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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 402

Cover image of 'Spirituality and religion at the end of life'

Spirituality and religion at the end of life (2016)

CHANGE

An easy read booklet that talks about the role religion and faith may play at the end of life and other things that might help you feel spiritual. 

Cover image of 'What can help you feel better when someone dies'

What can help you feel better when someone dies (2016)

CHANGE

An easy read booklet about coping with grief and things that can help you. 

Cover image of 'Swollen feet and legs'

Swollen feet and legs (April 2016)

Lymphoedema Support Network

Information on skin hygiene, foot protection, and footwear for people with lymphoedema. Includes details of companies supplying specialist footwear.

Cover image of 'Skin care for people with lymphoedema'

Skin care for people with lymphoedema (May 2016)

Lymphoedema Support Network

This leaflet explains why skin care is important for people with lymphoedema and gives general advice on skin care, including the use of emollients. It also covers special problems that can occur in lymphoedema, such as dermatitis, fungal infections and lymphorrhoea.

Cover image of 'Fighting spirit. A cancer survivor’s journey'

Fighting spirit. A cancer survivor’s journey (2016)

Austin Macauley

When your enemy is clearly visible, it makes fighting them so much easier, than if they are elusive, such as cancer. Being diagnosed with cancer is everybody's worst nightmare. It is automatically seen as a death sentence. It was no different for Nicolas. His first thoughts were about his mortality, but to help him through his treatment and recovery he used the skills and discipline he had learnt in martial arts. His 'Fighting Spirit' helped him deal with everything that cancer brings with it, along with his faith and support network of family and friends. Rather than focusing on the negative, Nicolas remains positive, using references from some of his favourite films to give him direction, steering him towards a healthy, cancer-free future. The 'Fighting Spirit' helps Nicolas to see his cancer as an enemy that needs to be defeated in battle. He uses his martial arts mindset to visualise and conquer his foe. There will be only one winner. (Publisher)

Cover image of 'The street-wise patient’s guide to surviving cancer'

The street-wise patient’s guide to surviving cancer (2016)

Edward Everett Root, Publishers

This book tells you how you can do everything possible to survive cancer. The author is one of the world's leading experts on cancer care. This is an insider's guide to taking control of your own life, and care. YOU can survive cancer - although many patients do not know this. It: offers short, sharp practical guidance; shows patients how to can take control of their care; is essential to patients, and their family; shows you how to get the system to work for you; it gives 100 advisory websites, with expert notes; is absolutely up-to-date. (Publisher)

Cover image of 'Patient guide to brain tumour treatment and services'

Patient guide to brain tumour treatment and services (2016)

The Brain Tumour Charity

Finding out that you have a brain tumour is a frightening and overwhelming experience for anyone. You may feel as though your whole world has been turned upside down. This booklet aims to guide you through the system, answer your questions, and outlines some basic aspects of care that everyone should expect when they’re diagnosed with a brain tumour. 

Cover image of 'I am here. Stories from a cancer ward'

I am here. Stories from a cancer ward (2016)

Scribe Publications

Looking for more meaning in his work, Johannes Klabbers gave up a tenured academic position to spend his days caring for the sick and dying. He trained as a secular pastoral carer in a cancer hospital, and from the patients there he learned how simply talking and listening can provide comfort: from chatting about the football to discussing life’s meaning and how one prepares for death. I Am Here is a frank, moving, and sometimes funny record of his encounters. It gives an unforgettable insight into the variety of ways people cope with suffering, and suggests how we can support them — through caring, through conversation, and by acknowledging that although we may not be able to answer all of life’s questions, we can face them together. From one of the saddest places comes this powerful affirmation of our capacity for humane care. (Publisher)

Cover image of 'Myeloma. Cancer of the immune system. Fast facts: For patients and their supporters'

Myeloma. Cancer of the immune system. Fast facts: For patients and their supporters (2016)

Health Press

This short workbook is designed to help patients equip themselves with the best information about myeloma. Starting with a simple overview of the biology of the disease, it will help patients to understand the type of myeloma that they have, the remitting-relapsing nature of the disease, and the signs and symptoms they are likely to experience. It takes patients through the initial treatment options and their side effects, what to expect if they have stem cell transplantation, and how they will be treated when their symptoms return. The final sections will help patients understand the supportive care options available, and provide an insight into the latest myeloma research, which is progressing on many fronts. (Publishers)

Cover image of 'Management of oedema in advanced ill health. Information for patients'

Management of oedema in advanced ill health. Information for patients (February 2016)

Lymphoedema Support Network

Information about oedema in advancing disease. treatment. It describes the causes, symptoms, assessment and investigations and management (skin care, exercise, limb positioning and support, compression, manual lymphatic drainage, kinesio taping and medical treatments).

