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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1748

Cover image of 'Chemotherapy and how it is given'

Chemotherapy and how it is given (March 2018)

Pancreatic Cancer Action

This booklet for patients and carers describes chemotherapy for pancreatic cancer, including how it works, how it is given and how it may affect the patient. It includes advice on coping with side effects and a section about second opinions, clinical trials, questions to ask your doctor and a glossary to explain some of the terms used.

Cover image of 'Eating after a duodenal stent'

Eating after a duodenal stent (2018)

Pancreatic Cancer Action

This booklet has information about eating after insertion of a duodenal stent. It describes what to expect and the best foods to eat and avoid.

Cover image of 'Patient charter. The care you should expect and receive'

Patient charter. The care you should expect and receive (September 2018)

Pancreatic Cancer UK

This booklet explains the standards of care everybody with pancreatic cancer should have while they are being diagnosed and treated for pancreatic cancer. You can use it as a guide to what you should expect. It can also help you talk to your doctors and nurses about the care you should receive.

Cover image of 'Feeling and being sick'

Feeling and being sick (August 2018)

Pancreatic Cancer UK

This factsheet is for anyone who would like to find out more about feeling and being sick when you have pancreatic cancer. It explains what causes sickness and the treatments available that can help you. 

Cover image of 'Understanding cancer of the pancreas (Chinese, Traditional)'

Understanding cancer of the pancreas (Chinese, Traditional) (2018)

Macmillan Cancer Support

Selected pages from the booklet of the same name. Covers types of pancreatic cancer, symptoms, controlling symptoms, coping with advanced cancer and what you can do.

Cover image of 'Understanding cancer of the pancreas'

Understanding cancer of the pancreas (June 2018)

Macmillan Cancer Support

This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.

Cover image of '10 top tips. Worried about pancreatic cancer? Helping you to talk to your GP'

10 top tips. Worried about pancreatic cancer? Helping you to talk to your GP (2017)

Pancreatic Cancer UK

Tips to help people talk to their GP. 

Cover image of 'Fatigue and pancreatic cancer'

Fatigue and pancreatic cancer (October 2017)

Pancreatic Cancer UK

This fact sheet is for people with pancreatic who have fatigue. It explains what fatigue is, what causes it, how it can be managed, and the support available.

Cover image of 'Capecitabine (Xeloda®)'

Capecitabine (Xeloda®) (May 2017)

Pancreatic Cancer UK

This factsheet has information about capecitabine to treat pancreatic cancer. It describes how it is given and the possible side effects.

Cover image of 'Oxaliplatin (Eloxatin®)'

Oxaliplatin (Eloxatin®) (May 2017)

Pancreatic Cancer UK

A factsheet for anyone who would like to find out more about oxaliplatin chemotherapy to treat pancreatic cancer. It has information about how oxaliplatin is given and the side effects.

Cover image of 'Gemcitabine (Gemzar®)'

Gemcitabine (Gemzar®) (May 2017)

Pancreatic Cancer UK

Gemcitabine may be used for advanced pancreatic cancer. Thus factsheet describes how it is given and the side effects.

Cover image of 'FOLFIRINOX'

FOLFIRINOX (May 2017)

Pancreatic Cancer UK

FOLFIRINOX is a possible treatment option for advanced pancreatic cancer. It is a combination of four drugs (leucovorin (folinic acid), fluorouracil, irinotecan and oxaliplatin). This factsheet describes how it is given and the possible side effects.

Cover image of 'Nab-paclitaxel (Abraxane®)'

Nab-paclitaxel (Abraxane®) (May 2017)

Pancreatic Cancer UK

This factsheet is for anyone diagnosed with pancreatic cancer who would like to find out more about nab-paclitaxel chemotherapy to treat pancreatic cancer. It provides information about how nab-paclitaxel is given and the side effects.

