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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1438

Cover image of 'Radiotherapy for primary breast cancer'

Radiotherapy for primary breast cancer (May 2019)

Breast Cancer Care

This booklet describes radiotherapy for primary (early) breast cancer. It explains what radiotherapy is, why it might be needed, how it is given, what to expect, treatment planning, and the possible side-effects. 

Cover image of 'Prostate brachytherapy'

Prostate brachytherapy (January 2017)

Prostate Scotland

This leaflet is for men who want to understand more about brachytherapy - what it is, who it is suitable for, the advantages and disadvantages - and make an informed decision about treatment.

Cover image of 'Surgery for ovarian cancer'

Surgery for ovarian cancer (May 2018)

Ovacome

This factsheet describes what will happen before and during surgery for ovarian cancer, and what happens if the bowel or other organs are affected. It also covers recovery and going home.

Cover image of 'Chemotherapy'

Chemotherapy (May 2018)

Ovacome

This factsheet has information about the chemotherapy drugs commonly used to treat ovarian cancer. It covers: What chemotherapy will I need?; Having treatment; Chemotherapy side effects; Treatment with Carboplatin; Treatment with Taxol; Caelyx; Caring for yourself when you are having chemotherapy.

Cover image of 'Stage 1 ovarian cancer'

Stage 1 ovarian cancer (May 2018)

Ovacome

This factsheet describes how stage 1 ovarian cancer is treated. 

Cover image of 'Clear cell carcinoma of the ovary'

Clear cell carcinoma of the ovary (May 2018)

Ovacome

This factsheet briefly describes clear cell carcinoma of the ovary: what it is; how it is treated; some side-effects of chemotherapy; and what happens after treatment has finished.

Cover image of 'About ovarian cancer'

About ovarian cancer (May 2018)

Ovacome

This factsheet describes how ovarian cancer is diagnosed, the different types of ovarian cancer, and the treatment options.

Cover image of 'Screening for ovarian cancer'

Screening for ovarian cancer (May 2018)

Ovacome

This factsheet describes the tests that could be carried out to screen for ovarian cancer (internal examination; CA125 blood test; and ultrasound), their effectiveness, the problems of screening for ovarian cancer, and the results of recent studies. It also provides broad guidelines for women at low and high risk of developing ovarian cancer.

Cover image of 'Mesothelioma of the testicle'

Mesothelioma of the testicle (July 2017)

Mesothelioma UK

This leaflet briefly describes the very rare cancer mesothelioma of the testicle.

Cover image of 'Blocked bowel'

Blocked bowel (May 2018)

Ovacome

A blocked bowel (or bowel obstruction) is a possible complication of ovarian cancer. This factsheet describes how a low fibre (fibre-restricted) diet may help.

Cover image of 'Rare ovarian tumours'

Rare ovarian tumours (May 2018)

Ovacome

This factsheet describes some of the rarer ovarian cancers and how they may be treated, namely: germ cell tumours; sex-cord stromal tumours (granulosa cell tumour and Sertoli-Leydig cell tumours); small-cell carcinoma of the ovary; Brenner tumours; and Krukenberg tumours.

Cover image of 'Primary peritoneal cancer'

Primary peritoneal cancer (December 2018)

Ovacome

This factsheet has information on primary peritoneal cancer, a rare variant of ovarian cancer. It describes what primary peritoneal cancer is, the signs and symptoms, diagnosis, treatment - surgery and chemotherapy - and follow-up care.

Cover image of 'My child has a brain or spinal tumour. A guide for parents and carers'

My child has a brain or spinal tumour. A guide for parents and carers (January 2017)

Children's Cancer and Leukaemia Group

This booklet has detailed information for parents whose child has a brain or spinal tumour. It covers the typical signs and symptoms, diagnosis, the treatment options, clinical trials, supportive care during treatment, and ongoing needs after therapy. Appendices include the structure and function of the brain, a glossary of terms, support groups and useful sources of information.

Cover image of 'Medical terms explained'

Medical terms explained (May 2018)

Ovacome

A glossary of medical terms that women with ovarian cancer may come across.

Cover image of 'Borderline ovarian tumours'

Borderline ovarian tumours (May 2018)

Ovacome

This factsheet explains what is meant by borderline ovarian cancer and the three situations that might cause concern or uncertainty: borderline ovarian tumours that have spread beyond the ovary (non-invasive and invasive implants); mucinous borderline tumours; stage-1 borderline ovarian tumours in young women treated with limited surgery.

Cover image of 'Solidifying agents'

Solidifying agents (May 2017)

Colostomy UK

List of solidifying agents and the companies that supply them.

