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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 402

Cover image of 'Caring for someone who has lymphoma'

Caring for someone who has lymphoma (February 2020)

Lymphoma Action

A carer is someone who looks after a person with an illness or disability without getting paid for it. You are a carer if you’re looking after a relative or a friend with lymphoma. This factsheet outlines the kind of help a carer might provide and lists sources of specialist support available to carers. Contents: Am I a carer?; Offering emotional support; Offering practical support; What if someone doesn’t accept help?; Emotional impact of being a carer; Emotional support for you as a care; Practical support for you as a carer.

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (March 2020)

Breast Cancer Now

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'Diet and breast cancer'

Diet and breast cancer (January 2020)

Breast Cancer Now

A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.

Cover image of 'Things to do before you die'

Things to do before you die (2020)

Hospice UK|Dying Matters

Things to think through so that you and your loved ones will have fewer things to worry about when you are dying: make a will; make a funeral plan; start planning for your future care and support; kake your thoughts on organ donation known; manage your digital legacy; make sure your loved ones know your plans.

Cover image of 'Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public'

Palbociclib with fulvestrant for treating hormone receptor-positive, HER2-negative, advanced breast cancer. Information for the public (January 2020)

National Institute for Health and Care Excellence (NICE)

Information about palbociclib (Ibrance), with fulvestrant, which is available through the Cancer Drugs Fund, and which may be used to treat hormone receptor-positive, HER2-negative, advanced breast cancer.

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia Care

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'Know your breasts. A quick guide to being breast aware [Bengali]'

Know your breasts. A quick guide to being breast aware [Bengali] (January 2020)

Breast Cancer Now

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Know your breasts. A quick guide to being breast aware [Urdu]'

Know your breasts. A quick guide to being breast aware [Urdu] (January 2020)

Breast Cancer Now

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Know your breasts. A quick guide to being breast aware [Hindi]'

Know your breasts. A quick guide to being breast aware [Hindi] (September 2020)

Breast Cancer Now

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Acute promyelocytic leukaemia (APL). A guide for patients'

Acute promyelocytic leukaemia (APL). A guide for patients (January 2020)

Leukaemia Care

Acute promyelocytic leukaemia (APL) is a rare sub-type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, and treatment options. It also covers practical issues of living with APL and how to talk to your haematologist, family and friends.

Cover image of 'Advance decisions, advance statements and living wills'

Advance decisions, advance statements and living wills (April 2020)

Age UK

This factsheet explains what an advance decision to refuse treatment (often called an advance decision or a ‘living will’) and an advance statement are, why people might want to prepare one or both of them, requirements for drawing them up and ways to ensure other people know they exist. 

Cover image of 'FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients'

FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients (January 2020)

Leukaemia Care

FLAG-Ida is a combination chemotherapy regimen used in the treatment of acute myeloid leukaemia (AML). It consists of fludarabine, high dose cytarabine (Ara-C0), idarubicin and granulocyte-colony stimulating factor (G-CSF). This booklet explains the drugs, who may be eligible to receive this treatment, how FLAG-Ida is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'Your guide to cervical cancer'

Your guide to cervical cancer (March 2020)

Jo's Cervical Cancer Trust

A guide for women who have recently been diagnosed with cervical cancer, and those who care about them.  

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers'

Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers (March 2020)

Colostomy UK

This booklet is for anyone responsible for caring for someone with a stoma. It briefly describes what a stoma is and why people have stoma surgery, then covers the practical aspects of caring for someone with a stoma. This includes everything from ordering medical supplies and disposing of waste, to diet, changing a stoma bag and recognising some of the common problems, such as sore skin. It also considers the concerns that people with stomas have and how these can impact on their physical and mental wellbeing. 

Cover image of 'Holistic needs assessment. Planning your care and support'

Holistic needs assessment. Planning your care and support (July 2020)

Macmillan Cancer Support

This leaflet is about a Holistic Needs Assessment (HNA). An HNA identifies any concerns you may have when you are diagnosed with cancer. These may be physical, emotional, practical, financial and spiritual. The leaflet talks about what happens at an HNA and has information about making a care plan. 

Cover image of 'Looking after someone. Information and support for carers in Northern Ireland'

Looking after someone. Information and support for carers in Northern Ireland (October 2020)

Carers Northern Ireland

Guidance and advice for carers in Northern Ireland. This guide is designed to outline the support available and your rights as a carer. 