Cover image of 'The carer's guide to safer moving and handling of people'

The carer's guide to safer moving and handling of people (2016)

BackCare

A guide for people caring for someone with restricted mobility. It aims to help reduce the risk of injury by providing information and advice on safe and unsafe practice. It offers basic instruction on how to promote independence and on safer ways of providing moving and handling assistance. It also includes tips on making the home safer and some equipment and adaptations that can promote independence.

Cover image of 'Head, face and neck lymphoedema'

Head, face and neck lymphoedema (November 2016)

Lymphoedema Support Network

Lymphoedema of the head, face and neck may occur following surgery or radiotherapy. This leaflet describes the treatment and management options, including manual lymphatic drainage, simple lymphatic drainage, exercise, skin care, positioning and compression. Psychological distress is briefly considered.

Cover image of 'The use of compression garments in lymphoedema management'

The use of compression garments in lymphoedema management (November 2016)

Lymphoedema Support Network

The use of compression garments plays an important role in the management of lymphoedema. This leaflet describes the benefits of wearing compression garments, the factors involved in choosing compression garments, the different types available, and fitting. It concludes with general information about how to wear and care for the garments, and the problems that may occur.

Cover image of 'The way we die now'

The way we die now (2016)

Head of Zeus

We have lost the ability to deal with death. Most of our friends and beloved relations will die in a busy hospital in the care of strangers, doctors and nurses they have known at best for a couple of weeks. They may not even know they are dying, victims of the kindly lie that there is still hope. They are unlikely to see even their family doctor in their final hours, robbed of their dignity and fed through a tube after a long series of excessive and hopeless medical interventions. This is the starting point of Seamus O'Mahony's thoughtful, moving and unforgettable book on the western way of death. Dying has never been more public, with celebrities writing detailed memoirs of their illness, but in private we have done our best to banish all thought of dying and made a good death increasingly difficult to achieve. (Publisher)

Cover image of 'The shock factor. Sarah's story – beating breast cancer one day at a time'

The shock factor. Sarah's story – beating breast cancer one day at a time (2016)

Self-published using CreateSpace Independent Publishing Platform

The door handle started to turn and I knew this was the moment that could change my life forever. Mr Mahadev appeared with another staff member. He introduced himself and then introduced Sally, a breast care nurse, and sat down beside me. He started to go through my notes: family history, the results of the mammogram and the biopsy. Then he delivered the devastating news... I’m really sorry but the mammogram has shown two tumours in the left breast. Sarah Pickles was a normal 32-year-old married woman with a young daughter. On 22nd September 2014 her life changed as she was given the devastating news that she had a triple-negative breast cancer. Read about how Sarah dealt with her diagnosis and how she survived cancer as she shares all the high, lows, tears, and laughter of her journey. This honest and raw account of Sarah’s cancer journey also includes lots of information and top tips on diet, exercise, health, and beauty. (Publisher)

Cover image of 'What does super Jonny do when mum gets sick? [Spanish]'

What does super Jonny do when mum gets sick? [Spanish] (2016)

Books For Caring Kids

Jonny is a little superhero with a BIG problem. His Mum is sick. How can he help? Join Super Jonny and Bear, as they go to the hospital to investigate. LEARN who the staff working in the hospital are and what they do. DISCOVER Jonny's secret weapon. Super Jonny is recommended by teachers for teachers. The question page links to the English and New Zealand national curriculums. These questions teach the children how to help the sick. Some people need regular hospital care to manage their disease. These people have their own page entitled: Preparing for a hospital admission: 5 tips for chronically ill moms. This ensures that any mother who is going into hospital, has some supplies when her children visit. This list of simple suggestions could also be filled by any adult wanting to help a Mom who is suddenly sick. With its big bold professionally drawn illustrations, Super Jonny is a valuable resource for your family, school or medical centre. (Publisher).

Cover image of 'End of life: a guide. A booklet for people in the final stages of life, and their carers [Audio CD]'

End of life: a guide. A booklet for people in the final stages of life, and their carers [Audio CD] (2015)

Macmillan Cancer Support

This audiobook explains what happens at the end of life and how to plan for it. It gives information about issues such as choosing where to be looked after, sorting out unfinished business, getting financial help, who can help if you’re being cared for at home and what to expect in the last few days of life. It also includes information for your relatives and close friends who may be involved in your care. 

Cover image of 'Mummy's lump'

Mummy's lump (April 2015)

Breast Cancer Care

This book is aimed at children under six and follows Elly and Jack as they learn of their mother's diagnosis and treatment for breast cancer. Also available as a read-aloud iPad, iPhone and iPod Touch download, read by Zoe Wanamaker (free iOS version or download from iTunes).

