The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Guidelines for people with an ileal conduit (urostomy) in the event of problems such as urinary tract infections, bleeding, discharge, a hernia or sore skin.
Guidelines for people with a continent urinary diversion (Mitrofanoff) in the event of problems with pouch function, urinary tract infections, bleeding or discharge.
The Royal Marsden NHS Foundation Trust
This booklet describes what chemotherapy is, how it works, how treatment is planned and carried out, and possible side-effects; for example, anaemia, infection, appetite changes, nausea, skin changes, hair loss, and fertility problems. It also briefly discusses issues such as emotional well-being and fatigue. Includes further sources of information and support.
The Royal Marsden NHS Foundation Trust
This booklet describes what radiotherapy is, how it works, the benefits and risks, how treatment is planned, and what happens during treatment. It also discusses the possible side-effects, how people feel during treatment, and what happens after treatment is finished.
Piatkus (Little, Brown Book Group)
The ultimate resource to looking your best during and after cancer treatment, from a veteran beauty industry insider. Like many women who receive the shattering diagnosis of cancer, Caitlin Kiernan was concerned about her health and her future, but also about how the treatment would affect how she felt and looked - would she lose her hair? Would she lose her nails? How would she look after a double mastectomy? But unlike other women who battle cancer, Kiernan has spent her entire career as a beauty editor, beauty director (most recently for Life & Style Weekly), and now beauty producer. As someone who works in the public eye and in the fashion industry, Kiernan had to quickly learn how to look her best even when she was feeling her worst. So she called on her list of extensive contacts and beauty insiders - from hair professionals to top medical doctors (at institutions like Memorial Sloan Kettering and Mt Sinai Hospital) to style mavens and even celebrities (including Wendy Williams and Hoda Kotb) - to gather the best and most useful beauty tips for cancer treatment. The result is Pretty Sick: the ultimate guide to beauty during (and after) cancer treatment, covering skin care, hair care (and wig shopping), nail care, makeup, an explanation of breast cancer surgical options, style advice for life post mastectomy, and much, much more. Illustrated with charming line drawings and peppered with advice from celebrities and cancer survivors, Pretty Sick will be a welcome and trusted resource during treatment, helping women to look their best even when they don't feel their best. (Publisher)
Macmillan Cancer Support
Suggestions to help people get the best care and support after treatment ends and to live as healthy and active a life as possible.
Weidenfeld and Nicholson
Danny Baker's third volume of memoirs barrels along at the same cracking pace as its predecessors, the bestselling Going to Sea in a Sieve (the inspiration for the major TV series Cradle to Grave and subsequent nationwide tour) and Going off Alarming. With his trademark exuberance, he recalls the years which included six years' involvement in the massive TV hit TFI Friday ('piling it up with hellzapoppin' ideas') - during which time he stalked John Cleese in New York, entertained David Bowie and Paul McCartney, bizarrely reunites with Sir Michael Caine, gets befriended by Peter O'Toole and becomes a member of Led Zeppelin for 35 minutes. However, the tales are not reliant on celebrity alone, and the book comes packed with the usual quota of Baker family jewels, including Spud's attitude to doctors, Danny's trip to Amsterdam to get stoned for the first time (he fails), getting caught up in football rioting, and the now infamous 'kaboom' of an outburst following his despatch from BBC London. And then there's the cancer. Spoiler alert: this is the one in which he almost dies. Further spoiler alert: he doesn't. (Publisher)
In the last few years there has been a revolutionary increase in our knowledge of ovarian cancer management, from detection and genetics to surgery and novel targeted treatment approaches. This means that when it comes to detecting, diagnosing and treating women who have, or are suspected of having, ovarian cancer, there are significant opportunities for the well-informed healthcare professional to intervene in a meaningful way. This resource offers a comprehensive overview of all levels of care, summarizing the most recent advances and putting them in a clinically meaningful context. It answers important questions such as when to operate and when to treat with various modalities, both conventional and novel. We have striven to capture the key knowledge that a busy healthcare professional caring for patients with ovarian cancer needs, in a refreshingly readable concise format. (Publisher)
Johns Hopkins University Press
The prospect of entering treatment is overwhelming for anyone facing a diagnosis of cancer. While patients have access to a vast amount of medical information online, this advice is often unreliable or confusing. In Living with Cancer, Drs. Vicki A. Jackson and David P. Ryan have crafted the first step-by-step guide aimed at helping people with this life-defining disease grasp what’s happening to them while coping physically and emotionally with cancer treatment. An empathetic resource full of relatable patient stories, this book teaches patients and caregivers how to ask the right questions to get the best possible care―beginning at the moment of diagnosis. Drs. Jackson and Ryan explain how to work with a team of doctors and nurse practitioners to minimize symptoms and side effects while living as fully as possible in the face of cancer. They relay important information about understanding prognosis, and they translate what doctors mean when they describe tests, treatments, and medical procedures. Finally, they discuss hospice care and answer questions about continuing treatment and managing the final phase of life. Based on new research and a groundbreaking program in which patients are treated with palliative care―along with the best cancer care―during the course of their illness, this honest and caring book provides the right advice to use at the right time throughout a journey with cancer. It allows a person with cancer to concentrate on living the best life possible, despite an uncertain future. Patients at every stage will find Living with Cancer a comprehensive, thoughtful, and accessible guide for navigating the illness and its treatment. (Publisher)
