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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 173

Cover image of 'MALT lymphoma (extranodal marginal zone lymphoma)'

MALT lymphoma (extranodal marginal zone lymphoma) (January 2020)

Lymphoma Action

This factsheet is about MALT lymphoma – a slow-growing type of non-Hodgkin lymphoma. It most commonly develops in the stomach (gastric MALT lymphoma) but can develop in other parts of the body (non-gastric MALT lymphoma). Contents: What is MALT lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Follow-up; Relapsed and refractory MALT lymphoma; Research and targeted treatments.

Cover image of 'Nodal marginal zone lymphoma'

Nodal marginal zone lymphoma (January 2020)

Lymphoma Action

This factsheet is about nodal marginal zone lymphoma – a rare, slow-growing type of non-Hodgkin lymphoma. Contents: What is nodal marginal zone lymphoma?; Who gets nodal marginal zone lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Transformation; Follow-up; Relapsed and refractory nodal marginal zone lymphoma; Research and targeted treatments.

Cover image of 'Splenic marginal zone lymphoma'

Splenic marginal zone lymphoma (January 2020)

Lymphoma Action

Splenic marginal zone lymphoma is a slow-growing type of non-Hodgkin lymphoma that develops in the spleen. This factsheet covers the following topics: What is splenic marginal zone lymphoma?; Who gets splenic marginal zone lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Transformation; Follow-up; Relapsed or refractory splenic marginal zone lymphoma; Research and targeted treatments.

Cover image of 'Chemotherapy regimens for lymphoma'

Chemotherapy regimens for lymphoma (February 2020)

Lymphoma Action

This information sheet is about chemotherapy regimens (combinations of drugs) for lymphoma. It covers: What is a chemotherapy regimen?; Common chemotherapy regimens for lymphoma; Which chemotherapy regimen might I have?; Side effects of chemotherapy regimens. Includes a list of the most common chemotherapy regimens for lymphoma. 

Cover image of 'Grey zone, double-hit, triple-hit, and high-grade B-cell lymphomas, not otherwise specified (NOS)'

Grey zone, double-hit, triple-hit, and high-grade B-cell lymphomas, not otherwise specified (NOS) (April 2020)

Lymphoma Action

This factsheet is about rare types of high-grade B-cell lymphoma that are difficult to classify: grey zone lymphoma; double-hit and triple-hit lymphoma; and high-grade B-cell lymphoma, not otherwise specified (NOS). It covers the following topics:  What types of high-grade B-cell lymphoma are difficult to classify?; Grey zone lymphoma; Double-hit and triple-hit lymphoma; High-grade B-cell lymphoma, not otherwise specified (NOS); Treatment; Finding information.

Cover image of 'What happens if lymphoma relapses?'

What happens if lymphoma relapses? (February 2020)

Lymphoma Action

This factsheet gives an overview of what happens if lymphoma comes back (relapses) or doesn’t respond to treatment (refractory lymphoma). It covers: What is relapsed or refractory lymphoma? Who might experience relapse? How will I know if my lymphoma has relapsed? What happens if lymphoma relapses? How is relapsed or refractory lymphoma treated? What happens if there is no further treatment for my lymphoma?

Cover image of 'Young person's guide to lymphoma'

Young person's guide to lymphoma (January 2020)

Lymphoma Action

Comprehensive booklet for young people with lymphoma. 

Cover image of 'Diffuse large B-cell lymphoma [Polish]'

Diffuse large B-cell lymphoma [Polish] (January 2020)

Macmillan Cancer Support

Diffuse large B-cell lymphoma is a specific type of non-Hodgkin lymphoma. This factsheet describes the signs and symptoms, staging, grading, diagnosis and treatment.

Cover image of 'My chemotherapy journey'

My chemotherapy journey (2020)

Ken Harwood

The author was diagnosed in 2019 with a low-grade non-Hodgkin lymphoma and this is his day-by-day account of his chemotherapy journey over a six month period.

Cover image of 'Non-Hodgkin lymphoma'

Non-Hodgkin lymphoma (April 2019)

Lymphoma Action

An overview of non-Hodgkin lymphoma (NHL), including: What is non-Hodgkin lymphoma?; Who gets non-Hodgkin lymphoma?; Types of non-Hodgkin lymphoma. 

