The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Christie Hospital NHS Trust
This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.
Up 60% of people diagnosed with a brain tumour experience behaviour and personality changes (BPC). This booklet covers: understanding BPC; what we mean by BPC; causes; symptoms; how BPC is manifested; how it is measured; mood journals; strategies to help people cope; and treatment options and self-help strategies. It also has information for carers, details of who can help, and questions to ask.
The Oesophageal Patients Association
This leaflet explains what laparoscopic fundoplication anti-reflux surgery is and why it might be needed. It describes what happens before, during and after surgery, possible side-effects, and follow up.
PCaSO Prostate Cancer Support Network
This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.
Lymphoedema Support Network
Guidance for people with lymphoedema.
This factsheet has information on CAR-T cell treatments, which are being investigated in myeloma. It explains what CAR-T cell treatments are, how they work, and the current evidence to support their use in the treatment of myeloma. It also describes the known possible side-effects, and the availability of CAR-T cell treatments in the UK.
Venetoclax is a targeted drug used in the treatment of certain types of low-grade (slow-growing) lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.
Breast Cancer Now
A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.
Brentuximab vedotin is a targeted drug used in the treatment of certain types of lymphoma. This factsheets explains what it is, who can have it, how it is given, the benefits and possible side effects.
Newer antibodies against CD20 are beginning to offer alternatives to rituximab for some people with lymphoma. This factsheet covers: antibodies targeting CD20; ofatumumab (Arzerra®); obinutuzumab (Gazyvaro®). It considers who can have these antibodies, how they are given, possible side effects.