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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Pancreatic Cancer UK
This factsheet outlines the risk factors for pancreatic cancer.
Pancreatic Cancer Action
Created by dietitians and chefs at University College Cork, this recipe book provides advice on how best to combat cancer-induced weight loss and other eating related problems whilst undergoing pancreatic cancer treatment. It features over 80 quick, easy and energy dense recipes for nourishing meals and snacks that have been created specifically for people who find it hard to maintain a healthy weight.
Pancreatic Cancer UK
The newly diagnosed pack is for people recently diagnosed with pancreatic cancer. It contains the following publications: An overview of diagnosis and treatment, Diet and pancreatic cancer, Chemotherapy for pancreatic cancer, We're here for you leaflet and our Patient Charter. Depending on your situation we will also include: Surgery for operable pancreatic cancer, Stents and bypass surgery or Caring for someone with pancreatic cancer.
Pancreatic Cancer UK
Tips to help people talk to their GP.
Pancreatic Cancer Action
This booklet for patients and carers describes pancreatic cancer, its causes and symptoms. It has detailed information on the diagnostic tests used and the stages of pancreatic cancer. It includes a section on what to ask your doctor, where to go for further information and a glossary to explain many of the terms used.
Pancreatic Cancer UK
This fact sheet is for people with pancreatic who have fatigue. It explains what fatigue is, what causes it, how it can be managed, and the support available.
Macmillan Cancer Support
Selected pages from the booklet of the same name. Covers types of pancreatic cancer, symptoms, controlling symptoms, coping with advanced cancer and what you can do.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
This booklet has been written for people with MEN by people with MEN. It explains what MEN 1 is, how it is diagnosed, and the three main types of tumours associated with it: parathyroid tumours, pituitary tumours, and pancreatic islet cell tumours. Each section includes information about the tests that may be carried out and the treatment options.
Macmillan Cancer Support
This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.
Pancreatic Cancer UK
This factsheet explains the pancreas and what it does. It also explains what pancreatic cancer is.
Pancreatic Cancer Action
A booklet for patients and carers covering the different procedures used to control pancreaticcancer symptoms with practical information about being in hospital and returning home. Includes a section about second opinions, clinical trials, questions to ask your doctor and a glossary to explain some of the terms used.
Pancreatic Cancer UK
This factsheet is for anyone who would like to find out more about clinical trials for pancreatic cancer. Clinical trials can be an important treatment option for people with pancreatic cancer. The factsheet explains what clinical trials are, what they involve and why they are important.
Pancreatic Cancer Action
This booklet for patients and carers covers surgical procedures for those who are able to have their tumour removed. It has information on the different types of surgery available and practical information about being in hospital and returning home. It also includes a section about second opinions, clinical trials and questions to ask your doctor, and a glossary to explain some of the terms used.
Pancreatic Cancer UK
This booklet is for people with pancreatic cancer, their family, friends and carers who want to know more about what may happen in the last few months of life. It includes information about the symptoms that people with pancreatic cancer may get towards the end of their life and how to manage them. There is also information about how to get the care and support you might need, dealing with the emotional impact of dying from pancreatic cancer, and specific information for family members.
Macmillan Cancer Support
Oxaliplatin is a chemotherapy drug used to treat bowel, pancreatic, and stomach cancer, cancer and cancer of the oesophagus. It may be used to treat other cancers.
Pancreatic Cancer UK
This factsheet explains what irreversible electroporation (also known as IRE or NanoKnife®) is, how it treats pancreatic cancer, and who can have it.
Pancreatic Cancer Action
A booklet for patients and carers describing the types of pancreatic cyst, their symptoms and risks. It gives detailed information on the diagnostic tests used, the different types of treatment given for cancerous and non-cancerous cysts. It includes a glossary to explain many of the terms used.
Pancreatic Cancer UK
This booklet describes the different types of pain that pancreatic cancer can cause. It has information on how to describe pain to your medical team, and ways of keeping it under control, including painkillers.
Vermilion (Random House)
As a result of a genetically-transmitted gene, all three Bryan sisters, Felicity, Elizabeth and Bunny have had cancer. And, unusually, each of them suffered a different cancer; ovarian, breast and pancreatic. As the gene also has a dominant inheritance, half of their family members can be expected to carry it. Now, in a personal and deeply affecting memoir, Elizabeth writes of her family's extraordinary experience of this dreadful disease. Writing not only as a daughter, sister and aunt of those afflicted and bereaved by cancer, but as a sufferer herself, she will tell of the shocks, sadnesses, dilemmas and uncertainties that come with diagnosis and then treatment. Giving a personal view from both the perspective of a patient and that of a relative, as well as comparing the impacts of remission and terminal prognoses on herself and those around her, Singing the Life gives a uniquely wide-ranging account of dealing with life-threatening illness and the threat it still poses in her family. Eloquently setting Elizabeth's personal story against the universal fears, problems and worries that face those affected by cancer, this is an inspirational and encouraging read unlike any other on the subject. (Publisher)
Pancreatic Cancer UK
There are different types of pancreatic cancer. This factsheet explains the different types, including the most common type, pancreatic ductal adenocarcinoma, neuroendocrine tumours, and rarer types of pancreatic cancer.
