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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 173

Cover image of 'Brentuximab vedotin'

Brentuximab vedotin (April 2020)

Lymphoma Action

Brentuximab vedotin is a targeted drug used in the treatment of certain types of lymphoma. This factsheets explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Venetoclax'

Venetoclax (February 2020)

Lymphoma Action

Venetoclax is a targeted drug used in the treatment of certain types of low-grade (slow-growing) lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Talking to children about lymphoma'

Talking to children about lymphoma (June 2020)

Lymphoma Action

Guidance for people with lymphoma on what to tell their children and where to find other resources: Should I tell my child?; How can I talk to my child about lymphoma?; What should I say?; Keep communication open; Older children and teenagers; If someone close to you has lymphoma: animations for children; Resources.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (April 2019)

Lymphoma Action

This factsheet gives an overview of Hodgkin lymphoma: what it is; who might get it; and the different types.

Cover image of 'Treatment for lymphoma'

Treatment for lymphoma (May 2019)

Lymphoma Action

Different lymphomas may need different treatment. This information sheet gives you a brief overview of treatment for lymphoma and tells you where to find more information.

Cover image of 'Classical Hodgkin lymphoma'

Classical Hodgkin lymphoma (April 2019)

Lymphoma Action

This factsheet is about classical Hodgkin lymphoma. It describes what it is, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapsed and refractory classical Hodgkin lymphoma, and research.

Cover image of 'Lymphoma and HIV'

Lymphoma and HIV (April 2019)

Lymphoma Action

This factsheet gives an overview of human immunodeficiency virus (HIV) and lymphoma. It is for people who have HIV and want to know more about their risk of developing lymphoma, or who have been diagnosed with lymphoma and want more information about what happens next and where to go for more information and support. It covers the following topics: About HIV and lymphoma; Being diagnosed with lymphoma and HIV; Types of lymphoma; Symptoms; Treatment; Outlook; Relapse; Looking after yourself; After treatment for lymphoma; Further information and support.

Cover image of 'Antibody therapy for lymphoma (including rituximab)'

Antibody therapy for lymphoma (including rituximab) (February 2019)

Lymphoma Action

This factsheet explains what antibody therapy is and how it is used to treat lymphoma.

Cover image of 'Watch and wait for lymphoma [Easy read]'

Watch and wait for lymphoma [Easy read] (January 2019)

Lymphoma Action

This booklet covers what watch and wait is, who might go on watch and wait and what happens at your check-ups with your doctors. 

Cover image of 'The emotional impact of living with lymphoma'

The emotional impact of living with lymphoma (August 2019)

Lymphoma Action

Adjusting to life with, and after, lymphoma can have a significant impact on emotional wellbeing. Each person has their own, unique experience of lymphoma. This factsheet covers the following area: Feelings after a lymphoma diagnosis; Coping with waiting; The impact of having treatment for lymphoma; Your feelings after finishing treatment for lymphoma; Depression; Coping with difficult feelings; Counselling; Life after treatment: finding your ‘new normal’; Other sources of support.

Cover image of 'Lymphoma and the end of life'

Lymphoma and the end of life (September 2019)

Lymphoma Action

This factsheet is about what someone in the final stages of life might experience and gives suggestions to help you get the practical, social and emotional support you need. It covers the following topics: How do I know when to stop active treatment?; How does lymphoma lead to the end of life?; What symptoms might I have towards the end of life?; How can my medical team help?; Your emotions towards the end of your life; Emotional support; Frequently asked questions about lymphoma and the end of life.

Cover image of 'Travel insurance and lymphoma'

Travel insurance and lymphoma (June 2019)

Lymphoma Action

Travel insurance is important if you are planning a trip to another country. This factsheet covers the following topics: Why is travel insurance important?; Why is travel insurance more expensive for people who have lymphoma?; Does having lymphoma make it difficult to get travel insurance?; What level of cover should I choose?; Where can I search for travel insurance?; Should I get a European Health Insurance Card (EHIC)?; Travel insurance tips; Useful organisations.

