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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 96

Cover image of 'Venetoclax'

Venetoclax (February 2020)

Lymphoma Action

Venetoclax is a targeted drug used in the treatment of certain types of low-grade (slow-growing) lymphoma. This factsheet explains what it is, who can have it, how it is given, the benefits and possible side effects.

Cover image of 'Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL)'

Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) (February 2020)

Lymphoma Action

Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) are different forms of the same disease and are treated in the same way. CLL is used to refer to both forms of disease, except where there are important differences. This factsheet descrives what CLL is, who gets it, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapse, research and targeted treatments, transformation, and living with CLL 

Cover image of 'Hydroxycarbamide (Hydrea®) [Bulgarian]'

Hydroxycarbamide (Hydrea®) [Bulgarian] (2020)

Macmillan Cancer Support

Hydroxycarbamide (also known as hydroxyurea) is used to treat chronic myeloid leukaemia, cervical cancer, and some pre-cancerous conditions. This factsheet describes how it is given and the possible side-effects.

Cover image of 'Acute promyelocytic leukaemia (APL). A guide for patients'

Acute promyelocytic leukaemia (APL). A guide for patients (January 2020)

Leukaemia Care

Acute promyelocytic leukaemia (APL) is a rare sub-type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, and treatment options. It also covers practical issues of living with APL and how to talk to your haematologist, family and friends.

Cover image of 'Allogeneic stem cell transplants. A guide for patients'

Allogeneic stem cell transplants. A guide for patients (January 2020)

Leukaemia Care

This booklet explains what an allogeneic stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support.

Cover image of 'Understanding stem cell transplants using your own cells (autologous)'

Understanding stem cell transplants using your own cells (autologous) (January 2020)

Macmillan Cancer Support

This booklet is about having a stem cell transplant using your own cells. It is for anyone who is going to have this treatment and there is also information for carers, family members and friends. The booklet explains what an autologous stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients'

FLAG-Ida for acute myeloid leukaemia (AML). A guide for patients (January 2020)

Leukaemia Care

FLAG-Ida is a combination chemotherapy regimen used in the treatment of acute myeloid leukaemia (AML). It consists of fludarabine, high dose cytarabine (Ara-C0), idarubicin and granulocyte-colony stimulating factor (G-CSF). This booklet explains the drugs, who may be eligible to receive this treatment, how FLAG-Ida is given, and the possible side-effects. Includes a glossary and details of further support and information.

Cover image of 'Understanding stem cell transplants using donor cells (allogeneic)'

Understanding stem cell transplants using donor cells (allogeneic) (January 2020)

Macmillan Cancer Support

This booklet is for anyone who is going to have a donor stem cell transplant.There is also information for carers, family members and friends. The booklet explains what a donor stem cell transplant is, the different stages of treatment, and the possible side effects. It also has information about emotional, practical and financial issues. 

Cover image of 'Non-Hodgkin lymphoma'

Non-Hodgkin lymphoma (April 2019)

Lymphoma Action

An overview of non-Hodgkin lymphoma (NHL), including: What is non-Hodgkin lymphoma?; Who gets non-Hodgkin lymphoma?; Types of non-Hodgkin lymphoma. 

Cover image of 'The next stage. Recovery and adjustment'

The next stage. Recovery and adjustment (June 2019)

Leukaemia Care

This booklet is for people adjusting to life after diagnosis and treatment of a blood cancer.

Cover image of 'Clinical trials in MDS. Information for patients and family members'

Clinical trials in MDS. Information for patients and family members (February 2019)

MDS UK

This factsheet explains clinical trials, and has details of trials currently open to people with myelodysplastic syndrome.

Cover image of 'Caring for carers. A guide for carers'

Caring for carers. A guide for carers (June 2019)

Leukaemia Care

This booklet for carers discusses the emotions that they may experience when caring for someone with a blood cancer: anxiety; stress; guilt; fear; loneliness; anger. It also looks at dealing with the practicalities of being a carer, including financial support, self employment and legal rights at work.

Cover image of 'A-Z of leukaemia. A guide for patients'

A-Z of leukaemia. A guide for patients (September 2019)

Leukaemia Care

This booklet helps to define some of the terms that people may come across when they are diagnosed and treated for a blood cancer. 

Cover image of 'Chronic lymphocytic leukaemia (CLL). A guide for patients'

Chronic lymphocytic leukaemia (CLL). A guide for patients (October 2019)

Leukaemia Care

Being told that you have chronic lymphocytic leukaemia (CLL) can be a shock. This booklet describes CLL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CLL and talking about CLL. Includes a glossary of terms and details of useful contacts and further support.   