Cover image of 'What happens if you are diagnosed'

What happens if you are diagnosed (May 2018)

Ovacome

A checklist of questions for women with ovarian cancer to ask their doctor. It is divided into sections such as: What can I expect to happen now?; At your appointment; What if I have ovarian cancer?; My treatment has finished. Now what?. It also has advice on how women can help themselves; for example, talking to others, support groups, and counselling.

Cover image of 'Pelvic radiation disease'

Pelvic radiation disease (2018)

Guts UK

Pelvic radiation disease is a term used to describe a collection of symptoms that can arise after radiotherapy treatment to the abdomen or pelvis for cancers such as cervical, prostate, bladder and bowel cancers. This leaflet describes the causes, symptoms, how it is diagnosed, the treatment options, and the impact.

Cover image of 'Fallopian tube cancer'

Fallopian tube cancer (December 2018)

Ovacome

This factsheet has about fallopian tube cancer. It describes what fallopian tube cancer is, the risk factors, symptoms, diagnostic tests, treatment options (surgery, chemotherapy), and follow-up care.

Cover image of 'The stages of ovarian cancer'

The stages of ovarian cancer (May 2018)

Ovacome

This factsheet describes the four stages of ovarian cancer. Includes a glossary. (There are separate factsheets with more information about each stage.)

Cover image of 'When you're close to someone with prostate cancer. A guide for partners and family'

When you're close to someone with prostate cancer. A guide for partners and family (July 2019)

Prostate Cancer UK

A booklet for anyone close to a man affected by prostate cancer, whether partner, family member or friend. It discusses ways to support a man with prostate cancer, where to get further information and how to look after yourself.

Cover image of 'Bereavement. Sources of help and support'

Bereavement. Sources of help and support (August 2020)

Children's Cancer and Leukaemia Group

Sources of support for families who have lost a child from cancer. Includes details of organisations, bereavement centres, books for parents, and books for children.

Cover image of 'Ovarian cancer and sexuality'

Ovarian cancer and sexuality (May 2018)

Ovacome

This factsheet has information and advice about sexuality during and after treatment for ovarian cancer. It covers topics such as sexual relations, psychological and emotional effects, and the physical effects that can affect sexual response.

Cover image of 'The bowel screening test. What you need to know [Chinese, Simplified]'

The bowel screening test. What you need to know [Chinese, Simplified] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'What you can do to help yourself'

What you can do to help yourself (September 2017)

Macmillan Cancer Support

This factsheet has information about things you can do to help yourself when you have cancer. 

Cover image of 'Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer'

Helping your child to eat well during cancer treatment. A practical information guide for parents and families of a child or young person with cancer (October 2018)

Children's Cancer and Leukaemia Group

Children with cancer may experience problems with eating and drinking at some stage. This can be due to the cancer or its treatment. This booklet has ideas on helping children with a poor appetite and other eating problems.

Cover image of 'Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer'

Handling animals and pets. Information for parents and carers of children and young people undergoing treatment for cancer (September 2017)

Children's Cancer and Leukaemia Group

Guidance on keeping pets when a child has cancer. Covers issues such as general hygiene, pets to avoid, feeding, bedding and litter trays, pet vaccines and veterinary care, and first aid if a child is bitten by a pet.

Cover image of 'Living with cancer. 4: Skin cancer'

Living with cancer. 4: Skin cancer (2007)

Family Advice and Information Resource

This illustrated booklet has been produced for people with learning difficulties. It describes some things that may cause skin cancer, the changes to look out for, having a check-up at the doctor's, and how to reduce the risk of skin cancer. Briefly mentions the treatment options.

Cover image of 'Taking part in clinical trials. Information for parents and carers of a child or young person with cancer'

Taking part in clinical trials. Information for parents and carers of a child or young person with cancer (August 2017)

Children's Cancer and Leukaemia Group

Many children and young people with cancer are treated on clinical trials. This booklet, designed for parents and carers of children and young people with cancer, aims to help you to understand more about clinical trials and answer some of the questions you may have.

Cover image of 'Physical activity. Evidence-based information to help you self-manage your cancer experience'

Physical activity. Evidence-based information to help you self-manage your cancer experience (2018)

Penny Brohn UK

This evidence-based information sheet aims to provide clearly sourced and reliable information to help you make informed choices about physical exercise in general and a range of exercises on offer at Penny Brohn UK’s National Centre to support people with cancer. 

Cover image of 'Having a syringe driver'

Having a syringe driver (December 2019)

Marie Curie

This leaflet explains why you might have a syringe driver, how it works and things to look out for. 

Cover image of 'Managing pain. A guide for people living with a terminal illness and their carers'

Managing pain. A guide for people living with a terminal illness and their carers (May 2018)

Marie Curie

If you’re living with a terminal illness, or caring for someone who is, you may be worried about pain. This booklet explains what causes pain and how it can be effectively managed. 