Cover image of 'Diffuse large B-cell lymphoma (DLBCL)'

Diffuse large B-cell lymphoma (DLBCL) (July 2019)

Lymphoma Action

Diffuse large B-cell lymphoma (DLBCL) is a high-grade non-Hodgkin lymphoma. This factsheet describes what it is, who gets it, the symptoms, diagnosis and staging, the types of DLBCL, the outlook, treatment, follow-up, relapsed or refractory DLBCL, and research and targeted treatments

Cover image of 'Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL)'

Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL) (August 2019)

Lymphoma Action

Angioimmunoblastic T-cell lymphoma (AITL) and follicular T-cell lymphoma (FTCL) are thought to develop from the same type of cell and are treated in the same way. This factsheet describes what they are, who gets them, the symptoms, treatment, relapsed and refractory AITL and FTCL, and research and targeted treatments

Cover image of 'Adult T-cell leukaemia/lymphoma (ATL)'

Adult T-cell leukaemia/lymphoma (ATL) (August 2019)

Lymphoma Action

This factsheet is about adult T-cell leukaemia/lymphoma (ATL), a rare type of T-cell lymphoma associated with the HTLV-1 virus. It covers: What is ATL?; Who gets it?; Symptoms; Treatment; Relapsed and refractory ATL; Research and targeted treatments. 

Cover image of 'Follicular lymphoma'

Follicular lymphoma (October 2019)

Lymphoma Action

This factsheet is about follicular lymphoma, the most common type of low-grade non-Hodgkin lymphoma (NHL). Contents include: Quick overview; What is follicular lymphoma?; Who gets follicular lymphoma and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Paediatric follicular lymphoma; Follow-up; Transformation; Relapse; Research and targeted treatments.

Cover image of 'Skin lymphoma'

Skin lymphoma (April 2019)

Lymphoma Action

Skin lymphoma (cutaneous lymphoma) is a rare condition that can be hard to diagnose. This factsheet may be helpful if you are worried you could have skin lymphoma or if your doctor suspects that you may have it. It covers: What is skin lymphoma?; Who gets it?; What does it look like?; Diagnosis; After diagnosis; If it isn’t skin lymphoma.

Cover image of 'Skin (cutaneous) B-cell lymphoma'

Skin (cutaneous) B-cell lymphoma (April 2019)

Lymphoma Action

Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheeet is about a rare type of skin lymphoma called B-cell skin lymphoma (also known as cutaneous B-cell lymphoma or CBCL). It covers the folloiwing topics: What is B-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of B-cell skin lymphoma; Low-grade B-cell skin lymphoma; High-grade B-cell skin lymphoma; Outlook; Follow-up; Research and clinical trials.

Cover image of 'Lymphoplasmacytic lymphoma and Waldenström’s macroglobulinaemia'

Lymphoplasmacytic lymphoma and Waldenström’s macroglobulinaemia (August 2019)

Lymphoma Action

Lymphoplasmacytic lymphoma (LPL) is a rare type of non-Hodgkin lymphoma. Waldenström’s macroglobulinaemia (WM) is the most common type of LPL. This page covers the following topics: What are lymphoplasmacytic lymphoma and Waldenström’s macroglobulinaemia?; Who might get Waldenström’s macroglobulinaemia?; Symptoms; Diagnosis; Treatment; Outlook; Relapse; Follow-up; Research and clinical trials.

Cover image of 'Staging of lymphoma'

Staging of lymphoma (April 2019)

Lymphoma Action

This factsheet is about staging of Hodgkin lymphoma and non-Hodgkin lymphoma. Staging is used to work out which parts of your body are affected by lymphoma. It covers: What is staging?; Staging of lymphoma in adults; Staging of lymphoma in children; ‘Early’ stage and ‘advanced’ stage lymphoma.

Cover image of 'Skin (cutaneous) T-cell lymphoma'

Skin (cutaneous) T-cell lymphoma (April 2019)

Lymphoma Action

Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheet is about the most common group of skin lymphomas, T-cell skin lymphomas and covers: What is T-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of T-cell skin lymphoma including mycosis fungoides and Sézary syndrome; Outlook; Follow-up; Research and clinical trials.