Cover image of 'Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients'

Adult-T-cell-leukaemia/lymphoma (ATL). A guide for patients (October 2019)

Leukaemia Care

This booklet describes T-cell-leukaemia/lymphoma (ATL) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with ATL and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'CAR-T therapy. A guide for patients'

CAR-T therapy. A guide for patients (October 2019)

Leukaemia Care

Chimeric antigen receptor T-cell (CAR-T) therapy is a new type of cancer treatment that may be used to treat B-cell acute lymphoblastic leukaemia and diffuse large B-cell lymphoma (DLBCL). This booklet explains how CAR-T therapy works and who may currently receive it, and describes the possible side-effects. It also discusses the likely future for CAR-T therapy and the clinical trials currently taking place in the UK. It includes a glossary of terms and details of further information and support.

Cover image of 'Autologous stem cell transplants. A guide for patients'

Autologous stem cell transplants. A guide for patients (December 2019)

Leukaemia Care

This booklet explains what an autologous stem cell transplant is and who receives one. It describes the procedure and what happens on transplant day, the side effects, graft-versus-host dsease, and what happens if the transplant doesn’t work. It also has a glossary and details of useful contacts and further support. 

Cover image of 'Acute megakaryoblastic leukaemia (AMKL). A guide for patients'

Acute megakaryoblastic leukaemia (AMKL). A guide for patients (March 2019)

Leukaemia Care

Acute megakaryoblastic leukaemia (AMKL) is a rare subtype of acute myeloid leukaemia (AML). It is more common in children than in adults. In children with Down syndrome, AMKL is the most common type of AML. This booklet explains what it is, the signs and symptoms, how it is diagnosed and the treatment options. Includes a glossary and details of support.

Cover image of 'Atypical chronic myeloid leukaemia (aCML). A guide for patients'

Atypical chronic myeloid leukaemia (aCML). A guide for patients (July 2019)

Leukaemia Care

This booklet describes atypical chronic myeloid leukaemia (aCML), what causes it, who it affects, what symptoms to expect, and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.  

Cover image of 'Acute myelomonocytic leukaemia (AMML). A guide for patients'

Acute myelomonocytic leukaemia (AMML). A guide for patients (October 2019)

Leukaemia Care

Acute myelomonocytic leukaemia (AMML) is a rare type of acute myeloid leukaemia (AML). This booklet explains it what it is, and describes the symptoms, diagnosis, prognosis, and treatment options. It also covers issues such as telling your family, managing your emotions, and survivorship. Includes a glossary and sources of support.

Cover image of 'B-cell acute lymphoblastic leukaemia (ALL). A guide for patients'

B-cell acute lymphoblastic leukaemia (ALL). A guide for patients (May 2019)

Leukaemia Care

This booklet explains what B-cell acute lymphoblastic leukaemia is, and describes the causes, who it affects, the symptoms and side-effects and treatment options. It also covers issues such as day-to-day life with B-cell acute lymphoblastic leukaemia, managing your emotions, telling family and friends, survivorship, palliative care, and end-of-life care.

Cover image of 'All about leukaemia [Easy read]'

All about leukaemia [Easy read] (September 2019)

Leukaemia Care

This booklet explains what leukaemia is, what tests you might have, and the different treatments you might get.

Cover image of 'Azacitidine for acute myeloid leukaemia (AML). A guide for patients'

Azacitidine for acute myeloid leukaemia (AML). A guide for patients (June 2019)

Leukaemia Care

Azacitidine is a chemotherapy drug used for the treatment of adult patients with acute myeloid leukaemia, high risk myelodysplastic syndrome or chronic myelomonocytic leukaemia who are not eligible for stem cell transplant. This booklet is for patients, family or friends of the patient, or a carer who like to know more about this drug. It describes what azacitidine is, how it is given, and the possible side-effects. It also has details of useful information and support.

Cover image of 'Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients'

Blastic plasmacytoid dendritic cell neoplasm (BPDCN). A guide for patients (September 2019)

Leukaemia Care

Blastic plasmacytoid dendritic cell neoplasm (BPDCN) is a rare cancer of the bone marrow. It was previously known as natural killer (NK) cell leukaemia. This booklet explains what it is, and describes the causes, who it affects, what symptoms to expect, how it is diagnosed, and treatment options. It also covers everyday life, managing your emotions, how to talk to your doctor and family and friends, survivorship, palliative care, and end-of-life care. Includes a glossary and details of further support.  