Cover image of 'Thrombocytopenia (low platelets)'

Thrombocytopenia (low platelets) (February 2019)

Lymphoma Action

People with lymphoma sometimes have thrombocytopenia because of the lymphoma itself or as a side effect of treatment. This can put them at a higher risk of bleeding and bruising. This factsheet explains what thrombocytopenia is and why people with lymphoma get thrombocytopenia and describes the symptoms, treatment and how to reduce the risk of bleeding.

Cover image of 'Biopsy'

Biopsy (July 2019)

Lymphoma Action

This information sheet describes different types of biopsy and what to expect.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (November 2019)

Lymphoma Action

This comprehensive booklet discusses Hodgkin lymphoma in detail.

Cover image of 'Treatment for lymphoma [Easy read]'

Treatment for lymphoma [Easy read] (January 2019)

Lymphoma Action

This booklet covers what treatment is, what chemotherapy, radiotherapy and stem cell transplants are, and what side effects you might get from treatment. 

Cover image of 'After treatment for lymphoma [Easy read]'

After treatment for lymphoma [Easy read] (January 2019)

Lymphoma Action

This booklet covers what happens after treatment, including check-ups and how to live well after treatment. 

Cover image of 'Anaemia'

Anaemia (February 2019)

Lymphoma Action

Many people with lymphoma are affected by anaemia at some point during their illness, either because of the lymphoma itself or as a side effect of the treatment they are having. This factsheet describes what anaemia is and what causes it, why haemoglobin is important and how much you should have, the symptoms of anaemia, and its treatment.

Cover image of 'Fatigue'

Fatigue (November 2019)

Lymphoma Action

Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.

Cover image of 'Stem cell transplants'

Stem cell transplants (July 2019)

Lymphoma Action

An overview of stem cell transplants in the treatment of lymphoma. The factsheet outlines the difference between a self (autologous) stem cell transplant and a donor (allogeneic) stem cell transplant. Contents: What are stem cells?; What is a stem cell transplant?; Why are stem cell transplants used?; When are stem cell transplants used?; Self (‘autologous’) and donor (‘allogeneic’) stem cell transplants.

Cover image of 'Late effects of lymphoma treatment'

Late effects of lymphoma treatment (May 2019)

Lymphoma Action

Late effects are health problems that may develop months or years after treatment for lymphoma. This factsheet explains some of the potential late effects of lymphoma treatment, and who might get them. It covers second cancers, heart disease, lung problems, hormone problems and how to reduce your risk.

Cover image of 'Sore mouth (oral mucositis)'

Sore mouth (oral mucositis) (June 2019)

Lymphoma Action

Many people experience problems with their mouth following chemotherapy or radiotherapy. This factsheet has tips on oral hygiene and diet.

Cover image of 'Relationships, family, friends'

Relationships, family, friends (July 2019)

Lymphoma Action

This factsheet describes some of the ways lymphoma might affect your relationships. It covers: The impact of lymphoma on relationships; You and your partner; Friends, colleagues and acquaintances; Connecting with others who are affected by lymphoma.

Cover image of 'Finding out you have lymphoma [Easy read]'

Finding out you have lymphoma [Easy read] (January 2019)

Lymphoma Action

This booklet covers what lymphoma is and how you might feel after finding out you have it. 

Cover image of 'Exercise and physical activity'

Exercise and physical activity (June 2019)

Lymphoma Action

Physical activity can improve your physical and emotional health. This factsheet covers physical activity before, during and after treatment for lymphoma. It has tips to help you build physical activity into your day-to-day life in ways that are safe for you. 

Cover image of 'Questions about clinical trials'

Questions about clinical trials (July 2019)

Lymphoma Action

Frequently asked questions and answers about taking part in a clinical trial.

