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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 386

Cover image of 'Dear life. A doctor's story of love and loss'

Dear life. A doctor's story of love and loss (2020)

Little, Brown Book Group

As a specialist in palliative medicine, Dr Rachel Clarke chooses to inhabit a place many people would find too tragic to contemplate. Every day she tries to bring care and comfort to those reaching the end of their lives and to help make dying more bearable. Rachel's training was put to the test in 2017 when her beloved GP father was diagnosed with terminal cancer. She learned that nothing - even the best palliative care - can sugar-coat the pain of losing someone you love. And yet, she argues, in a hospice there is more of what matters in life - more love, more strength, more kindness, more joy, more tenderness, more grace, more compassion - than you could ever imagine. For if there is a difference between people who know they are dying and the rest of us, it is simply this: that the terminally ill know their time is running out, while we live as though we have all the time in the world. Dear Life is a book about the vital importance of human connection, by the doctor we would all want by our sides at a time of crisis. It is a love letter - to a father, to a profession, to life itself. (Publisher)

Cover image of 'Palliative care'

Palliative care (September 2019)

Lymphoma Action

This factsheet is about palliative care at the end of life. It covers: What is palliative care?; Who provides palliative care?; Frequently asked questions about palliative care at the end of life.

Cover image of 'Where to get help. A guide to services'

Where to get help. A guide to services (November 2019)

Christie Hospital NHS Trust

Although designed primarily for people having treatment at the Christie Hospital, this booklet is relevant to anyone with cancer. It describes the emotional support, palliative care, and financial help available. It has a list of national support groups and also support groups in the northwest.

Cover image of 'Understanding your small cell lung cancer'

Understanding your small cell lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet explains what small cell lung cancer is, and addresses common questions and concerns. 

Cover image of 'Getting care and support. A guide for people living with a terminal illness, and their family and friends'

Getting care and support. A guide for people living with a terminal illness, and their family and friends (April 2019)

Marie Curie

This guide is for people living with a terminal illness and their friends and family. It aims to helps you explore your care options. It explains what care may be available, what you can expect from it, and who to ask for help.

Cover image of 'Coping with advanced cancer [Audio CD]'

Coping with advanced cancer [Audio CD] (2019)

Macmillan Cancer Support

Audio CD of the booklet, with information to help people who have been told their cancer has spread or come back, and for their relatives and friends. It covers issues such as deciding about treatment, sources of emotional help, coping with day-to-day life, and putting affairs in order. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Radiotherapy for advanced prostate cancer'

Radiotherapy for advanced prostate cancer (March 2019)

Prostate Cancer UK

This factsheet is for men with advanced prostate cancer who would like to know more about treatment with palliative radiotherapy. It explains who can have palliative radiotherapy, how it treats advanced prostate cancer and the advantages and disadvantages. It covers external beam radiotherapy and internal radiotherapy (radioisotopes), describing what the treatment involves and the side effects. It does not cover the treatment of localised or locally-advanced prostate cancer.

Cover image of 'Understanding brain metastasis and lung cancer'

Understanding brain metastasis and lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available. 

Cover image of 'Living with an illness you will probably die from. Who can help? [Easy read]'

Living with an illness you will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about the different people who can help them and care for them.

Cover image of 'Caring for your child at end of life. A guide for parents and carers'

Caring for your child at end of life. A guide for parents and carers (October 2019)

Together for Short Lives

Practical information to support parents and carers at this difficult time. It aims to answer some of the questions that you might have, and sets out what you should expect from children’s palliative care services with useful links to further sources of information and support. Includes reflections from families on their experience of losing a child. 

Cover image of 'Caring for someone with an illness they will probably die from. Who can help? [Easy read]'

Caring for someone with an illness they will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to tell you about the different people who can help if you are caring for someone with an illness they will probably die from.

Cover image of 'Caring for someone with an illness they will probably die from. Money and work [Easy read]'

Caring for someone with an illness they will probably die from. Money and work [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about money and work if you are caring for someone with an illness they will probably die from.

Cover image of 'Caring for someone with an illness they will probably die from. Looking after yourself [Easy read]'

Caring for someone with an illness they will probably die from. Looking after yourself [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.

Cover image of 'Living with a terminal illness. Support for you and those close to you [Welsh]'

Living with a terminal illness. Support for you and those close to you [Welsh] (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Being cared for at home'

Being cared for at home (July 2019)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'B-cell acute lymphoblastic leukaemia (ALL). A guide for patients'

B-cell acute lymphoblastic leukaemia (ALL). A guide for patients (May 2019)

Leukaemia Care

This booklet explains what B-cell acute lymphoblastic leukaemia is, and describes the causes, who it affects, the symptoms and side-effects and treatment options. It also covers issues such as day-to-day life with B-cell acute lymphoblastic leukaemia, managing your emotions, telling family and friends, survivorship, palliative care, and end-of-life care.

