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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 96

Cover image of 'Acute myeloid leukaemia (AML) [Polish]'

Acute myeloid leukaemia (AML) [Polish] (August 2018)

Macmillan Cancer Support

A translation of selected pages of the Macmillan Cancer Support booklet "Understanding acute myeloid leukaemia", including what it is  diagnosis, treatment overview, giving consent, chemotherapy.

Cover image of 'Acute myeloid leukaemia (AML) [Japanese]'

Acute myeloid leukaemia (AML) [Japanese] (August 2018)

Macmillan Cancer Support

A translation of selected pages of the Macmillan Cancer Support booklet "Understanding acute myeloid leukaemia", including what it is, symptoms, treatment, self-care, financial support and follow-up.

Cover image of 'Understanding chronic lymphocytic leukaemia (CLL)'

Understanding chronic lymphocytic leukaemia (CLL) (June 2018)

Macmillan Cancer Support

This booklet answers questions about the causes, symptoms, diagnosis, staging, and treatment of chronic lymphocytic leukaemia. It also covers feelings, self-help, and practical and financial support. Includes details of useful organisations and resources.

Cover image of 'Aplastic anaemia. A guide for patients'

Aplastic anaemia. A guide for patients (October 2018)

Leukaemia Care

This booklet describes aplastic anaemia, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Chronic neutrophilic leukaemia (CNL). A guide for patients'

Chronic neutrophilic leukaemia (CNL). A guide for patients (September 2018)

Leukaemia Care

Chronic neutrophilic leukaemia (CNL) is an extremely rare cancer originating in the bone marrow. Being diagnosed with CNL can be a shock, particularly if you have never heard of it. This booklet has information about CNL: what causes it; who it affects; how it affects your body; symptoms; diagnosis; treatment options. Includes details of further support and information.

Cover image of 'Understanding acute lymphoblastic leukaemia (ALL)'

Understanding acute lymphoblastic leukaemia (ALL) (August 2018)

Macmillan Cancer Support

This booklet describes acute lymphoblastic leukaemia, its causes, symptoms, diagnosis, and treatment options. It also discusses issues such as feelings, talking to children, self-help, and practical and financial support. Includes details of useful organisations and other resources.

Cover image of 'Chronic myeloid leukaemia (CML). A guide for patients'

Chronic myeloid leukaemia (CML). A guide for patients (November 2018)

Leukaemia Care

Being told that you have chronic myeloid leukaemia (CML) can be a shock. This booklet describes CML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CML and talking about CML. Includes a glossary of terms and details of useful contacts and further support.    

Cover image of 'Adult acute myeloid leukaemia (AML). A guide for patients'

Adult acute myeloid leukaemia (AML). A guide for patients (March 2018)

Leukaemia Care

This booklet describes acute myeloid leukaemia (AML) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.

Cover image of 'Chronic myelomonocytic leukaemia (CMML). A guide for patients'

Chronic myelomonocytic leukaemia (CMML). A guide for patients (June 2018)

Leukaemia Care

Being diagnosed with chronic myelomonocytic leukaemia can be a shock (CMML). This booklet describes CMML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CMML and talking about CMML. Includes a glossary of terms and details of useful contacts and further support.  

Cover image of 'Chronic eosinophilic leukaemia (CEL). A guide for patients'

Chronic eosinophilic leukaemia (CEL). A guide for patients (September 2018)

Leukaemia Care

Being told that you have chronic eosinophilic leukaemia (CEL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes CEL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CEL and talking about CEL. Includes a glossary of terms and details of useful contacts and further support.  

Cover image of 'DA (Daunarubicin) and ARAc for acute myeloid leukaemia. A guide for patients'

DA (Daunarubicin) and ARAc for acute myeloid leukaemia. A guide for patients (December 2018)

Leukaemia Care

This booklet describes DA treatment, a combination of the drugs daunorubicin and cytarabine (Ara-C), used primarily as induction chemotherapy in patients with newly diagnosed acute myeloid meukaemia. It describes how DA is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'Adult acute lymphoblastic leukaemia (ALL). A guide for patients'

Adult acute lymphoblastic leukaemia (ALL). A guide for patients (October 2018)

Leukaemia Care

This booklet explains what acute lymphopblastic leukaemia (ALL) is, and describes the symptoms, diagnosis, and treatment options. It also covers everday life with ALL and how to talk to your haematologist, family and friends. 

