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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 386

Cover image of 'Letrozole'

Letrozole (February 2019)

Breast Cancer Care

This leaflet describes what letrozole (Femara®) is, how it works, when it may be prescribed, how it is taken, and the possible side-effects.

Cover image of 'Sodium clodronate for primary breast cancer'

Sodium clodronate for primary breast cancer (April 2019)

Breast Cancer Care

This booklet is about the bisphosphonate sodium clodronate given to reduce the risk of breast cancer spreading to the bones and other parts of the body. IIt explains what it is, who might be offered it and the side effects it can cause. 

Cover image of 'Zoledronic acid for primary breast cancer'

Zoledronic acid for primary breast cancer (April 2019)

Breast Cancer Care

Zoledronic acid is a drug that’s given to reduce the risk of breast cancer spreading to the bones and other parts of the body. This booklet explains what it is, who might be offered it and the side effects it can cause.

Cover image of 'Sore mouth (oral mucositis)'

Sore mouth (oral mucositis) (June 2019)

Lymphoma Action

Many people experience problems with their mouth following chemotherapy or radiotherapy. This factsheet has tips on oral hygiene and diet.

Cover image of 'Radiotherapy for primary breast cancer'

Radiotherapy for primary breast cancer (May 2019)

Breast Cancer Care

This booklet describes radiotherapy for primary (early) breast cancer. It explains what radiotherapy is, why it might be needed, how it is given, what to expect, treatment planning, and the possible side-effects. 

Cover image of 'Exemestane'

Exemestane (February 2019)

Breast Cancer Care

This booklet explains what exemestane is, how it works, when it may be prescribed and possible side effects. 

Cover image of 'Clinical diagnosis'

Clinical diagnosis (November 2019)

Orchid – Fighting Male Cancer

This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.

Cover image of 'When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer'

When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer (November 2019)

Children's Cancer and Leukaemia Group

Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.

Cover image of 'I have finished my treatment. What happens next'

I have finished my treatment. What happens next (November 2019)

Children's Cancer and Leukaemia Group

This booklet for children and teenagers aged 10-16 aims to help answer questions and concerns that arise when treatment for cancer finishes. It covers feelings and emotions, coping with worry, coping with family and friends, school and college, healthy living, and practical issues such as what happens at follow-up, medicines, and what to look out for.

Cover image of 'Lobular neoplasia'

Lobular neoplasia (February 2019)

Breast Cancer Care

This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.

Cover image of 'Exercises after breast cancer surgery'

Exercises after breast cancer surgery (April 2019)

Breast Cancer Care

This leaflet explains why exercise is necessary after breast surgery, when to start exercising, and how long to carry on. It opens out into a poster that demonstrates exercises for the days and weeks after surgery.

Cover image of 'FEC chemotherapy'

FEC chemotherapy (February 2019)

Breast Cancer Care

This leaflet describes the FEC chemotherapy combination (5 fluorouracil, epirubicin and cyclophosphamide), when it may be used, how it works, how it is given and the possible side-effects.

Cover image of 'Know your breasts. A quick guide to being breast aware [Welsh]'

Know your breasts. A quick guide to being breast aware [Welsh] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts. Includes the English-language version.

Cover image of 'Pertuzumab with Perjeta'

Pertuzumab with Perjeta (April 2019)

Breast Cancer Care

This booklet explains what pertuzumab is, when it’s given and its possible side effects. Pertuzumab is the generic (non-branded) name of the drug. Its current brand name is Perjeta®.

Cover image of 'When someone dies. Practical and emotional help at a difficult time'

When someone dies. Practical and emotional help at a difficult time (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Complementary therapy'

Complementary therapy (June 2019)

Lymphoma Action

This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.

Cover image of 'Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged'

Your hospital stay. What to expect when going into hospital, while you’re there and when you’re discharged (June 2019)

Age UK

This guide aims to put older people at ease if they are going to be admitted to hospital. It will help them: prepare for going into hospital; understand their rights in hospital; understand the discharge process; and be more informed about care afterwards. It may also be useful for relatives and friends, as it can be a difficult time for them too. 

