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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Breast Cancer Now
This leaflet uses illustrations to show women how to check their breasts and the changes to look for.
Leukaemia Care
FLAG-Ida is a combination chemotherapy regimen used in the treatment of acute myeloid leukaemia (AML). It consists of fludarabine, high dose cytarabine (Ara-C0), idarubicin and granulocyte-colony stimulating factor (G-CSF). This booklet explains the drugs, who may be eligible to receive this treatment, how FLAG-Ida is given, and the possible side-effects. Includes a glossary and details of further support and information.
Jo's Cervical Cancer Trust
A guide for women who have recently been diagnosed with cervical cancer, and those who care about them.
Colostomy UK
This booklet is for anyone responsible for caring for someone with a stoma. It briefly describes what a stoma is and why people have stoma surgery, then covers the practical aspects of caring for someone with a stoma. This includes everything from ordering medical supplies and disposing of waste, to diet, changing a stoma bag and recognising some of the common problems, such as sore skin. It also considers the concerns that people with stomas have and how these can impact on their physical and mental wellbeing.
Macmillan Cancer Support
This leaflet is about a Holistic Needs Assessment (HNA). An HNA identifies any concerns you may have when you are diagnosed with cancer. These may be physical, emotional, practical, financial and spiritual. The leaflet talks about what happens at an HNA and has information about making a care plan.
Carers Northern Ireland
Guidance and advice for carers in Northern Ireland. This guide is designed to outline the support available and your rights as a carer.
Carers Wales
Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.
Carers UK
This guide is designed to outline your rights as a carer and give an overview of the support available.
Carers Scotland
Guidance and advice for carers in Scotland. This guide sets out what rights carers have and how they can get financial and practical help and support.
Breast Cancer Care
A booklet for people who have been diagnosed with secondary cancer in the brain that has spread from the breast. It describes what secondary breast cancer in the brain is, what the symptoms are, and the investigations. Briefly outlines the treatment options. Lists useful organisations.
Macmillan Cancer Support
This booklet is about getting benefits and other financial help if you are affected by cancer in England, Scotland, Wales or Northern Ireland. It is for anyone living with cancer and their family, friends and carers. It explains the types of financial help you could get and how to claim this support. It also tells you who to contact for further help, including Macmillan’s welfare rights advisers.
Macmillan Cancer Support
This booklet is for you if you may die in prison from a serious illness. It explains what might happen, how you may feel and what support is there to help you. There is some information about what will happen after your death and the support available for any family members and friends.
Macmillan Cancer Support
This booklet is about coping after cancer treatment finishes, including managing side effects, follow-up care, and making healthy lifestyle changes. It is for people who are preparing for life after cancer treatment.
Macmillan Cancer Support
This leaflet is about what to expect and where to get further support after cancer treatment ends. It gives suggestions to help you get the best care and support available and make healthy lifestyle choices.
Macmillan Cancer Support
This booklet is about travelling abroad when you have cancer. There is also information for family, friends and carers. The booklet talks about the benefits of travel and how you can prepare for a trip abroad. It also gives tips on finding travel insurance and taking care while you are away. Includes details of useful organisations.
Macmillan Cancer Support
This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues.
Macmillan Cancer Support
This booklet is about secondary cancer in the liver. This is cancer that has spread to the liver from somewhere else in the body. It is for anyone who has been diagnosed with secondary cancer in the liver. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of secondary cancer in the liver. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues.
Christie Hospital NHS Trust
Eating may be a problem for people with cancer or other illnesses, particularly when undergoing treatment such as radiotherapy or chemotherapy. This booklet has advice on how to eat well when trying to cope with loss of appetite, changes in taste, dry mouth, difficulties swallowing, feeling full, nausea, diarrhoea, and constipation. It has tips on how to make food as nourishing as possible and ideas for snacks and drinks.
Christie Hospital NHS Trust
Some illnesses or treatments may make swallowing difficult. This booklet has ideas on how to prepare soft or liquidised foods and how to make food more nourishing by enriching it with dairy produce, fats, sugars and fortified milk. Includes meal suggestions.
Myeloma UK
People with myeloma can develop sore (mucositis) or dry mouths. This factsheet explains the reasons why this may occur and describes the symptoms of mucositis and oral thrush, prevention and treatment. Includes tips for self-management.
Marie Curie
You may not feel like planning when you’re ill, but thinking about the future now and making your wishes known will help you feel more in control. It can also help those close to you handle your affairs if you aren’t able to. This booklet has information about some of the things you might want to think about, like deciding where and how you want to be cared for, or making a Will.
Roy Castle Lung Cancer Foundation
If you or someone you care for has lung cancer and surgery is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment. It discusses the types of surgery, what happens before, during and after surgery, and returning home.
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Brainstrust
This leaflet explains who proton beam therapy is suitable for and how the decision is made. Includes Care Pathway and Clinical Dependencies Referral and Care Pathway 1 (NHS and overseas) and Pathway 2 (NHS only).
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Macmillan Cancer Support
This factsheet is about claiming benefits.
Children's Cancer and Leukaemia Group
Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.
Myeloma UK
This Infoguide has information about vertebral compression fractures (VCFs), how and why they occur in myeloma, and how they are treated. It also includes information on two surgical procedures used in the treatment of VCFs: percutaneous vertebroplasty and balloon kyphoplasty.
Roy Castle Lung Cancer Foundation
This booklet was produced in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.
Breast Cancer Care
This leaflet explains briefly what Arimidex® is, how it works, when it may be prescribed, how it is taken and the possible side-effects.
Macmillan Cancer Support
This factsheet is about claiming benefits. Includes the English-language version..
Pancreatic Cancer UK
This booklet is for family members of someone with pancreatic cancer. It includes information on managing symptoms and side effects, and accessing the right care and support.
Breast Cancer Care
This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.
Breast Cancer Care
This booklet is about the bisphosphonate sodium clodronate given to reduce the risk of breast cancer spreading to the bones and other parts of the body. IIt explains what it is, who might be offered it and the side effects it can cause.
Breast Cancer Care
Zoledronic acid is a drug that’s given to reduce the risk of breast cancer spreading to the bones and other parts of the body. This booklet explains what it is, who might be offered it and the side effects it can cause.
Lymphoma Action
Many people experience problems with their mouth following chemotherapy or radiotherapy. This factsheet has tips on oral hygiene and diet.
Breast Cancer Care
This booklet describes radiotherapy for primary (early) breast cancer. It explains what radiotherapy is, why it might be needed, how it is given, what to expect, treatment planning, and the possible side-effects.
Breast Cancer Care
This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects.
Orchid – Fighting Male Cancer
This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.
Children's Cancer and Leukaemia Group
Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.
Children's Cancer and Leukaemia Group
This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.
Breast Cancer Care
This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.
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