Cover image of 'Looking after someone. Information and support for carers in Wales'

Looking after someone. Information and support for carers in Wales (October 2020)

Carers Wales

Guidance and advice for carers in Wales. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Looking after someone. Information and support for carers in England'

Looking after someone. Information and support for carers in England (October 2020)

Carers UK

This guide is designed to outline your rights as a carer and give an overview of the support available.

Cover image of 'Looking after someone. Information and support for carers in Scotland'

Looking after someone. Information and support for carers in Scotland (October 2020)

Carers Scotland

Guidance and advice for carers in Scotland. This guide sets out what rights carers have and how they can get financial and practical help and support.

Cover image of 'Secondary breast cancer in the brain'

Secondary breast cancer in the brain (August 2020)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the brain that has spread from the breast. It describes what secondary breast cancer in the brain is, what the symptoms are, and the investigations. Briefly outlines the treatment options. Lists useful organisations.

Cover image of 'Help with the cost of cancer in England, Scotland, Wales and Northern Ireland'

Help with the cost of cancer in England, Scotland, Wales and Northern Ireland (March 2020)

Macmillan Cancer Support

This booklet is about getting benefits and other financial help if you are affected by cancer in England, Scotland, Wales or Northern Ireland. It is for anyone living with cancer and their family, friends and carers. It explains the types of financial help you could get and how to claim this support. It also tells you who to contact for further help, including Macmillan’s welfare rights advisers.

Cover image of 'A guide for prisoners at the end of life'

A guide for prisoners at the end of life (January 2020)

Macmillan Cancer Support

This booklet is for you if you may die in prison from a serious illness. It explains what might happen, how you may feel and what support is there to help you. There is some information about what will happen after your death and the support available for any family members and friends.

Cover image of 'Eating problems and cancer'

Eating problems and cancer (August 2020)

Macmillan Cancer Support

Many people have eating problems during and after cancer treatment. This can be related to the cancer or to the side effects of cancer treatments. This booklet talks about some common eating problems and why they might happen. It also suggests some practical ways to manage them. There is also information for carers, family members and friends. 

Cover image of 'Life after cancer treatment'

Life after cancer treatment (July 2020)

Macmillan Cancer Support

This booklet is about coping after cancer treatment finishes, including managing side effects, follow-up care, and making healthy lifestyle changes. It is for people who are preparing for life after cancer treatment. 

Cover image of 'Dear life. A doctor's story of love and loss'

Dear life. A doctor's story of love and loss (2020)

Little, Brown Book Group

As a specialist in palliative medicine, Dr Rachel Clarke chooses to inhabit a place many people would find too tragic to contemplate. Every day she tries to bring care and comfort to those reaching the end of their lives and to help make dying more bearable. Rachel's training was put to the test in 2017 when her beloved GP father was diagnosed with terminal cancer. She learned that nothing - even the best palliative care - can sugar-coat the pain of losing someone you love. And yet, she argues, in a hospice there is more of what matters in life - more love, more strength, more kindness, more joy, more tenderness, more grace, more compassion - than you could ever imagine. For if there is a difference between people who know they are dying and the rest of us, it is simply this: that the terminally ill know their time is running out, while we live as though we have all the time in the world. Dear Life is a book about the vital importance of human connection, by the doctor we would all want by our sides at a time of crisis. It is a love letter - to a father, to a profession, to life itself. (Publisher)

Cover image of 'What to do after cancer treatment ends: 10 top tips'

What to do after cancer treatment ends: 10 top tips (July 2020)

Macmillan Cancer Support

This leaflet is about what to expect and where to get further support after cancer treatment ends. It gives suggestions to help you get the best care and support available and make healthy lifestyle choices. 

Cover image of 'Travel and cancer'

Travel and cancer (January 2020)

Macmillan Cancer Support

This booklet is about travelling abroad when you have cancer. There is also information for family, friends and carers. The booklet talks about the benefits of travel and how you can prepare for a trip abroad. It also gives tips on finding travel insurance and taking care while you are away. Includes details of useful organisations.

Cover image of 'Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma'

Understanding primary liver cancer. Hepatocellular carcinoma or hepatoma (June 2020)

Macmillan Cancer Support

This booklet is about the most common type of primary liver cancer, hepatocellular carcinoma (HCC). It is for anyone who has been diagnosed with primary liver cancer. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of primary liver cancer. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'Understanding secondary cancer in the liver'

Understanding secondary cancer in the liver (June 2020)

Macmillan Cancer Support

This booklet is about secondary cancer in the liver. This is cancer that has spread to the liver from somewhere else in the body. It is for anyone who has been diagnosed with secondary cancer in the liver. There is also information for carers, family members and friends. The booklet talks about the signs and symptoms of secondary cancer in the liver. It explains how it is diagnosed and how it may be treated. It also has information about controlling symptoms and coping with emotional, practical and financial issues. 

