The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Macmillan Cancer Support
This information from the Macmillan Cancer Support website has been translated into Punjabi. BEAM is a combination chemotherapy treatment used to treat Hodgkin lymphoma and non-Hodgkin lymphoma. It is given before a stem cell transplant. It may also be used to treat other cancers. This factsheet describes what it is, how it is given, and possible side effects.
Self-published using CreateSpace Independent Publishing Platform
On a chilly, damp, foggy, September morning, Charlie slowly walks into the downstairs brightly lit florescent kitchen. His eyes react to the light reflecting off the large white cabinets. He touches the tender swollen lump under the left side of his neck and winces in pain. Charlie knows that something is wrong with him. He’s afraid to tell his mom and dad for fear that learning what may be causing the lump in his neck may be related to the sickness he almost died from when he was born. He doesn’t want to put his family through the stress and uncertainty that they went through twelve years ago. But he knows if he doesn’t say something, his parents may never forgive him. (Publisher)
Children's Cancer and Leukaemia Group
Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what non-Hodgkin lymphoma is, and describes the signs, symptoms, tests and treatment options.
Johns Hopkins University Press
When neurobiologist Elizabeth M. Adler was diagnosed with non-Hodgkin lymphoma almost twenty years ago, she learned everything she could about the disease, both to cope with the emotional stress of her diagnosis and to make the best possible decisions for her treatment. In Living with lymphoma, she combines her scientific expertise and personal knowledge with a desire to help other people who have lymphoma manage this complex and often baffling disease. With the availability of more effective treatment regimens, many people with lymphoma are living longer; in fact, there are more than 700,000 lymphoma survivors in the United States alone. Given this change in the lymphoma landscape, the second edition of this book places a greater emphasis on survivorship. The new edition includes the latest information on lymphoma diagnosis, treatment, and incidence and describes the most recent update to the WHO system of lymphoma classification and staging. Adler discusses new targeted therapies like ibrutinib and idelalisib and describes how other treatments, including radiation therapy and stem cell transplants, have been modified while others have been discontinued. She also addresses new developments, such as the possible role of lack of sunlight and vitamin D in the pathogenesis of lymphoma, and the use of medical marijuana. The book includes suggestions for further reading, including the latest material available online. (Publisher)
Harper Wave (HarperCollins imprint)
The author of the New York Times bestseller Broken Open returns with a visceral and profound memoir of two sisters who, in the face of a bone marrow transplant—one the donor and one the recipient—begin a quest for acceptance, authenticity, and most of all, love. A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life, Elizabeth Lesser has sought understanding about what it means to be true to oneself and, at the same time, truly connected to the ones we love. But when her sister Maggie needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love—honestly, generously, and authentically. Hoping to give Maggie the best chance possible for a successful transplant, the sisters dig deep into the marrow of their relationship to clear a path to unconditional acceptance. They leave the bone marrow transplant up to the doctors, but take on what Lesser calls a "soul marrow transplant," examining their family history, having difficult conversations, examining old assumptions, and offering forgiveness until all that is left is love for each other’s true selves. Their process—before, during, and after the transplant—encourages them to take risks of authenticity in other aspects their lives. But life does not follow the storylines we plan for it. Maggie’s body is ultimately too weak to fight the relentless illness. As she and Lesser prepare for the inevitable, they grow ever closer as their shared blood cells become a symbol of the enduring bond they share. Told with suspense and humor, Marrow is joyous and heartbreaking, incandescent and profound. The story reveals how even our most difficult experiences can offer unexpected spiritual growth. Reflecting on the multifaceted nature of love—love of other, love of self, love of the world—Marrow is an unflinching and beautiful memoir about getting to the very center of ourselves. (Publisher)
O-Books (John Hunt Publishing)
Not only is this book an inspiring survival manual for cancer patients, but its humour and objectivity make it a choice read for anyone who enjoys real-life drama and pathos. Diagnosed with Mantle Cell Lymphoma in 2012 the author resorted to a blog to keep in touch with friends, and unwittingly ended up writing about the good, the bad and the ugly side of cancer, which attracted many followers. Is there a good? Very possibly. Bad and ugly, definitely. There is also an extremely funny side - wry observations that brought humour into an otherwise bleak landscape which included chemotherapy and a stem cell transplant. The author is also blessed with a big following from the Mind, Body, Spirit community of which she is a part (including Judy Hall, Anita Moorjani, Dolores Ashcroft-Nowicki); from this outpouring of expert support came advice on nutrition and alternative therapies which help to make this an invaluable source of information for cancer patients and their carers. (Publisher)
The Cancer Survivors Club is a collection of truly inspirational, uplifting and assuring survival stories. These poignant personal accounts from normal people, demonstrate an extraordinary determination to survive against the odds. It proves with survival rates doubling, anything is possible. Unfortunately cancer affects everyone; worldwide there are around 12.7 million new cases diagnosed each year. Every two minutes someone in the UK is diagnosed with cancer. The Cancer Survivors Club has an excellent mix of stories, from the most common cancer, to the rarest. Some of the cancer types mentioned are; brain, bowel, breast, pancreatic, spinal, testicular, leukaemia, nasal and non-Hodgkin's lymphoma. Included in the book are a number of Chris Geiger's cheerful newspaper columns, including his humorous account of a prostate examination, getting sunburnt on a crowded beach and his Guinness World Record article. The Cancer Survivors Club will provide anyone touched by cancer with hope, strength and encouragement. Each story is written from the survivors or families own perspective, offering a very warm, friendly style of writing. This relaxed and sometimes humorous approach makes The Cancer Survivors Club an informative, positive and inspirational book that the reader will be able to relate to and gain strength from. Many cancer patients and those around them find the gruelling treatments very hard to cope with, they often feel very alone and isolated. This book allows anyone affected by the disease to focus their attention on surviving, ultimately making it their goal to share their story in future editions. Most patients have times when they feel they are the only person going through cancer treatment and have nobody to talk with. It is also a very difficult time for people close to the patient who have no previous experience in dealing with this disease. The Cancer Survivors Club is a must-read for the millions of cancer patients worldwide and a book of great support for their family and friends. (Publisher)
Tips for coping with lymphoma from a patient.
When Samantha received the devastating news that she had a cancer that was difficult to treat - in fact, the treatment itself might be fatal - she had to make some difficult choices about how to try and survive. Her story is full of pain, laughter and hope. Surrounded by her young children and supported by her husband, stepson, close family and friends, Samantha was able to overcome her illness through a mixture of conventional and unconventional treatments, some large leaps of faith and some very fortunate timing. She believes that with a combination of meditation and Eastern medicines she was able to put off further chemotherapies until Western science procured an answer. POG is a big thank-you letter to those who helped her on her journey. (Publisher)
On Valentine's Day, 2006, Anthony Wilson was formally diagnosed with non-Hodgkin's lymphoma, a cancer of the lymphatic system. 'Beginning with what happened', the poems in Riddance chart the progress of his treatment for this disease, from initial diagnosis to the uncertain territory of remission. Even more essentially, they recover and celebrate all that is most fundamental and affirming about the act of living. (Publisher)