Cover image of 'Anaplastic large cell lymphoma (ALCL)'

Anaplastic large cell lymphoma (ALCL) (August 2019)

Lymphoma Action

ALCL can be cutaneous (found only in the skin) or systemic (affecting the whole body). This information sheet is about systemic ALCL.  

Cover image of 'Extranodal NK-T-cell lymphoma, nasal type'

Extranodal NK-T-cell lymphoma, nasal type (August 2019)

Lymphoma Action

This factsheet is about extranodal NK/T-cell lymphoma, nasal type – a rare lymphoma associated with Epstein-Barr virus (EBV) infection, which usually develops in the nose. It covers: What is extranodal NK/T-cell lymphoma? Who gets it? Symptoms; Treatment; Relapsed or refractory extranodal NK/T-cell lymphoma; Research and targeted treatments.

Cover image of 'Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS)'

Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS) (August 2019)

Lymphoma Action

When a T-cell lymphoma doesn’t fit into any particular category of T-cell lymphoma, it is called peripheral T-cell lymphoma not otherwise specified (PTCL-NOS). This factsheet covers: What is PTCL-NOS?; Who gets it?; Symptoms; Treatment; Relapsed or refractory PTCL-NOS; Research and targeted treatments.

Cover image of 'Hepatosplenic T-cell lymphoma'

Hepatosplenic T-cell lymphoma (August 2019)

Lymphoma Action

Hepatosplenic T-cell lymphoma is a rare type of lymphoma that affects the liver and spleen. This factsheet covers the following topics: What is hepatosplenic T-cell lymphoma?; Who gets it?; Symptoms; Treatment; Relapsed or refractory hepatosplenic T-cell lymphoma; Research and targeted treatments.

Cover image of 'Intestinal T-cell lymphomas'

Intestinal T-cell lymphomas (August 2019)

Lymphoma Action

Intestinal T-cell lymphomas are rare types of T-cell lymphoma that develop in the small bowel; they include enteropathy-associated T-cell lymphoma (EATL) and monomorphic epitheliotropic intestinal T-cell lymphoma (MEITL). This factsheet explains what intestinal T-cell lymphoma is and who gets it, and describes the symptoms, treatment, relapsed or refractory intestinal T-cell lymphoma, research, and targeted treatments.

Cover image of 'T-cell lymphomas'

T-cell lymphomas (August 2019)

Lymphoma Action

An overview of T-cell lymphomas – non-Hodgkin lymphomas that develop from a type of white blood cell called a T lymphocyte or T cell. Contents: What are T-cell lymphomas?; Who gets T-cell lymphomas?; Symptoms; Diagnosis and staging; Types of T-cell lymphoma; Outlook; Treatment; Follow-up.

Cover image of 'Treatments for skin lymphoma'

Treatments for skin lymphoma (April 2019)

Lymphoma Action

This factsheet has information about the different treatments used for skin (cutaneous) lymphomas. It covers the following: How are skin lymphomas treated?; Active monitoring; Topical (skin-directed) treatments; Light treatment (phototherapy); Radiotherapy; Systemic (whole body) treatments; Stem cell transplants; Research and future treatments.

Cover image of 'Maintenance therapy (including rituximab maintenance)'

Maintenance therapy (including rituximab maintenance) (February 2019)

Lymphoma Action

This factsheet describes maintenance therapy, used to prolong remission after successful treatment of lymphoma. It explains what it is, whio can have it and the risks and benefits.

Cover image of 'Questions to ask'

Questions to ask (November 2019)

Lymphoma Action

Questions for people to ask their medical team: Questions about your lymphoma; Questions about tests and scans; Questions about staging; Questions about active monitoring (‘watch and wait’); Questions about treatment; Questions about side effects of treatment; Questions about effects of treatment on other areas of your life; Questions about clinical trials; Questions about ending treatment; Questions about follow-up; Questions about relapse. 

