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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 402

Cover image of 'Patient guide. Survivorship'

Patient guide. Survivorship (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Patient guide. Diagnosis'

Patient guide. Diagnosis (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Moving forward: for people living with and beyond a diagnosis of primary breast cancer'

Moving forward: for people living with and beyond a diagnosis of primary breast cancer (November 2018)

Breast Cancer Care

This book is designed to help you move forward after breast cancer. From signs and symptoms of recurrence to dealing with fatigue and financial issues, it offers practical solutions and sources of further support. Whether you have just reached the end of your treatment or your diagnosis of breast cancer was several years ago, this book is for you.

Cover image of 'Ovarian suppression and breast cancer'

Ovarian suppression and breast cancer (November 2018)

Breast Cancer Care

This factsheet is written for women who have been offered ovarian ablation as a treatment for breast cancer. It explains what ovarian ablation is, how it is achieved (surgery, radiotherapy, or hormone manipulation), when it is used, and the possible side-effects. Includes a list of useful organisations.

Cover image of 'Being cared for at home [Welsh]'

Being cared for at home [Welsh] (October 2018)

Marie Curie

This booklet is for people living with a terminal illness, and their family and friends. Inside you’ll find information about the care and support that’s available for you at home. 

Cover image of 'If you are diagnosed with cancer – a quick guide'

If you are diagnosed with cancer – a quick guide (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'Patient guide. Follow-up'

Patient guide. Follow-up (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Breast cancer and you: coping with diagnosis, treatment and the future'

Breast cancer and you: coping with diagnosis, treatment and the future (August 2018)

Breast Cancer Care

This booklet is for anyone who is dealing with a diagnosis of primary breast cancer and its treatment. It discusses the emotions that may arise, how to tell other people, how to find out more, making decisions about treatment, and the effects of treatment, and looks ahead to the time when treatment is finished.

Cover image of 'Primary peritoneal cancer'

Primary peritoneal cancer (December 2018)

Ovacome

This factsheet has information on primary peritoneal cancer, a rare variant of ovarian cancer. It describes what primary peritoneal cancer is, the signs and symptoms, diagnosis, treatment - surgery and chemotherapy - and follow-up care.

Cover image of 'Talking with your children about breast cancer'

Talking with your children about breast cancer (June 2018)

Breast Cancer Care

This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.

Cover image of 'Fallopian tube cancer'

Fallopian tube cancer (December 2018)

Ovacome

This factsheet has about fallopian tube cancer. It describes what fallopian tube cancer is, the risk factors, symptoms, diagnostic tests, treatment options (surgery, chemotherapy), and follow-up care.

Cover image of 'Your medical team'

Your medical team (April 2018)

Lymphoma Action

If you have lymphoma, your care and treatment are planned and managed by a team of health professionals, known as a multi-disciplinary team (MDT). This factsheet covers the multi-disciplinary team, key workers, and MDT members.

Cover image of 'Treating primary breast cancer'

Treating primary breast cancer (December 2018)

Breast Cancer Care

This booklet describes the range of treatments that may be offered to women with newly diagnosed breast cancer.

Cover image of 'Patient guide. Receiving diagnosis after biopsy'

Patient guide. Receiving diagnosis after biopsy (July 2018)

Brainstrust

One in a series of eight leaflets that form the Brain Tumour Patient Guide.

Cover image of 'Managing pain. A guide for people living with a terminal illness and their carers'

Managing pain. A guide for people living with a terminal illness and their carers (May 2018)

Marie Curie

If you’re living with a terminal illness, or caring for someone who is, you may be worried about pain. This booklet explains what causes pain and how it can be effectively managed. 

Cover image of 'When your partner has breast cancer'

When your partner has breast cancer (June 2018)

Breast Cancer Care

A booklet for anyone in a relationship with someone who has been diagnosed with breast cancer.

Cover image of 'Secondary breast cancer in the bone'

Secondary breast cancer in the bone (March 2018)

Breast Cancer Care

A booklet for people who have been diagnosed with secondary cancer in the bones that has spread from the breast. It describes what secondary breast cancer in the bone is, the symptoms, and the investigations. It also describes the treatment options, but not in great detail. Lists useful organisations.