Cover image of 'Going into hospital? A guide for patients, carers and families'

Going into hospital? A guide for patients, carers and families (2015)

Eastdown Publishing

Hospitals are a constant presence in the lives of many people. Almost everyone will visit or go into hospital at some point in their life. This can be a confusing experience: the environment is strange, the daily routine is unfamiliar and it is hard to understand the medical language. Going into hospital is, in many ways, like visiting a foreign country. This book is your guide to the foreign land of the hospital. It provides clear, practical information about how hospitals work, who the staff are and the investigations and treatments you may receive. The book helps you understand hospital-speak by translating it into straightforward English. The book has been written by a consultant surgeon, a pharmacist and a psychologist who have all worked in hospitals for many years. If you are better informed and can understand concepts like choice, risk and benefit, you can work more effectively with your healthcare team to make the right decisions, and you will be better equipped to help yourself and your family. You will find this book an invaluable guide to a journey through the hospital. (Publisher)

Cover image of 'The Royal Marsden cancer cookbook'

The Royal Marsden cancer cookbook (2015)

Kyle Books

The book is divided into three: a detailed section by Clare Shaw about diet and cancer and the problems you may face during treatment (like loss of appetite, nausea, sore mouth, change of taste); recipes to cook during treatment, which are nutritionally beneficial and wholesome enough to keep you strong even if you can’t eat too much; and a section of recipes for after treatment aimed at keeping you healthy. These recipes are designed to serve smaller portions and two people as well as for families, and there are lots of tips about budgeting, leftovers and freezing. Clare and Catherine want to emphasise that you don’t have to cook ‘special’, separate meals for one, the rest of the family can eat in the same way, saving on time and stress as well as encouraging a healthier diet for all. (Publisher)

Cover image of 'A guide to survivorship for women who have ovarian cancer'

A guide to survivorship for women who have ovarian cancer (2015)

Johns Hopkins University Press

This updated and expanded second edition offers a wealth of information to ease the physical and emotional suffering of women who have ovarian cancer. The expert authors include highly respected and experienced oncologists, gynecologic oncology nurse specialists, researchers, and ovarian cancer survivors. Throughout the book they emphasize the concepts of survivorship, or living life well in the face of daunting uncertainties, and self-determination: the right of each patient to be informed, involved, and in control of her care. Detailed information on diagnosis and treatment, including surgery, chemotherapy, radiation, pain management, and integrative medicine, constitutes a key feature of the book. Also covered in depth are image recovery, nutrition, pain control, and genetic testing. Women who have ovarian cancer share advice on coping with the life-changing disease and its treatments. Offering candor, compassion, and hope, this remarkable book explains how to add quality to your life and take care of medical and social needs while living with ovarian cancer. (Publisher)

Cover image of 'Staying alive. How to get the best from the NHS'

Staying alive. How to get the best from the NHS (2015)

Quercus

The NHS is our most treasured institution, but even caring doctors have too many patients and too little time, while patients often feel too overwhelmed, embarrassed, intimidated or ill to ask the right questions. Your chances of getting the best care that's right for you are greatly improved if you are able to share in decisions about your treatment. In Staying Alive, Dr Phil Hammond, a GP and campaigner with unrivalled sympathy for patients' needs, helps give you the confidence and the tools to take control of your health care, and shows you in a friendly but authoritative way how to navigate the system. This book will show you how to get your GP to listen to you and take your symptoms seriously, how to get hold of your patient records so you can ensure they're correct, how to get a second opinion and, most importantly, how to get better (and in turn help make the NHS better too). (Publisher)

Cover image of 'Cooking for chemo...and after!'

Cooking for chemo...and after! (2015)

Callahan Publishing

'Cooking for Chemo ...and After!' is a how-to-cook cookbook that teaches you how to adjust your cooking for someone going through chemotherapy. This cookbook focuses on teaching you how to adjust the flavor of your favorite foods so you can enjoy eating again. It is filled with 90 pages of culinary theory and over 100 pages of recipes that will teach you how to apply what you have learned. It was written by Chef Ryan Callahan based on his first-hand experience acting as primary caregiver for his mother, while she went through chemotherapy. Anybody who has ever been through chemotherapy, acted as a caregiver, or knows someone who has been through chemo will admit that combating and living with the metallic tastes in your mouth is one of the hardest parts. This book specifically addresses this problem and gives you easy, real-life solutions. These solutions can be employed in conjunction with any diet regimen or dietary restriction. 'Cooking for Chemo …and After!' is not a "new fad-diet" cookbook or a “what to eat, what not to eat” nutritional guide. It is a book that teaches you how to think and cook like a chef. It is a book that teaches you how to adjust flavor. It will change the way you cook and see food. (Publisher)

Cover image of 'Look good...feel better confidence kit. A guide to managing the appearance-related effects of cancer treatment'

Look good...feel better confidence kit. A guide to managing the appearance-related effects of cancer treatment (2015)

Look Good...Feel Better

This booklet and accompanying DVD has information and advice about make-up, skincare, hand and nail care, wig selection and cutting, scarf tying and head coverings to help manage changes in personal appearance caused by treatment for cancer.

