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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Macmillan Cancer Support
This factsheet is about claiming benefits.
Blood Cancer UK
Mucositis is a condition that affects your mucous membrane, the thin skin that covers and protects the inside surface of parts of your body. It can be a painful side effect of chemotherapy or radiotherapy. This factsheet explains how it is caused and who gets it, and describes the signs and symptoms, and how to look after yourself.
Macmillan Cancer Support
Ten tips to help line managers support an employee through the cancer journey, from diagnosis through treatment and living with cancer.
Marie Curie
This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about how to keep comfortable, healthy and happy.
Marie Curie
This leaflet aims to help you prepare for the end of your partner, relative or friend’s life. Knowing what to expect can help you prepare yourself for their last few weeks and days.
Age UK
Thinking about the end of life can be difficult, but being well informed can help people consider all their options at a time that’s right for them. This guide will make suggestions about the options and services available to help people make the best choices. It will explain how to make wishes and treatment preferences known, and help peole consider where they would like to be looked after towards the end of life.
NHS Health Scotland
This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.
Macmillan Cancer Support
R-CHOP is a combination treatment used to treat non-Hodgkin lymphoma (NHL). This factsheet describes the drugs used, how they are given and the possible side-effects.
NHS Health Scotland
This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.
Leukaemia Care
This booklet helps to define some of the terms that people may come across when they are diagnosed and treated for a blood cancer.
Macmillan Cancer Support
A translation of selected pages from the Macmillan Cancer Support booklet “Understanding ductal carcinoma in situ (MAC12870_E04_N) into Italian, including what it is and surgery.
Macmillan Cancer Support
XELOX (or CAPOX) may be used to treat advanced bowel cancer. This factsheet describes the drugs used, how they are given and some of the possible side-effects.
Macmillan Cancer Support
XELOX (or CAPOX) may be used to treat advanced bowel cancer. This factsheet describes the drugs used, how they are given and some of the possible side-effects.
Macmillan Cancer Support
A translation of selected pages (56-59: Do not attempt cardiopulmonary resuscitation) from Macmillan Cancer Support’s booklet “Planning ahead for the end of life" [MAC13616_E03_N]
Macmillan Cancer Support
A translation of selected pages (14-25, 28-34) from Macmillan Cancer Support’s booklet “Understanding breast screening” (MAC11674_E07_N).
Marie Curie
This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful.
NHS Health Scotland
This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.
Macmillan Cancer Support
This guide has information and practical for employers about how to support employees affected by cancer. It includes examples of best practice and also covers employers' responsibilities and employees' rights.
Cancer Research UK
This leaflet explains the different types of clinical trials, the benefits and drawbacks of taking part, and how to join a clinical trial.
Macmillan Cancer Support
This booklet is about how cancer and its treatment can affect your fertility. It is for teenagers and young people who need information about this before, during or after cancer treatment, whether you are in a relationship or not and whatever your sexual orientation. It explains how cancer and cancer treatment may affect your fertility and has information about preserving your fertility, having fertility tests, fertility treatments and other options for having a child. It also tells you how to get more support.
Macmillan Cancer Support
Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.
Macmillan Cancer Support
Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.
Macmillan Cancer Support
Docetaxel (Taxotere®) is a chemotherapy drug used to treat many types of cancer including breast, prostate, stomach, head and neck, and non-small cell lung cancer. This factsheet describes what it is, how it is given, and possible side effects.
Marie Curie
Living with a terminal illness and getting the best care and support can be challenging for everyone. We all have individual needs and will have different experiences. Being LGBTQ+ may mean that you have specific concerns or questions about getting the care and support you need. In this booklet, we explain the care and support that’s available. We also answer questions you might have, such as how you can plan ahead and make decisions for the future.
Macmillan Cancer Support
This booklet has information for women who have ductal carcinoma in situ (DCIS). It describes DCIS, the risk factors and causes, symptoms, diagnosis and tests, staging and grading, and the treatment options (surgery, radiotherapy, hormonal therapies). It also covers issues such as life after treatment and feelings.
Marie Curie
This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.
Macmillan Cancer Support
This booklet has information on secondary cancer in the bone, what it is, what causes it, the symptoms, how it is diagnosed, and the treatment options. It also covers issues such as emotions, talking to children, and how family and friends can help.
Marie Curie
This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful.
