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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Leukaemia Care
This booklet describes atypical chronic myeloid leukaemia (aCML), what causes it, who it affects, what symptoms to expect, and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.
Macmillan Cancer Support
This booklet is about some of the ways you can plan ahead and make choices about your future care if you live in England or Wales. It is for anyone who wants to plan ahead, whether they have a serious illness or not.
Leukaemia Care
Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare cancer of the bone marrow. It was previously known as natural killer (NK) cell leukaemia. This booklet explains what it is, and describes the causes, who it affects, what symptoms to expect, how it is diagnosed, and treatment options. It also covers everyday life, managing your emotions, how to talk to your doctor and family and friends, survivorship, palliative care, and end-of-life care. Includes a glossary and details of further support.
Leukaemia Care
This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.
Macmillan Cancer Support
This booklet is about primary brain tumours. It is for anyone who has been diagnosed with a primary brain tumour. There is also information for carers, family members and friends. The booklet explains the signs and symptoms of a primary brain tumour, and how it is diagnosed and treated. It also has information about emotional, practical and financial issues.
Leukaemia Care
Azacitidine is a chemotherapy drug used for the treatment of adult patients with acute myeloid leukaemia, high risk myelodysplastic syndrome or chronic myelomonocytic leukaemia who are not eligible for stem cell transplant. This booklet is for patients, family or friends of the patient, or a carer who like to know more about this drug. It describes what azacitidine is, how it is given, and the possible side-effects. It also has details of useful information and support.
Macmillan Cancer Support
This booklet explains how care and support is arranged for people with cancer when they are discharged from hospital.
Macmillan Cancer Support
This booklet explains what happens at the end of someone’s life and how to plan for it. It is for anyone nearing the end of life. There is also information for people caring for someone nearing the end of life.
Leukaemia Care
Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.
Macmillan Cancer Support
This leaflet is a guide to making or updating your will. It is for anyone affected by cancer. It also explains how inheritance tax works, and who to contact for more information and support.
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