Cover image of 'Dry, sore and itchy skin'

Dry, sore and itchy skin (June 2019)

Lymphoma Action

Skin problems can be a symptom of lymphoma. They can also be a side effect of some treatments. This factsheet has suggestions to help you manage dry, sore and itchy skin. Contents: Skin problems as a symptom of lymphoma; Skin problems as a side effect of treatment; Managing sore, dry and itchy skin.

Cover image of 'Reducing the risk of lymphoedema'

Reducing the risk of lymphoedema (April 2019)

Breast Cancer Care

This leaflet explains what lymphoedema is and who is at risk. It describes how to reduce the risk of developing lymphoedema, and what to do if problems occur (swelling and skin damage).

Cover image of 'FEC-T chemotherapy'

FEC-T chemotherapy (February 2019)

Breast Cancer Care

This booklet explains what the chemotherapy combination FEC-T is, when it may be prescribed, how it is given and what side effects may occur. FEC-T is a combination of four chemotherapy drugs: 5 fluorouracil (also known as 5FU); epirubicin; cyclophosphamide; docetaxol (also known as Taxotere).

Cover image of 'Know your breasts. A guide to breast awareness and screening'

Know your breasts. A guide to breast awareness and screening (July 2019)

Breast Cancer Care

This booklet aims to help women understand more about their breasts, how they develop and age, and the normal changes that can occur before a period, during pregnancy, when breastfeeding, and before, during and after the menopause. It uses illustrations to show women how to check their breasts and advises what to do if a change is noticed. It also describes routine breast screening, what happens at the clinic, and the limitations of screening.

Cover image of 'Trastuzumab (Herceptin)'

Trastuzumab (Herceptin) (February 2019)

Breast Cancer Care

This booklet explains what trastuzumab is, how it works, when it may be prescribed and the side effects you may experience. 

Cover image of 'Advice for carers. A practical guide'

Advice for carers. A practical guide (May 2019)

Age UK

This guide looks at the practical and emotional sides of caring. It has information about areas such as benefits and flexible working hours, as well as how a caring role could affect wellbeing and social life. 

Cover image of 'Know your breasts. A quick guide to being breast aware'

Know your breasts. A quick guide to being breast aware (July 2019)

Breast Cancer Care

Illustrated mini leaflet showing women how to check their breasts.

Cover image of 'Osteonecrosis of the jaw (ONJ)'

Osteonecrosis of the jaw (ONJ) (February 2019)

Myeloma UK

This factsheet has information about osteonecrosis of the jaw (ONJ), a rare condition that can occur during long-term treatment of myeloma with bisphosphonates.It describes bisphosphonates, why they are linked to ONJ, the risk factors for ONJ, its symptoms, and how it is treated and managed. Includes self-care tips to reduce the risk of ONJ.

Cover image of 'Hair loss'

Hair loss (September 2019)

Lymphoma Action

Some lymphoma treatments can cause your hair to thin or fall out. Knowing what to expect and what you can do about it may help you cope with losing your hair. This factsheet has advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the options you may wish to consider until your hair grows back. 

Cover image of 'Having a syringe driver'

Having a syringe driver (December 2019)

Marie Curie

This leaflet explains why you might have a syringe driver, how it works and things to look out for. 

Cover image of 'Targeted therapies for lung cancer'

Targeted therapies for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (August 2019)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends'

Getting care and planning for the future. Information for LGBTQ+ people affected by terminal illness, and their family and friends (November 2019)

Marie Curie

Living with a terminal illness and getting the best care and support can be challenging for everyone. We all have individual needs and will have different experiences. Being LGBTQ+ may mean that you have specific concerns or questions about getting the care and support you need. In this booklet, we explain the care and support that’s available. We also answer questions you might have, such as how you can plan ahead and make decisions for the future.

Cover image of 'Thinking about end of life. Getting your affairs in order and thinking about your care needs'

Thinking about end of life. Getting your affairs in order and thinking about your care needs (December 2019)

Age UK

Thinking about the end of life can be difficult, but being well informed can help people consider all their options at a time that’s right for them. This guide will make suggestions about the options and services available to help people make the best choices. It will explain how to make wishes and treatment preferences known, and help peole consider where they would like to be looked after towards the end of life.