Macmillan Cancer Support
Capecitabine is given as a treatment for many types of cancer including colorectal cancer, breast cancer, oesophageal cancer, pancreatic cancer and stomach cancer. This factsheet describes how it is given and some of the possible side-effects.
Pancreatic Cancer Action
This booklet has information about eating after insertion of a duodenal stent. It describes what to expect and the best foods to eat and avoid.
Pancreatic Cancer UK
This factsheet is for people with pancreatic cancer who are having radiotherapy. It explains the different types of radiotherapy, how it is given and the side effects.
Pancreatic Cancer UK
This factsheet is for anyone having tests for pancreatic cancer. Family members may also find it helpful. It explains the different tests that you might have, what they involve, and what your test results mean. There is also information about the support available.
Pancreatic Cancer UK
This factsheet is for people who want to find out about the hereditary risk of pancreatic cancer.
Pancreatic Cancer Action
This booklet for patients and carers describes chemotherapy for pancreatic cancer, including how it works, how it is given and how it may affect the patient. It includes advice on coping with side effects and a section about second opinions, clinical trials, questions to ask your doctor and a glossary to explain some of the terms used.
Pancreatic Cancer UK
This fact sheet is for people with pancreatic cancer who are having a stent or bypass surgery. These treatments help symptoms caused by the cancer blocking the bile duct or duodenum. Family members may also find it helpful. It describes what the treatments involve, possible side effects, how they can affect your diet, and recovering afterwards.
Pancreatic Cancer UK
This fact sheet is for anyone who wants to know more about treating pancreatic cancer with chemotherapy. It explains how chemotherapy is given, and the different drugs that may be used. It also explains the main side effects of chemotherapy and how these can be managed and how to look after yourself and get support during chemotherapy..
Pancreatic Cancer UK
This booklet describes pancreatic cancer, what it is, how it is diagnosed, staging, and treatment options. Includes a glossary.
Pancreatic Cancer UK
This factsheet is for anyone who would like to find out more about screening for pancreatic cancer. It explains what cancer screening is, why there is no screening of the general population for pancreatic cancer, and how people at higher risk of pancreatic cancer may be able to have screening.
Pancreatic Cancer UK
Easy read information using pictures and simple words to explain surgery to remove pancreatic cancer.
Pancreatic Cancer UK
This factsheet describes the signs and symptoms of pancreatic cancer and endocrine tumours.
Oneworld Publications
The Cancer Survivors Club is a collection of truly inspirational, uplifting and assuring survival stories. These poignant personal accounts from normal people, demonstrate an extraordinary determination to survive against the odds. It proves with survival rates doubling, anything is possible. Unfortunately cancer affects everyone; worldwide there are around 12.7 million new cases diagnosed each year. Every two minutes someone in the UK is diagnosed with cancer. The Cancer Survivors Club has an excellent mix of stories, from the most common cancer, to the rarest. Some of the cancer types mentioned are; brain, bowel, breast, pancreatic, spinal, testicular, leukaemia, nasal and non-Hodgkin's lymphoma. Included in the book are a number of Chris Geiger's cheerful newspaper columns, including his humorous account of a prostate examination, getting sunburnt on a crowded beach and his Guinness World Record article. The Cancer Survivors Club will provide anyone touched by cancer with hope, strength and encouragement. Each story is written from the survivors or families own perspective, offering a very warm, friendly style of writing. This relaxed and sometimes humorous approach makes The Cancer Survivors Club an informative, positive and inspirational book that the reader will be able to relate to and gain strength from. Many cancer patients and those around them find the gruelling treatments very hard to cope with, they often feel very alone and isolated. This book allows anyone affected by the disease to focus their attention on surviving, ultimately making it their goal to share their story in future editions. Most patients have times when they feel they are the only person going through cancer treatment and have nobody to talk with. It is also a very difficult time for people close to the patient who have no previous experience in dealing with this disease. The Cancer Survivors Club is a must-read for the millions of cancer patients worldwide and a book of great support for their family and friends. (Publisher)
Pancreatic Cancer UK
This factsheet is for people diagnosed with pancreatic cancer who are having surgery to remove the cancer. Family members may also find it helpful. We describe the different types of surgery to remove pancreatic cancer, how to prepare for your operation, what to expect, and recovery afterwards. This factsheet does not cover surgery for pancreatic neuroendocrine tumours (PNETs).
Pancreatic Cancer UK
This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It has information on how to manage these problems, including how to take pancreatic enzyme replacement therapy.
Pancreatic Cancer UK
This factsheet has information about capecitabine to treat pancreatic cancer. It describes how it is given and the possible side effects.
Pancreatic Cancer UK
This booklet explains the standards of care everybody with pancreatic cancer should have while they are being diagnosed and treated for pancreatic cancer. You can use it as a guide to what you should expect. It can also help you talk to your doctors and nurses about the care you should receive.