Cover image of 'Fluorouracil (5-FU)'

Fluorouracil (5-FU) (May 2017)

Pancreatic Cancer UK

A factsheet for anyone who would like to find out more about Fluorouracil (5-FU) chemotherapy to treat pancreatic cancer. It has information about how 5FU is given and the side effects.<!-- ?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ? -->

Cover image of 'Nourishing your body during pancreatic cancer treatment'

Nourishing your body during pancreatic cancer treatment (2016)

Pancreatic Cancer Action

Created by dietitians and chefs at University College Cork, this recipe book provides advice on how best to combat cancer-induced weight loss and other eating related problems whilst undergoing pancreatic cancer treatment.  It features over 80 quick, easy and energy dense recipes for nourishing meals and snacks that have been created specifically for people who find it hard to maintain a healthy weight. 

Cover image of 'Pancreatic cysts and cystic tumours'

Pancreatic cysts and cystic tumours (May 2016)

Pancreatic Cancer Action

A booklet for patients and carers describing the types of pancreatic cyst, their symptoms and risks. It gives detailed information on the diagnostic tests used, the different types of treatment given for cancerous and non-cancerous cysts. It includes a glossary to explain many of the terms used. 

Cover image of 'The cancer survivors club'

The cancer survivors club (2015)

Oneworld Publications

The Cancer Survivors Club is a collection of truly inspirational, uplifting and assuring survival stories. These poignant personal accounts from normal people, demonstrate an extraordinary determination to survive against the odds. It proves with survival rates doubling, anything is possible. Unfortunately cancer affects everyone; worldwide there are around 12.7 million new cases diagnosed each year. Every two minutes someone in the UK is diagnosed with cancer. The Cancer Survivors Club has an excellent mix of stories, from the most common cancer, to the rarest. Some of the cancer types mentioned are; brain, bowel, breast, pancreatic, spinal, testicular, leukaemia, nasal and non-Hodgkin's lymphoma. Included in the book are a number of Chris Geiger's cheerful newspaper columns, including his humorous account of a prostate examination, getting sunburnt on a crowded beach and his Guinness World Record article. The Cancer Survivors Club will provide anyone touched by cancer with hope, strength and encouragement. Each story is written from the survivors or families own perspective, offering a very warm, friendly style of writing. This relaxed and sometimes humorous approach makes The Cancer Survivors Club an informative, positive and inspirational book that the reader will be able to relate to and gain strength from. Many cancer patients and those around them find the gruelling treatments very hard to cope with, they often feel very alone and isolated. This book allows anyone affected by the disease to focus their attention on surviving, ultimately making it their goal to share their story in future editions. Most patients have times when they feel they are the only person going through cancer treatment and have nobody to talk with. It is also a very difficult time for people close to the patient who have no previous experience in dealing with this disease. The Cancer Survivors Club is a must-read for the millions of cancer patients worldwide and a book of great support for their family and friends. (Publisher)

Cover image of 'The ripple effect: how a positive attitude and a caring community helped save my life'

The ripple effect: how a positive attitude and a caring community helped save my life (2014)

Self-published using iUniverse

The author, Steven Lewis, in superb life-long health, was diagnosed with pancreatic cancer, a disease with a survival rate of only 5%. In spite of this, Steven and his wife struggled to achieve and deliberately maintain an extremely positive attitude. This choice started a "ripple effect" that created an exceptionally caring and upbeat community of family, relatives and friends and enabled this community to return even more positive energy to Steven. The story became even more intense when Steven endured a second bout of pancreatic cancer that metastasized to his liver. Surviving a second bout of pancreatic cancer is so rare that no statistics are kept. Today, Steven is cancer free, in excellent health and works out strenuously. Virtually all of us, at some point, will experience extreme life difficulties involving circumstances such as severe illness, injuries, accidents, divorce or natural disasters. A positive attitude can help us think clearly, be solution oriented and ultimately prevail. Whether Steven physically survived or not, an attitude of complaint and negativity would have shattered his emotional life and that of his family. Steven's choice was to stay positive and upbeat in spite of his situation. What would you have done? (Publisher) 

Cover image of 'The cancer survivors club'

The cancer survivors club (2012)

