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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 173

Cover image of 'Being referred for tests and scans'

Being referred for tests and scans (April 2018)

Lymphoma Action

This factsheet briefly covers the tests the GP can do, how long will does it take to get a hospital appointment, and being referred to a local hospital.

Cover image of 'Lumbar puncture'

Lumbar puncture (April 2018)

Lymphoma Action

This factsheet describes what a lumbar puncture is, how it is done and why it might be needed.

Cover image of 'Neutropenia'

Neutropenia (July 2018)

Lymphoma Action

Many people with lymphoma – and other cancers – are affected by neutropenia at some point during their illness and treatment. Having neutropenia increases the risk of infection. This factsheet describes neutropenia and ts effects, risk factors, treatment and neutropenic diet.

Cover image of 'Self-management and remote monitoring'

Self-management and remote monitoring (October 2018)

Lymphoma Action

More and more people are living longer after a diagnosis of lymphoma. This has prompted some hospitals to change the way they organise long-term management and follow-up for people who have finished treatment. This factsheet explains how self-management support and remote monitoring may be used for people who have finished treatment. It covers: Self-management; Self-management support; Remote monitoring; When to book an appointment; Life on self-management and remote monitoring.

Cover image of 'Blood tests'

Blood tests (April 2018)

Lymphoma Action

This factsheet is about blood tests you might have before and after being diagnosed with lymphoma. 

Cover image of 'Bone marrow biopsy'

Bone marrow biopsy (April 2018)

Lymphoma Action

This factsheet describes why a bone marrow test might be carried out and what happens before, during and after the test.

Cover image of 'Chemo brain (cancer-related cognitive impairment)'

Chemo brain (cancer-related cognitive impairment) (April 2018)

Lymphoma Action

This factsheet describes what cancer-related cognitive disorder is, who gets it, the causes, signs, how it is assessed and treated, and how to cope with it.

Cover image of 'CNS prophylaxis'

CNS prophylaxis (April 2018)

Lymphoma Action

Central nervous system (CNS) prophylaxis is treatment given to prevent lymphoma spreading to the central nervous system. This factsheet explains what CNS prophylaxis is and descibes the central nervous system, who might need CNS prophylaxis and how it is given.

Cover image of 'Recovery after treatment'

Recovery after treatment (May 2018)

Lymphoma Action

It can be difficult to know what to expect when you finish treatment for lymphoma. This factsheet is about your recovery from the side effects that may have affected your body during treatment. Contents: The recovery package; How soon will I feel better?; Symptoms to look out for; Late effects of treatment.

Cover image of 'Foreign travel: precautions and vaccinations'

Foreign travel: precautions and vaccinations (April 2018)

Lymphoma Action

This factsheet is about safety precautions recommended if you have lymphoma and you are travelling outside the UK. It covers: General precautions when travelling abroad; Planning your trip; Preventing infection; Travel clinics; Travel vaccination; Malaria and mosquitoes.

Cover image of 'The lymphatic system'

The lymphatic system (April 2018)

Lymphoma Action

Lymphoma is a cancer of the lymphatic system. The lymphatic system is part of your immune system, which helps protect you from infection. It is spread throughout your body, like blood vessels, and has many different parts. This factsheet describes the different parts of the lymphatic system and what they do: What is the lymphatic system?; Lymph; Lymph nodes; Bone marrow; Thymus; Spleen; Tonsils and adenoid; Mucosa-associated lymphoid tissue; The lymphatic system and lymphoma. 

Cover image of 'Pembrolizumab (Keytruda®) [Chinese, Traditional]'

Pembrolizumab (Keytruda®) [Chinese, Traditional] (May 2018)

Macmillan Cancer Support

Pembrolizumab (Keytruda®) is used to treat melanoma that has spread or cannot be removed (advanced melanoma). It is also used for non-small cell lung cancer, Hodgkin lymphoma, and bladder cancer. This factsheet describes how it works, how it is given, and the possible side-effects.

Cover image of 'Tom has lymphoma [Welsh]'

Tom has lymphoma [Welsh] (November 2018)

CLIC Sargent|Lymphoma Action

Tom is ten years old when he is diagnosed with lymphoma. This illustrated, colour storybook for parents to read with their children describes what happens when he has to go to the hospital for tests and treatment. The story follows Tom from when he first feels ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'ABVD [Bulgarian]'

ABVD [Bulgarian] (May 2018)

Macmillan Cancer Support

Information from the Macmillan Cancer Support website translated into Bulgarian. ABVD chemotherapy is a combination treatment used to treat Hodgkin Lymphoma. This factsheet describes what it is, how it is given, and possible side effects.

Cover image of 'MGUS [Polish]'

MGUS [Polish] (July 2018)

Macmillan Cancer Support

Information from the Macmillan Cancer Support website translated into Polish. MGUS (monoclonal gammopathy of unknown significance) is a non-cancerous condition but there is a small risk it developing into a blood cancer, such as myeloma or lymphoma. This information explains what MGUS is, the causes, diagnosis, and treatment and follow up.

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (January 2018)

Blood Cancer UK

This booklet provides information about Hodgkin lymphoma, including the incidence, stages, causes, signs and symptoms, diagnosis, and treatment.

Cover image of 'Future treatments in acute myeloid leukaemia (AML). A guide for patients'

Future treatments in acute myeloid leukaemia (AML). A guide for patients (October 2018)

Leukaemia Care

The main treatment for acute myeloid leukaemia (AML) is chemotherapy, including targeted therapy. This might be followed by a stem cell transplant, and surgery and radiotherapy may be used in special circumstances. New therapies are being developed and investigated and this booklet describes several of these: clofarabine (DNA synthesis inhibitor); gilteritinib and quizartinib (tyrosine kinase inhibitors); venetoclax (B-cell lymphoma-2 (BCL2) inhibitor); and Vyxeos® (a combination of daunorubicin and cytarabine. 

Cover image of 'Waldenstrom macroglobulinaemia (WM)'

Waldenstrom macroglobulinaemia (WM) (November 2018)

Blood Cancer UK

Waldenström macroglobulinaemia (WM) is a slow-growing and rare form of blood cancer. It happens when certain blood cells called plasma cells develop in an unusual way in your bone marrow. This fact sheet explains what WM is, how it’s diagnosed and treated, and suggests where to go for more information. 

Cover image of 'Biosimilars for lymphoma'

Biosimilars for lymphoma (April 2017)

Lymphoma Action

This factshhet has information about biosimilars of biological medicines for lymphoma. It covers the following: What is a biosimilar?; How are biosimilars tested and approved?; Why are biosimilars developed?; Rituximab biosimilars; FAQs.

Cover image of 'Living with lymphoma'

Living with lymphoma (August 2017)

Lymphoma Action

Detailed information about living with lymphoma.

Cover image of 'Understanding Hodgkin lymphoma [Polish]'

Understanding Hodgkin lymphoma [Polish] (2017)

Macmillan Cancer Support

A translation of the pages on chemotherapy from the Macmillan Cancer Support booklet “Understanding Hodgkin lymphoma”.

Cover image of 'Understanding Hodgkin lymphoma'

Understanding Hodgkin lymphoma (December 2017)

Macmillan Cancer Support

This booklet explains what Hodgkin lymphoma is, and provides information on symptoms, diagnosis, the stages, and treatment options. It also covers issues such as fertility, feelings, and practical and financial support. 

Cover image of 'Hodgkin lymphoma'

Hodgkin lymphoma (August 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Hodgkin lymphoma is, and briefly describes the signs, symptoms, tests and treatment options.

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