Cover image of 'Common side effects of treatment. A guide for patients'

Common side effects of treatment. A guide for patients (October 2018)

Leukaemia Care

Cancer treatment can cause side-effects and sometimes these can be more difficult to manage than the illness itself. Some of these are common and experienced by many, some are much rarer and occur in very few patients. This booklet is designed to provide you with information about the common side-effects you may experience, what to expect and how they may be managed. It covers the following side effects: increased chance of infection; fatigue; hair loss; anaemia; gastrointestinal side-effects (nausea and vomiting, appetitie changes, constipation, diarrhoea); mouth changes; cognitive effects; pain and tingling; fertility; cardiac and lung toxicity; and secondary cancer risk. It also includes a glossary and details of useful contacts and further support.

Cover image of 'Childhood acute myeloid leukaemia (AML). A guide for parents'

Childhood acute myeloid leukaemia (AML). A guide for parents (April 2018)

Leukaemia Care

Being told that your child has acute myeloid leukaemia (AML) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood AML, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood AML and talking about childhood AML. Includes a glossary of terms and details of useful contacts and further support. 

Cover image of 'Hairy cell leukaemia. A guide for patients'

Hairy cell leukaemia. A guide for patients (April 2018)

Leukaemia Care

Hairy cell leukaemia (HCL) is a blood cancer that affects the lymphocytic (antibody producing) white blood cells produced by the bone marrow. This booklet describes what causes it, who it affects, how it affects your body, the symptoms and diagnosis, and treatment options. It also covers everyday life and HCL and talking about HCL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'Essential thrombocythaemia (ET). A guide for patients'

Essential thrombocythaemia (ET). A guide for patients (April 2018)

Leukaemia Care

Essential thrombocythaemia (ET) belongs to a group of conditions called myeloproliferative neoplasms (MPNs), which also includes polycythaemia vera and myelofibrosis. ET is a chronic condition that is characterised by too many platelets (blood cells that helps the blood clot) in the blood. This booklet explains what ET is, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments.

Cover image of 'ATRA and anthracycline based therapy for acute myeloid leukaemia (AML). A guide for patients'

ATRA and anthracycline based therapy for acute myeloid leukaemia (AML). A guide for patients (March 2018)

Leukaemia Care

All-trans retinoic acid (ATRA), known as Tretinoin (Vesanoid®) is the acid form of vitamin A, which is used with chemotherapy for induction of remission in patients with confirmed acute promyelocytic leukaemia (APL), a subtype of acute myeloid leukaemia. This booklet describes the use of ATRA along with the chemotherapy drugs idarubicin and mitoxantrone.

Cover image of 'The emotional impact of a blood cancer. A guide for patients'

The emotional impact of a blood cancer. A guide for patients (October 2018)

Leukaemia Care

This booklet describes some of the more challenging emotional responses you may experience as you adjust to life following a diagnosis of blood cancer. It must be noted that this information is mainly written in the context of acute leukaemia and is for those who are receiving intensive treatment. However, anyone with a blood cancer diagnosis may find this information useful.

Cover image of 'Chronic myeloid leukaemia (CML) TKIs and TFR. A guide for patients'

Chronic myeloid leukaemia (CML) TKIs and TFR. A guide for patients (September 2018)

Leukaemia Care

This booklet is written for patients with Philadelphiachromosome-positive (Ph+) CML. It explains what tyrokinase inhibitors are and how they work. It covers imatinib, nilotinib, dasatinib, bosutinib, ponatinib, including how they are given and possible side-effects.

Cover image of 'Future treatments in acute myeloid leukaemia (AML). A guide for patients'

Future treatments in acute myeloid leukaemia (AML). A guide for patients (October 2018)

Leukaemia Care

The main treatment for acute myeloid leukaemia (AML) is chemotherapy, including targeted therapy. This might be followed by a stem cell transplant, and surgery and radiotherapy may be used in special circumstances. New therapies are being developed and investigated and this booklet describes several of these: clofarabine (DNA synthesis inhibitor); gilteritinib and quizartinib (tyrosine kinase inhibitors); venetoclax (B-cell lymphoma-2 (BCL2) inhibitor); and Vyxeos® (a combination of daunorubicin and cytarabine. 

Cover image of 'Understanding acute myeloid leukaemia (AML)'

Understanding acute myeloid leukaemia (AML) (August 2018)

Macmillan Cancer Support

This booklet is about a type of leukaemia called acute myeloid leukaemia (AML). It is for anyone who has been diagnosed with AML, or who wants to know more about it. It also has information for carers, family members and friends. The booklet covers: what AML is; symptoms and how AML is diagnosed; how AML is treated; coping with AML.