Cover image of 'Peripheral neuropathy'

Peripheral neuropathy (April 2019)

Lymphoma Action

Peripheral neuropathy may be a side-effect of chemotherapy. This factsheet describes peripheral neuropathy, the chemotherapy drugs that most commonly cause it, the symptoms and diagnosis, reducing the risk and managing the symptoms.

Cover image of 'Growth factors'

Growth factors (February 2019)

Lymphoma Action

This factsheet is about blood cell growth factors, specifically granulocyte-colony stimulating factor (G-CSF), which may be given as part of treatment for lymphoma. It explains what growth factors are, when they can be used, how they are given, and possible side effects.

Cover image of 'Hair loss'

Hair loss (September 2019)

Lymphoma Action

Some lymphoma treatments can cause your hair to thin or fall out. Knowing what to expect and what you can do about it may help you cope with losing your hair. This factsheet has advice on how to care for your hair and scalp during and after treatment. It also tells you about some of the options you may wish to consider until your hair grows back. 

Cover image of 'Treatment and remission'

Treatment and remission (July 2019)

Lymphoma Action

Treatment for lymphoma aims to send the disease into remission. This factsheet explains what remission is and the difference between complete remission and partial remission. Contents: The aim of lymphoma treatment; Complete remission; Partial remission.

Cover image of 'Having a stem cell transplant'

Having a stem cell transplant (July 2019)

Lymphoma Action

Stem cell transplants are an intensive form of treatment that involve a number of steps. This factsheet outlines the main steps in self (autologous) and donor (allogeneic) stem cell transplants: Preparation; Collecting the stem cells; High-dose anti-cancer therapy (conditioning); Stem cell infusion; Waiting for your blood counts to recover (engraftment).

Cover image of 'CAR T cells'

CAR T cells (October 2019)

Lymphoma Action

CAR T-cell therapy, is a type of targeted treatment used for certain types of high-grade (fast-growing) lymphoma. This factsheet explains what CAR T cells are, who can have them and how they are given, the benefits, and the possible side effects.

Cover image of 'About clinical trials'

About clinical trials (July 2019)

Lymphoma Action

This factsheet is about clinical trials for lymphoma: what they are, why they are done, how they are organised and what they involve for those who take part. 

Cover image of 'Bereavement and grief'

Bereavement and grief (November 2019)

Lymphoma Action

The death of someone you love can be extremely difficult to deal with and the mix of feelings that accompany such loss can feel overwhelming. Even if the person was unwell for a while, it can still be a shock. We all have our own ways of grieving. While nobody can take away the pain, there is support available to help you cope. Contents: What is grief?; Feelings you might experience when someone you love dies; Interactions with other people; Frequently asked questions about bereavement, loss and grief; How can I help myself?.

Cover image of 'Donor (allogeneic) stem cell transplants'

Donor (allogeneic) stem cell transplants (July 2019)

Lymphoma Action

This information is about allogeneic (donor) stem cell transplants for people with lymphoma. It explains what a donor (allogeneic) stem cell transplant is, who might have one, what is involved, the risks and what happens afterwards?

Cover image of 'Managing stress'

Managing stress (June 2019)

Lymphoma Action

Living with lymphoma can cause a great deal of stress, whether you have been diagnosed or someone close to you has. This factsheet outlines common signs of stress and offers practical tips to help you manage it. Contents: What is stress?; What circumstances bring stress?; Can stress make my lymphoma worse?; Managing stress; Living with and beyond lymphoma. 

Cover image of 'Ibrutinib'

Ibrutinib (November 2019)

Lymphoma Action

This factsheet describes the use of ibrutinib for the treatment of certain types of lymphoma (relapsed or refractory mantle cell lymphoma; relapsed or refractory CLL; CLL and a 17p deletion). It covers what ibrutinib is, who can have it and who cannnot, its benefits, how it is given, side effects and precautions while being treated.