Cover image of 'Breast cancer during and after pregnancy'

Breast cancer during and after pregnancy (May 2018)

Breast Cancer Care

A booklet for women whose breast cancer has been diagnosed during pregnancy or within a year of giving birth. It describes how breast cancer is diagnosed in pregnancy and the treatment options. It also covers coping with the diagnosis and continuing with the pregnancy.

Cover image of 'Your operation and recovery'

Your operation and recovery (January 2018)

Breast Cancer Care

This booklet provides information for anyone going into hospital for breast cancer surgery. It describes what may happen before admission, what to take into hospital, what happens before and after surgery, what to expect after surgery (normal changes, possible problems) and leaving hospital and recovering from surgery. Includes details of further support and useful organisations.

Cover image of 'Understanding your pathology results'

Understanding your pathology results (February 2018)

Breast Cancer Care

This booklet explains the information in a pathology report for women who have been diagnosed with breast cancer. It explains the terms used and what the information means, and also suggests questions that women may want to ask their doctor.

Cover image of 'Secondary breast cancer information pack'

Secondary breast cancer information pack (April 2018)

Breast Cancer Care

This pack is for anyone with secondary breast cancer. It may also be useful for family, friends, or carers. It contains information that may be useful from diagnosis throughout treatment and care. The pack has four main parts. 1. The first part of the pack explains what secondary breast cancer is, looks at treatments and side effects, and has information about monitoring and coping with the physical effects of your condition. 2. The second part is called Your needs and concerns with secondary breast cancer. This looks at how to make sure your needs are met, from emotional and practical needs to concerns about relationships, work and finances, and health and wellbeing. 3. Personal organiser to help you record symptoms or side effects from treatment, which you can take with you to hospital appointments. You can also record appointment details and names and contact details of people involved in your care. 4. A small booklet called Planning ahead: choices and decisions about the end of life is for if and when you want to start thinking about these things. 

Cover image of 'Personal organiser'

Personal organiser (April 2018)

Breast Cancer Care

This organiser is for anyone with secondary (metastatic) breast cancer to keep a record of symptoms, side effects, and details of appointments. It is part of the Secondary breast cancer information pack.

Cover image of 'Primary breast cancer information pack'

Primary breast cancer information pack (December 2018)

Breast Cancer Care

This pack is for women who have been told they have primary (early) breast cancer. It includes information about breast cancer, its diagnosis and treatments.

Cover image of 'Planning ahead. An infopack for myeloma patients.'

Planning ahead. An infopack for myeloma patients. (February 2018)

Myeloma UK

This pack, produced with support from Marie Curie, covers the key questions and topics that myeloma patients may want to know more about when considering end of life. Topics include: why planning ahead can be beneficial; what to expect when myeloma treatment is no longer an option; what is likely to happen as the end of life draws near; choosing where to be looked after; and getting your affairs in order. 

Cover image of 'Aplastic anaemia. A guide for patients'

Aplastic anaemia. A guide for patients (October 2018)

Leukaemia Care

This booklet describes aplastic anaemia, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Hairy cell leukaemia. A guide for patients'

Hairy cell leukaemia. A guide for patients (April 2018)

Leukaemia Care

Hairy cell leukaemia (HCL) is a blood cancer that affects the lymphocytic (antibody producing) white blood cells produced by the bone marrow. This booklet describes what causes it, who it affects, how it affects your body, the symptoms and diagnosis, and treatment options. It also covers everyday life and HCL and talking about HCL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'Essential thrombocythaemia (ET). A guide for patients'

Essential thrombocythaemia (ET). A guide for patients (April 2018)

Leukaemia Care

Essential thrombocythaemia (ET) belongs to a group of conditions called myeloproliferative neoplasms (MPNs), which also includes polycythaemia vera and myelofibrosis. ET is a chronic condition that is characterised by too many platelets (blood cells that helps the blood clot) in the blood. This booklet explains what ET is, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments.