Cover image of 'Blood transfusions'

Blood transfusions (February 2018)

Blood Cancer UK

A blood transfusion is a treatment where you receive blood that has been donated from someone else. The blood is usually given to you through a plastic tube into a vein in your arm. This factsheet explains the different types of blood transfusion used to treat people with blood cancer or a related condition, describes what happens when you have a transfusion and outlines the possible risks. 

Cover image of 'Understanding infection'

Understanding infection (May 2018)

Blood Cancer UK

If you have blood cancer or a related blood condition, you could be at greater risk of infection. This factsheet will help you understand infection and know what to do if you have an infection. It explains what infection is, what causes it, the different types and who is at risk, and describes the symptoms, treatments and how to reduce your risk.

Cover image of 'Managing sickness and vomiting'

Managing sickness and vomiting (September 2018)

Blood Cancer UK

Some blood cancers and treatments for blood cancer can make you feel sick and sometimes be sick (vomit). This factsheet will help you to understand why this can happen, what to do if it does happen, and the range of treatments that can help. 

Cover image of 'The unremarkable man. My encounter with cancer'

The unremarkable man. My encounter with cancer (2018)

Self-published using CreateSpace Independent Publishing Platform

In this, his first venture into the literary world, Terry Barry has succeeded in producing a distinctive, perceptive and truly heartwarming story about his battle with life-threatening illness and disease, drawing on medical records and diary entries and written in an engagingly immediate style, skilfully and sympathetically addressing the physical, psychological and emotional turmoil that affected him, his family and friends, prompting him to re-evaluate his recollection of past events and determining his aspirations and goals for the future (Publisher).

Cover image of 'A moment of grace. A story of love and loss'

A moment of grace. A story of love and loss (2018)

Ebury Press (Penguin Random House)

Patrick Dillon and Nicola Thorold were together for twenty-eight years. Patrick was an award-winning architect and writer and Nicola a leading figure in theatre, awarded an OBE for her contribution to the arts at London’s Roundhouse. Their two children were almost grown-up. Life was good. And then, in May 2015, Nicola was diagnosed with leukaemia. After several rounds of treatment, a bone marrow transplant and many waves of recovery and decline, she died thirteen months after her diagnosis. Six months later, at Christmas, Patrick started to write. A Moment of Grace is the searing, tender account of Patrick’s life with Nicola and her illness, and his life after her loss. But it is more than a story of illness and unbearable grief: it is a book of memory, of home, of family. It is a tale of the transfiguring power of love. Heartbreaking, life-affirming and truly unforgettable, A Moment of Grace is one man’s journey to find life after his wife’s death. (Publisher)

Cover image of 'Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant'

Ben's stem cell transplant. A children’s guide to donor (allogeneic) stem cell transplant (June 2017)

Children's Cancer and Leukaemia Group

This illustrated booklet is for children who need a stem cell transplant. Using the story of Ben it explains what stem cells are, what the treatment involves, what happens in hospital and going home.

Cover image of 'Understanding donor stem cell (allogeneic) transplants [Audio CD]'

Understanding donor stem cell (allogeneic) transplants [Audio CD] (February 2017)

Macmillan Cancer Support

This audiobook gives a wide range of information about allogeneic (donor) stem cell treatment. It includes a list of helpful organisations. 

Cover image of 'Joe has leukaemia [Welsh]'

Joe has leukaemia [Welsh] (March 2017)

CLIC Sargent

Joe is diagnosed with leukaemia in his first year at school. This illustrated, colour storybook describes what happens when Joe has to go into hospital for tests. The story follows Joe from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'All about leukaemia [Easy read] [Urdu]'

All about leukaemia [Easy read] [Urdu] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Bengali]'

All about leukaemia [Easy read] [Bengali] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Polish]'

All about leukaemia [Easy read] [Polish] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Welsh]'

All about leukaemia [Easy read] [Welsh] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Understanding chronic myeloid leukaemia'

Understanding chronic myeloid leukaemia (July 2017)

Macmillan Cancer Support

This booklet has detailed information about chronic myeloid leukaemia, its symptoms, diagnosis, and treatments. It also covers issues such as fertility and feelings, and includes details of useful organisations, and websites.

Cover image of 'All about leukaemia [Easy read] [Punjabi]'

All about leukaemia [Easy read] [Punjabi] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'All about leukaemia [Easy read] [Gujarati]'

All about leukaemia [Easy read] [Gujarati] (December 2017)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Joe has leukaemia'

Joe has leukaemia (March 2017)

CLIC Sargent

Joe is diagnosed with leukaemia in his first year at school. This illustrated, colour storybook describes what happens when Joe has to go into hospital for tests. The story follows Joe from first feeling ill, through diagnosis and treatment, to recovery and returning to normal life.

