The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Cruse Bereavement Care
A booklet for adults caring for a bereaved child, whether a parent, family member or professional carer. This short booklet describes and seeks to explain some of the ways in which bereavement can affect children's behaviours, and the support they may find most helpful. (Publisher)
'The Cancer Journey. Positive steps to help yourself heal' is an inspirational and compelling book which provides the blueprint for dealing with cancer and is the book of choice for anyone affected by this disease. The authors, Polly, Pam and Nick have all had their own different cancer diagnoses, and feel passionate about sharing the information they have gathered which has helped them understand and cope throughout their journeys. The book is written in a warm, compassionate style with gentle humour, offering comfort and practical advice for anyone affected by cancer including family and friends. What should you eat, what shouldn't you eat? How do you deal with the side-effects? How do you politely tell others 'I have cancer' without triggering an uncomfortable silence! How to prepare for medical appointments and get the best out of your doctors. What can family and friends do to help? This book tells you things you need to know that your health care professionals may not tell you. Whether you have a diagnosis yourself, or you know someone with cancer, this book gives you the tools to empower yourself to take control and it offers advice and guidance to support you throughout your journey. When you arm yourself with knowledge of how to help yourself, you become an empowered participant in your own health. We will walk you through your diagnosis and give you permission and the tools to take control of your situation no matter where you are on the journey. This book gives you all of the information you need to make a difference in your health. (Publisher)
Oxford University Press
Pink ribbon paraphernalia saturate shopping malls, billboards, magazines, television, and other venues, all in the name of breast cancer awareness. In this compelling and provocative work, Gayle Sulik shows that though this 'pink ribbon culture' has brought breast cancer advocacy much attention, it has not had the desired effect of improving women's health. It may, in fact, have done the opposite. Based on eight years of research, analysis of advertisements and breast cancer awareness campaigns, and hundreds of interviews with those affected by the disease, Pink Ribbon Blues highlights the hidden costs of the pink ribbon as an industry, one in which breast cancer has become merely a brand name with a pink logo. Indeed, while survivors and supporters walk, run, and purchase ribbons for a cure, cancer rates rise, the cancer industry thrives, corporations claim responsible citizenship while profiting from the disease, and breast cancer is stigmatized anew for those who reject the pink ribbon model. But Sulik also outlines alternative organizations that make a real difference, highlights what they do differently, and presents a new agenda for the future. (Publisher)
Square One Press
Congratulations! You survived breast cancer. This should be a time to celebrate - so why do you feel so empty and alone? Medical professionals prepare you for surgery and other treatments, but do not always address your emotional and sexual health. In 'Intimacy After Breast Cancer', breast cancer survivor Gina Maisano honestly discusses the sensitive issues of self-esteem, body image, and sexuality to help you become the total woman you still are. Part One begins by examining the emotions experienced by breast cancer survivors, including anxiety and fear of recurrence. It then offers guidance on regaining the confidence to start living again. The mental and physical effects of post-surgical medications are discussed, along with solutions for maintaining optimum health. Part Two focuses on rediscovering your sexuality. In a compassionate manner, it addresses the issues that most often challenge both single and married women and presents suggestions for overcoming them. Love and intimacy do not have to end with a breast cancer diagnosis. In 'Intimacy After Breast Cancer', Gina Maisano will help you rediscover the joys of being a woman. (Publisher)
'How to be sick: A Buddhist-inspired guide for the chronically ill' and their caregiver is about living skilfully with the challenges of any chronic illness or condition. I wrote it for sufferers and for their caregivers (the latter includes people involved in hospice, chaplaincy, and elder care; for those interested in chronic illnesses and conditions (health professionals, family and friends); and for people interested in Buddhism (illness can function as a metaphor for suffering which, along with the cessation of suffering, is at the heart of the Buddha’s teaching). Chronic illnesses or conditions - such as arthritis, heart disease, and diabetes (three among dozens) - while not immediately life-threatening, are life-disrupting and stressful. The book is unique in that each chapter contains easy-to-learn tools and practices to help the chronically ill and their caregivers live skilfully, maintain equanimity, and even find joy despite the profound changes in their lives. A recurring theme in the book is that, although one’s body may be sick, one’s mind can be at peace. Some of the practices presented are traditionally Buddhist. Others I devised after becoming ill. Two are from the work of Byron Katie. Each practice is illustrated with examples from my own experience, so the book is also highly personal. The practices are intended to help with the following types of challenges: Suffering due to the relentlessness of physical symptoms; Blaming oneself for being sick; Cursory or dismissive treatment by doctors and medical professionals; The inability to visit with friends, participate in family gatherings, and take part in other social events; Feeling ignored by family or friends; Suffering due to uncertainty about the future; Coping with the disappointment of failed treatments; Caretaker burnout. At the end of the book is a handy reference guide, summarizing the specific tools and practices that can help with each of the above challenges. (Publisher)