Cover image of 'Fast facts: Multiple myeloma and plasma cell dyscrasias'

Fast facts: Multiple myeloma and plasma cell dyscrasias (2015)

Health Press

Multiple myeloma accounts for approximately 0.8% of cancers worldwide, with about 114 000 new cases each year. Rapid progress is being made in the development of new treatments and, although myeloma is incurable at present, survival has almost tripled over the past 10 years and it is now projected that a third of patients will survive more than 10 years after diagnosis. Fast Facts: Multiple Myeloma and Plasma Cell Dyscrasias emphasizes the importance of early diagnosis for a favourable outcome, covers the ever-increasing role of genetics in diagnosis and treatment, and discusses new and gold-standard treatments. A chapter on supportive care also features and briefs the reader on long-term outcomes and quality of life issues. Although primarily intended for health care professionals, this highly readable resource may be of interest to patients wanting to know more about multiple myeloma and plasma cell dyscrasias. Written for doctors, read by patients too. (Publisher)

Cover image of 'Tea & chemo. Fighting cancer, living life'

Tea & chemo. Fighting cancer, living life (2015)

Urbane Publications Limited

At the age of 45, wife and mother Jackie Buxton was diagnosed with breast cancer. Lurching between the crippling fear that the cancer had spread, and the great comfort of knowing she was one of the lucky ones who could be treated, she did what she always does when life presents her with a challenge: she wrote it down. Jackie quickly realised that even with cancer, life was far from bad. Never known for her scientific prowess, she nonetheless became a 'bit of an expert' - at least in the field of hair loss, water retention and biscuits - and decided to use her writing to share experiences and help others recognise you don't have to be defined by your cancer. Tea & Chemo is full of laughter, tears, honesty and hope, and offers inspirational words to everyone facing the life challenges that cancer inevitably brings. All proceeds from the sales of Tea & Chemo will go to three incredibly important charities, whose compassionate care and professionalism make the difference to so many lives: The Haven, Breast Cancer Now and The Robert Ogden Macmillan Centre, Harrogate. (Publisher)

Cover image of 'How to live well with chronic pain and illness'

How to live well with chronic pain and illness (2015)

Wisdom Publications

Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: Mindfulness exercises to mitigate physical and emotional pain Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being. (Publisher)

Cover image of 'Cancer survivorship coping tools - we'll get you through this'

Cancer survivorship coping tools - we'll get you through this (2015)

Ayni Books

Hearing the words “You have cancer” can be devastating - some cancer patients even say that the emotional pain and loss of certainty from hearing this are worse than the pains from the cancer, surgeries, radiation, chemotherapy, and other treatments. This is the intimate journey of a melanoma and breast cancer survivor who honestly, and sometimes even humorously, shares her own story and offers supportive emotional tools to help people diagnosed with cancer, and their loved ones and caregivers, work through the emotional pain and upheaval of a cancer diagnosis. You will be supported in knowing what it feels like to hear you have cancer and be given a variety of helpful ideas to start feeling better whether you are newly diagnosed, in treatment, or months or years after treatment. If you are a caregiver, friend, or family member who wants to help, you will get a better understanding of the cancer experience as well as tools to help the person you care about. (Publisher)

Cover image of 'Cook for your life: delicious, nourishing recipes for before, during, and after cancer treatment'

Cook for your life: delicious, nourishing recipes for before, during, and after cancer treatment (2015)

Avery Publishing Group

A beautiful, unique cookbook with delicious recipes for all stages of cancer treatment and recovery, from a two-time cancer survivor and founder of the Cook for Your Life nutrition-based cooking programs. Two-time cancer survivor Ann Ogden Gaffney discovered during her months of treatment for breast cancer that she was able to find powerful relief for her symptoms through cooking. Realizing that other patients and families could benefit from the skills and techniques she'd learned, she began to offer advice, recipes, and free classes to patients. A former fashion consultant, Gaffney realized after her treatment that her heart was no longer in seasonal colors and hemline trends. Instead, she wanted to help people with cancer and their families cook and care for themselves. In 2007,the non-profit organization Cook for Your Life was born. Its programs have received funding from NIH and have been embraced by organizations such as Columbia University's School of Public Health, Mount Sinai, Atlantic Health, the American Cancer Society, and more, and has touched hundreds of thousands of lives. Now Gaffney delivers her highly anticipated cookbook, based on her classes. So many cancer cookbooks are too complicated to follow, or too clinical and uninspired. This is the first cookbook to organize the recipes into categories according to the way patients feel for example, Simple recipes when the patient is fatigued, Safe recipes when a patient's immune system is compromised, and Spicy recipes when a patient is feeling better and needs to wake up her taste buds. With its warmth, authority, beautiful design, and smartly conceived format, Cook for Your Life empowers patients and families to cook their way back to health. (Publishers)

Cover image of 'Preparing for your death. A guide for people with learning difficulties and their carers.'

Preparing for your death. A guide for people with learning difficulties and their carers. (2014)

Family Advice and Information Resource

This booklet is for people with learning difficulties. Using illustrations and simple language it looks at topics such as the changes that may happen at the end of life, planning ahead and making funeral arrangements.