Cover image of 'Where to get help. A guide to services'

Where to get help. A guide to services (November 2019)

Christie Hospital NHS Trust

Although designed primarily for people having treatment at the Christie Hospital, this booklet is relevant to anyone with cancer. It describes the emotional support, palliative care, and financial help available. It has a list of national support groups and also support groups in the northwest.

Cover image of 'Understanding your small cell lung cancer'

Understanding your small cell lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

This booklet explains what small cell lung cancer is, and addresses common questions and concerns. 

Cover image of 'Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet'

Eating a regular, easy to chew diet. For patients experiencing pain on swallowing or difficulty eating a normal, textured diet (March 2019)

Christie Hospital NHS Trust

Some illnesses or treatments may make swallowing difficult. This booklet has ideas on how to prepare soft or liquidised foods and how to make food more nourishing by enriching it with dairy produce, fats, sugars and fortified milk. Includes meal suggestions.

Cover image of 'Getting care and support. A guide for people living with a terminal illness, and their family and friends'

Getting care and support. A guide for people living with a terminal illness, and their family and friends (April 2019)

Marie Curie

This guide is for people living with a terminal illness and their friends and family. It aims to helps you explore your care options. It explains what care may be available, what you can expect from it, and who to ask for help.

Cover image of 'Palliative care'

Palliative care (September 2019)

Lymphoma Action

This factsheet is about palliative care at the end of life. It covers: What is palliative care?; Who provides palliative care?; Frequently asked questions about palliative care at the end of life.

Cover image of 'Planning ahead. Thinking about your care and wishes ahead of time'

Planning ahead. Thinking about your care and wishes ahead of time (July 2019)

Marie Curie

You may not feel like planning when you’re ill, but thinking about the future now and making your wishes known will help you feel more in control. It can also help those close to you handle your affairs if you aren’t able to. This booklet has information about some of the things you might want to think about, like deciding where and how you want to be cared for, or making a Will. 

Cover image of 'My lung surgery'

My lung surgery (August 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and surgery is a possible treatment, then it’s almost certain that you will have a lot of questions. We have produced this booklet in partnership with lung cancer experts and people affected by lung cancer to help you make positive, informed choices about your care and treatment. It discusses the types of surgery, what happens before, during and after surgery, and returning home.

Cover image of 'Coping with advanced cancer [Audio CD]'

Coping with advanced cancer [Audio CD] (2019)

Macmillan Cancer Support

Audio CD of the booklet, with information to help people who have been told their cancer has spread or come back, and for their relatives and friends. It covers issues such as deciding about treatment, sources of emotional help, coping with day-to-day life, and putting affairs in order. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Financial support - benefits [Arabic]'

Financial support - benefits [Arabic] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Welsh]'

Financial support - benefits [Welsh] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Polish]'

Financial support - benefits [Polish] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Men's health guide'

Men's health guide (2019)

World Cancer Research Fund

Diet and lifestyle recommendations to reduce cancer risk, including weight, diet, alcohol, and physical activity. Includes brief information on the most common symptoms of prostate, bowel, lung, mouth and throat, oesophageal and testicular cancer and information on screening tests where applicable.

Cover image of 'Financial support - benefits [Bengali]'

Financial support - benefits [Bengali] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version..

Cover image of 'Financial support - benefits [Gujarati]'

Financial support - benefits [Gujarati] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Punjabi]'

Financial support - benefits [Punjabi] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Urdu]'

Financial support - benefits [Urdu] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits [Russian]'

Financial support - benefits [Russian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Understanding the decision process. Who is proton beam therapy suitable for?'

Understanding the decision process. Who is proton beam therapy suitable for? (January 2019)

Brainstrust

This leaflet explains who proton beam therapy is suitable for and how the decision is made. Includes Care Pathway and Clinical Dependencies Referral and Care Pathway 1 (NHS and overseas) and Pathway 2 (NHS only).

Cover image of 'Financial support - benefits [Romanian]'

Financial support - benefits [Romanian] (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits. Includes the English-language version.. 

Cover image of 'Financial support - benefits'

Financial support - benefits (March 2019)

Macmillan Cancer Support

This factsheet is about claiming benefits.

Cover image of 'Understanding brain metastasis and lung cancer'

Understanding brain metastasis and lung cancer (February 2019)

Roy Castle Lung Cancer Foundation

If you or someone you care for has lung cancer and has been told about brain metastases, then this booklet will help answer your questions about symptoms, tests, and what treatments may be available. 

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