The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins firstname.lastname@example.org
Breast Cancer Care
This pack is for anyone with secondary breast cancer. It may also be useful for family, friends, or carers. It contains information that may be useful from diagnosis throughout treatment and care. The pack has four main parts. 1. The first part of the pack explains what secondary breast cancer is, looks at treatments and side effects, and has information about monitoring and coping with the physical effects of your condition. 2. The second part is called Your needs and concerns with secondary breast cancer. This looks at how to make sure your needs are met, from emotional and practical needs to concerns about relationships, work and finances, and health and wellbeing. 3. Personal organiser to help you record symptoms or side effects from treatment, which you can take with you to hospital appointments. You can also record appointment details and names and contact details of people involved in your care. 4. A small booklet called Planning ahead: choices and decisions about the end of life is for if and when you want to start thinking about these things.
Breast Cancer Care
This organiser is for anyone with secondary (metastatic) breast cancer to keep a record of symptoms, side effects, and details of appointments. It is part of the Secondary breast cancer information pack.
Breast Cancer Care
This pack is for women who have been told they have primary (early) breast cancer. It includes information about breast cancer, its diagnosis and treatments.
This pack, produced with support from Marie Curie, covers the key questions and topics that myeloma patients may want to know more about when considering end of life. Topics include: why planning ahead can be beneficial; what to expect when myeloma treatment is no longer an option; what is likely to happen as the end of life draws near; choosing where to be looked after; and getting your affairs in order.
This booklet describes aplastic anaemia, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.
Hairy cell leukaemia (HCL) is a blood cancer that affects the lymphocytic (antibody producing) white blood cells produced by the bone marrow. This booklet describes what causes it, who it affects, how it affects your body, the symptoms and diagnosis, and treatment options. It also covers everyday life and HCL and talking about HCL. Includes a glossary of terms and details of useful contacts and further support.
Essential thrombocythaemia (ET) belongs to a group of conditions called myeloproliferative neoplasms (MPNs), which also includes polycythaemia vera and myelofibrosis. ET is a chronic condition that is characterised by too many platelets (blood cells that helps the blood clot) in the blood. This booklet explains what ET is, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments.
Bowel Cancer UK
Regaining bowel control can be one of the biggest challenges that you face after surgery for bowel cancer. In this booklet we explain approaches you can take and the support available to you.
Chronic neutrophilic leukaemia (CNL) is an extremely rare cancer originating in the bone marrow. Being diagnosed with CNL can be a shock, particularly if you have never heard of it. This booklet has information about CNL: what causes it; who it affects; how it affects your body; symptoms; diagnosis; treatment options. Includes details of further support and information.
Being told that you have chronic myeloid leukaemia (CML) can be a shock. This booklet describes CML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CML and talking about CML. Includes a glossary of terms and details of useful contacts and further support.