Cover image of 'Childhood acute lymphoblastic leukaemia (ALL). A guide for parents'

Childhood acute lymphoblastic leukaemia (ALL). A guide for parents (March 2019)

Leukaemia Care

Being told that your child has acute lymphoblastic leukaemia (ALL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes childhood ALL, what causes it, who it affects, how it affects your child’s body, what symptoms to expect and likely treatments. It also covers everyday life and childhood ALL and talking about childhood ALL. Includes a glossary of terms and details of useful contacts and further support.

Cover image of 'Donating stem cells'

Donating stem cells (July 2019)

Blood Cancer UK

This factsheet is for people who may be chosen to donate stem cells to someone else. It explains how stem cell transplants can help people with blood cancer, and what happens when you donate stem cells. 

Cover image of 'CAR-T therapy'

CAR-T therapy (August 2019)

Blood Cancer UK

CAR-T therapy is a new type of cancer treatment that uses the immune system to kill cancer cells. This factsheet describes what it is, how it is given, who can have it, and its safety and effectiveness.

Cover image of 'Myelodysplastic syndromes (MDS)'

Myelodysplastic syndromes (MDS) (March 2019)

Blood Cancer UK

This booklet has been written to help you understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It will also provide information on coping with the emotional impact of an MDS diagnosis.

Cover image of 'Chronic lymphocytic leukaemia (CLL)'

Chronic lymphocytic leukaemia (CLL) (July 2019)

Blood Cancer UK

This booklet explains what chronic lymphocytic leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.

Cover image of 'Sore mouth or gut (mucositis)'

Sore mouth or gut (mucositis) (December 2019)

Blood Cancer UK

Mucositis is a condition that affects your mucous membrane, the thin skin that covers and protects the inside surface of parts of your body. It can be a painful side effect of chemotherapy or radiotherapy. This factsheet explains how it is caused and who gets it, and describes the signs and symptoms, and how to look after yourself.

Cover image of 'Acute myeloid leukaemia (AML)'

Acute myeloid leukaemia (AML) (January 2019)

Blood Cancer UK

This booklet explains what acute myeloid leukaemia is, and describes the causes and the symptoms, and how it is diagnosed and treated.

Cover image of 'Chronic myeloid leukaemia (CML)'

Chronic myeloid leukaemia (CML) (January 2019)

Blood Cancer UK

This booklet explains what chronic myeloid leukaemia is, and describes what causes it, the signs and symptoms, and how it is diagnosed and treated.

Cover image of 'Acute promyelocytic leukaemia (APL)'

Acute promyelocytic leukaemia (APL) (November 2019)

Blood Cancer UK

Acute promyelocytic leukaemia (APL) is a form of cancer affecting the stem cells that produce myeloid blood cells in the bone marrow. This booklet explains who gets APL and what causes it, and describes the signs and symptoms, the diagnosis, the two types of APL, the treatment options (including the long-term effects of treatment) and the prognosis.

Cover image of 'Acute lymphoblastic leukaemia (ALL)'

Acute lymphoblastic leukaemia (ALL) (February 2019)

Blood Cancer UK

This booklet explains what acute lymphoblastic leukaemia is and describes the causes and symptoms, and how it is diagnosed and treated.

Cover image of 'Myeloproliferative neoplasms'

Myeloproliferative neoplasms (January 2019)

Blood Cancer UK

This booklet describes the myeloproliferative disorders - a group of diseases that shares some common features. It covers polycythaemia vera, essential thrombocythaemia, and myelofibrosis, with information on causes, signs and symptoms, diagnosis, and treatment.

Cover image of 'A story about cancer (with a happy ending)'

A story about cancer (with a happy ending) (2019)

Frances Lincoln Children’s Books

A teenage girl heads towards the hospital waiting room where the doctors are going to tell her how much time she's got to live. As she walks, she thinks about her journey up to this point… the terrible decor in the hospital, wearing a headscarf, the horrible treatments, but also being with her friends, family, and her new boyfriend Victor. This is a story about cancer with a happy ending. It's about life, love, and especially, hope. (Publisher) 

Cover image of 'Hairy cell leukaemia (HCL)'

Hairy cell leukaemia (HCL) (April 2018)

Lymphoma Action

This factsheet about hairy cell leukaemia covers: What is hairy cell leukaemia?; Who gets hairy cell leukaemia and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Follow-up; Relapse; Research and targeted treatments; Hairy cell leukaemia (HCL) variant.

Cover image of 'Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL)'

Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) (November 2018)

Lymphoma Action

Chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) are different forms of the same disease. They are treated in the same way. CLL is used to refer to both forms in this booklet, except where there are important differences and SLL is discussed separately. This booklet explains what CLL is, how it is diagnosed and treated, and has tips on living with CLL. 

