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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1822

Cover image of 'Dear life. A doctor's story of love and loss'

Dear life. A doctor's story of love and loss (2020)

Little, Brown Book Group

As a specialist in palliative medicine, Dr Rachel Clarke chooses to inhabit a place many people would find too tragic to contemplate. Every day she tries to bring care and comfort to those reaching the end of their lives and to help make dying more bearable. Rachel's training was put to the test in 2017 when her beloved GP father was diagnosed with terminal cancer. She learned that nothing - even the best palliative care - can sugar-coat the pain of losing someone you love. And yet, she argues, in a hospice there is more of what matters in life - more love, more strength, more kindness, more joy, more tenderness, more grace, more compassion - than you could ever imagine. For if there is a difference between people who know they are dying and the rest of us, it is simply this: that the terminally ill know their time is running out, while we live as though we have all the time in the world. Dear Life is a book about the vital importance of human connection, by the doctor we would all want by our sides at a time of crisis. It is a love letter - to a father, to a profession, to life itself. (Publisher)

Cover image of 'My chemotherapy journey'

My chemotherapy journey (2020)

Ken Harwood

The author was diagnosed in 2019 with a low-grade non-Hodgkin lymphoma and this is his day-by-day account of his chemotherapy journey over a six month period.

Cover image of 'A guide for prisoners at the end of life [in press]'

A guide for prisoners at the end of life [in press] (January 2020)

Macmillan Cancer Support

This booklet is for you if you may die in prison from a serious illness. It explains what might happen, how you may feel and what support is there to help you. There is some information about what will happen after your death and the support available for any family members and friends.

Cover image of 'Fatigue and brain tumours'

Fatigue and brain tumours (January 2020)

The Brain Tumour Charity

This leaflet aims to help patients understand why they may have less energy. It explains what cancer-related fatigue is and describes the symptoms and possible causes. It has suggestions for coping with fatigue and answers some commonly asked questions and also offers some practical suggestions for coping with the emotional and physical effects of fatigue.

Cover image of 'Sun safety and skin cancer. The facts, prevention and early detection'

Sun safety and skin cancer. The facts, prevention and early detection (2019)

SKCIN: The Karen Clifford Skin Cancer Charity

Leaflet with information about skin cancer and how to avoid it, including: sunburn; sunbeds; protecting young children; choosing the right sunscreen; applying sunscreen; at risk groups; types of skin cancer.

Cover image of 'What does it mean?'

What does it mean? (2019)

BUPA

This booklet explains what cancer is and explores some common worries and feelings that children may have - reassuring them that however they react, it’s ok.

Cover image of 'Life at home'

Life at home (2019)

BUPA

This booklet looks at some of the side-effects of different types of cancer treatments. It also offers ideas for small ways children may like to help out at home.  

Cover image of 'Visiting hospital'

Visiting hospital (2019)

BUPA

This booklet explains types of treatment and some of the health professionals who are helping people with cancer to get better. 

Cover image of 'Where to get help. A guide to services'

Where to get help. A guide to services (November 2019)

Christie Hospital NHS Trust

Although designed primarily for people having treatment at the Christie Hospital, this booklet is relevant to anyone with cancer. It describes the emotional support, palliative care, and financial help available. It has a list of national support groups and also support groups in the northwest.

Cover image of 'Eating well when following a low fibre diet. A guide for patients and their carers'

Eating well when following a low fibre diet. A guide for patients and their carers (January 2019)

Christie Hospital NHS Trust

Some people may be advised to follow a low-fibre diet during or after treatment for cancer. This booklet gives ideas of suitable foods and advice for improving the nutritional value of meals; this may be helpful for people who have a poor appetite or who have lost weight.

Cover image of 'Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet'

Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet (March 2019)

Christie Hospital NHS Trust

Some illnesses or treatments may make swallowing difficult. This booklet has ideas on how to prepare soft or liquidised foods and how to make food more nourishing by enriching it with dairy produce, fats, sugars and fortified milk. Includes meal suggestions.

Cover image of 'Eating – help yourself. A guide for patients and their carers'

Eating – help yourself. A guide for patients and their carers (February 2019)

Christie Hospital NHS Trust

Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.

