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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Macmillan Cancer Support
Follicular lymphoma is a specific type of non-Hodgkin lymphoma. This factsheet describes the signs and symptoms, the stages, diagnosis, and treatment.
Macmillan Cancer Support
This booklet aims to provide a better understanding of non-Hodgkin lymphomas, their diagnosis and treatment. It also has sections on feelings and sources of practical and financial support. Includes details of useful organisations.
Macmillan Cancer Support
R-CHOP is a combination treatment used to treat non-Hodgkin lymphoma (NHL). This factsheet describes the drugs used, how they are given and the possible side-effects.
Blood Cancer UK
This booklet is for people affected by low-grade non-Hodgkin lymphoma (NHL). It mainly covers the most common type of low-grade NHL, follicular NHL.
Blood Cancer UK
A booklet for people affected by high-grade non-Hodgkin lymphoma (NHL).
Unbound
12 June 1995. On his twenty-eighth birthday, Raz Shaw was a directionless gambling addict doing a telesales job that was eating up every trace of what soul he had left. The next day he would be diagnosed with stage 4 sclerosing mediastinal non-Hodgkin’s lymphoma of the large cell type. As he tells it, cancer saved his life. He was given the all-clear in March 1996, and stopped gambling for good that April. After a year away recuperating, he turned his back on the highly paid job that had devoured him and re-assimilated himself into the world of theatre that had once made him feel so alive. It took him a long time to realise quite how much these recoveries were bound up with one another – now he is ready to tell his story. Death and the Elephant is a memoir of living through and beyond illness and addiction. Blessed with the ability to find humour even in life’s darkest moments, Raz charts his struggles with irreverence and unflinching perspective. This is his story, but it’s also a universal one – an honest, funny, sometimes raw, and often inappropriate glimpse into the mind of a young man dealing with a life-threatening illness in the only way he knows how: by laughing in its face. (Publisher)
Macmillan Cancer Support
This audiobook explains non-Hodgkin lymphoma, covering the causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also talks about emotional, practical and financial issues.
Lymphoma Action
This booklet aims to help people understand more about the different types of low-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what to expect during and after treatment.
Lymphoma Action
This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.
Lymphoma Action
This booklet covers what lymphoma is, the tests people might have, the treatments available, and questions to ask doctors.
Macmillan Cancer Support
This information from the Macmillan Cancer Support website has been translated into Punjabi. BEAM is a combination chemotherapy treatment used to treat Hodgkin lymphoma and non-Hodgkin lymphoma. It is given before a stem cell transplant. It may also be used to treat other cancers. This factsheet describes what it is, how it is given, and possible side effects.
Self-published using CreateSpace Independent Publishing Platform
On a chilly, damp, foggy, September morning, Charlie slowly walks into the downstairs brightly lit florescent kitchen. His eyes react to the light reflecting off the large white cabinets. He touches the tender swollen lump under the left side of his neck and winces in pain. Charlie knows that something is wrong with him. He’s afraid to tell his mom and dad for fear that learning what may be causing the lump in his neck may be related to the sickness he almost died from when he was born. He doesn’t want to put his family through the stress and uncertainty that they went through twelve years ago. But he knows if he doesn’t say something, his parents may never forgive him. (Publisher)
Children's Cancer and Leukaemia Group
Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what non-Hodgkin lymphoma is, and describes the signs, symptoms, tests and treatment options.
