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Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 414

Cover image of 'How will a colostomy affect me? Information for patients before stoma surgery'

How will a colostomy affect me? Information for patients before stoma surgery (August 2019)

Colostomy UK

This booklet seeks to answer the many questions and concerns that patietns or a family member or carer might have about a colostomy. 

Cover image of 'Having a syringe driver'

Having a syringe driver (December 2019)

Marie Curie

This leaflet explains why you might have a syringe driver, how it works and things to look out for. 

Cover image of 'Targeted therapies for lung cancer'

Targeted therapies for lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer, and targeted therapy is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment.

Cover image of 'Know your breasts. A quick guide to being breast aware [Gujarati]'

Know your breasts. A quick guide to being breast aware [Gujarati] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Advice for carers. A practical guide'

Advice for carers. A practical guide (May 2019)

Age UK

This guide looks at the practical and emotional sides of caring. It has information about areas such as benefits and flexible working hours, as well as how a caring role could affect wellbeing and social life. 

Cover image of 'Caring for someone with an illness they will probably die from. Who can help? [Easy read]'

Caring for someone with an illness they will probably die from. Who can help? [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to tell you about the different people who can help if you are caring for someone with an illness they will probably die from.

Cover image of 'Know your breasts. A quick guide to being breast aware [Punjabi]'

Know your breasts. A quick guide to being breast aware [Punjabi] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Caring for someone with an illness they will probably die from. Money and work [Easy read]'

Caring for someone with an illness they will probably die from. Money and work [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about money and work if you are caring for someone with an illness they will probably die from.

Cover image of 'Osteonecrosis of the jaw (ONJ)'

Osteonecrosis of the jaw (ONJ) (February 2019)

Myeloma UK

This factsheet has information about osteonecrosis of the jaw (ONJ), a rare condition that can occur during long-term treatment of myeloma with bisphosphonates.It describes bisphosphonates, why they are linked to ONJ, the risk factors for ONJ, its symptoms, and how it is treated and managed. Includes self-care tips to reduce the risk of ONJ.

Cover image of 'Your breast clinic appointment'

Your breast clinic appointment (April 2019)

Breast Cancer Care

This booklet has been written for anyone referred to a breast clinic. It describes what to expect and the tests that may be carried out, such as a mammogram, an ultrasound scan, fine needle aspiration cytology, core biopsy, punch biopsy and vacuum-assisted biopsy.

Cover image of 'Know your breasts. A quick guide to being breast aware [Arabic]'

Know your breasts. A quick guide to being breast aware [Arabic] (July 2019)

Breast Cancer Care

This leaflet uses illustrations to show women how to check their breasts and the changes to look for. Includes English-language version.

Cover image of 'Caring for someone with an illness they will probably die from. Looking after yourself [Easy read]'

Caring for someone with an illness they will probably die from. Looking after yourself [Easy read] (June 2019)

Marie Curie

Marie Curie has written this Easy Read booklet to help you think about looking after yourself if you are caring for someone with a an illness they will probably die from.

Cover image of 'When someone dies. Practical and emotional help at a difficult time [Welsh]'

When someone dies. Practical and emotional help at a difficult time [Welsh] (March 2019)

Marie Curie

This booklet provides an overview of the practical and emotional issues that may come up when someone close to you dies. 

Cover image of 'The man manual. Men's health made easy'

The man manual. Men's health made easy (February 2019)

Haynes Publishing for Men's Health Forum

One careful owner? With a little care, the high-performance machine that is the male body will run smoothly for a lifetime with just basic maintenance and minimal need for spare parts. The new fully-revised 2019 edition of this easy-to-read handbook will show you how to fine tune your engine, choose the right fuel and keep your mind on the road ahead. There are also brand new interviews with men who've been on the journey and have a tale to tell. (Publisher)

Cover image of 'Follow-up after prostate cancer treatment. What happens next?'

Follow-up after prostate cancer treatment. What happens next? (July 2019)

Prostate Cancer UK

This booklet is for men who have had treatment aimed at getting rid of their prostate cancer, such as surgery (radical prostatectomy), radiotherapy or brachytherapy. It describes the care and support men can expect after treatment.

Cover image of 'After breast cancer treatment: what now?'

After breast cancer treatment: what now? (June 2019)

Breast Cancer Care

This booklet explains what happens after your hospital-based treatments finish. It includes information on follow-up care, being breast and body aware, the ways breast cancer may come back, and how you might feel after treatment ends.