Cover image of 'Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients'

Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients (September 2019)

Leukaemia Care

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare cancer of the bone marrow. It was previously known as natural killer (NK) cell leukaemia. This booklet explains what it is, and describes the causes, who it affects, what symptoms to expect, how it is diagnosed, and treatment options. It also covers everyday life, managing your emotions, how to talk to your doctor and family and friends, survivorship, palliative care, and end-of-life care. Includes a glossary and details of further support.  

Cover image of 'Living with a terminal illness. Support for you and those close to you'

Living with a terminal illness. Support for you and those close to you (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Coping with advanced cancer'

Coping with advanced cancer (January 2019)

Macmillan Cancer Support

This booklet is for people who have cancer that has come back or spread. This is sometimes called advanced cancer. It looks at some of the concerns you may be dealing with and has advice about ways of coping. It also talks about treatments and your feelings and has practical information about getting help and support.

Cover image of 'A guide for the end of life'

A guide for the end of life (November 2019)

Macmillan Cancer Support

This booklet explains what happens at the end of someone’s life and how to plan for it. It is for anyone nearing the end of life. There is also information for people caring for someone nearing the end of life.

Cover image of 'Patient guide. Palliative care'

Patient guide. Palliative care (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Who's who in your clinical team?'

Who's who in your clinical team? (July 2018)

Brainstrust

A who's who of healthcare professionals involved in the care of someone with a brain tumour: GP; consultant neurosurgeon; consultant neurologist; consultant radiologist; neuro-oncologist; clinical psychologist; neuro-ophthalmologist; community neurological rehabilitation nurse; neuro-oncology clinical nurse specialist; epilepsy nurse; palliative care nurse; specialist allied health professional; disability co-ordinator (higher education). It describes the role of each professional and how they can help.

Cover image of 'Eat well during cancer. Helping you cope with common side-effects of cancer and cancer treatment'

Eat well during cancer. Helping you cope with common side-effects of cancer and cancer treatment (2018)

World Cancer Research Fund

This booklet is for people living with cancer and those having cancer treatment, who want to know more about how to cope with the common side-effects, but also want to follow as healthy a diet and lifestyle as possible. It is a general guide and not suitable for people who are eating very little, have lost a lot of weight unintentionally or are receiving palliative care, as they will need specialist information and advice. 

Cover image of 'Being cared for at home [Welsh]'

Being cared for at home [Welsh] (October 2018)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'Planning ahead. An infopack for myeloma patients.'

Planning ahead. An infopack for myeloma patients. (February 2018)

Myeloma UK

This pack, produced with support from Marie Curie, covers the key questions and topics that myeloma patients may want to know more about when considering end of life. Topics include: why planning ahead can be beneficial; what to expect when myeloma treatment is no longer an option; what is likely to happen as the end of life draws near; choosing where to be looked after; and getting your affairs in order. 

Cover image of 'Secondary breast cancer information pack'

Secondary breast cancer information pack (April 2018)

Breast Cancer Care

This pack is for anyone with secondary breast cancer. It may also be useful for family, friends, or carers. It contains information that may be useful from diagnosis throughout treatment and care. The pack has four main parts. 1. The first part of the pack explains what secondary breast cancer is, looks at treatments and side effects, and has information about monitoring and coping with the physical effects of your condition. 2. The second part is called Your needs and concerns with secondary breast cancer. This looks at how to make sure your needs are met, from emotional and practical needs to concerns about relationships, work and finances, and health and wellbeing. 3. Personal organiser to help you record symptoms or side effects from treatment, which you can take with you to hospital appointments. You can also record appointment details and names and contact details of people involved in your care. 4. A small booklet called Planning ahead: choices and decisions about the end of life is for if and when you want to start thinking about these things. 

Cover image of 'Pain and myeloma'

Pain and myeloma (June 2017)

Myeloma UK

This Infoguide aims to help you understand what pain is, the different types of pain and causes of pain in myeloma patients. It provides information on the different methods of pain treatment available, and gives guidance on non-medical strategies that may help to improve your pain and make living with pain a little easier.

Cover image of 'Understanding kidney cancer'

Understanding kidney cancer (April 2017)

Kidney Cancer UK

This booklet has information about kidney cancer, including the symptoms, diagnosis, staging and grading, and the treatment options. It also briefly discusses life with kidney cancer, including feelings, day-to-day living, money, and support. Includes sources of further information and a glossary.

Cover image of 'A guide for people with cancer and dementia'

A guide for people with cancer and dementia (September 2017)

Macmillan Cancer Support|Dementia UK

Some people who have cancer also have dementia. Having both conditions can be difficult for you and the people close to you. The number of people living with both cancer and dementia is growing. We have written this booklet to give people information about living with both conditions and tell people where they may be able to get help.

