The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Twelve-year-old El has planned on making her first week at a new school fantastic. She won’t go by her given name, Laughter. She’ll sit in the back of the classroom where she can make new friends. She won’t even have time to think about all the fun her old friends are having without her. Everything will be great. But when her dad picks her up after school and tells her that her younger sister, Echo, has a life-threatening illness, her world is suddenly turned upside down. And with her parents now pressed for time and money, El feels lost and powerless. Then she befriends Octavius, the only other kid in school who gets what she’s going through. As El begins to adjust to her new life, she soon finds that maybe a little hope and a lot of love can overcome any obstacle. (Publishers)
A compassionate, practical guide to end-of-life matters, empowering us to clarify and share our wishes and continue to live life to the fullest. Many people say “I wish I had known what they wanted” when their loved one has died. Too often, a person’s wishes for end-of-life care, and for after they have gone, have not been recorded. With this valuable guide, you can now begin to do this for yourself, so your relatives will be able to honor your wishes more easily, saving them unnecessary stress and upset at a potentially intense time. Before I Go addresses the emotional, spiritual, and practical aspects of end-of-life planning to help you make well-informed decisions about your end-of-life care and prepare well for your death. Jane Duncan Rogers guides you with equanimity, care, and humor through subjects such as how to have a conversation about dying, the impact of grief on relatives responsible for estate matters, DIY funerals and what that entails. She states clearly what you need to have in place to ensure the best end of life possible, helps you identify your values and beliefs in this area, and demonstrates which actions you then need to take, and when. With a full resource pack of essential information available to you, including guiding questions, exercises, and recording tools, as well as downloadable worksheets and supportive online courses, decision-making will be much easier and you will find relief and peace of mind knowing you have taken care of outstanding matters. You will also be giving a great gift to your loved ones. When they have this information in advance, you spare them many difficult decisions and administrative hassle at a time when they will be grieving and not in a fit state to cope. It can bring great comfort to those left behind to know they are indeed carrying out your wishes. It also provides an opportunity for you to record your achievements and history, giving them a legacy they would otherwise not have. (Publisher)
After an operation to form a urostomy stoma, some women may have difficulties with their sexuality and sexual function. This leaflet covers topics such as sexual function, sexual relations, contraception, pregnancy, and childbirth.
Macmillan Cancer Support
Booklet for young people aged under 18 who are looking after someone who has cancer. It has been written by young people who have been through the experience and covers some of the practical issues young carers may face.
Advice and support for men who have concerns about sex and fertility following surgery for a urostomy.
As the baby-boomers get their bus passes, old age is rising up the public agenda. Yet the media concentrate either on the spectacular achievements of nonagenarians or the horrors of elder abuse in rogue care homes. Most people would rather know what ageing will mean for them. While bookshops carry plenty of guides on childcare, no book explains comprehensively what ageing means and how to cope with its challenges. To fill this gap Marion Shoard has written a 1,160-page guide. The book is based partly on experience with her own parents and help she has given other older people, but primarily on extensive research into all aspects of the subject all over the UK. (Publishers)
The creator of the viral hit "Empathy Cards" teams up with a compassion expert to produce a visually stunning and groundbreaking illustrated guide to help you increase your emotional intelligence and learn how to offer comfort and support when someone you know is in pain. When someone you know is hurting, you want to let her know that you care. But many people don’t know what words to use—or are afraid of saying or doing the wrong thing. This thoughtful, instructive guide, from empathy expert Dr. Kelsey Crowe and greeting card maverick Emily McDowell, blends well-researched, actionable advice with the no-nonsense humor and the signature illustration style of McDowell's immensely popular Empathy Cards, to help you feel confident in connecting with anyone experiencing grief, loss, illness, or any other difficult situation. Written in a how-to, relatable, we’ve-all-been-that-deer-in-the-headlights kind of way, There Is No Good Card for This isn’t a spiritual treatise on how to make you a better person or a scientific argument about why compassion matters. It is a helpful illustrated guide to effective compassion that takes you, step by step by step, past the paralysis of thinking about someone in a difficult time to actually doing something (or nothing) with good judgment instead of fear. There Is No Good Card for This features workbook exercises, sample dialogs, and real-life examples from Dr. Crowe’s research, including her popular "Empathy Bootcamps" that give people tools for building relationships when it really counts. Whether it’s a coworker whose mother has died, a neighbor whose husband has been in a car accident, or a friend who is seriously ill, There Is No Good Card for This teaches you how to be the best friend you can be to someone in need. (Publisher)
Johns Hopkins University Press
For a decade The Breast Reconstruction Guidebook has been the best resource on this topic for women who have had a mastectomy. Equal parts science and support, it is filled with stories that illustrate the emotional and physical components of breast reconstruction. Readers will find advice about choosing a doctor and a procedure, insurance and payment issues, how to prepare for surgery, and what to expect during recovery. Expert commentary by physicians and insights from patients inform this book, as does the exhaustive research by the author, a two-time breast cancer survivor who has twice had reconstructive surgery. New in this edition are discussions of: the pros and cons of saline and silicone implants; solutions for post-lumpectomy cosmetic problems; new immediate-delayed reconstruction when post-mastectomy radiation may be required; the benefits and limitations of nipple-sparing mastectomy; considerations for direct-to-implant reconstruction; newly developed tissue flap procedures; who can best apply nipple and areola tattoos and why tattoos may not last; enriching fat with stem cells so it stays in the breast; patient-controlled tissue expansion; how insurance and health care reform affect reconstruction. (Publisher)
Profile Books in association with The Welcome Collection
For most of human history, death was a common, ever-present possibility. It didn't matter whether you were five or fifty – every day was a roll of the dice. But now, as medical advances push the boundaries of survival further each year, we have become increasingly detached from the reality of being mortal. So here is a book about the modern experience of mortality – about what it's like to get old and die, how medicine has changed this and how it hasn't, where our ideas about death have gone wrong. With his trademark mix of perceptiveness and sensitivity, Atul Gawande outlines a story that crosses the globe, as he examines his experiences as a surgeon and those of his patients and family, and learns to accept the limits of what he can do. Never before has aging been such an important topic. The systems that we have put in place to manage our mortality are manifestly failing; but, as Gawande reveals, it doesn't have to be this way. The ultimate goal, after all, is not a good death, but a good life - all the way to the very end. Published in partnership with the Wellcome Collection, a free visitor destination that explores the connections between medicine, life and art. (Publisher)