The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Public Health England
Leaflet aimed at alerting general public to symptoms of lung cancer and encouraging people to go to the doctor if they have a cough that last more than three weeks.
The future flashed before my eyes in all its pre-ordained banality. Embarrassment, at first, to the exclusion of all other feelings. But embarrassment curled at the edges with a weariness. I got a joke in. 'So - we'd better get cooking the meth,' I said to the Poet. In August 2014, Jenny Diski was diagnosed with inoperable lung cancer and given 'two or three years' to live. She didn't know how to react. All responses felt scripted, laden with cliché. Being a writer, she decided to write about it (grappling with the unoriginality even of this), and also to tell a story she has not yet told: that of being taken in, aged fifteen, by the author Doris Lessing, and the subsequent fifty years of their complex relationship. In September 2014 Jenny Diski began writing in the London Review of Books, describing her experience of living with terminal cancer, examining her life and history with Doris Lessing: the fairy-tale rescue from 'the bin' as a teenager, the difficulties of being absorbed into an unfamiliar family and the influence this had on her. Swooping from one memory to the next - alighting on the hysterical battlefield of her parental home, her expulsion from school, stacking shelves in Banbury and the drug-taking twenty-something in and out of psychiatric hospitals, Diski paints a portrait of two extraordinary writers - Lessing and herself. From one of our most original voices comes a book like no other: a cerebral, witty, dazzlingly candid masterpiece about an uneasy relationship; about memory and writing, ingratitude and anger; about living with illness and facing death. (Publisher)
The Bodley Head
At the age of thirty-six, on the verge of completing a decade’s worth of training as a neurosurgeon, Paul Kalanithi was diagnosed with stage IV lung cancer. One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated. When Breath Becomes Air chronicles Kalanithi’s transformation from a naïve medical student “possessed,” as he wrote, “by the question of what, given that all organisms die, makes a virtuous and meaningful life” into a neurosurgeon at Stanford working in the brain, the most critical place for human identity, and finally into a patient and new father confronting his own mortality. What makes life worth living in the face of death? What do you do when the future, no longer a ladder toward your goals in life, flattens out into a perpetual present? What does it mean to have a child, to nurture a new life as another fades away? These are some of the questions Kalanithi wrestles with in this profoundly moving, exquisitely observed memoir. Paul Kalanithi died in March 2015, while working on this book, yet his words live on as a guide and a gift to us all. “I began to realize that coming face to face with my own mortality, in a sense, had changed nothing and everything,” he wrote. “Seven words from Samuel Beckett began to repeat in my head: ‘I can’t go on. I’ll go on.’” When Breath Becomes Air is an unforgettable, life-affirming reflection on the challenge of facing death and on the relationship between doctor and patient, from a brilliant writer who became both. (Publisher)
Simon & Schuster UK
Angie and Ian were childhood sweethearts, Angie adored kids and, as one of eight children himself, Ian was only too happy to have as many as they could. After their marriage they had three sons in quick succession. But then, aged just thirty one, Angie was diagnosed with breast cancer and the couple had to accept they might not be able to have any more. Five years on, though, with Angie well again they went on to have five more. But in 2007, Angie had a shadow on her lung and it was the return of the original breast cancer she thought she had beaten. It seemed the disease had returned to tear their world apart again. Though Ian searched tirelessly for cures, Angie practised acceptance. She wouldn't live to see her children grow up. Raising eight children would be a big job for any couple; to raise them alone, without their mother, an almost Herculean feat. But this was exactly what Angie wanted Ian to be able to do. So in the last months of her life, Angie compiled a list of 'rules' to guide Ian in the future, and put him on an intensive training course, so he could learn all the skills he would need. She taught him how to make her special chicken curry, how to soothe away their hurts, pack their lunchboxes with all their favourites and do all the little things she'd done for them so unthinkingly. And Ian knew he wasn't just doing this for the children. He was doing it so his beloved wife could be comforted by knowing that he had the tools to bring their children up her way. Finally, inevitably, came the hardest task of all. Angie, the job done, had to find the courage to let them go, and Ian and the children the courage to carry on without her. (Publisher)
Particular Books (Penguin Imprint)
Albert Espinosa never wanted to write a book about surviving cancer, so he didn't. He wrote a book instead about the Yellow World. What is the yellow world? The yellow world is a world that's within everyone's reach, a world the colour of the sun. It is the name of a way of living, of seeing life, of nourishing yourself with the lessons that you learn from good moments as well as bad ones. It is the world that makes you happy, the world you like living in. The yellow world has no rules; it is made of discoveries. In these 23 Discoveries Albert shows us how to connect daily reality with our most distant dreams. He tells us that 'losses are positive', 'the word 'pain' doesn't exist', and 'what you hide the most reveals the most about you'. Albert Espinosa has won several battles with death, which is why his stories are so full of life. He is powerful because he never gives up. And as a last resort he bargains: he swapped a leg and a lung for his life. He has learnt how to lose in order to win. He's hyperactive and prefers losing sleep to losing experiences. If you want to tell him something it has to be very good or told very fast. He loves to provoke people but he does it to make provocations seem normal. His greatest hope is that after you have read this book you will go off in search of your yellow world. Albert Espinosa is a bestselling author. At the age of thirteen, Albert was diagnosed with cancer, an event that changed his life forever. When he was fourteen, his left leg had to be amputated. At sixteen his left lung was removed, and when he was eighteen part of his liver was taken out. After ten years in and out of hospitals, when he was finally told that he had been cured of the disease, he realised that his illness had taught him that what is sad is not dying, but rather not knowing how to live. (Publisher)
Self-published using AuthorHouse
When I was told I needed chemotherapy I froze with fear. The word itself has almost mystical powers, conjuring up vivid mental images of frail, shadow-like people curled up on beds, quietly writhing in agony and slowly losing the will to live. In truth I'd never really thought about what it actually was, I just knew it was bad. I asked my family and friends what they thought chemotherapy was and, bearing in mind how prevalent cancer is these days, the responses were as varied as they were downright peculiar: 'I've never actually been sure what's involved, but I know it's unpleasant.' 'It's a large machine you slide into, a bit like the old iron lung machine,' (does anyone remember the old iron lung machine?)' 'Every bit of your body's bombarded by deadly rays.' 'It's an injection that lasts for hours and hours.' Well, here are just four good reasons why I needed to dispel some ridiculous myths about cancer treatment. Even the eyebrows? is an honest account of what to expect before, during and after treatment, and a guide to making the journey as comfortable and calm as humanly possible. (Publisher)
'I count myself the luckiest and unluckiest woman in London.' Deborah Hutton's discovery that the niggling cough which had been troubling her for a couple of months was actually an aggressive lung cancer that had already invaded her bones and lymphatic system marked the beginning of a brand-new learning curve - a personal odyssey that taught her to let go of her super-competent I-can-handle-it-myself persona and gratefully accept the huge amount of help beamed at her by her close-knit family and 'world class' network of friends and neighbours. From her own experience and out of her conversations with fellow members of the Cancer Club - 'the only club I can think of which is both rigorously exclusive and which has no waiting list, ever' - comes this anthology of supremely practical examples of ways in which friends and family, often themselves reeling from the shock of the diagnosis and feeling just as helpless and at a loss as to know what to do, can make a real, substantial difference. 'What can I do to help?' she writes. Well, stand by, because the answer is 'Plenty'. (Publisher)
Christie Hospital NHS Trust
This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.
Children's Cancer and Leukaemia Group
This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.
PCaSO Prostate Cancer Support Network
This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.