Cover image of 'Regaining bowel control after bowel cancer treatment'

Regaining bowel control after bowel cancer treatment (August 2018)

Bowel Cancer UK

Regaining bowel control can be one of the biggest challenges that you face after surgery for bowel cancer. In this booklet we explain approaches you can take and the support available to you. 

Cover image of 'Chronic myeloid leukaemia (CML). A guide for patients'

Chronic myeloid leukaemia (CML). A guide for patients (November 2018)

Leukaemia Care

Being told that you have chronic myeloid leukaemia (CML) can be a shock. This booklet describes CML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CML and talking about CML. Includes a glossary of terms and details of useful contacts and further support.    

Cover image of 'Chronic neutrophilic leukaemia (CNL). A guide for patients'

Chronic neutrophilic leukaemia (CNL). A guide for patients (September 2018)

Leukaemia Care

Chronic neutrophilic leukaemia (CNL) is an extremely rare cancer originating in the bone marrow. Being diagnosed with CNL can be a shock, particularly if you have never heard of it. This booklet has information about CNL: what causes it; who it affects; how it affects your body; symptoms; diagnosis; treatment options. Includes details of further support and information.

Cover image of 'Understanding lymphoedema'

Understanding lymphoedema (August 2018)

Macmillan Cancer Support

This booklet is about lymphoedema. It is for anyone who has lymphoedema, or is at risk of developing it. It may also be helpful for family members, friends or carers. The booklet explains the signs and symptoms of lymphoedema and how you may be able to reduce your risk of it developing. It explains how it is diagnosed and how it may be treated. It also has information about emotional, practical and financial issues.

Cover image of 'If you are diagnosed with cancer – a quick guide [Nepali]'

If you are diagnosed with cancer – a quick guide [Nepali] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. 

Cover image of 'The cancer guide'

The cancer guide (August 2018)

Macmillan Cancer Support

This booklet is for people living with cancer, and their family, friends and carers. It aims to help you understand what cancer means and what to expect. It also explains where you can get more information and support.

Cover image of 'Implantable ports [Punjabi]'

Implantable ports [Punjabi] (September 2018)

Macmillan Cancer Support

Implantable ports are often used to give chemotherapy treatment. This factsheet describes what an implantable port is, how it is put in, how it is used, how to care for it, and possible problems.

Cover image of 'Chronic eosinophilic leukaemia (CEL). A guide for patients'

Chronic eosinophilic leukaemia (CEL). A guide for patients (September 2018)

Leukaemia Care

Being told that you have chronic eosinophilic leukaemia (CEL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes CEL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CEL and talking about CEL. Includes a glossary of terms and details of useful contacts and further support.  

Cover image of 'If you are diagnosed with cancer – a quick guide [Bulgarian]'

If you are diagnosed with cancer – a quick guide [Bulgarian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.

Cover image of 'Adult acute myeloid leukaemia (AML). A guide for patients'

Adult acute myeloid leukaemia (AML). A guide for patients (March 2018)

Leukaemia Care

This booklet describes acute myeloid leukaemia (AML) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.

Cover image of 'Acute myeloid leukaemia (AML) [Japanese]'

Acute myeloid leukaemia (AML) [Japanese] (August 2018)

Macmillan Cancer Support

A translation of selected pages of the Macmillan Cancer Support booklet "Understanding acute myeloid leukaemia", including what it is, symptoms, treatment, self-care, financial support and follow-up.

Cover image of 'Chronic myelomonocytic leukaemia (CMML). A guide for patients'

Chronic myelomonocytic leukaemia (CMML). A guide for patients (June 2018)

Leukaemia Care

Being diagnosed with chronic myelomonocytic leukaemia can be a shock (CMML). This booklet describes CMML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CMML and talking about CMML. Includes a glossary of terms and details of useful contacts and further support.  

