The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Family Advice and Information Resource
This booklet is for people with learning difficulties. Using illustrations and simple language it explains what needs to be done after someone dies. It also covers bereavement.
Books For Caring Kids
Jonny is a little superhero with a BIG problem. His Mum is sick. How can he help? Join Super Jonny and Bear, as they go to the hospital to investigate. LEARN who the staff working in the hospital are and what they do. DISCOVER Jonny's secret weapon. Super Jonny is recommended by teachers for teachers. The question page links to the English and New Zealand national curriculums. These questions teach the children how to help the sick. Some people need regular hospital care to manage their disease. These people have their own page entitled: Preparing for a hospital admission: 5 tips for chronically ill moms. This ensures that any mother who is going into hospital, has some supplies when her children visit. This list of simple suggestions could also be filled by any adult wanting to help a Mom who is suddenly sick. With its big bold professionally drawn illustrations, Super Jonny is a valuable resource for your family, school or medical centre. (Publisher).
Penny Brohn Cancer Care
Eating well is important when you are living with cancer. Research proves that what you eat can protect you against cancer as well as having a crucial impact before, during and after treatment. But often you may feel too tired, ill or stressed to prepare a balanced and nutritious meal, or you may not feel like eating at all. Don't worry -help is at hand. Nourish, brought to you by the team at Penny Brohn Cancer Care, shows you how to create simple meals, snacks and drinks that are packed with nutrients to support your body. And if you're cooking for a loved one you can rest assured that you will be providing the best possible meals to make them feel better. In Nourish you will find over 70 easy to prepare recipes that incorporate nutrient rich foods to support your body, optimize your enjoyment of food and benefit your health. Whether you are undergoing treatment, have opted to eat healthier as a preventative measure or are supporting someone through cancer and wish to provide nourishing dishes for them, this book will be your culinary guide. (Publisher)
John Blake Publishing
Chemo Cookery Club is packed with delicious recipes to help make everyday food a positive part of life for cancer sufferers and their carers. With tempting treats and healthy food ideas, the emphasis is on the nutritional values that can make a difference, but most importantly this is a book that lifts the spirits - especially when food and diet can become a bit tricky. If you or someone you love are going through treatment, this book will help you create delicious meals and snacks that tantalise the tastebuds no matter how experienced - or otherwise - you are in the kitchen. Penny Ericson, experienced cook and carer, celebrates everyday meals and how they contribute to wellness, both physically and emotionally. If you're struggling with loss of appetite, wondering how to get more iron into your diet, wanting to relieve 'metal mouth' or dismayed that the foods you used to love now seem boring and tasteless as a result of treatment, Penny can help. Nutritional information and recipe analysis has been contributed by leading cancer research dietician Barbara Parry MSc PD, and the book has been enthusiastically endorsed by major cancer charities. (Publisher)
Self-published using CreateSpace Independent Publishing Platform
I was diagnosed with Triple Negative Breast Cancer on the 15th June 2007. I remember that day so vividly. It will be ingrained in my memory forever as it is the day I felt my perfect little world crumble. I remember hearing those terrifying words, “I’m sorry it’s cancer” and falling to pieces. I hollered as my mind froze and my body went numb. I was frightened, felt incredibly vulnerable and my greatest fear stared me in the face. I could potentially die, and leave behind my two beautiful daughters and a husband who is also my best friend, and the person I love to have at my side. I’m pleased to report those initial feelings softened as time passed. Now it is important to share my story to give hope, encouragement and inspiration to others faced with a life-threatening illness. I believe that sharing stories helps to inspire those who are touched by cancer. You seek hope reassurance that treatments can be very successful today. Breast Cancer isn’t the only illness I have overcome. I had a near death experience in Africa as a child, I was an accident-prone youngster and the sickly one in my family. I was diagnosed with Hodgkin Disease, a cancer of the lymphatic system at 16, yes, I’m very greedy one cancer wasn’t enough. Fingers crossed cancer will leave me alone now. I will not give in! However, it is quite possible that radiation treatment for that cancer caused my breast cancer 20 years later. Yet from all the mishaps I experienced, I walk away truly blessed that people who entered my life as strangers ended up making the greatest impact on my life. What makes Worms On Parachutes special is that I was inspired to write after receiving outstanding medical care. Therefore, it deals with relationships from medical professionals to family and friends so openly and honestly. It is an insightful read that I believe will be helpful and supportive to anyone experiencing cancer today in whatever role you play. (Publisher)