Johns Hopkins University Press
When neurobiologist Elizabeth M. Adler was diagnosed with non-Hodgkin lymphoma almost twenty years ago, she learned everything she could about the disease, both to cope with the emotional stress of her diagnosis and to make the best possible decisions for her treatment. In Living with lymphoma, she combines her scientific expertise and personal knowledge with a desire to help other people who have lymphoma manage this complex and often baffling disease. With the availability of more effective treatment regimens, many people with lymphoma are living longer; in fact, there are more than 700,000 lymphoma survivors in the United States alone. Given this change in the lymphoma landscape, the second edition of this book places a greater emphasis on survivorship. The new edition includes the latest information on lymphoma diagnosis, treatment, and incidence and describes the most recent update to the WHO system of lymphoma classification and staging. Adler discusses new targeted therapies like ibrutinib and idelalisib and describes how other treatments, including radiation therapy and stem cell transplants, have been modified while others have been discontinued. She also addresses new developments, such as the possible role of lack of sunlight and vitamin D in the pathogenesis of lymphoma, and the use of medical marijuana. The book includes suggestions for further reading, including the latest material available online. (Publisher)
Harper Wave (HarperCollins imprint)
The author of the New York Times bestseller Broken Open returns with a visceral and profound memoir of two sisters who, in the face of a bone marrow transplant—one the donor and one the recipient—begin a quest for acceptance, authenticity, and most of all, love. A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life, Elizabeth Lesser has sought understanding about what it means to be true to oneself and, at the same time, truly connected to the ones we love. But when her sister Maggie needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love—honestly, generously, and authentically. Hoping to give Maggie the best chance possible for a successful transplant, the sisters dig deep into the marrow of their relationship to clear a path to unconditional acceptance. They leave the bone marrow transplant up to the doctors, but take on what Lesser calls a "soul marrow transplant," examining their family history, having difficult conversations, examining old assumptions, and offering forgiveness until all that is left is love for each other’s true selves. Their process—before, during, and after the transplant—encourages them to take risks of authenticity in other aspects their lives. But life does not follow the storylines we plan for it. Maggie’s body is ultimately too weak to fight the relentless illness. As she and Lesser prepare for the inevitable, they grow ever closer as their shared blood cells become a symbol of the enduring bond they share. Told with suspense and humor, Marrow is joyous and heartbreaking, incandescent and profound. The story reveals how even our most difficult experiences can offer unexpected spiritual growth. Reflecting on the multifaceted nature of love—love of other, love of self, love of the world—Marrow is an unflinching and beautiful memoir about getting to the very center of ourselves. (Publisher)
O-Books (John Hunt Publishing)
Not only is this book an inspiring survival manual for cancer patients, but its humour and objectivity make it a choice read for anyone who enjoys real-life drama and pathos. Diagnosed with Mantle Cell Lymphoma in 2012 the author resorted to a blog to keep in touch with friends, and unwittingly ended up writing about the good, the bad and the ugly side of cancer, which attracted many followers. Is there a good? Very possibly. Bad and ugly, definitely. There is also an extremely funny side - wry observations that brought humour into an otherwise bleak landscape which included chemotherapy and a stem cell transplant. The author is also blessed with a big following from the Mind, Body, Spirit community of which she is a part (including Judy Hall, Anita Moorjani, Dolores Ashcroft-Nowicki); from this outpouring of expert support came advice on nutrition and alternative therapies which help to make this an invaluable source of information for cancer patients and their carers. (Publisher)
Oneworld Publications
The Cancer Survivors Club is a collection of truly inspirational, uplifting and assuring survival stories. These poignant personal accounts from normal people, demonstrate an extraordinary determination to survive against the odds. It proves with survival rates doubling, anything is possible. Unfortunately cancer affects everyone; worldwide there are around 12.7 million new cases diagnosed each year. Every two minutes someone in the UK is diagnosed with cancer. The Cancer Survivors Club has an excellent mix of stories, from the most common cancer, to the rarest. Some of the cancer types mentioned are; brain, bowel, breast, pancreatic, spinal, testicular, leukaemia, nasal and non-Hodgkin's lymphoma. Included in the book are a number of Chris Geiger's cheerful newspaper columns, including his humorous account of a prostate examination, getting sunburnt on a crowded beach and his Guinness World Record article. The Cancer Survivors Club will provide anyone touched by cancer with hope, strength and encouragement. Each story is written from the survivors or families own perspective, offering a very warm, friendly style of writing. This relaxed and sometimes humorous approach makes The Cancer Survivors Club an informative, positive and inspirational book that the reader will be able to relate to and gain strength from. Many cancer patients and those around them find the gruelling treatments very hard to cope with, they often feel very alone and isolated. This book allows anyone affected by the disease to focus their attention on surviving, ultimately making it their goal to share their story in future editions. Most patients have times when they feel they are the only person going through cancer treatment and have nobody to talk with. It is also a very difficult time for people close to the patient who have no previous experience in dealing with this disease. The Cancer Survivors Club is a must-read for the millions of cancer patients worldwide and a book of great support for their family and friends. (Publisher)
Tips for coping with lymphoma from a patient.