Cover image of 'When someone has died - advice for those who are left behind. A guide for people with learning difficulties and their carers.'

When someone has died - advice for those who are left behind. A guide for people with learning difficulties and their carers. (2014)

Family Advice and Information Resource

This booklet is for people with learning difficulties. Using illustrations and simple language it explains what needs to be done after someone dies. It also covers bereavement.

Cover image of 'What does super Jonny do when mum gets sick?'

What does super Jonny do when mum gets sick? (2014)

Books For Caring Kids

Jonny is a little superhero with a BIG problem. His Mum is sick. How can he help? Join Super Jonny and Bear, as they go to the hospital to investigate. LEARN who the staff working in the hospital are and what they do. DISCOVER Jonny's secret weapon. Super Jonny is recommended by teachers for teachers. The question page links to the English and New Zealand national curriculums. These questions teach the children how to help the sick. Some people need regular hospital care to manage their disease. These people have their own page entitled: Preparing for a hospital admission: 5 tips for chronically ill moms. This ensures that any mother who is going into hospital, has some supplies when her children visit. This list of simple suggestions could also be filled by any adult wanting to help a Mom who is suddenly sick. With its big bold professionally drawn illustrations, Super Jonny is a valuable resource for your family, school or medical centre. (Publisher).

Cover image of 'Nourish. The cancer care cookbook'

Nourish. The cancer care cookbook (2013)

Penny Brohn Cancer Care

Eating well is important when you are living with cancer. Research proves that what you eat can protect you against cancer as well as having a crucial impact before, during and after treatment. But often you may feel too tired, ill or stressed to prepare a balanced and nutritious meal, or you may not feel like eating at all. Don't worry -help is at hand. Nourish, brought to you by the team at Penny Brohn Cancer Care, shows you how to create simple meals, snacks and drinks that are packed with nutrients to support your body. And if you're cooking for a loved one you can rest assured that you will be providing the best possible meals to make them feel better. In Nourish you will find over 70 easy to prepare recipes that incorporate nutrient rich foods to support your body, optimize your enjoyment of food and benefit your health. Whether you are undergoing treatment, have opted to eat healthier as a preventative measure or are supporting someone through cancer and wish to provide nourishing dishes for them, this book will be your culinary guide. (Publisher)

Cover image of 'Chemo cookery club'

Chemo cookery club (2013)

John Blake Publishing

Chemo Cookery Club is packed with delicious recipes to help make everyday food a positive part of life for cancer sufferers and their carers. With tempting treats and healthy food ideas, the emphasis is on the nutritional values that can make a difference, but most importantly this is a book that lifts the spirits - especially when food and diet can become a bit tricky. If you or someone you love are going through treatment, this book will help you create delicious meals and snacks that tantalise the tastebuds no matter how experienced - or otherwise - you are in the kitchen. Penny Ericson, experienced cook and carer, celebrates everyday meals and how they contribute to wellness, both physically and emotionally. If you're struggling with loss of appetite, wondering how to get more iron into your diet, wanting to relieve 'metal mouth' or dismayed that the foods you used to love now seem boring and tasteless as a result of treatment, Penny can help. Nutritional information and recipe analysis has been contributed by leading cancer research dietician Barbara Parry MSc PD, and the book has been enthusiastically endorsed by major cancer charities. (Publisher)

Cover image of 'Worms on parachutes. Mystical allies in my cancer survival'

Worms on parachutes. Mystical allies in my cancer survival (2013)

Self-published using CreateSpace Independent Publishing Platform

I was diagnosed with Triple Negative Breast Cancer on the 15th June 2007. I remember that day so vividly. It will be ingrained in my memory forever as it is the day I felt my perfect little world crumble. I remember hearing those terrifying words, “I’m sorry it’s cancer” and falling to pieces. I hollered as my mind froze and my body went numb. I was frightened, felt incredibly vulnerable and my greatest fear stared me in the face. I could potentially die, and leave behind my two beautiful daughters and a husband who is also my best friend, and the person I love to have at my side. I’m pleased to report those initial feelings softened as time passed. Now it is important to share my story to give hope, encouragement and inspiration to others faced with a life-threatening illness. I believe that sharing stories helps to inspire those who are touched by cancer. You seek hope reassurance that treatments can be very successful today. Breast Cancer isn’t the only illness I have overcome. I had a near death experience in Africa as a child, I was an accident-prone youngster and the sickly one in my family. I was diagnosed with Hodgkin Disease, a cancer of the lymphatic system at 16, yes, I’m very greedy one cancer wasn’t enough. Fingers crossed cancer will leave me alone now. I will not give in! However, it is quite possible that radiation treatment for that cancer caused my breast cancer 20 years later. Yet from all the mishaps I experienced, I walk away truly blessed that people who entered my life as strangers ended up making the greatest impact on my life. What makes Worms On Parachutes special is that I was inspired to write after receiving outstanding medical care. Therefore, it deals with relationships from medical professionals to family and friends so openly and honestly. It is an insightful read that I believe will be helpful and supportive to anyone experiencing cancer today in whatever role you play. (Publisher)