An heartbreakingly honest and deeply moving memoir in the words of the son, his wife and his mother of her battle with cancer, from one of the UK's best loved travel writers. When his mother Joan was diagnosed with terminal cancer, Rory MacLean and his wife Katrin took her into their home. For five months, as their life fragmented and turned inward, they fought both to resist and to accept the inevitable. Each gave vent to their emotions in different ways, but all three kept a diary. Heartbreakingly honest and deeply moving, Gift of Time is the story of those days, in the words of a son, his wife and his mother. Woven together into a poignant meditation on life and death, they illuminate the courage and dignity of one woman who confronted what we all must face. Threaded through with wisdom and guilt, anger and acceptance, the story is punctuated by a family wedding and the hope of new life, by bin-bags of old letters and books rediscovered, by the end of winter and the first signs of spring. Powerful, raw and urgent, this slender volume is above all a celebration of life. Capturing every moment of beauty and pain it acknowledges that what survives all of us is love. (Publisher)
This compassionate guide presents an array of new perspectives on the emotional effects of breast cancer and includes many personal testimonies from women who have been diagnosed with this disease. Written by a breast cancer survivor and practising psychologist, it shares practical ideas to help support sufferers at all stages, be it at diagnosis, during treatment or during life after the initial treatments are over. The concise, easy-to-read format includes exercises to develop an acceptance of thoughts and feelings, whilst the individual accounts validate the multitude of emotions felt by sufferers. It is a must for all breast cancer patients and sufferers, their families and friends. Its real-life approach, using first hand accounts, is also highly recommended for all health and social care professionals wanting a fresh approach to managing the emotional impacts of breast cancer. (Publisher)
“Whilst in the bath I lay back and take a look at my 'bigger than I would really like' body and focus on my chest. My G cup breasts are not difficult to miss, even with my poor eyesight, but what I see makes me sit up straight. It looks like my right nipple is 'not on straight'. I put my glasses on and have a really good look, then start to gently feel my whole right breast. I feel the left one for good measure and can definitely detect a lump on the right side...” This is the true story of Karen Tighe, an ordinary woman, and her journey through discovery, diagnosis, treatment and reconstruction. Amusing and thoughtfully written, it is particularly helpful in describing the physical, emotional and psychological processes that a patient can go through - and how that impacts upon their life, and that of their family. Karen's aim in writing the book was to make cancer less frightening and anyone who is either suffering from cancer, or knows someone who is, will find the book to be of great help. Karen Tighe is donating the profits from her book to St Luke's Hospice and Breast Cancer Care. (Publisher)
In 2004 my mother asked us to donate to the Macmillan team in lieu of a present. It is ironic that she then developed and survived endometrial cancer in 2006 and was diagnosed with and died from ovarian cancer in 2012, especially as the Macmillan team supported us to keep her in the home she loved right to the end. The story tells of the effects of both cancers on Mum and the rest of the family. Naturally there were sad times and some excruciatingly painful and stressful times but there were also some funny and touching moments. Audrey, Mum's sister was coincidentally diagnosed with oesophageal cancer and at one point they were in different wards at opposite ends of the same hospital. The day we were told of Mum’s diagnosis, we wheeled her down to sit with Audrey and they held hands and hugged, one in a wheelchair and the other hooked up to all kinds of machinery. Audrey died thirteen days after mum. There is no doubt that my mother loved her family - she had nearly ninety children, grandchildren, great grandchildren and great, great grandchildren, both biological and adopted; whilst the story is written from my perspective, I wasn't the only one to suffer and it could easily have been written by thirty or forty other people. When I found out mum had a terminal illness I made up my mind to take her back to her home, which is the only place she wanted to be; some people thought I was mad but we had a dedicated team of family and were lucky to be further supported by her GP, the DN’s and Macmillan team. I organised weekly rotas to ensure 24 hour care: The book tells how we coped with this and of my panic the day I found out the Macmillan support team didn’t have any sitters for the following week. It also portrays the “normal” things we did along as we rode our six year emotional roller coaster, such as going on holidays and dealing with other family crises. The last twelve months before her death were intolerable. The last six months a nightmare, and the ten weeks between diagnosis and her passing were hell on earth but we had some laughs, we cried and we sang songs. A few weeks before she died, as my daughter entered the room Mum was playing a game with my younger grandchildren, throwing the tiny purple chick to each of them in turn and giggling along with them, its tail flashing as though it too was enjoying the fun. I initially wrote the book to help me deal with my own grief, stress and feelings of guilt that I was glad she had finally let g
Cumbria Partnership NHS Foundation Trust
Words for Wellbeing' is an edited collection of prose and poems from patients, health care staff, carers and the general public. The authors included in the book all have their own story to tell about how writing has helped improve their health and wellbeing. The contributors include people from across Cumbria and from ages 7 to 94 years old, and include emotional pieces about a variety of subjects, and includes a foreword is written by award-winning writer Jim Eldridge. There are 14 chapters, including one written by leading author Dr Gillie Bolton. (Publisher)