Cover image of 'DA (Daunarubicin) and ARAc for acute myeloid leukaemia. A guide for patients'

DA (Daunarubicin) and ARAc for acute myeloid leukaemia. A guide for patients (December 2018)

Leukaemia Care

This booklet describes DA treatment, a combination of the drugs daunorubicin and cytarabine (Ara-C), used primarily as induction chemotherapy in patients with newly diagnosed acute myeloid meukaemia. It describes how DA is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'Adult acute lymphoblastic leukaemia (ALL). A guide for patients'

Adult acute lymphoblastic leukaemia (ALL). A guide for patients (October 2018)

Leukaemia Care

This booklet explains what acute lymphopblastic leukaemia (ALL) is, and describes the symptoms, diagnosis, and treatment options. It also covers everday life with ALL and how to talk to your haematologist, family and friends. 

Cover image of 'ATRA and anthracycline based therapy for acute myeloid leukaemia (AML). A guide for patients'

ATRA and anthracycline based therapy for acute myeloid leukaemia (AML). A guide for patients (March 2018)

Leukaemia Care

All-trans retinoic acid (ATRA), known as Tretinoin (Vesanoid®) is the acid form of vitamin A, which is used with chemotherapy for induction of remission in patients with confirmed acute promyelocytic leukaemia (APL), a subtype of acute myeloid leukaemia. This booklet describes the use of ATRA along with the chemotherapy drugs idarubicin and mitoxantrone.

Cover image of 'Childhood acute myeloid leukaemia (AML). A guide for parents'

Childhood acute myeloid leukaemia (AML). A guide for parents (April 2018)

Leukaemia Care

Being told that your child has acute myeloid leukaemia (AML) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood AML, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood AML and talking about childhood AML. Includes a glossary of terms and details of useful contacts and further support. 

Cover image of '10 top tips'

10 top tips (March 2018)

Target Ovarian Cancer|Macmillan Cancer Support

This set of ten tips was developed by a workshop group comprising people affected by ovarian cancer and GPs. It aims to help women get the best out of a visit to their GP if they are concerned about symptoms.

Cover image of 'The emotional impact of a blood cancer. A guide for patients'

The emotional impact of a blood cancer. A guide for patients (October 2018)

Leukaemia Care

This booklet describes some of the more challenging emotional responses you may experience as you adjust to life following a diagnosis of blood cancer. It must be noted that this information is mainly written in the context of acute leukaemia and is for those who are receiving intensive treatment. However, anyone with a blood cancer diagnosis may find this information useful.

Cover image of 'Chronic myeloid leukaemia (CML) TKIs and TFR. A guide for patients'

Chronic myeloid leukaemia (CML) TKIs and TFR. A guide for patients (September 2018)

Leukaemia Care

This booklet is written for patients with Philadelphiachromosome-positive (Ph+) CML. It explains what tyrokinase inhibitors are and how they work. It covers imatinib, nilotinib, dasatinib, bosutinib, ponatinib, including how they are given and possible side-effects.

Cover image of 'Understanding head and neck cancers'

Understanding head and neck cancers (July 2018)

Macmillan Cancer Support

This booklet is about head and neck cancers. Head and neck cancers include cancers of the mouth and throat, as well as rarer cancers of the nasal cavity (inside the nose), sinuses, salivary glands and middle ear. This booklet is for anyone who has a head and neck cancer. The booklet explains: what head and neck cancer is; the signs and symptoms; the different treatment options; coping with head and neck cancer treatment.

Cover image of 'Understanding cancer of the pancreas'

Understanding cancer of the pancreas (June 2018)

Macmillan Cancer Support

This booklet has information about the most common type of cancer of the pancreas - adenocarcinoma. It describes the risk factors, causes, symptoms, diagnosis, staging, treatment options and follow-up. It also discusses feelings and self-help and includes details of further support and websites.

Cover image of 'Understanding risk-reducing breast surgery'

Understanding risk-reducing breast surgery (October 2018)

Macmillan Cancer Support

This booklet is for anyone who is thinking about having risk-reducing breast surgery. You may consider this if you have a high risk of developing breast cancer. This is usually because you have a strong family history of breast cancer. The booklet explains what risk-reducing breast surgery is and what it involves. It talks about the different options for risk-reducing breast surgery. There is information about the benefits, limitations and risks of each type of surgery. We also talk about some physical and emotional issues you may experience, and ways to cope with these. We have included photographs of women who have had breast reconstruction after risk-reducing surgery. This is to help show how a reconstruction may look.

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