Cover image of 'Living with skin lymphoma'

Living with skin lymphoma (April 2019)

Lymphoma Action

This factsheet has advice and support to help you manage symptoms and to live well with skin (cutaneous) lymphoma. It overs the following topics: Alleviating itching and dryness; Minimising skin irritation; Treating an infection; Controlling your temperature; Managing pain; Improving the appearance of your skin; Day-to-day life.

Cover image of 'Steroids'

Steroids (April 2019)

Lymphoma Action

Steroids are often part of treatment for Hodgkin and non-Hodgkin lymphoma, including cutaneous (skin) lymphoma. This factsheet explains what steroids are, when and how they might be given, possible side effects, and the precautions that people should take when they are on steroids.

Cover image of 'Splenectomy (having your spleen removed)'

Splenectomy (having your spleen removed) (March 2019)

Lymphoma Action

This factsheet has information for people with lymphoma who have had their spleen removed. It describes the function of the spleen, what happens when it is removed and how to reduce the risk of infection.

Cover image of 'R-CHOP chemotherapy [Slovak]'

R-CHOP chemotherapy [Slovak] (October 2019)

Macmillan Cancer Support

R-CHOP is a combination treatment used to treat non-Hodgkin lymphoma (NHL). This factsheet describes the drugs used, how they are given and the possible side-effects.

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2019)

Blood Cancer UK

Burkitt lymphoma is a fast-growing form of blood cancer that can affect adults and children. This fact sheet explains what Burkitt lymphoma is, how it’s diagnosed and treated in adults, and where to go for more support. 

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2018)

Lymphoma Action

Burkitt lymphoma is a very fast-growing type of high-grade non-Hodgkin lymphoma (NHL). This factsheet is mainly about the sporadic form, which is the most common form of Burkitt lymphoma in the UK. It has a quick overview of Burkitt lymphoma and describes what it is, the causes, symptoms, diagnosis, staging, treatment, follow-up, and relapsed or refractory Burkitt lymphoma.

Cover image of 'Mantle cell lymphoma'

Mantle cell lymphoma (April 2018)

Lymphoma Action

This factsheet is about mantle cell lymphoma, an uncommon type of lymphoma that usually behaves like a high-grade (fast-growing) lymphoma. Contents: Quick overview; What is mantle cell lymphoma?;  Who gets mantle cell lymphoma and why?;  Symptoms; Diagnosis and staging; Outlook; Treatment; Relapsed and refractory mantle cell lymphoma.

Cover image of 'Active monitoring ('watch and wait') for lymphoma'

Active monitoring ('watch and wait') for lymphoma (June 2018)

Lymphoma Action

Many people with low-grade (slow-growing) non-Hodgkin lymphoma have periods of active monitoring (also referred to as watch and wait or active surveillance) where they do not have treatment for their lymphoma. It can be difficult knowing you have an illness, but are not having treatment. This booklet explains what active monitoring is and why it might be offered to you. It also provides tips on coping well and there is space for notes.

Cover image of 'Transformation of lymphoma'

Transformation of lymphoma (April 2018)

Lymphoma Action

Low-grade (slow-growing) lymphoma can sometimes transform (change) into a faster-growing type of lymphoma. This factsheet explains what transformation is, who could be affected, and why and when it happens. It also describes the symptoms, treatment options and outlook.

Cover image of 'CNS lymphoma'

CNS lymphoma (April 2018)

Lymphoma Action

Lymphoma can sometimes affect the central nervous system (the brain, spinal cord and eyes). This factsheet describes what it is, the differnt types, who gets CNS lymphoma and the causes, the symptoms, diagnosis, and staging, outlook, treatment, relapsed and refractory CNS lymphoma, and living with and after CNS lymphoma.

Cover image of 'Chemotherapy'

Chemotherapy (April 2018)

Lymphoma Action

This factsheet explains what chemotherapy is, and why and how it is used to treat lymphoma. It also describes the immediate and long-term side-effects. Includes a list of the commonly used chemotherapy regimens for lymphoma.

Cover image of 'Diffuse large B-cell lymphoma [Kurdish]'

Diffuse large B-cell lymphoma [Kurdish] (2018)

Macmillan Cancer Support

Diffuse large B-cell lymphoma is a specific type of non-Hodgkin lymphoma. This factsheet describes the signs and symptoms, staging, grading, diagnosis and treatment.

