up 60% of people diagnosed with a brain tumour experience behaviour and personality changes (BPC). This booklet covers: understanding BPC; what we mean by BPC; causes; symptoms; how BPC is manifested; how it is measured; mood journals; strategies to help people cope; and treatment options and self-help strategies. It also has information for carers, details of who can help, and questions to ask.

Cover image of 'Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients'

Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients (2020)

The Oesophageal Patients Association

This leaflet explains what laparoscopic fundoplication anti-reflux surgery is and why it might be needed. It describes what happens before, during and after surgery, possible side-effects, and follow up.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'COVID-19 (coronavirus)'

COVID-19 (coronavirus) (March 2020)

Lymphoedema Support Network

Guidance for people with lymphoedema.

Cover image of 'CAR-T cell treatments'

CAR-T cell treatments (January 2020)

Myeloma UK

This factsheet has information on CAR-T cell treatments, which are being investigated in myeloma. It explains what CAR-T cell treatments are, how they work, and the current evidence to support their use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of CAR-T cell treatments in the UK.

Cover image of 'Venetoclax'

Venetoclax (February 2020)

Lymphoma Action

Venetoclax is a targeted drug used in the treatment of certain types of low-grade (slow-growing) lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (March 2020)

Breast Cancer Care

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'Young person's guide to lymphoma'

Young person's guide to lymphoma (January 2020)

Lymphoma Action

Comprehensive booklet for young people with lymphoma. 

Cover image of 'Newer antibodies against CD20'

Newer antibodies against CD20 (April 2020)

Lymphoma Action

Newer antibodies against CD20 are beginning to offer alternatives to rituximab for some people with lymphoma. This factsheet covers: antibodies targeting CD20; ofatumumab (Arzerra®); obinutuzumab (Gazyvaro®). It considers who can have these antibodies, how they are given, possible side effects.

Cover image of 'Surgery [Russian]'

Surgery [Russian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Diet and breast cancer'

Diet and breast cancer (January 2020)

Breast Cancer Care

A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.

Cover image of 'Brentuximab vedotin'

Brentuximab vedotin (April 2020)

Lymphoma Action

Brentuximab vedotin is a targeted drug used in the treatment of certain types of lymphoma. This factsheets explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Chemotherapy regimens for lymphoma'

Chemotherapy regimens for lymphoma (February 2020)

Lymphoma Action

This information sheet is about chemotherapy regimens (combinations of drugs) for lymphoma. It covers: What is a chemotherapy regimen?; Common chemotherapy regimens for lymphoma; Which chemotherapy regimen might I have?; Side effects of chemotherapy regimens. Includes a list of the most common chemotherapy regimens for lymphoma. 

Cover image of 'Surgery [Welsh]'

Surgery [Welsh] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Gujarati]'

Surgery [Gujarati] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

Cover image of 'Surgery [Bengali]'

Surgery [Bengali] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

Cover image of 'Capecitabine (Xeloda®) [Polish]'

Capecitabine (Xeloda®) [Polish] (January 2020)

Macmillan Cancer Support

Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and some of the possible side-effects.

Cover image of 'Surgery [Polish]'

Surgery [Polish] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Portuguese]'

Surgery [Portuguese] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Punjabi]'

Surgery [Punjabi] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English language version.

Cover image of 'Surgery [Chinese, Traditional]'

Surgery [Chinese, Traditional] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Hydroxycarbamide (Hydrea®) [Bulgarian]'

Hydroxycarbamide (Hydrea®) [Bulgarian] (2020)

Macmillan Cancer Support

Hydroxycarbamide (also known as hydroxyurea) is used to treat chronic myeloid leukaemia, cervical cancer, and some pre-cancerous conditions. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Surgery [Urdu]'

Surgery [Urdu] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Paclitaxel and carboplatin [Chinese, Traditional]'

Paclitaxel and carboplatin [Chinese, Traditional] (2020)

Macmillan Cancer Support

Paclitaxel (Taxol®) and carboplatin is a combination chemotherapy regime used to treat cancer of the ovary and cancer of the lung. This factsheet describes the drugs, how they are given and the possible side-effects.