CKG Ventures

The Cancer Survivors Club is a collection of truly inspirational, uplifting and assuring survival stories. These poignant personal accounts from normal people, demonstrate an extraordinary determination to survive against the odds. It proves with survival rates doubling, anything is possible. Unfortunately cancer affects everyone; worldwide there are around 12.7 million new cases diagnosed each year. Every two minutes someone in the UK is diagnosed with cancer. The Cancer Survivors Club has an excellent mix of stories, from the most common cancer, to the rarest. Some of the cancer types mentioned are; brain, bowel, breast, pancreatic, spinal, testicular, leukaemia, nasal and non-Hodgkin's lymphoma. Included in the book are a number of Chris Geiger's cheerful newspaper columns, including his humorous account of a prostate examination, getting sunburnt on a crowded beach and his Guinness World Record article. The Cancer Survivors Club will provide anyone touched by cancer with hope, strength and encouragement. Each story is written from the survivors or families own perspective, offering a very warm, friendly style of writing. This relaxed and sometimes humorous approach makes The Cancer Survivors Club an informative, positive and inspirational book that the reader will be able to relate to and gain strength from. Many cancer patients and those around them find the gruelling treatments very hard to cope with, they often feel very alone and isolated. This book allows anyone affected by the disease to focus their attention on surviving, ultimately making it their goal to share their story in future editions. Most patients have times when they feel they are the only person going through cancer treatment and have nobody to talk with. It is also a very difficult time for people close to the patient who have no previous experience in dealing with this disease. The Cancer Survivors Club is a must-read for the millions of cancer patients worldwide and a book of great support for their family and friends. (Publisher)

Cover image of 'Singing the life. The story of a family in the shadow of cancer'

Singing the life. The story of a family in the shadow of cancer (2008)

Vermilion (Random House)

As a result of a genetically-transmitted gene, all three Bryan sisters, Felicity, Elizabeth and Bunny have had cancer. And, unusually, each of them suffered a different cancer; ovarian, breast and pancreatic. As the gene also has a dominant inheritance, half of their family members can be expected to carry it. Now, in a personal and deeply affecting memoir, Elizabeth writes of her family's extraordinary experience of this dreadful disease. Writing not only as a daughter, sister and aunt of those afflicted and bereaved by cancer, but as a sufferer herself, she will tell of the shocks, sadnesses, dilemmas and uncertainties that come with diagnosis and then treatment. Giving a personal view from both the perspective of a patient and that of a relative, as well as comparing the impacts of remission and terminal prognoses on herself and those around her, Singing the Life gives a uniquely wide-ranging account of dealing with life-threatening illness and the threat it still poses in her family. Eloquently setting Elizabeth's personal story against the universal fears, problems and worries that face those affected by cancer, this is an inspirational and encouraging read unlike any other on the subject. (Publisher)

Cover image of 'Radiotherapy after breast surgery. A guide for patients and their families'

Radiotherapy after breast surgery. A guide for patients and their families (February 2020)

Christie Hospital NHS Trust

This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.

Cover image of 'My brother or sister has cancer. A children's guide to coping with cancer'

My brother or sister has cancer. A children's guide to coping with cancer (May 2020)

Children's Cancer and Leukaemia Group

This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'COVID-19 (coronavirus)'

COVID-19 (coronavirus) (March 2020)

Lymphoedema Support Network

Guidance for people with lymphoedema.

Cover image of 'Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients'

Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients (2020)

The Oesophageal Patients Association

This leaflet explains what laparoscopic fundoplication anti-reflux surgery is and why it might be needed. It describes what happens before, during and after surgery, possible side-effects, and follow up.

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (March 2020)

Breast Cancer Now

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'How to check your lymph nodes'

How to check your lymph nodes (November 2020)

British Association of Dermatologists

This factsheet aims to help you to understand more about checking your lymph nodes yourself. It explains what lymph nodes are, why you should check them, how often you should perform a check, and how to check them.

Cover image of 'What is lymphoma?'

What is lymphoma? (March 2020)

Lymphoma Action

An overview of how cancer develops and what lymphoma is. 

Cover image of 'Human papillomavirus (HPV)'

Human papillomavirus (HPV) (March 2020)

Jo's Cervical Cancer Trust

This booklet explains what HPV (human papillomavirus) is and the link with cervical cancer. It describes how HPV is transmitted, how to reduce the risk, and testing for HPV.