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia Care

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia Care

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Living well. After bowel cancer treatment'

Living well. After bowel cancer treatment (August 2019)

Bowel Cancer UK

The information in this booklet is for anyone who has had treatment for bowel cancer. It may also be helpful for family and friends. It describes follow-up care, possible side effects from treatment, and some of the feelings people might have after finishing treatment. It also explains how a healthy lifestyle can help and your rights are work. 

Cover image of 'Looking after someone. Information and support for carers in Wales [Welsh]'

Looking after someone. Information and support for carers in Wales [Welsh] (November 2019)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family'

A guide for talking about advanced cancer. Advice for people living with advanced cancer, their friends and family (July 2019)

Advanced Cancers Coalition

This short guide has been designed to support conversations in advanced cancer. It explains why good communication matters and has tips to support productive conversations. It can be used on an ongoing basis to support you in either living with or knowing someone with advanced cancer. [The ACC is a coalition of UK cancer patient groups with a shared interest in delivering improvements in care and treatments for people with advanced cancer. The activity of the ACC is funded by Roche Products Limited.]

Cover image of 'A-Z of leukaemia. A guide for patients'

A-Z of leukaemia. A guide for patients (September 2019)

Leukaemia Care

This booklet helps to define some of the terms that people may come across when they are diagnosed and treated for a blood cancer. 

Cover image of 'If your prostate cancer comes back. A guide to treatment and support'

If your prostate cancer comes back. A guide to treatment and support (July 2019)

Prostate Cancer UK

This booklet is for men who are worried that their prostate cancer might come back, or whose cancer has recurred after one or more treatments. It describes why prostate cancer might come back, the treatment options, and how to get support. It has space to record the names and contact details of the health professionals involved in ongoing care, details of appointments, and results of PSA tests. Includes a glossary.

Cover image of 'Living with a terminal illness. Support for you and those close to you [Welsh]'

Living with a terminal illness. Support for you and those close to you [Welsh] (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Being there for someone with a terminal illness. Practical and emotional support for carers'

Being there for someone with a terminal illness. Practical and emotional support for carers (April 2019)

Marie Curie

This booklet is for anyone providing care and support for someone living with a terminal illness. It includes details on day-to-day caring, your rights as a carer and how to access professional support. It also focuses on the emotional impact of caring and how to look after your own wellbeing. 

Cover image of 'Planning ahead for the end of life (England and Wales) [Gujarati]'

Planning ahead for the end of life (England and Wales) [Gujarati] (November 2019)

Macmillan Cancer Support

A translation of selected pages (56-59: Do not attempt cardiopulmonary resuscitation) from Macmillan Cancer Support’s booklet “Planning ahead for the end of life" [MAC13616_E03_N]

Cover image of 'Living with a terminal illness. Support for you and those close to you'

Living with a terminal illness. Support for you and those close to you (April 2019)

Marie Curie

This booklet aims to help you understand your feelings and gives information about how to live well and get the most from your time. It’s divided into short chapters so you can read through it at your own pace. People caring for someone who is living with a terminal illness may also find this information useful. 

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2019)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'Breast care for women'

Breast care for women (August 2019)

Macmillan Cancer Support|CHANGE

An easy read booklet about breast cancer, how to check your breasts, changes to look for and breast screening. 

Cover image of 'Chronic lymphocytic leukaemia (CLL). A guide for patients'

Chronic lymphocytic leukaemia (CLL). A guide for patients (October 2019)

Leukaemia Care

Being told that you have chronic lymphocytic leukaemia (CLL) can be a shock. This booklet describes CLL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CLL and talking about CLL. Includes a glossary of terms and details of useful contacts and further support.   

Cover image of 'Acute myelomonocytic leukaemia (AMML). A guide for patients'

Acute myelomonocytic leukaemia (AMML). A guide for patients (October 2019)

Leukaemia Care

Acute myelomonocytic leukaemia (AMML) is a rare type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, prognosis, and treatment options. It also covers issues such as telling your family, managing your emotions, and survivorship. Includes a glossary and sources of support.

Cover image of 'Living with an illness you will probably die from. Work, money and getting the best out of life [Easy read]'

Living with an illness you will probably die from. Work, money and getting the best out of life [Easy read] (June 2019)

Marie Curie

This Easy Read booklet is for people living with an illness that they will probably die from. It tells them about work, money and benefits.

Cover image of 'Autologous stem cell transplants. A guide for patients'

Autologous stem cell transplants. A guide for patients (December 2019)

Leukaemia Care

This booklet explains what an autologous stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support. 