Ten Speed Press
This new and revised edition of the IACP award-winning cookbook brings the healing power of delicious, nutritious foods to those whose hearts and bodies crave a revitalizing meal, through 150 new and updated recipes. Featuring science-based, nutrient-rich recipes that are easy to prepare and designed to give patients a much-needed boost by stimulating appetite and addressing treatment side effects including fatigue, nausea, dehydration, mouth and throat soreness, taste bud changes, and weight loss. A step-by-step guide helps patients nutritionally prepare for all phases of treatment, and a full nutritional analysis accompanies each recipe. This remarkable resource teaches patients and caregivers how to use readily available powerhouse ingredients to build a symptom- and cancer-fighting culinary toolkit. Blending fantastic taste and meticulous science, these recipes for soups, vegetable dishes, proteins, and sweet and savory snacks are rich in the nutrients, minerals, and phytochemicals that help patients thrive during treatment. This second edition also includes a dozen new recipes--many of which are simpler and less complicated, for cancer patients to prepare on their low days--as well as a list of cancer-fighting foods that can be incorporated into everyday life without stepping behind the stove. Rebecca has also revised the text with the most up-to-date scientific research and includes a section on how friends and family can build a culinary support team. (Publisher)
This leaflet has information about continent urinary diversion, which avoids the need to wear a urostomy pouch over the stoma to collect urine. It describes pre-operative and post-operative care, and care of the new reservoir.
Creative Pumpkin Publishing
From GP and hospice doctor Patrick Fitzgerald and bestselling author Sarah Rayner (Making Friends with Anxiety, One Moment, One Morning) comes a warm and wise companion to help support you and those caring for you in the last months, weeks and days of life. From the shock of diagnosis, through treatment options and symptom control to the process of dying itself, Making Peace with the End of Life tackles these sensitive issues with compassion and honesty. Full of practical advice and important contact information, it will also help to demystify how the NHS and Social Services work, so you can access the best support more easily. And, drawing on Patrick’s extensive clinical experience, it also looks at how communicating your wishes to those involved in your care can give a feeling of safety and control over whatever happens in the future. There are tips on self-nurturing using diet, light exercise and alternative therapies, plus guidance on how to care for your own mental health – including advice for carers. And for those who are anxious about what lies ahead, patient stories and quotes from those who’ve been there help to explain what to expect, thereby easing worry and panic so you feel less alone. Offset by Sarah’s joyful illustrations, the result is a clear and compassionate guide that aims to make these complex and distressing issues less confusing and overwhelming, so each individual can live the life they have left with a greater sense of comfort and peace. (Publisher)
All health professionals, regardless of specialty, will care for patients with pain that has persisted for more than 6 months. This fully updated fourth edition of Fast Facts: Chronic and Cancer Pain, written by two internationally renowned experts in the field, is designed to bring busy health professionals up to speed with the latest information in this area, including: easy-to-read overviews of pain mechanisms; a practical approach to pain assessment; developments in stepped care and multimodal management; the latest thinking on opioids. With health services around the world responding to calls to improve the management of painful long-term conditions, develop preventive and cost-effective solutions, and respond to patient choice and voice, this easy-to-read fact-packed book is essential reading for all GPs, nurses, junior hospital doctors, physical therapists, clinical psychologists, occupational therapists, pharmacists, medical specialists and medical students wanting – and needing – to know more. (Publisher)
Breast cancer is the most common cancer in women in the UK; there are approximately 45,000 new cases every year. A new diagnosis can be very frightening and many people will have no prior knowledge of the disease. This book is for women and their families who are looking for a comprehensive but plain language guide to breast cancer and its treatments. Many people find that doctors, although highly qualified and well meaning, can forget how little the layperson knows about medical procedures and terminology. Starting with the basics, this guide will look at what breast cancer is and how it’s diagnosed, right through to support options, the treatment available and how to care for your carers. The emotional after-effects of being a survivor are also covered in detail. Written by a survivor of breast cancer and peer reviewed by a breast cancer specialist, this book will provide everything women need to know about breast care, being diagnosed with breast cancer and the road to recovery. (Publisher)
This publication was originally written to help with arrangements for ‘final journeys’. However, much of the information also applies to those who would like to take a holiday when seriously ill.