Cover image of 'Gift of time'

Gift of time (2013)

Constable

An heartbreakingly honest and deeply moving memoir in the words of the son, his wife and his mother of her battle with cancer, from one of the UK's best loved travel writers. When his mother Joan was diagnosed with terminal cancer, Rory MacLean and his wife Katrin took her into their home. For five months, as their life fragmented and turned inward, they fought both to resist and to accept the inevitable. Each gave vent to their emotions in different ways, but all three kept a diary. Heartbreakingly honest and deeply moving, Gift of Time is the story of those days, in the words of a son, his wife and his mother. Woven together into a poignant meditation on life and death, they illuminate the courage and dignity of one woman who confronted what we all must face. Threaded through with wisdom and guilt, anger and acceptance, the story is punctuated by a family wedding and the hope of new life, by bin-bags of old letters and books rediscovered, by the end of winter and the first signs of spring. Powerful, raw and urgent, this slender volume is above all a celebration of life. Capturing every moment of beauty and pain it acknowledges that what survives all of us is love. (Publisher)

Cover image of 'Emotional support through breast cancer. The alternative handbook'

Emotional support through breast cancer. The alternative handbook (2013)

Radcliffe Publishing

This compassionate guide presents an array of new perspectives on the emotional effects of breast cancer and includes many personal testimonies from women who have been diagnosed with this disease. Written by a breast cancer survivor and practising psychologist, it shares practical ideas to help support sufferers at all stages, be it at diagnosis, during treatment or during life after the initial treatments are over. The concise, easy-to-read format includes exercises to develop an acceptance of thoughts and feelings, whilst the individual accounts validate the multitude of emotions felt by sufferers. It is a must for all breast cancer patients and sufferers, their families and friends. Its real-life approach, using first hand accounts, is also highly recommended for all health and social care professionals wanting a fresh approach to managing the emotional impacts of breast cancer. (Publisher)

Cover image of 'I felt a right one... and now I feel a right one again'

I felt a right one... and now I feel a right one again (2013)

Matador

“Whilst in the bath I lay back and take a look at my 'bigger than I would really like' body and focus on my chest. My G cup breasts are not difficult to miss, even with my poor eyesight, but what I see makes me sit up straight. It looks like my right nipple is 'not on straight'. I put my glasses on and have a really good look, then start to gently feel my whole right breast. I feel the left one for good measure and can definitely detect a lump on the right side...” This is the true story of Karen Tighe, an ordinary woman, and her journey through discovery, diagnosis, treatment and reconstruction. Amusing and thoughtfully written, it is particularly helpful in describing the physical, emotional and psychological processes that a patient can go through - and how that impacts upon their life, and that of their family. Karen's aim in writing the book was to make cancer less frightening and anyone who is either suffering from cancer, or knows someone who is, will find the book to be of great help. Karen Tighe is donating the profits from her book to St Luke's Hospice and Breast Cancer Care. (Publisher)

Cover image of 'The dog, the chick and the reindeer. The story of a family living with cancer'

The dog, the chick and the reindeer. The story of a family living with cancer (2013)

Apollo Publishing

In 2004 my mother asked us to donate to the Macmillan team in lieu of a present. It is ironic that she then developed and survived endometrial cancer in 2006 and was diagnosed with and died from ovarian cancer in 2012, especially as the Macmillan team supported us to keep her in the home she loved right to the end. The story tells of the effects of both cancers on Mum and the rest of the family. Naturally there were sad times and some excruciatingly painful and stressful times but there were also some funny and touching moments. Audrey, Mum's sister was coincidentally diagnosed with oesophageal cancer and at one point they were in different wards at opposite ends of the same hospital. The day we were told of Mum’s diagnosis, we wheeled her down to sit with Audrey and they held hands and hugged, one in a wheelchair and the other hooked up to all kinds of machinery. Audrey died thirteen days after mum. There is no doubt that my mother loved her family - she had nearly ninety children, grandchildren, great grandchildren and great, great grandchildren, both biological and adopted; whilst the story is written from my perspective, I wasn't the only one to suffer and it could easily have been written by thirty or forty other people. When I found out mum had a terminal illness I made up my mind to take her back to her home, which is the only place she wanted to be; some people thought I was mad but we had a dedicated team of family and were lucky to be further supported by her GP, the DN’s and Macmillan team. I organised weekly rotas to ensure 24 hour care: The book tells how we coped with this and of my panic the day I found out the Macmillan support team didn’t have any sitters for the following week. It also portrays the “normal” things we did along as we rode our six year emotional roller coaster, such as going on holidays and dealing with other family crises. The last twelve months before her death were intolerable. The last six months a nightmare, and the ten weeks between diagnosis and her passing were hell on earth but we had some laughs, we cried and we sang songs. A few weeks before she died, as my daughter entered the room Mum was playing a game with my younger grandchildren, throwing the tiny purple chick to each of them in turn and giggling along with them, its tail flashing as though it too was enjoying the fun. I initially wrote the book to help me deal with my own grief, stress and feelings of guilt that I was glad she had finally let g