Piatkus (Little, Brown Book Group)
Six million people in the UK provide unpaid care for disabled or elderly relatives or neighbours, often unnoticed. Their job is long, lonely and hard, yet there is limited support and no formal training. As a result, carers suffer frequent damage to physical and mental health and are liable to feelings of guilt brought on by fatigue and isolation. Hugh Marriott, a carer himself, has written this book for them - and also for the rest of us who hadn't realised what went on behind those closed doors. The Selfish Pig's Guide to Caring airs topics such as sex, thoughts of murder, coping with incontinence and dealing with friends and officials who fail to understand. It's a must-read for anyone involved with caring. (Publisher)
Books Beyond Words
John has a terminal illness. This book tells his story, dealing with both physical deterioration and the emotional aspects of dying in an honest and moving way. John is shown getting weaker and needing more help. He looks back at his life and makes choices about how to spend his time. The pictures highlight the importance of going on special outings, of remembering good times, and of saying proper goodbyes to family and friends. The final images show John dying at home. Guidelines are provided (as text at the back) for carers and supporters, health and other professionals who provide support to people with learning disabilities who are terminally ill. Lists of other helpful written resources and relevant organisations are also given. Although this story is fictional, it is based on the real life experiences of ten people with learning disabilities who had a terminal illness. They participated in the Veronica Project, a research project conducted by St George’s Hospital, London and funded by Cancer Research UK. The book draws on what was important for the participants when they were ill and dying and demonstrates best practice as identified by them. (Publisher)
National End of Life Care Programme
This form is for you to write down in advance any specific treatments you don't want to have in the future. Please note: This form is for people in England and Wales only. We suggest you read it alongside our booklet Your life and your choices plan ahead.
National End of Life Care Programme
The Preferred Priorities for Care (PPC) can help you prepare for the future. It gives you an opportunity to think about, talk about and write down your preferences and priorities for care at the end of your life. Please note: This form is for people living in England and Wales only. We suggest you read it alongside our booklet. Your life and your choices: plan ahead.
On the basis of comments left on the author's blog, this book should appeal to cancer patients, survivors and those who care for people with cancer - healthcare professionals as well as friends and family - and anyone else wanting an insight into this wretched disease. Cancer sufferers not only have to deal with big issues - like confronting their own mortality - they have to cope with the everyday as well - the effect on relationships, changes in diet, whether or not to replace the dishwasher - and in the case of bowel cancer, perhaps a colostomy or ileostomy - while all the time trying to remain positive. Based on the author's online diaries, this book will enable the reader to get inside the mind of a cancer patient and discover what it feels like to have to cope with this disease. (Publisher)
Cruse Bereavement Care
Leaflet with support and advice for young people who have been bereaved. It covers the following issues: What is bereavement?; What might I feel?; How can I cope with it all?; I feel so alone; What can help?; How long will it take?
Polperro Heritage Press
Actress Audrey Jenkinson was starring in a BBC television series when she put her career on hold and returned home to Edinburgh to care for her mother suffering from a stroke and her father with cancer. In Past Caring, she describes how she tried to cope with her parents' deaths and recalls the void she felt at the time. `I wondered how others coped in similar situations. When I discovered there were no books on the subject I decided to write one.' Audrey travelled throughout the UK, interviewing former carers and asking them how they rebuilt their lives. 'The stories I heard were both fascinating and uplifting, and I knew other people would find them interesting and helpful. Past Caring also includes a twelve-step recovery guide for 'past carers'. (Publisher)
Cruse Bereavement Care
Cruse's best-selling guide to the emotions commonly experienced during the grief of bereavement. A basic, helpful introduction to bereavement, whatever the circumstances.
MDS UK|Leukaemia Care|Bloodwise
This booklet has been written to help people understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It also provides information on coping with the emotional impact of an MDS diagnosis.