Cover image of 'Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment'

Anna loses her hair. A children’s guide to hair loss as a result of cancer treatment (April 2019)

Children's Cancer and Leukaemia Group

Hair loss is a common side effect of treatment for childhood cancer, but its impact can be significant. This animation tells the story of Anna, Jack and Laura who all lose their hair while having treatment for cancer and helps young children to understand what might happen.

Cover image of 'Understanding your small cell lung cancer'

Understanding your small cell lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet explains what small cell lung cancer is, and addresses common questions and concerns. 

Cover image of 'Relax and breathe [Audio CD]'

Relax and breathe [Audio CD] (2019)

Macmillan Cancer Support

This audio CD aims to help people learn to manage breathlessness. Track 1: Coping with shortness of breath; Track 2: Introduction and preparation for Relax and Breathe; Track 3: Relaxation exercise 1; Track 4: Relaxation exercise 2. 

Cover image of 'Coping with advanced cancer [Audio CD]'

Coping with advanced cancer [Audio CD] (2019)

Macmillan Cancer Support

Audio CD of the booklet, with information to help people who have been told their cancer has spread or come back, and for their relatives and friends. It covers issues such as deciding about treatment, sources of emotional help, coping with day-to-day life, and putting affairs in order. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Localised prostate cancer'

Localised prostate cancer (April 2019)

Prostate Cancer UK

This factsheet provides an overview of localised prostate cancer: what it is; what tests are used to diagnose it; grading and staging; treatment options; and choosing treatment.

Cover image of 'Know your prostate. A guide to common prostate problems'

Know your prostate. A guide to common prostate problems (June 2019)

Prostate Cancer UK

This booklet is aimed at anyone who wants to know more about the prostate gland. It describes what the prostate gland is, the changes to look out for, benign prostatic hyperplasia, prostatitis and prostate cancer (what it is, the symptoms, the risk factors and what will happen at the doctors). A summary of this information is also available as a Z-card 'Know your prostate. A quick guide.'

Cover image of 'Active surveillance'

Active surveillance (March 2019)

Prostate Cancer UK

This fact sheet is for men who want to know more about active surveillance, which is a way of monitoring localised (early) prostate cancer rather than treating it straight away. 

Cover image of 'Travel and prostate cancer'

Travel and prostate cancer (January 2019)

Prostate Cancer UK

Information for men with prostate cancer who are planning a holiday or travel abroad. It has tips to help prepare for the trip, including guidance on arranging travel insurance.

Cover image of 'Advanced prostate cancer'

Advanced prostate cancer (May 2019)

Prostate Cancer UK

Factsheet for men who have been diagnosed with advanced (metastatic) prostate cancer. It explains what advanced prostate cancer is, and describes how it is diagnosed, the grading and staging, and the treatment options (hormone therapy).

Cover image of 'Treated for cancer and living with the consequences?'

Treated for cancer and living with the consequences? (February 2019)

Pelvic Radiation Disease Association

Information about pelvic radiation disease and the work of the Pelvic Radiation Disease Association.

Cover image of 'Proton beam therapy myths. Myths that need busting'

Proton beam therapy myths. Myths that need busting (January 2019)

Brainstrust

This leaflet looks at some of the myths around proton beam therapy: protons can treat any cancer; proton beam therapy is more effective than conventional radiotherapy; protons can cure cancer that other treatments can’t; having proton beam therapy through a private provider is better than through the NHS; decisions to be treated with proton beam therapy are based on money; other countries use proton beam therapy in most cases; most people should be treated with proton beam therapy.

Cover image of 'Living with hormone therapy. A guide for men with prostate cancer'

Living with hormone therapy. A guide for men with prostate cancer (June 2019)

Prostate Cancer UK

This booklet is for men who are having hormone therapy. It describes the different types of hormone therapy, how they work and what the treatment involves. It also includes information about the possible side-effects and how to manage them.

Cover image of 'Stoma reversal'

Stoma reversal (July 2019)

Colostomy UK

This leaflet describes the different types of stoma and the surgical techniques involved in their reversal. It also considers the advantages and possible problems associated with a reversal and suggests a simple checklist to ensure you make the appropriate decision for you.