Cover image of 'Jess's bone marrow donation. A children's guide to bone marrow donation'

Jess's bone marrow donation. A children's guide to bone marrow donation (January 2018)

Children's Cancer and Leukaemia Group

A colourful booklet for young children who are preparing to donate bone marrow. It explains what bone marrow is and describes what happens to Jess in hospital before, during and after the operation and when she goes home.

Cover image of 'Understanding chronic lymphocytic leukaemia (CLL) [Polish]'

Understanding chronic lymphocytic leukaemia (CLL) [Polish] (May 2018)

Macmillan Cancer Support

Polish translation of selected pages from the booklet.

Cover image of 'Acute myeloid leukaemia (AML) [Polish]'

Acute myeloid leukaemia (AML) [Polish] (August 2018)

Macmillan Cancer Support

A translation of selected pages of the Macmillan Cancer Support booklet "Understanding acute myeloid leukaemia", including what it is  diagnosis, treatment overview, giving consent, chemotherapy.

Cover image of 'Acute myeloid leukaemia (AML) [Japanese]'

Acute myeloid leukaemia (AML) [Japanese] (August 2018)

Macmillan Cancer Support

A translation of selected pages of the Macmillan Cancer Support booklet "Understanding acute myeloid leukaemia", including what it is, symptoms, treatment, self-care, financial support and follow-up.

Cover image of 'Understanding chronic lymphocytic leukaemia (CLL)'

Understanding chronic lymphocytic leukaemia (CLL) (June 2018)

Macmillan Cancer Support

This booklet answers questions about the causes, symptoms, diagnosis, staging, and treatment of chronic lymphocytic leukaemia. It also covers feelings, self-help, and practical and financial support. Includes details of useful organisations and resources.

Cover image of 'Aplastic anaemia. A guide for patients'

Aplastic anaemia. A guide for patients (October 2018)

Leukaemia Care

This booklet describes aplastic anaemia, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support. 

Cover image of 'Chronic neutrophilic leukaemia (CNL). A guide for patients'

Chronic neutrophilic leukaemia (CNL). A guide for patients (September 2018)

Leukaemia Care

Chronic neutrophilic leukaemia (CNL) is an extremely rare cancer originating in the bone marrow. Being diagnosed with CNL can be a shock, particularly if you have never heard of it. This booklet has information about CNL: what causes it; who it affects; how it affects your body; symptoms; diagnosis; treatment options. Includes details of further support and information.

Cover image of 'Understanding acute lymphoblastic leukaemia (ALL)'

Understanding acute lymphoblastic leukaemia (ALL) (August 2018)

Macmillan Cancer Support

This booklet describes acute lymphoblastic leukaemia, its causes, symptoms, diagnosis, and treatment options. It also discusses issues such as feelings, talking to children, self-help, and practical and financial support. Includes details of useful organisations and other resources.

Cover image of 'Chronic myeloid leukaemia (CML). A guide for patients'

Chronic myeloid leukaemia (CML). A guide for patients (November 2018)

Leukaemia Care

Being told that you have chronic myeloid leukaemia (CML) can be a shock. This booklet describes CML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CML and talking about CML. Includes a glossary of terms and details of useful contacts and further support.    

Cover image of 'Adult acute myeloid leukaemia (AML). A guide for patients'

Adult acute myeloid leukaemia (AML). A guide for patients (March 2018)

Leukaemia Care

This booklet describes acute myeloid leukaemia (AML) in adults, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life with AML and how to talk to your haematologist and family and friends. Includes a glossary and details of further support.

Cover image of 'Chronic myelomonocytic leukaemia (CMML). A guide for patients'

Chronic myelomonocytic leukaemia (CMML). A guide for patients (June 2018)

Leukaemia Care

Being diagnosed with chronic myelomonocytic leukaemia can be a shock (CMML). This booklet describes CMML, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CMML and talking about CMML. Includes a glossary of terms and details of useful contacts and further support.  

Cover image of 'Chronic eosinophilic leukaemia (CEL). A guide for patients'

Chronic eosinophilic leukaemia (CEL). A guide for patients (September 2018)

Leukaemia Care

Being told that you have chronic eosinophilic leukaemia (CEL) can be a shock and very upsetting, particularly when you may never have heard of the disease. This booklet describes CEL, what causes it, who it affects, how it affects your body, what symptoms to expect and likely treatments. It also covers everyday life and CEL and talking about CEL. Includes a glossary of terms and details of useful contacts and further support.  

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