Cover image of 'Words for wellbeing: using creative writing to benefit health and wellbeing'

Words for wellbeing: using creative writing to benefit health and wellbeing (2012)

Cumbria Partnership NHS Foundation Trust

Words for Wellbeing' is an edited collection of prose and poems from patients, health care staff, carers and the general public. The authors included in the book all have their own story to tell about how writing has helped improve their health and wellbeing. The contributors include people from across Cumbria and from ages 7 to 94 years old, and include emotional pieces about a variety of subjects, and includes a foreword is written by award-winning writer Jim Eldridge. There are 14 chapters, including one written by leading author Dr Gillie Bolton. (Publisher)

Cover image of 'The cancer journey. Positive steps to help yourself heal'

The cancer journey. Positive steps to help yourself heal (2011)

Noble House

'The Cancer Journey. Positive steps to help yourself heal' is an inspirational and compelling book which provides the blueprint for dealing with cancer and is the book of choice for anyone affected by this disease. The authors, Polly, Pam and Nick have all had their own different cancer diagnoses, and feel passionate about sharing the information they have gathered which has helped them understand and cope throughout their journeys. The book is written in a warm, compassionate style with gentle humour, offering comfort and practical advice for anyone affected by cancer including family and friends. What should you eat, what shouldn't you eat? How do you deal with the side-effects? How do you politely tell others 'I have cancer' without triggering an uncomfortable silence! How to prepare for medical appointments and get the best out of your doctors. What can family and friends do to help? This book tells you things you need to know that your health care professionals may not tell you. Whether you have a diagnosis yourself, or you know someone with cancer, this book gives you the tools to empower yourself to take control and it offers advice and guidance to support you throughout your journey. When you arm yourself with knowledge of how to help yourself, you become an empowered participant in your own health. We will walk you through your diagnosis and give you permission and the tools to take control of your situation no matter where you are on the journey. This book gives you all of the information you need to make a difference in your health. (Publisher)

Cover image of 'Pink ribbon blues. How breast cancer culture undermines women's health'

Pink ribbon blues. How breast cancer culture undermines women's health (2011)

Oxford University Press

Pink ribbon paraphernalia saturate shopping malls, billboards, magazines, television, and other venues, all in the name of breast cancer awareness. In this compelling and provocative work, Gayle Sulik shows that though this 'pink ribbon culture' has brought breast cancer advocacy much attention, it has not had the desired effect of improving women's health. It may, in fact, have done the opposite. Based on eight years of research, analysis of advertisements and breast cancer awareness campaigns, and hundreds of interviews with those affected by the disease, Pink Ribbon Blues highlights the hidden costs of the pink ribbon as an industry, one in which breast cancer has become merely a brand name with a pink logo. Indeed, while survivors and supporters walk, run, and purchase ribbons for a cure, cancer rates rise, the cancer industry thrives, corporations claim responsible citizenship while profiting from the disease, and breast cancer is stigmatized anew for those who reject the pink ribbon model. But Sulik also outlines alternative organizations that make a real difference, highlights what they do differently, and presents a new agenda for the future. (Publisher)

Cover image of 'Intimacy after breast cancer. Dealing with your body, relationships and sex'

Intimacy after breast cancer. Dealing with your body, relationships and sex (2010)

Square One Press

Congratulations! You survived breast cancer. This should be a time to celebrate - so why do you feel so empty and alone? Medical professionals prepare you for surgery and other treatments, but do not always address your emotional and sexual health. In 'Intimacy After Breast Cancer', breast cancer survivor Gina Maisano honestly discusses the sensitive issues of self-esteem, body image, and sexuality to help you become the total woman you still are. Part One begins by examining the emotions experienced by breast cancer survivors, including anxiety and fear of recurrence. It then offers guidance on regaining the confidence to start living again. The mental and physical effects of post-surgical medications are discussed, along with solutions for maintaining optimum health. Part Two focuses on rediscovering your sexuality. In a compassionate manner, it addresses the issues that most often challenge both single and married women and presents suggestions for overcoming them. Love and intimacy do not have to end with a breast cancer diagnosis. In 'Intimacy After Breast Cancer', Gina Maisano will help you rediscover the joys of being a woman. (Publisher)

Cover image of 'How to be sick. A Buddhist-inspired guide for the chronically ill and their caregivers'

How to be sick. A Buddhist-inspired guide for the chronically ill and their caregivers (2010)