Macmillan Cancer Support
This booklet is about breast cancer in women. It is for women who are having tests for breast cancer and women who have been diagnosed with breast cancer. It covers breast cancer that has not spread to other parts of the body and describes the causes, symptoms, diagnosis, stages, and treatment (including surgery, radiotherapy, chemotherapy and hormonal therapy). It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources.
NHS Health Scotland
This leaflet is about the HPV vaccine for men who have sex with men to help protect against four types of HPV that can cause cancer and genital warts.
Marie Curie
This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing.
Macmillan Cancer Support
This booklet is about breast cancer in men. It is for men who are having tests for breast cancer and men who have been diagnosed with breast cancer. It explains the signs and symptoms of breast cancer in men. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about coping with cancer while you are self-employed or running a small business. It is for sole traders, freelancers, contractors or those running a micro business (one that employs fewer than 10 people). It includes information and guidance about: how treatment might affect your work; things to consider when making decisions about your business; talking to clients or customers about your situation; getting support with your business or personal finances.
Macmillan Cancer Support and British Heart Foundation
Some people affected by cancer have problems with their heart health. This is because some cancer treatments can affect the heart. Problems can also arise if you already have a heart condition when you’re diagnosed with cancer. This booklet is for you if: you’ve been told that your cancer treatment may affect your heart; you have a heart condition and need cancer treatment; you’d like to find out how you can improve the health of your heart before, during and after cancer treatment.
Macmillan Cancer Support
This booklet is about oesophageal cancer. It is for anyone who is having tests for oesophageal cancer or has been diagnosed with it. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of oesophageal cancer. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.
Crohn's and Colitis UK
Crohn’s and Colitis can increase the risk of bowel cancer in some people, particularly for those whose condition affects all or most of their large bowel. This information sheet looks at the relationship between bowel cancer and Crohn’s and Colitis, and how you can reduce your risk. It also describes changes in the lining of the bowel that may develop into cancer, and how these changes are detected.
Cancer Research UK
A short, illustrated factsheet containing simple instructions and helpful hints on how to use a bowel screening kit.
Macmillan Cancer Support
This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about talking about cancer. It is for anyone who has a cancer diagnosis. It explains: the benefits of talking about cancer; how to overcome the things that make talking difficult; how to deal with other people’s reactions. It also has practical tips for talking and asking for support.
Cancer Research UK
A short, illustrated factsheet containing simple instructions and helpful hints on how to use a bowel screening kit.
Macmillan Cancer Support
This booklet aims to help people with cancer cope with issues that they may face at work both during treatment and afterwards.
Macmillan Cancer Support
This booklet is for people who have had cancer treatment. You may also find it helpful if you are having ongoing treatment to control cancer or prevent it returning. It describes some of the feelings you may have and suggests ways to cope with them.
Macmillan Cancer Support
This booklet is for anyone who has cancer or has had treatment for cancer and is thinking about becoming more physically active. It explains what physical activity is, its benefits and how to be safe when exercising. It also includes information about the types of activity you can do and how to get started.
Macmillan Cancer Support
Information about cancer of unknown primary (CUP). This booklet explains what CUP is and why the primary cancer cannot be found, and describes how it is diagnosed, the tests that might be carried out, and the treatment options. It also covers coping with CUP, feelings, and financial help.
Macmillan Cancer Support
This leaflet has questions you may need to ask about work issues if you are affected by cancer. It can help you find the information you need at every stage.
Macmillan Cancer Support
This booklet is about coping with your feelings when someone close to you has cancer. It is for anyone who is close to someone with cancer, including partners, family members and friends. This booklet replaces two booklets: Be there for someone facing cancer; and Coping when someone close to you has cancer.
Macmillan Cancer Support|Mummy's Star
This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you.
British Lung Foundation
This booklet explains the benefits of stopping smoking and the steps you can take to quit. It will help you improve your health and quality of life for the future.
Macmillan Cancer Support and the Public Health Agency
This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in Scotland. It is for anyone who wants to plan ahead, whether they have a serious illness or not. Planning for your future care is also called advance care planning. It is important in case you ever become unable to make choices yourself. The booklet talks about the ways you can plan ahead, for example writing a will, or making a power of attorney or an advance directive. It also tells you how to talk about planning ahead with your family, friends and health and social care professionals.
Macmillan Cancer Support
This booklet is about how cancer and its treatments can affect your fertility. It is for anyone who needs information on this before, during or after cancer treatment. It has information about preserving fertility, testing fertility, fertility treatments to start a pregnancy and other options for having a child. This information is for you whether you are in a relationship or not and whatever your sexual orientation.
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