Cover image of 'Watch and wait: what you need to know'

Watch and wait: what you need to know (November 2017)

Blood Cancer UK

This fact sheet explains key things to know about the ‘watch and wait’ approach to treatment, such as why it may be recommended, how often appointments may be and where to get support. 

Cover image of 'Watch and wait explained: for family and friends'

Watch and wait explained: for family and friends (November 2017)

Blood Cancer UK

This factsheet explains watch and wait, suggests ways you can support a loved one on watch and wait, and highlights places you can go for advice and support.

Cover image of 'Watch and wait explained: for employers'

Watch and wait explained: for employers (November 2017)

Blood Cancer UK

This fact sheet explains ‘watch and wait’ for people with blood cancer and suggests ways that line managers, HR teams and occupational health professionals can support employees who are affected by it. 

Cover image of 'Monoclonal gammopathy of unknown significance (MGUS)'

Monoclonal gammopathy of unknown significance (MGUS) (July 2017)

Blood Cancer UK

Monoclonal gammopathy of undetermined significance (MGUS) is a condition that occurs when your plasma cells develop in an unusual way in your bone marrow. MGUS itself is generally a harmless blood condition, however a small number of people with MGUS go on to develop blood cancer. 

Cover image of 'Eating well with neutropenia'

Eating well with neutropenia (January 2017)

Blood Cancer UK

If you have blood cancer or a related blood condition you may develop neutropenia. This means it will be harder for your body to fight infections. Your healthcare team may suggest that you make some changes to your diet to try and lower your risk of getting an infection from your food. This is sometimes called a ‘neutropenic’ or ‘clean’ diet. This booklet provides general advice on safe food handling and storage for people at risk of neutropenia. It also lists some foods to avoid, and has suggestions for suitable snacks.

Cover image of 'Blood stem cell and bone marrow transplants. The seven steps'

Blood stem cell and bone marrow transplants. The seven steps (June 2017)

Blood Cancer UK

This is a booklet for people who are going to have a stem cell transplant, and for people who know someone who is going to have a stem cell transplant. The transplant process is described as a series of steps. 

Cover image of 'Naomi's story. Living with leukaemia'

Naomi's story. Living with leukaemia (2017)

Franklin Watts

This picture book uses the first-person testimony of Naomi, a 10-year-old girl with acute lymphoblastic leukaemia. Naomi explains what it was like to find out she had cancer, when she lost all her hair and what it was like spending so much time in hospital. The intimate and direct impact of using Naomi’s real first-person testimony encourages children to empathise with her situation, and to understand how some children’s lives are very different from their own. Naomi talks about school, family, friends and explains the confusion and chaos caused by cancer. This BAFTA award-winning story was originally produced as an animation for the BBC. Aimed at children aged 9 and up. (Publisher)

Cover image of 'Lucy and the good soldiers. A small person's guide to transplant'

Lucy and the good soldiers. A small person's guide to transplant (August 2016)

Anthony Nolan

Lucy's dad is diagnosed with leukaemia and has a stem cell transplant. Lucy tells you all about it in this colourful, illustrated booklet. 

Cover image of 'Nutrition information and advice and neutropenic diets'

Nutrition information and advice and neutropenic diets (April 2016)

MDS UK

Guidelines and tips to help people with myelodysplastic syndrome eat healthily.

Cover image of 'Acute myeloid leukaemia (AML)'

Acute myeloid leukaemia (AML) (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute myeloid leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'Acute lymphoblastic leukaemia (ALL)'

Acute lymphoblastic leukaemia (ALL) (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what acute lymphoblastic leukaemia is, and describes the signs, symptoms, tests and treatment options.

Cover image of 'We beat leukaemia. My family's journey with childhood cancer'

We beat leukaemia. My family's journey with childhood cancer (2015)

Self-published using I_AM Self-Publishing

My son Andrew was only three years old when he was diagnosed with Leukaemia. Now he’s a healthy, happy six-year-old. We Beat Leukemia is my honest account of chemo, childhood and being a mummy to cancer – written over 1235 days from diagnosis to remission. I started writing daily posts to record the highs and lows, frustrations and elations of his childhood cancer treatment. My posts and photos form this book. I’m sharing my family’s experience to raise awareness of childhood cancer (and the UK charities who can offer so much), but also to offer support to families facing the challenges that any child cancer diagnosis brings. I hope to make a difference in the cancer community. (Publisher)

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