Cover image of 'Rectal discharge following stoma surgery'

Rectal discharge following stoma surgery (July 2019)

Colostomy UK

This leaflet explains why rectal discharge might occur following a colostomy and describes some of the management techniques and coping mechanisms that might help.

Cover image of 'Are you having or have you ever had pelvic radiotherapy?'

Are you having or have you ever had pelvic radiotherapy? (February 2019)

Pelvic Radiation Disease Association

Credit-card leaflet, with general information about the symptoms of pelvic radiation disease. 

Cover image of 'Parastomal hernias'

Parastomal hernias (September 2019)

Colostomy Association

This leaflet explains what a parastomal hernia is, the causes, the complications and problems it can cause and the treatment options. It has practical hints and tips for managing a parastomal hernia and for reducing the risk. Includes the personal experiences of four ostomates.

Cover image of 'Living with lung cancer'

Living with lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet was written with the help of lung cancer experts, people affected by lung cancer, and others who support people with lung cancer to help you make the most of your health and wellbeing. 

Cover image of 'Understanding breast cancer in women [Audio CD]'

Understanding breast cancer in women [Audio CD] (January 2019)

Macmillan Cancer Support

Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Financial support - benefits [Urdu]'

Financial support - benefits [Urdu] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'My lung surgery'

My lung surgery (August 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and surgery is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment. It discusses the types of surgery, what happens before, during and after surgery, and returning home.

Cover image of 'Locally advanced prostate cancer'

Locally advanced prostate cancer (May 2019)

Prostate Cancer UK

This factsheet provides an overview of locally advanced prostate cancer: what it is; what tests are used to diagnose it; grading and staging; treatment options; and choosing treatment.

Cover image of 'Financial support - benefits [Welsh]'

Financial support - benefits [Welsh] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Punjabi]'

Financial support - benefits [Punjabi] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Arabic]'

Financial support - benefits [Arabic] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Know your prostate. A quick guide'

Know your prostate. A quick guide (June 2019)

Prostate Cancer UK

Z-card with information from the booklet 'Know your prostate. A guide to common prostate problems'. It describes the prostate gland, the changes to look out for, benign prostatic hyperplasia, prostatitis and prostate cancer (what it is, the symptoms and the risk factors).

Cover image of 'The PSA test'

The PSA test (April 2019)

PCaSO Prostate Cancer Support Network

This leaflet describes the PSA test and what it involves, and the advantages and disadvantages of having the test.

Cover image of 'Financial support - benefits [Romanian]'

Financial support - benefits [Romanian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Manversation. A woman's guide to prostate cancer. Support and guidance for women whose partners have been diagnosed with prostate cancer'

Manversation. A woman's guide to prostate cancer. Support and guidance for women whose partners have been diagnosed with prostate cancer (October 2019)

Orchid – Fighting Male Cancer|Tackle Prostate Cancer

The Manversation campaign aims to challenge outdated stereotypes, raise awareness of the symptoms of advanced prostate cancer and encourage men to speak up about potential symptoms as soon as they experience them. This leaflet describes how women can support men with advanced prostate cancer and how they can get supoport for themselves.

Cover image of 'Financial support - benefits [Bengali]'

Financial support - benefits [Bengali] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version..

Cover image of 'Financial support - benefits [Russian]'

Financial support - benefits [Russian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Gujarati]'

Financial support - benefits [Gujarati] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'Financial support - benefits [Polish]'

Financial support - benefits [Polish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Chemotherapy for lung cancer'

Chemotherapy for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet was produced in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Travelling, going on holiday and lung cancer'

Travelling, going on holiday and lung cancer (March 2019)

Roy Castle Lung Cancer Foundation

Most people look forward to a holiday. This booklet covers everything you will want to know, from medication advice to destinations. 

Cover image of 'Healthy eating. Nutritional guidelines for people with a colostomy'

Healthy eating. Nutritional guidelines for people with a colostomy (June 2019)

Colostomy UK

Advice on diet and nutrition following a colostomy.

Cover image of 'Financial support - benefits'

Financial support - benefits (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

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