Cover image of 'Treatment options after your first hormone therapy'

Treatment options after your first hormone therapy (August 2017)

Prostate Cancer UK

This factsheet is for men whose prostate cancer is no longer responding as well to their original hormone therapy. It describes treatments that may help and lists other sources of support.

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'Chemo brain (cancer-related cognitive impairment)'

Chemo brain (cancer-related cognitive impairment) (April 2018)

Lymphoma Action

This factsheet describes what cancer-related cognitive disorder is, who gets it, the causes, signs, how it is assessed and treated, and how to cope with it.

Cover image of 'Living with cancer. 5: Breast cancer'

Living with cancer. 5: Breast cancer (2007)

Family Advice and Information Resource

This booklet is for people with learning difficulties. Using illustrations and simple language, it describes how to check the breasts, what to look out for, the tests that may be carried out by the doctor, treatments, and going home after an operation. It also has guidance on staying healthy.

Cover image of 'Lymphoma drug development, approval and funding'

Lymphoma drug development, approval and funding (October 2018)

Lymphoma Action

This factsheet explains why drug development takes so long, why drugs are so expensive and how you can find out if a drug might be funded on the NHS. 

Cover image of 'Ovarian cancer and stomas'

Ovarian cancer and stomas (June 2019)

Target Ovarian Cancer|Colostomy UK

Our expert mini guide is for you if you have a stoma or may get one after ovarian cancer surgery. Based on the latest evidence and full of insights from people who understand what you're going through, this guide explores what a stoma is and does and offers practical tips for overcoming common concerns. 

Cover image of 'Managing fatigue. A guide to making the most of your energy'

Managing fatigue. A guide to making the most of your energy (October 2019)

Marie Curie

Fatigue isn't like normal tiredness. It doesn't go away after rest or a good night's sleep. But there are things you can do to help manage it. This booklet has practical tips on making the most of the energy you have. 

Cover image of 'Being cared for at home'

Being cared for at home (July 2019)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'Travel insurance'

Travel insurance (May 2017)

Colostomy UK

Details of insurance companies that specialise in providing cover for ostomates.

Cover image of 'Cervical screening (smear test)'

Cervical screening (smear test) (March 2020)

Jo's Cervical Cancer Trust

This booklet explains what cervical screening is, who is eligible, the test itself, and what happens if the result is abnormal.

Cover image of 'Living with an illness you will probably die from. Your feelings [Easy read]'

Living with an illness you will probably die from. Your feelings [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about how they might feel and what might help.

Cover image of 'Helping brothers and sisters. A guide for adults supporting siblings of children with cancer'

Helping brothers and sisters. A guide for adults supporting siblings of children with cancer (February 2016)

Children's Cancer and Leukaemia Group

This illustrated leaflet is designed to help adults who come into contact with the siblings of children with cancer. It explains the problems that siblings may have and how adults can best help them cope.

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers'

Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers (March 2020)

Colostomy UK

This booklet is for anyone responsible for caring for someone with a stoma. It briefly describes what a stoma is and why people have stoma surgery, then covers the practical aspects of caring for someone with a stoma. This includes everything from ordering medical supplies and disposing of waste, to diet, changing a stoma bag and recognising some of the common problems, such as sore skin. It also considers the concerns that people with stomas have and how these can impact on their physical and mental wellbeing. 

Cover image of 'Financial support - help with costs [Chinese, Traditional]'

Financial support - help with costs [Chinese, Traditional] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes English-language version.

Cover image of 'Prostate cancer. Is it in the family? Is it time to check it out?'

Prostate cancer. Is it in the family? Is it time to check it out? (December 2018)

Prostate Scotland

This leaflet describes the risk factors for prostate cancer. It explains what is meant by a risk factor and describes the risk factors and what to do. It also has information about the PSA test, prostate cancer screening, lifestyle changes to consider, and some facts about prostate cancer.

Cover image of 'A younger woman's guide to ovarian cancer'

A younger woman's guide to ovarian cancer (May 2017)

Ovacome|Ovarian Cancer Action|Target Ovarian Cancer|The Eve Appeal

A guide for younger women who have been diagnosed with ovarian cancer. It was developed through consultation with women who have had ovarian cancer. Highly commended in the 2016 British Medical Association (BMA) Patient Information Awards. 

Cover image of 'Exercises after breast cancer surgery'

Exercises after breast cancer surgery (April 2019)

Breast Cancer Care

This leaflet explains why exercise is necessary after breast surgery, when to start exercising, and how long to carry on. It opens out into a poster that demonstrates exercises for the days and weeks after surgery.

Cover image of 'Financial support - help with costs [Urdu]'

Financial support - help with costs [Urdu] (March 2019)

Macmillan Cancer Support

This information is about help with costs if you have cancer. Includes the English-language version.

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