Cover image of 'Financial support - benefits [Turkish]'

Financial support - benefits [Turkish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'What to expect at the end of someone's life. Information for family, friends and carers'

What to expect at the end of someone's life. Information for family, friends and carers (July 2019)

Marie Curie

This leaflet aims to help you prepare for the end of your partner, relative or friend’s life. Knowing what to expect can help you prepare yourself for their last few weeks and days. 

Cover image of 'Acute megakaryoblastic leukaemia (AMKL). A guide for patients'

Acute megakaryoblastic leukaemia (AMKL). A guide for patients (March 2019)

Leukaemia Care

Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.

Cover image of 'Planning ahead for the end of life (Scotland) [in press]'

Planning ahead for the end of life (Scotland) [in press] (November 2019)

Macmillan Cancer Support and the Public Health Agency

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in Scotland. It is for anyone who wants to plan ahead, whether they have a serious illness or not. Planning for your future care is also called advance care planning. It is important in case you ever become unable to make choices yourself. The booklet talks about the ways you can plan ahead, for example writing a will, or making a power of attorney or an advance directive. It also tells you how to talk about planning ahead with your family, friends and health and social care professionals.

Cover image of 'B-cell acute lymphoblastic leukaemia (ALL). A guide for patients'

B-cell acute lymphoblastic leukaemia (ALL). A guide for patients (May 2019)

Leukaemia Care

This booklet explains what B-cell acute lymphoblastic leukaemia is, and describes the causes, who it affects, the symptoms and side-effects and treatment options. It also covers issues such as day-to-day life with B-cell acute lymphoblastic leukaemia, managing your emotions, telling family and friends, survivorship, palliative care, and end-of-life care.

Cover image of 'Planning ahead for the end of life. England and Wales'

Planning ahead for the end of life. England and Wales (November 2019)

Macmillan Cancer Support

This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in England or Wales. It is for anyone who wants to plan ahead, whether they have a serious illness or not. 

Cover image of 'Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients'

Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients (October 2019)

Leukaemia Care

This booklet describes T-cell-leukaemia/lymphoma (ATL) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with ATL and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Atypical chronic myeloid leukaemia (aCML). A guide for patients'

Atypical chronic myeloid leukaemia (aCML). A guide for patients (July 2019)

Leukaemia Care

This booklet describes atypical chronic myeloid leukaemia (aCML), what causes it, who it affects, what symptoms to expect, and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.  

Cover image of 'Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients'

Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients (September 2019)

Leukaemia Care

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare cancer of the bone marrow. It was previously known as natural killer (NK) cell leukaemia. This booklet explains what it is, and describes the causes, who it affects, what symptoms to expect, how it is diagnosed, and treatment options. It also covers everyday life, managing your emotions, how to talk to your doctor and family and friends, survivorship, palliative care, and end-of-life care. Includes a glossary and details of further support.  

Cover image of 'All about leukaemia [Easy read]'

All about leukaemia [Easy read] (September 2019)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Azacitidine for acute myeloid leukaemia (AML). A guide for patients'

Azacitidine for acute myeloid leukaemia (AML). A guide for patients (June 2019)

Leukaemia Care

Azacitidine is a chemotherapy drug used for the treatment of adult patients with acute myeloid leukaemia, high risk myelodysplastic syndrome or chronic myelomonocytic leukaemia who are not eligible for stem cell transplant. This booklet is for patients, family or friends of the patient, or a carer who like to know more about this drug. It describes what azacitidine is, how it is given, and the possible side-effects. It also has details of useful information and support.

Cover image of 'Understanding primary brain tumours'

Understanding primary brain tumours (September 2019)

Macmillan Cancer Support

This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues. 

Cover image of 'A guide for the end of life [in press]'

A guide for the end of life [in press] (November 2019)

Macmillan Cancer Support

This booklet explains what happens at the end of someone’s life and how to plan for it. It is for anyone nearing the end of life. There is also information for people caring for someone nearing the end of life.

Cover image of 'Going home from hospital'

Going home from hospital (March 2019)

Macmillan Cancer Support

This booklet explains how care and support is arranged for people with cancer when they are discharged from hospital.

Cover image of 'Childhood acute lymphoblastic leukaemia (ALL). A guide for parents'

Childhood acute lymphoblastic leukaemia (ALL). A guide for parents (March 2019)

Leukaemia Care

Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'Cancer and pregnancy'

Cancer and pregnancy (November 2019)

Macmillan Cancer Support|Mummy's Star

This booklet is for women who have been diagnosed with cancer during pregnancy. It explains the emotional and practical issues you may experience in this situation. It also talks about the treatment you may have and support that will be available to you. 

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