Cover image of 'Fast facts: Ovarian cancer'

Fast facts: Ovarian cancer (2017)

Health Press

In the last few years there has been a revolutionary increase in our knowledge of ovarian cancer management, from detection and genetics to surgery and novel targeted treatment approaches. This means that when it comes to detecting, diagnosing and treating women who have, or are suspected of having, ovarian cancer, there are significant opportunities for the well-informed healthcare professional to intervene in a meaningful way. This resource offers a comprehensive overview of all levels of care, summarizing the most recent advances and putting them in a clinically meaningful context. It answers important questions such as when to operate and when to treat with various modalities, both conventional and novel. We have striven to capture the key knowledge that a busy healthcare professional caring for patients with ovarian cancer needs, in a refreshingly readable concise format. (Publisher)

Cover image of 'Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis'

Living with cancer. A step-by-step guide for coping medically and emotionally with a serious diagnosis (2017)

Johns Hopkins University Press

The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)

Cover image of 'Flying home. Helping patients to arrange international travel'

Flying home. Helping patients to arrange international travel (September 2017)

hospice information

This publication was originally written to help with arrangements for ‘final journeys’. However, much of the information also applies to those who would like to take a holiday when seriously ill.

Cover image of 'Managing symptoms at home. Palliative care information for families'

Managing symptoms at home. Palliative care information for families (February 2016)

Children's Cancer and Leukaemia Group

This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.

Cover image of 'Choosing where to die'

Choosing where to die (2016)

CHANGE

An easy read booklet about the different places you can be looked after in the last few months, weeks or days of your life.  

Cover image of 'Getting ready to die'

Getting ready to die (2016)

CHANGE

An easy read booklet about things you might want to think if you will not get better from cancer. For example, things you want to do before you die, people you want to see and things you want to remember and think about.  

Cover image of 'The end of life'

The end of life (2016)

CHANGE

An easy read booklet about what happens to your body and how you might feel during the last few days of life. 

Cover image of 'Thinking about your funeral'

Thinking about your funeral (2016)

CHANGE

An easy read booklet about what a funeral is and things you might want to plan for your funeral, such as the music or who should come. 

Cover image of 'Grief and loss when someone dies'

Grief and loss when someone dies (2016)

CHANGE

An easy read booklet explaining what dying is, how you might feel if someone you love dies and where you can get support.  

Cover image of 'Who can help if you are dying'

Who can help if you are dying (2016)

CHANGE

An easy read booklet about the different people who can support you if you are dying and what they can help with.  

Cover image of 'Going to a funeral when someone dies'

Going to a funeral when someone dies (2016)

CHANGE

An easy read booklet about what a funeral is, what might happen and other ways of remembering someone who has died.  

Cover image of 'If you are dying from cancer'

If you are dying from cancer (2016)

CHANGE

An easy read booklet about how you might feel if you find out your cancer cannot be cured. The booklet talks about things that might help and people who can support you.  

Cover image of 'How you may feel when someone dies'

How you may feel when someone dies (2016)

CHANGE

An easy read booklet that explains grief and talks about the different emotions or changes you might experience if someone you love dies. There is also information about where to get support. 

Cover image of 'What can help you feel better when someone dies'

What can help you feel better when someone dies (2016)

CHANGE

An easy read booklet about coping with grief and things that can help you. 

Cover image of 'Spirituality and religion at the end of life'

Spirituality and religion at the end of life (2016)

CHANGE

An easy read booklet that talks about the role religion and faith may play at the end of life and other things that might help you feel spiritual. 

Cover image of 'Changes that can happen at the end of life'

Changes that can happen at the end of life (2016)

CHANGE

An easy read booklet about symptoms you might have with advanced cancer and things that can help. 

Cover image of 'Making decisions about the future if you are dying'

Making decisions about the future if you are dying (2016)

CHANGE

An easy read booklet about how to plan for your future, including making an Advance Care Plan.  

Cover image of 'Patient guide to brain tumour treatment and services'

Patient guide to brain tumour treatment and services (2016)

The Brain Tumour Charity

Finding out that you have a brain tumour is a frightening and overwhelming experience for anyone. You may feel as though your whole world has been turned upside down. This booklet aims to guide you through the system, answer your questions, and outlines some basic aspects of care that everyone should expect when they’re diagnosed with a brain tumour. 

Cover image of 'End of life: a guide. A booklet for people in the final stages of life, and their carers [Audio CD]'

End of life: a guide. A booklet for people in the final stages of life, and their carers [Audio CD] (2015)

Macmillan Cancer Support

This audiobook explains what happens at the end of life and how to plan for it. It gives information about issues such as choosing where to be looked after, sorting out unfinished business, getting financial help, who can help if you’re being cared for at home and what to expect in the last few days of life. It also includes information for your relatives and close friends who may be involved in your care. 

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