Wisdom Publications

'How to be sick: A Buddhist-inspired guide for the chronically ill' and their caregiver is about living skilfully with the challenges of any chronic illness or condition. I wrote it for sufferers and for their caregivers (the latter includes people involved in hospice, chaplaincy, and elder care; for those interested in chronic illnesses and conditions (health professionals, family and friends); and for people interested in Buddhism (illness can function as a metaphor for suffering which, along with the cessation of suffering, is at the heart of the Buddha’s teaching). Chronic illnesses or conditions - such as arthritis, heart disease, and diabetes (three among dozens) - while not immediately life-threatening, are life-disrupting and stressful. The book is unique in that each chapter contains easy-to-learn tools and practices to help the chronically ill and their caregivers live skilfully, maintain equanimity, and even find joy despite the profound changes in their lives. A recurring theme in the book is that, although one’s body may be sick, one’s mind can be at peace. Some of the practices presented are traditionally Buddhist. Others I devised after becoming ill. Two are from the work of Byron Katie. Each practice is illustrated with examples from my own experience, so the book is also highly personal. The practices are intended to help with the following types of challenges: Suffering due to the relentlessness of physical symptoms; Blaming oneself for being sick; Cursory or dismissive treatment by doctors and medical professionals; The inability to visit with friends, participate in family gatherings, and take part in other social events; Feeling ignored by family or friends; Suffering due to uncertainty about the future; Coping with the disappointment of failed treatments; Caretaker burnout. At the end of the book is a handy reference guide, summarizing the specific tools and practices that can help with each of the above challenges. (Publisher)

Cover image of 'The selfish pig's guide to caring'

The selfish pig's guide to caring (2009)

Piatkus (Little, Brown Book Group)

Six million people in the UK provide unpaid care for disabled or elderly relatives or neighbours, often unnoticed. Their job is long, lonely and hard, yet there is limited support and no formal training. As a result, carers suffer frequent damage to physical and mental health and are liable to feelings of guilt brought on by fatigue and isolation. Hugh Marriott, a carer himself, has written this book for them - and also for the rest of us who hadn't realised what went on behind those closed doors. The Selfish Pig's Guide to Caring airs topics such as sex, thoughts of murder, coping with incontinence and dealing with friends and officials who fail to understand. It's a must-read for anyone involved with caring. (Publisher)

Cover image of 'Am I going to die?'

Am I going to die? (2009)

Books Beyond Words

John has a terminal illness. This book tells his story, dealing with both physical deterioration and the emotional aspects of dying in an honest and moving way. John is shown getting weaker and needing more help. He looks back at his life and makes choices about how to spend his time. The pictures highlight the importance of going on special outings, of remembering good times, and of saying proper goodbyes to family and friends. The final images show John dying at home. Guidelines are provided (as text at the back) for carers and supporters, health and other professionals who provide support to people with learning disabilities who are terminally ill. Lists of other helpful written resources and relevant organisations are also given. Although this story is fictional, it is based on the real life experiences of ten people with learning disabilities who had a terminal illness. They participated in the Veronica Project, a research project conducted by St George’s Hospital, London and funded by Cancer Research UK. The book draws on what was important for the participants when they were ill and dying and demonstrates best practice as identified by them. (Publisher)

Cover image of 'My advance decision to refuse treatment document'

My advance decision to refuse treatment document (2008)

National End of Life Care Programme

This form is for you to write down in advance any specific treatments you don't want to have in the future. Please note: This form is for people in England and Wales only. We suggest you read it alongside our booklet Your life and your choices plan ahead. 

Cover image of 'Preferred priorities for care'

Preferred priorities for care (2007)

National End of Life Care Programme

The Preferred Priorities for Care (PPC) can help you prepare for the future. It gives you an opportunity to think about, talk about and write down your preferences and priorities for care at the end of your life. Please note: This form is for people living in England and Wales only. We suggest you read it alongside our booklet. Your life and your choices: plan ahead. 

Cover image of 'It's not over till the bag lady rings'

It's not over till the bag lady rings (2007)

Spring Hill

On the basis of comments left on the author's blog, this book should appeal to cancer patients, survivors and those who care for people with cancer - healthcare professionals as well as friends and family - and anyone else wanting an insight into this wretched disease. Cancer sufferers not only have to deal with big issues - like confronting their own mortality - they have to cope with the everyday as well - the effect on relationships, changes in diet, whether or not to replace the dishwasher - and in the case of bowel cancer, perhaps a colostomy or ileostomy - while all the time trying to remain positive. Based on the author's online diaries, this book will enable the reader to get inside the mind of a cancer patient and discover what it feels like to have to cope with this disease. (Publisher)

Cover image of 'After someone dies. A leaflet about death, bereavement and grief for young people'

After someone dies. A leaflet about death, bereavement and grief for young people (2004)

Cruse Bereavement Care

Leaflet with support and advice for young people who have been bereaved. It covers the following issues: What is bereavement?; What might I feel?; How can I cope with it all?; I feel so alone; What can help?; How long will it take?

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