Cover image of 'Know your breasts. A quick guide to being breast aware [Gujarati]'

Know your breasts. A quick guide to being breast aware [Gujarati] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Follow-up after prostate cancer treatment. What happens next?'

Follow-up after prostate cancer treatment. What happens next? (July 2019)

Prostate Cancer UK

This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.

Cover image of 'Know your breasts. A quick guide to being breast aware [Punjabi]'

Know your breasts. A quick guide to being breast aware [Punjabi] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Living with lymphoedema after breast cancer'

Living with lymphoedema after breast cancer (April 2019)

Breast Cancer Care

This booklet explains what lymphoedema is, and describes the physical symptoms and the treatment options.

Cover image of 'When someone dies. Practical and emotional help at a difficult time [Welsh]'

When someone dies. Practical and emotional help at a difficult time [Welsh] (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'Your breast clinic appointment'

Your breast clinic appointment (April 2019)

Breast Cancer Care

This booklet has been written for anyone referred to a breast clinic. It describes what to expect and the tests that may be carried out, such as a mammogram, an ultrasound scan, fine needle aspiration cytology, core biopsy, punch biopsy and vacuum-assisted biopsy.

Cover image of 'The man manual. Men's health made easy'

The man manual. Men's health made easy (February 2019)

Haynes Publishing for Men's Health Forum

One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)

Cover image of 'Know your breasts. A quick guide to being breast aware [Arabic]'

Know your breasts. A quick guide to being breast aware [Arabic] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Living well. After bowel cancer treatment'

Living well. After bowel cancer treatment (August 2019)

Bowel Cancer UK

The information in this booklet is for anyone who has had treatment for bowel cancer. It may also be helpful for family and friends. It describes follow-up care, possible side effects from treatment, and some of the feelings people might have after finishing treatment. It also explains how a healthy lifestyle can help and your rights are work. 

Cover image of 'Nutritional products – availability of nutritional drinks, powders and puddings. A guide for patients and their carers'

Nutritional products – availability of nutritional drinks, powders and puddings. A guide for patients and their carers (October 2019)

Christie Hospital NHS Trust

Designed by dieticians for people with eating difficulties, this booklet describes the supplements available, those that are most suitable, and how each product can be used. 

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia Care

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia Care

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family'

A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family (July 2019)

Advanced Cancers Coalition

This short guide has been designed to support conversations in advanced cancer. It explains why good communication matters and has tips to support productive conversations. It can be used on an ongoing basis to support you in either living with or knowing someone with advanced cancer. [The ACC is a coalition of UK cancer patient groups with a shared interest in delivering improvements in care and treatments for people with advanced cancer. The activity of the ACC is funded by Roche Products Limited.]

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'A-Z of leukaemia. A guide for patients'

A-Z of leukaemia. A guide for patients (September 2019)

Leukaemia Care

This booklet helps to define some of the terms that people may come across when they are diagnosed and treated for a blood cancer. 

Cover image of 'If your prostate cancer comes back. A guide to treatment and support'

If your prostate cancer comes back. A guide to treatment and support (July 2019)

Prostate Cancer UK

This booklet is for men who are worried that their prostate cancer might come back, or whose cancer has recurred after one or more treatments. It describes why prostate cancer might come back, the treatment options, and how to get support. It has space to record the names and contact details of the health professionals involved in ongoing care, details of appointments, and results of PSA tests. Includes a glossary.

Cover image of 'Chronic lymphocytic leukaemia (CLL). A guide for patients'

Chronic lymphocytic leukaemia (CLL). A guide for patients (October 2019)

Leukaemia Care

Being told that you have chronic lymphocytic leukaemia (CLL) can be a shock. This booklet describes CLL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CLL and talking about CLL. Includes a glossary of terms and details of useful contacts and further support.   

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Financial support - benefits [Turkish]'

Financial support - benefits [Turkish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

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