As the baby-boomers get their bus passes, old age is rising up the public agenda. Yet the media concentrate either on the spectacular achievements of nonagenarians or the horrors of elder abuse in rogue care homes. Most people would rather know what ageing will mean for them. While bookshops carry plenty of guides on childcare, no book explains comprehensively what ageing means and how to cope with its challenges. To fill this gap Marion Shoard has written a 1,160-page guide. The book is based partly on experience with her own parents and help she has given other older people, but primarily on extensive research into all aspects of the subject all over the UK. (Publishers)
Prostate cancer is a fast-changing field, and recent advances have significantly improved both the survival and quality of life of many men diagnosed with the disease. As well as providing comprehensive information on the diagnosis, staging and management of the disease, the eighth edition of this ever-popular handbook is an invaluable update on new developments, including: evidence for the debate surrounding PSA screening; a better understanding of molecular and genetic advances; the latest methods of delivering radiotherapy; new drug treatments for castrate-resistant prostate cancer; and survivorship issues. This superbly illustrated handbook is a practical resource for all those who provide support and care for men with prostate cancer - including GPs, nurses and allied health professionals - as well as a refreshingly readable source of information for patients wanting to know more about their condition and its treatment. (Publisher)
The creator of the viral hit "Empathy Cards" teams up with a compassion expert to produce a visually stunning and groundbreaking illustrated guide to help you increase your emotional intelligence and learn how to offer comfort and support when someone you know is in pain. When someone you know is hurting, you want to let her know that you care. But many people don’t know what words to use—or are afraid of saying or doing the wrong thing. This thoughtful, instructive guide, from empathy expert Dr. Kelsey Crowe and greeting card maverick Emily McDowell, blends well-researched, actionable advice with the no-nonsense humor and the signature illustration style of McDowell's immensely popular Empathy Cards, to help you feel confident in connecting with anyone experiencing grief, loss, illness, or any other difficult situation. Written in a how-to, relatable, we’ve-all-been-that-deer-in-the-headlights kind of way, There Is No Good Card for This isn’t a spiritual treatise on how to make you a better person or a scientific argument about why compassion matters. It is a helpful illustrated guide to effective compassion that takes you, step by step by step, past the paralysis of thinking about someone in a difficult time to actually doing something (or nothing) with good judgment instead of fear. There Is No Good Card for This features workbook exercises, sample dialogs, and real-life examples from Dr. Crowe’s research, including her popular "Empathy Bootcamps" that give people tools for building relationships when it really counts. Whether it’s a coworker whose mother has died, a neighbor whose husband has been in a car accident, or a friend who is seriously ill, There Is No Good Card for This teaches you how to be the best friend you can be to someone in need. (Publisher)
On Thursday, 10th of March 2016, I returned home from a hospital appointment and broke the news to my wife and children. I had throat cancer. Stage four. Inoperable. Desperately needing some way to make sense of my situation, I set up a blog to chart my battle against the disease. I hoped it would allow me to understand more about this thing inside me, and what I would have to go through in terms of treatment to try to eradicate it. I also thought it might help other people who found themselves in similar circumstances. I made a promise to my readers to be open and honest all the way. I wouldn't hold anything back, no matter how unpleasant. Now, over a year later, I have adapted that blog into this book. It details my journey from when I first realised that something was wrong, through the intense courses of chemotherapy and radiotherapy, to where I am today. To say that journey was difficult is a vast understatement. The side effects of my treatment utterly kicked my arse, causing me to lose over half my bodyweight and fall seriously ill with double pneumonia and sepsis. Totally unresponsive, I was rushed into intensive care where the doctors told my family that, if they couldn't stabilise me, I had approximately two hours left to live. One option was to put me into a medically induced coma, although the chances were high that I would never emerge from it. Imagine someone telling you that about your loved one as they lie there, unconscious and struggling to breathe. Cancer is an invader that affects more than just the patient. Everyone suffers - spouses, siblings, children, extended family, friends. Even, as I was to discover, strangers from all over the world. I was overwhelmed with the love and kindness of almost everyone who contacted me, but I also suffered terrible abuse at the hands of online trolls. I should warn you that parts of this book do not make for easy reading. I kept my promise to be honest, and wrote many of the blog entries when I was depressed and scared, certain I wouldn't live to see another dawn. I convinced myself that I would quickly perish, leaving my wife and two sons - then aged 9 and 17 - alone, and with no-one to protect them or provide for them. I wouldn't get to see them grow up, develop into young men, and eventually have children of their own. The prospect terrified me. For those of you who followed my blog and read the posts as I uploaded them, you haven't seen everything. This book c
Johns Hopkins University Press
For a decade The Breast Reconstruction Guidebook has been the best resource on this topic for women who have had a mastectomy. Equal parts science and support, it is filled with stories that illustrate the emotional and physical components of breast reconstruction. Readers will find advice about choosing a doctor and a procedure, insurance and payment issues, how to prepare for surgery, and what to expect during recovery. Expert commentary by physicians and insights from patients inform this book, as does the exhaustive research by the author, a two-time breast cancer survivor who has twice had reconstructive surgery. New in this edition are discussions of: the pros and cons of saline and silicone implants; solutions for post-lumpectomy cosmetic problems; new immediate-delayed reconstruction when post-mastectomy radiation may be required; the benefits and limitations of nipple-sparing mastectomy; considerations for direct-to-implant reconstruction; newly developed tissue flap procedures; who can best apply nipple and areola tattoos and why tattoos may not last; enriching fat with stem cells so it stays in the breast; patient-controlled tissue expansion; how insurance and health care reform affect reconstruction. (Publisher)
Christie Hospital NHS Trust
Advice about what to eat and what not to eat following treatment.