Cover image of 'Bereavement. Sources of help and support'

Bereavement. Sources of help and support (August 2020)

Children's Cancer and Leukaemia Group

Sources of support for families who have lost a child from cancer. Includes details of organisations, bereavement centres, books for parents, and books for children.

Cover image of 'Help with health costs'

Help with health costs (August 2020)

Age UK

Most NHS services are free but there are charges for prescriptions, dental treatment, sight tests, glasses and contact lenses and wigs and fabric supports. This factsheet explains how the NHS Low Income Scheme helps people on a low income with charges and the cost of travelling to receive NHS treatment. The factsheet explains what you are entitled to if you: are aged 60 and over; receive Pension Credit Guarantee Credit.

Cover image of 'Inflammatory breast cancer'

Inflammatory breast cancer (February 2020)

Breast Cancer Now

This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.

Cover image of 'Planning for your funeral'

Planning for your funeral (February 2020)

Age UK

This factsheet highlights things to consider if you want to plan ahead and make financial and other arrangements for your funeral. It looks at options when deciding what type of funeral you want, ways to pay for a funeral, and information about organ donation. It may be helpful for people arranging a funeral. 

Cover image of 'Diet and breast cancer'

Diet and breast cancer (January 2020)

Breast Cancer Now

A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.

Cover image of 'Human papillomavirus (HPV). The facts'

Human papillomavirus (HPV). The facts (March 2020)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about HPV, high risk HPV and cervical cancer, contracting high risk HPV and how to reduce your risk. It also describes the services that Jo's Cervical Cancer Trust offers to anyone concerned about HPV, cervical screening, cervical abnormalities and cervical cancer.

Cover image of 'Dying to be heard'

Dying to be heard (2020)

Hospice UK|Dying Matters

Guidance on how to be a good listener if someone wants to talk about death.

Cover image of 'HPV vaccine'

HPV vaccine (March 2020)

Jo's Cervical Cancer Trust

This booklet describes HPV (human papillomavirus) and how the vaccine works. It explains where girls can get the vaccine, how effective it is and the possible side effects.

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (July 2020)

Breast Cancer Now

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'Surgery'

Surgery (January 2020)

Macmillan Cancer Support

This factsheet explains why surgery may be used to treat cancer. It describes how the surgery is carried out, what happens before and after an operation, and the possible long-term complications, such as lymphoedema.

Cover image of 'Surgery [Welsh]'

Surgery [Welsh] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Know your breasts. A quick guide to being breast aware [Chinese, Cantonese]'

Know your breasts. A quick guide to being breast aware [Chinese, Cantonese] (January 2020)

Breast Cancer Now

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Your guide to cervical cancer'

Your guide to cervical cancer (March 2020)

Jo's Cervical Cancer Trust

A guide for women who have recently been diagnosed with cervical cancer, and those who care about them.  

Cover image of 'Cervical screening (smear test)'

Cervical screening (smear test) (March 2020)

Jo's Cervical Cancer Trust

This booklet explains what cervical screening is, who is eligible, the test itself, and what happens if the result is abnormal.

Cover image of 'Docetaxel (Taxotere)'

Docetaxel (Taxotere) (October 2020)

Breast Cancer Now

This factsheet explains briefly what Taxotere® is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'Surgery [Russian]'

Surgery [Russian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma'

A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma (September 2020)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. We hope it answers some of your questions and helps you to cope with some of the feelings you may have. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers'

Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers (March 2020)

Colostomy UK

This booklet is for anyone responsible for caring for someone with a stoma. It briefly describes what a stoma is and why people have stoma surgery, then covers the practical aspects of caring for someone with a stoma. This includes everything from ordering medical supplies and disposing of waste, to diet, changing a stoma bag and recognising some of the common problems, such as sore skin. It also considers the concerns that people with stomas have and how these can impact on their physical and mental wellbeing. 

Cover image of 'Surgery [Urdu]'

Surgery [Urdu] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Surgery [Polish]'

Surgery [Polish] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Bengali]'

Surgery [Bengali] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

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