Mereo Books
When Samantha received the devastating news that she had a cancer that was difficult to treat - in fact, the treatment itself might be fatal - she had to make some difficult choices about how to try and survive. Her story is full of pain, laughter and hope. Surrounded by her young children and supported by her husband, stepson, close family and friends, Samantha was able to overcome her illness through a mixture of conventional and unconventional treatments, some large leaps of faith and some very fortunate timing. She believes that with a combination of meditation and Eastern medicines she was able to put off further chemotherapies until Western science procured an answer. POG is a big thank-you letter to those who helped her on her journey. (Publisher)
Worple
On Valentine's Day, 2006, Anthony Wilson was formally diagnosed with non-Hodgkin's lymphoma, a cancer of the lymphatic system. 'Beginning with what happened', the poems in Riddance chart the progress of his treatment for this disease, from initial diagnosis to the uncertain territory of remission. Even more essentially, they recover and celebrate all that is most fundamental and affirming about the act of living. (Publisher)
Impress Books
The sun has just popped out, after a heavy shower; the washing line a string of pearls. It's time to live. On Valentine s Day, 2006, Anthony Wilson was diagnosed with non-Hodgkin's lymphoma, a cancer of the lymphatic system. He was 42. In this journal of the days that followed he contemplates love, family and mortality alongside celebrations of Peter Osgood, Ivor Cutler and cooking chicken while listening to funk. (Publisher)
CKG Ventures
The Cancer Survivors Club is a collection of truly inspirational, uplifting and assuring survival stories. These poignant personal accounts from normal people, demonstrate an extraordinary determination to survive against the odds. It proves with survival rates doubling, anything is possible. Unfortunately cancer affects everyone; worldwide there are around 12.7 million new cases diagnosed each year. Every two minutes someone in the UK is diagnosed with cancer. The Cancer Survivors Club has an excellent mix of stories, from the most common cancer, to the rarest. Some of the cancer types mentioned are; brain, bowel, breast, pancreatic, spinal, testicular, leukaemia, nasal and non-Hodgkin's lymphoma. Included in the book are a number of Chris Geiger's cheerful newspaper columns, including his humorous account of a prostate examination, getting sunburnt on a crowded beach and his Guinness World Record article. The Cancer Survivors Club will provide anyone touched by cancer with hope, strength and encouragement. Each story is written from the survivors or families own perspective, offering a very warm, friendly style of writing. This relaxed and sometimes humorous approach makes The Cancer Survivors Club an informative, positive and inspirational book that the reader will be able to relate to and gain strength from. Many cancer patients and those around them find the gruelling treatments very hard to cope with, they often feel very alone and isolated. This book allows anyone affected by the disease to focus their attention on surviving, ultimately making it their goal to share their story in future editions. Most patients have times when they feel they are the only person going through cancer treatment and have nobody to talk with. It is also a very difficult time for people close to the patient who have no previous experience in dealing with this disease. The Cancer Survivors Club is a must-read for the millions of cancer patients worldwide and a book of great support for their family and friends. (Publisher)
Lymphoma Action
This factsheet is about the monoclonal antibody rituximab in the treatment of lymphoma. It tells you how rituximab works, who might be given it and what to expect during treatment.
Lymphoma Action
Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) are different forms of the same disease and are treated in the same way. CLL is used to refer to both forms of disease, except where there are important differences. This factsheet descrives what CLL is, who gets it, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapse, research and targeted treatments, transformation, and living with CLL
Lymphoma Action
This factsheet is about treatment for lymphoma during pregnancy. It covers the following: How common is lymphoma during pregnancy; Lymphoma diagnosis during pregnancy; Treatment during pregnancy; Frequently asked questions (FAQs).
Lymphoma Action
A carer is someone who looks after a person with an illness or disability without getting paid for it. You are a carer if you’re looking after a relative or a friend with lymphoma. This factsheet outlines the kind of help a carer might provide and lists sources of specialist support available to carers. Contents: Am I a carer?; Offering emotional support; Offering practical support; What if someone doesn’t accept help?; Emotional impact of being a carer; Emotional support for you as a care; Practical support for you as a carer.
Lymphoma Action
This factsheet is about targeted drugs: What are targeted drugs?; Who can have targeted drugs?; What targeted drugs are approved for lymphoma?; Lymphoma research and drugs in development.
Lymphoma Action
An overview of how cancer develops and what lymphoma is.
Lymphoma Action
This factsheet is about some of the other targeted drugs approved for people with lymphoma. It explains what types of targeted drugs are available: radioimmunotherapy; cell signal blockers; proteasome inhibitors; and immunomodulators.
Lymphoma Action
Newer antibodies against CD20 are beginning to offer alternatives to rituximab for some people with lymphoma. This factsheet covers: antibodies targeting CD20; ofatumumab (Arzerra®); obinutuzumab (Gazyvaro®). It considers who can have these antibodies, how they are given, possible side effects.
Lymphoma Action
Brentuximab vedotin is a targeted drug used in the treatment of certain types of lymphoma. This factsheets explains what it is, who can have it, how it is given, the benefits and possible side effects.