Cover image of 'Surgery [Romanian]'

Surgery [Romanian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Surgery [Arabic]'

Surgery [Arabic] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Ipilimumab [Polish]'

Ipilimumab [Polish] (January 2020)

Macmillan Cancer Support

Ipilimumab is a targeted therapy drug used to treat advanced melanoma. This describes how it works, how it is given, and some of the possible side-effects.

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia Care

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'Understanding stem cell transplants using donor cells (allogeneic)'

Understanding stem cell transplants using donor cells (allogeneic) (January 2020)

Macmillan Cancer Support

This booklet is for anyone who is going to have a donor stem cell transplant.There is also information for carers, family members and friends. The booklet explains what a donor stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Understanding stem cell transplants using your own cells (autologous)'

Understanding stem cell transplants using your own cells (autologous) (January 2020)

Macmillan Cancer Support

This booklet is about having a stem cell transplant using your own cells. It is for anyone who is going to have this treatment and there is also information for carers, family members and friends. The booklet explains what an autologous stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients'

FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients (January 2020)

Leukaemia Care

FLAG-Ida is a combination chemotherapy regimen used in the treatment of acute myeloid leukaemia (AML). It consists of fludarabine, high dose cytarabine (Ara-C0), idarubicin and granulocyte-colony stimulating factor (G-CSF). This booklet explains the drugs, who may be eligible to receive this treatment, how FLAG-Ida is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges'

Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges (2020)

Jessica Kingsley Publishers

Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about. Written from a dual perspective- that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared. Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery. Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects. (Pub;lisher)

Cover image of 'The circle. A young adult's journey with cancer'

The circle. A young adult's journey with cancer (2020)

Independently published

Cancer. It's a word associated with an unrivalled sense of dread, but also one that unites us in a variety of painful and unexpected ways. I, like many others, did my best to remain ignorant of the unpleasant truths surrounding this illness until at just the age of 19 I was diagnosed with Ewing's Sarcoma, a rare bone cancer. This compiled journal is a record of my experiences as part of a group that can often be underrepresented in the public's approach to cancer. Follow me from the beginning to the end of this at times dire journey, where I do my best to learn what I can to share with the world about how we can better fight this illness on the psychological plain. If you or a loved one are in a similar situation, or perhaps you're looking to simply satisfy morbid curiosity, then partake in a unique account on one young man's experience with one of humanity's greatest killers. (Author) 

Cover image of 'Fatigue and brain tumours'

Fatigue and brain tumours (January 2020)

The Brain Tumour Charity

This leaflet aims to help patients understand why they may have less energy. It explains what cancer-related fatigue is and describes the symptoms and possible causes. It has suggestions for coping with fatigue and answers some commonly asked questions and also offers some practical suggestions for coping with the emotional and physical effects of fatigue.

Cover image of 'Meningioma (in adults). What you need to know'

Meningioma (in adults). What you need to know (January 2020)

The Brain Tumour Charity

This leaflet gives an overview of meningiomas in adults and how they are treated and answers some of the questions you may have about this type of tumour.

Cover image of 'Travel and cancer'

Travel and cancer (January 2020)

Macmillan Cancer Support

This booklet is about travelling abroad when you have cancer. There is also information for family, friends and carers. The booklet talks about the benefits of travel and how you can prepare for a trip abroad. It also gives tips on finding travel insurance and taking care while you are away. Includes details of useful organisations.

Cover image of 'Diabetes and cancer treatment [in press]'

Diabetes and cancer treatment [in press] (January 2020)

Macmillan Cancer Support|Diabetes UK

This booklet is for anyone who has cancer and also has diabetes. You may also want to read it if you have been told your cancer treatment may increase your risk of developing diabetes. It explains how some tests and cancer treatments can affect your diabetes and make it difficult to control your blood sugar. It also has some tips to help you cope with the side effects of cancer treatment if you have diabetes.

Cover image of 'Life at home'

Life at home (2019)

BUPA

This booklet looks at some of the side-effects of different types of cancer treatments. It also offers ideas for small ways children may like to help out at home.  

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