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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Prostate Cancer UK
This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.
Macmillan Cancer Support
This information is about help with costs if you have cancer. Includes the English-language version.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Age UK
This guide looks at the practical and emotional sides of caring. It has information about areas such as benefits and flexible working hours, as well as how a caring role could affect wellbeing and social life.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Age UK
This guide aims to put older people at ease if they are going to be admitted to hospital. It will help them: prepare for going into hospital; understand their rights in hospital; understand the discharge process; and be more informed about care afterwards. It may also be useful for relatives and friends, as it can be a difficult time for them too.
Breast Cancer Care
This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Marie Curie
This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about the different people who can help them and care for them.
Macmillan Cancer Support
This information is about help with costs if you have cancer. Includes English-language version.
Breast Cancer Care
This leaflet describes the FEC chemotherapy combination (5 fluorouracil, epirubicin and cyclophosphamide), when it may be used, how it works, how it is given and the possible side-effects.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Prostate Cancer UK
This booklet is for men who have been recently diagnosed with prostate cancer. It describes the prostate, how prostate cancer is diagnosed, what the test results mean, the treatment options, and the support available. It has space to record contact details and other information that may be useful, such as appointment times and PSA levels.
Macmillan Cancer Support
This information is about help with costs if you have cancer. Includes English-language version.
Macmillan Cancer Support
This information is about help with costs if you have cancer. Includes English-language version.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Macmillan Cancer Support
This information is about help with costs if you have cancer. Includes English-language version.
Macmillan Cancer Support
This information is about help with costs if you have cancer. Includes English-language version.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Together for Short Lives
Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child.
Macmillan Cancer Support
This information is about help with costs if you have cancer. Includes the English-language version.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Breast Cancer Now
This booklet is about breast cancer treatment and fertility. It describes how treatment for primary breast cancer may affect a woman’s fertility, and possible ways of preserving fertility. It also includes information about pregnancy after a diagnosis of breast cancer, and permanent infertility.
Breast Cancer Care
This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.
NHS Health Scotland
This booklet is for smokers who are seriously thinking of giving up smoking. The contents include: Thinking about stopping; Preparing to stop; Stopping; Staying stopped; Further help; Medications.
Marie Curie
If you have breathlessness, this booklet may be helpful for you. It’s aimed at people with a life-limiting or terminal illness and may be helpful at any stage of your illness. It describes things you can do yourself to manage breathlessness, and who can help you.
Breast Cancer Care
This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.
Breast Cancer Care
This booklet explains what the chemotherapy combination FEC-T is, when it may be prescribed, how it is given and what side effects may occur. FEC-T is a combination of four chemotherapy drugs: 5 fluorouracil (also known as 5FU); epirubicin; cyclophosphamide; docetaxol (also known as Taxotere).
Advanced Cancers Coalition
This short guide has been designed to support conversations in advanced cancer. It explains why good communication matters and has tips to support productive conversations. It can be used on an ongoing basis to support you in either living with or knowing someone with advanced cancer. [The ACC is a coalition of UK cancer patient groups with a shared interest in delivering improvements in care and treatments for people with advanced cancer. The activity of the ACC is funded by Roche Products Limited.]
Breast Cancer Now
This leaflet explains how making some simple lifestyle changes could help you reduce your risk of breast cancer.
Breast Cancer Care
This booklet aims to help women understand more about their breasts, how they develop and age, and the normal changes that can occur before a period, during pregnancy, when breastfeeding, and before, during and after the menopause. It uses illustrations to show women how to check their breasts and advises what to do if a change is noticed. It also describes routine breast screening, what happens at the clinic, and the limitations of screening.
NHS Health Scotland
This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.
Breast Cancer Now
Breast cancer and its treatments can cause many physical and emotional changes. This booklet outlines how these changes can alter the way you feel about your body, and how they may affect sex and intimacy. The booklet covers many topics including getting used to changes to your body, how breast cancer and its treatments may affect your sex life or intimate relationships, and offers tips on sex and intimacy after treatment.
Breast Cancer Care
This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Breast Cancer Care
This booklet explains what trastuzumab is, how it works, when it may be prescribed and the side effects you may experience.
NHS Health Scotland
This booklet is for smokers who are seriously thinking of giving up smoking. The contents include: Thinking about stopping; Preparing to stop; Stopping; Staying stopped; Further help; Medications.
Target Ovarian Cancer
When you have ovarian cancer you might find that your appetite (the amount you want to eat) and the types of food you want to eat are different from before. You might also be wondering if there is anything you can change about your diet (including eating or not eating specific foods) that might impact on how your cancer acts or how effective your treatment is. This booklet aims to give you an overview of the evidence for diet and nutrition in relation to ovarian cancer so that you can make choices that are right for you.
Marie Curie
This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about talking to family and friends.
Haynes Publishing for Men's Health Forum
One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)
Bowel Cancer UK
This booklet has information about how food can affect your symptoms during and after bowel cancer treatment. After treatment, you may find you can’t eat the same foods as you did before. These changes may be temporary or they may be longer-lasting.
Bowel Cancer UK
The information in this booklet is for anyone who has had treatment for bowel cancer. It may also be helpful for family and friends. It describes follow-up care, possible side effects from treatment, and some of the feelings people might have after finishing treatment. It also explains how a healthy lifestyle can help and your rights are work.
Breast Cancer Care
This leaflet uses illustrations to show women how to check their breasts. Includes the English-language version.
Bowel Cancer UK
This booklet is for anyone diagnosed with bowel cancer and their family and friends. It gives an overview of what bowel cancer is, how it is treated, the common treatment side effects and what happens when treatment finishes.
NHS Health Scotland
This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant.
Prostate Scotland
This booklet is to help men whose cancer has not spread beyond the prostate understand more about minimal access surgery to remove the prostate (also known as robotic assisted radical prostatectomy and laparoscopic radical prostatectomy). It covers what it is, who it’s suitable for, what happens and the advantages and drawbacks of this type of treatment. It may help men decide if this might be the right treatment choice for them.
Lymphoma Action
Some lymphoma treatments can cause your hair to thin or fall out. Knowing what to expect and what you can do about it may help you cope with losing your hair. This factsheet has advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the options you may wish to consider until your hair grows back.
Marie Curie
This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies.
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