Cover image of 'Idelalisib'

Idelalisib (October 2019)

Lymphoma Action

Idelalisib is a targeted drug used in the treatment of certain types of lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Self (autologous) stem cell transplants'

Self (autologous) stem cell transplants (July 2019)

Lymphoma Action

This factsheet is about stem cell transplants that use your own stem cells (autologous stem cell transplants). It covers: What is a self (autologous) stem cell transplant?; Who might have one?; What does it involve?; What are the risks?; Follow-up; Recovery. 

Cover image of 'Post-transplant lymphoproliferative disorder (PTLD)'

Post-transplant lymphoproliferative disorder (PTLD) (April 2019)

Lymphoma Action

Post-transplant lymphoproliferative disorders (PTLD) are lymphomas that can develop in people who are taking treatment to dampen their immune system after a transplant. This factsheet covers: What is PTLD?; What causes PTLD?; Who might get PTLD?; Symptoms of PTLD; Treatment for PTLD; Risks associated with PTLD.

Cover image of 'Reduced fertility'

Reduced fertility (April 2019)

Lymphoma Action

This factsheet gives an overview of the risks to fertility associated with common lymphoma treatments. It outlines methods to help preserve fertility before treatment. Topics include: chemotherapy and fertility; radiotherapy and fertility; targeted therapies and fertility; preserving fertility; planning a family after lymphoma treatment; ways to help you conceive if you have fertility difficulties; emotional support; useful resources and organisations

Cover image of 'Dry, sore and itchy skin'

Dry, sore and itchy skin (June 2019)

Lymphoma Action

Skin problems can be a symptom of lymphoma. They can also be a side effect of some treatments. This factsheet has suggestions to help you manage dry, sore and itchy skin. Contents: Skin problems as a symptom of lymphoma; Skin problems as a side effect of treatment; Managing sore, dry and itchy skin.

Cover image of 'Autologous stem cell transplant'

Autologous stem cell transplant (November 2019)

Lymphoma Action

This booklet describes autologous stem cell transplant in detail. 

Cover image of 'Communicating with the people around you'

Communicating with the people around you (July 2019)

Lymphoma Action

Lymphoma can put pressure on your relationships. This factsheet is for anyone affected by lymphoma, including family and friends of someone with a diagnosis. It offers tips to help you communicate well with the people around you.  

Cover image of 'Bowel problems'

Bowel problems (August 2019)

Lymphoma Action

Lymphoma, and some of the treatments for lymphoma, can cause bowel problems. Although these are usually mild and temporary, any change in bowel habits can have a considerable impact on day-to-day life and can be difficult to discuss. This factsheet has practical advice to help you cope with diarrhoea, constipation, and wind (flatulence).

Cover image of 'Complementary therapy'

Complementary therapy (June 2019)

Lymphoma Action

This factsheet describes complementary therapies and how they may be used in lymphoma. It has brief information about the different types (acupuncture, aromatherapy, art therapy, chiropractic care, massage, mindfulness, music therapy, tai chi and yoga), and also looks at choosing a complementary therapy, finding a practitioner, the availability of complementary therapy and regulation.

Cover image of 'Day-to-day living'

Day-to-day living (June 2019)

Lymphoma Action

Living with lymphoma can have an impact on day-to-day life. This factsheet tells you where you can find out more and get help with everyday practicalities: working; studying; driving and getting around; finances; sleeping; hobbies and interests; smoking and drugs; vaccinations; organising your paperwork.

Cover image of 'Diet and nutrition'

Diet and nutrition (July 2019)

Lymphoma Action

General guidance on following a healthy diet, including how to eat well during your treatment for lymphoma. Contents: Why is a healthy diet important?; How can I eat well during treatment for lymphoma?; Frequently asked questions about diet and lymphoma 

Cover image of 'Palliative care'

Palliative care (September 2019)

Lymphoma Action

This factsheet is about palliative care at the end of life. It covers: What is palliative care?; Who provides palliative care?; Frequently asked questions about palliative care at the end of life.

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

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