Lymphoma Action
Venetoclax is a targeted drug used in the treatment of certain types of low-grade (slow-growing) lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.
Lymphoma Action
Guidance for people with lymphoma on what to tell their children and where to find other resources: Should I tell my child?; How can I talk to my child about lymphoma?; What should I say?; Keep communication open; Older children and teenagers; If someone close to you has lymphoma: animations for children; Resources.
Lymphoma Action
This factsheet gives an overview of Hodgkin lymphoma: what it is; who might get it; and the different types.
Lymphoma Action
Different lymphomas may need different treatment. This information sheet gives you a brief overview of treatment for lymphoma and tells you where to find more information.
Lymphoma Action
This factsheet is about classical Hodgkin lymphoma. It describes what it is, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapsed and refractory classical Hodgkin lymphoma, and research.
Lymphoma Action
This factsheet gives an overview of human immunodeficiency virus (HIV) and lymphoma. It is for people who have HIV and want to know more about their risk of developing lymphoma, or who have been diagnosed with lymphoma and want more information about what happens next and where to go for more information and support. It covers the following topics: About HIV and lymphoma; Being diagnosed with lymphoma and HIV; Types of lymphoma; Symptoms; Treatment; Outlook; Relapse; Looking after yourself; After treatment for lymphoma; Further information and support.
Lymphoma Action
This factsheet explains what antibody therapy is and how it is used to treat lymphoma.
Lymphoma Action
This booklet covers what watch and wait is, who might go on watch and wait and what happens at your check-ups with your doctors.
Lymphoma Action
Adjusting to life with, and after, lymphoma can have a significant impact on emotional wellbeing. Each person has their own, unique experience of lymphoma. This factsheet covers the following area: Feelings after a lymphoma diagnosis; Coping with waiting; The impact of having treatment for lymphoma; Your feelings after finishing treatment for lymphoma; Depression; Coping with difficult feelings; Counselling; Life after treatment: finding your ‘new normal’; Other sources of support.
Lymphoma Action
This factsheet is about what someone in the final stages of life might experience and gives suggestions to help you get the practical, social and emotional support you need. It covers the following topics: How do I know when to stop active treatment?; How does lymphoma lead to the end of life?; What symptoms might I have towards the end of life?; How can my medical team help?; Your emotions towards the end of your life; Emotional support; Frequently asked questions about lymphoma and the end of life.
Lymphoma Action
Travel insurance is important if you are planning a trip to another country. This factsheet covers the following topics: Why is travel insurance important?; Why is travel insurance more expensive for people who have lymphoma?; Does having lymphoma make it difficult to get travel insurance?; What level of cover should I choose?; Where can I search for travel insurance?; Should I get a European Health Insurance Card (EHIC)?; Travel insurance tips; Useful organisations.
Lymphoma Action
People with lymphoma sometimes have thrombocytopenia because of the lymphoma itself or as a side effect of treatment. This can put them at a higher risk of bleeding and bruising. This factsheet explains what thrombocytopenia is and why people with lymphoma get thrombocytopenia and describes the symptoms, treatment and how to reduce the risk of bleeding.
Lymphoma Action
This information sheet describes different types of biopsy and what to expect.
Lymphoma Action
This comprehensive booklet discusses Hodgkin lymphoma in detail.
Lymphoma Action
This booklet covers what treatment is, what chemotherapy, radiotherapy and stem cell transplants are, and what side effects you might get from treatment.
Lymphoma Action
This booklet covers what happens after treatment, including check-ups and how to live well after treatment.
Lymphoma Action
Many people with lymphoma are affected by anaemia at some point during their illness, either because of the lymphoma itself or as a side effect of the treatment they are having. This factsheet describes what anaemia is and what causes it, why haemoglobin is important and how much you should have, the symptoms of anaemia, and its treatment.
Lymphoma Action
Many people with cancer have fatigue and this extreme tiredness is often called ‘cancer-related fatigue’. This factsheet answers the most common questions people ask about fatigue, including: what it is; why cancer causes fatigue; who gets it; how it feels; how long it lasts; how it is assessed; how it is treated; and how to cope.
Lymphoma Action
An overview of stem cell transplants in the treatment of lymphoma. The factsheet outlines the difference between a self (autologous) stem cell transplant and a donor (allogeneic) stem cell transplant. Contents: What are stem cells?; What is a stem cell transplant?; Why are stem cell transplants used?; When are stem cell transplants used?; Self (‘autologous’) and donor (‘allogeneic’) stem cell transplants.
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