Children's Cancer and Leukaemia Group
This booklet provides information about common symptoms, their causes and available treatments and includes suggestions for things parents and carers can do at home to help their child.
Blackpool Teaching Hospitals NHS Foundation Trust
This leaflet explains what happens when we die, what CPR is and what to do if you decide you do not want CPR.
A directory of support services and resources for people with a brain tumour in Greater London.
A directory of support services and resources for people with a brain tumour in South East Scotland.
A directory of support services and resources for people with a brain tumour in Glasgow and the surrounding areas.
A directory of support services and resources for people with a brain tumour in Merseyside.
A directory of support services and resources for people with a brain tumour in Greater Manchester.
A handbook for long-term recovery after a stem cell transplant.
A directory of support services and resources for people with a brain tumour in the Tees Valley and surrounding areas
Breast Cancer Now
This small leaflet briefly explains what breast cancer is, what causes it, routine screening, how it is treated, and how to be breast aware.
A directory of support services and resources for children with a brain tumour in the North West of England.
Breast Cancer Care
An illustrated mini-guide to being breast aware, in French and English. It shows what breast changes to look and feel for.
Children's Cancer and Leukaemia Group
This booklet provides general information about kidney cancer (renal tumours) that occur in children.
Breast Cancer Care
This leaflet explains about breast calcifications, what they are, how they're found and what happens if they need to be followed up.
AMEND (Association for Multiple Endocrine Neoplasia Disorders)
Information for anyone who may be about to have surgery to remove an adrenal gland. This leaflet explains what an adrenal gland is, why an operation may be needed, and who should care for you during your treatment.
An easy read booklet about what happens to your body and how you might feel during the last few days of life.
An easy read booklet about the different places you can be looked after in the last few months, weeks or days of your life.
Macmillan Cancer Support and the Public Health Agency
This spiral-bound booklet is about some of the ways that people with cancer in Northern Ireland can plan ahead and make choices about their future care. It is divided into the following sections: Planning ahead; Making a will; Advance care plans; Enduring power of attorney; Advance decisions to refuse treatment; Organ and tissue donation; Your plans for after you die; Managing your care if you haven't planned ahead; Mental capacity; Further information and support.
An easy read booklet about things you might want to think if you will not get better from cancer. For example, things you want to do before you die, people you want to see and things you want to remember and think about.
Target Ovarian Cancer
This guide is for women with a recent diagnosis of ovarian cancer. It focuses on the practical and emotional needs in the months following diagnosis and offers advice on where to find support.
An easy read booklet about what a funeral is and things you might want to plan for your funeral, such as the music or who should come.
Macmillan Cancer Support
This leaflet is about how you can take an active role in your care. It describes types of support that your healthcare team may call the Recovery Package. This leaflet looks at: some of the support you can ask for after a cancer diagnosis; what options may be available to you for your follow-up care, and what information you need; ways you can look after yourself.
An easy read booklet about how you might feel if you find out your cancer cannot be cured. The booklet talks about things that might help and people who can support you.
An easy read booklet explaining what dying is, how you might feel if someone you love dies and where you can get support.
An easy read booklet about the different people who can support you if you are dying and what they can help with.
An easy read booklet about what a funeral is, what might happen and other ways of remembering someone who has died.
An easy read booklet that explains grief and talks about the different emotions or changes you might experience if someone you love dies. There is also information about where to get support.
An easy read booklet about symptoms you might have with advanced cancer and things that can help.