Pancreatic Cancer UK
FOLFIRINOX is a possible treatment option for advanced pancreatic cancer. It is a combination of four drugs (leucovorin (folinic acid), fluorouracil, irinotecan and oxaliplatin). This factsheet describes how it is given and the possible side effects.
Pancreatic Cancer UK
A factsheet for anyone who would like to find out more about oxaliplatin chemotherapy to treat pancreatic cancer. It has information about how oxaliplatin is given and the side effects.
Pancreatic Cancer UK
Easy read information using pictures and simple words to explain what pancreatic cancer is and how it is diagnosed.
Pancreatic Cancer UK
Gemcitabine may be used for advanced pancreatic cancer. Thus factsheet describes how it is given and the side effects.
Pancreatic Cancer UK
This factsheet is for anyone diagnosed with pancreatic cancer who would like to find out more about nab-paclitaxel chemotherapy to treat pancreatic cancer. It provides information about how nab-paclitaxel is given and the side effects.
Pancreatic Cancer UK
Easy read information using pictures and simple words to explain how symptoms like diet problems and pain are treated, and how you can get support.
Pancreatic Cancer UK
A factsheet for anyone who would like to find out more about Fluorouracil (5-FU) chemotherapy to treat pancreatic cancer. It has information about how 5FU is given and the side effects.<!-- ?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ? -->
Pancreatic Cancer UK
Easy read information using pictures and simple words to explain treatments if you can’t have surgery, including chemotherapy and stents.
Pancreatic Cancer UK
The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.
Pancreatic Cancer UK
This booklet is for family members of someone with pancreatic cancer. It includes information on managing symptoms and side effects, and accessing the right care and support.
Pancreatic Cancer UK
This factsheet is for anyone who would like to find out more about feeling and being sick when you have pancreatic cancer. It explains what causes sickness and the treatments available that can help you.
CKG Ventures
The Cancer Survivors Club is a collection of truly inspirational, uplifting and assuring survival stories. These poignant personal accounts from normal people, demonstrate an extraordinary determination to survive against the odds. It proves with survival rates doubling, anything is possible. Unfortunately cancer affects everyone; worldwide there are around 12.7 million new cases diagnosed each year. Every two minutes someone in the UK is diagnosed with cancer. The Cancer Survivors Club has an excellent mix of stories, from the most common cancer, to the rarest. Some of the cancer types mentioned are; brain, bowel, breast, pancreatic, spinal, testicular, leukaemia, nasal and non-Hodgkin's lymphoma. Included in the book are a number of Chris Geiger's cheerful newspaper columns, including his humorous account of a prostate examination, getting sunburnt on a crowded beach and his Guinness World Record article. The Cancer Survivors Club will provide anyone touched by cancer with hope, strength and encouragement. Each story is written from the survivors or families own perspective, offering a very warm, friendly style of writing. This relaxed and sometimes humorous approach makes The Cancer Survivors Club an informative, positive and inspirational book that the reader will be able to relate to and gain strength from. Many cancer patients and those around them find the gruelling treatments very hard to cope with, they often feel very alone and isolated. This book allows anyone affected by the disease to focus their attention on surviving, ultimately making it their goal to share their story in future editions. Most patients have times when they feel they are the only person going through cancer treatment and have nobody to talk with. It is also a very difficult time for people close to the patient who have no previous experience in dealing with this disease. The Cancer Survivors Club is a must-read for the millions of cancer patients worldwide and a book of great support for their family and friends. (Publisher)
Coronet (Hodder & Stoughton)
This book does not offer a cure for cancer. It offers a cure for your fear of cancer. Both memoir and self-help book, this is the remarkable chronicle of a passage from 'terminal' diagnosis to exuberant wellness in just a few months. The Cancer Whisperer reverses our traditional adversarial relationship with cancer by teaching us how to listen to it; how to be healed by it as well as seek to cure it; and how to be emotionally free of illness even when physically curtailed. Living on the frontier between her fierce will to live and necessary willingness to die, Sophie - now thriving with cancer - shares her journey with searing honesty, unapologetic vulnerability and intelligent pragmatism. Alongside rare insights into a condition now affecting approximately one in three people, she challenges the mental conditioning we need to overcome to redefine our narratives about cancer. As 'the cancer whisperer', she offers a groundbreaking practical guide that will encourage cancer patients to: Direct their own treatment while preserving their personhood in a system that tends to see them as patients more than people. Engage with fear, anger and grief in healthy and healing ways instead of toughing it out, trying to be positive or collapsing into despair. Radically shift from being a cancer victim to a cancer listener-to seeing cancer less as a disease than as a symptom of other underlying causes, and engaging proactively with whatever changes it calls on them to make. Discover what the author calls 'the whispering, the reaching into a well of darkness and finding your hands painted with light'. Inspired, wise and moving, this book is as unflinching as Lisa Lynch's The C Word, as uplifting as Kris Carr's Crazy, Sexy Cancer, and carries us to a new threshold in our relationship with cancer, strengthening our ability to meet it with courage, creativity, gratitude and grace. (Publisher)
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