Cover image of 'Follicular lymphoma [Polish]'

Follicular lymphoma [Polish] (January 2018)

Macmillan Cancer Support

Follicular lymphoma is a specific type of non-Hodgkin lymphoma. This factsheet describes the signs and symptoms, the stages, diagnosis, and treatment.

Cover image of 'Understanding non-Hodgkin lymphoma'

Understanding non-Hodgkin lymphoma (January 2018)

Macmillan Cancer Support

This booklet aims to provide a better understanding of non-Hodgkin lymphomas, their diagnosis and treatment. It also has sections on feelings and sources of practical and financial support. Includes details of useful organisations.

Cover image of 'R-CHOP chemotherapy [Romanian]'

R-CHOP chemotherapy [Romanian] (October 2018)

Macmillan Cancer Support

R-CHOP is a combination treatment used to treat non-Hodgkin lymphoma (NHL). This factsheet describes the drugs used, how they are given and the possible side-effects.

Cover image of 'Low-grade non-Hodgkin lymphoma (NHL). A guide to follicular lymphoma and other slow-growing non-Hodgkin lymphomas'

Low-grade non-Hodgkin lymphoma (NHL). A guide to follicular lymphoma and other slow-growing non-Hodgkin lymphomas (August 2018)

Blood Cancer UK

This booklet is for people affected by low-grade non-Hodgkin lymphoma (NHL). It mainly covers the most common type of low-grade NHL, follicular NHL.

Cover image of 'High-grade non-Hodgkin lymphoma (NHL). A guide to DLBCL and other fast-growing non-Hodgkin lymphomas'

High-grade non-Hodgkin lymphoma (NHL). A guide to DLBCL and other fast-growing non-Hodgkin lymphomas (June 2018)

Blood Cancer UK

A booklet for people affected by high-grade non-Hodgkin lymphoma (NHL). 

Cover image of 'Death and the elephant. How cancer saved my life'

Death and the elephant. How cancer saved my life (2018)

Unbound

12 June 1995. On his twenty-eighth birthday, Raz Shaw was a directionless gambling addict doing a telesales job that was eating up every trace of what soul he had left. The next day he would be diagnosed with stage 4 sclerosing mediastinal non-Hodgkin’s lymphoma of the large cell type. As he tells it, cancer saved his life. He was given the all-clear in March 1996, and stopped gambling for good that April. After a year away recuperating, he turned his back on the highly paid job that had devoured him and re-assimilated himself into the world of theatre that had once made him feel so alive. It took him a long time to realise quite how much these recoveries were bound up with one another – now he is ready to tell his story. Death and the Elephant is a memoir of living through and beyond illness and addiction. Blessed with the ability to find humour even in life’s darkest moments, Raz charts his struggles with irreverence and unflinching perspective. This is his story, but it’s also a universal one – an honest, funny, sometimes raw, and often inappropriate glimpse into the mind of a young man dealing with a life-threatening illness in the only way he knows how: by laughing in its face. (Publisher)

Cover image of 'Understanding non-Hodgkin lymphoma [Audio CD]'

Understanding non-Hodgkin lymphoma [Audio CD] (2017)

Macmillan Cancer Support

This audiobook explains non-Hodgkin lymphoma, covering the causes and symptoms, diagnosis, staging and grading, treatments and clinical trials. It also talks about emotional, practical and financial issues. 

Cover image of 'Low-grade non-Hodgkin lymphoma'

Low-grade non-Hodgkin lymphoma (September 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of low-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what to expect during and after treatment.

Cover image of 'High-grade non-Hodgkin lymphoma'

High-grade non-Hodgkin lymphoma (June 2017)

Lymphoma Action

This booklet aims to help people understand more about the different types of high-grade non-Hodgkin lymphoma. It describes how they typically affect people, the usual treatments, and what people can expect during and after treatment.

Cover image of 'Introduction to lymphoma'

Introduction to lymphoma (May 2017)

Lymphoma Action

This booklet covers what lymphoma is, the tests people might have, the treatments available, and questions to ask doctors.

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