The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.
Please enter a word or phrase into the search box to find relevant materials. If you want to search for a phrase, please use quotes, eg “Macmillan Cancer Support”, “Breast cancer”. If you have any questions about the web directory please contact Sue Hawkins email@example.com
Jones and Bartlett Publishers
Newly revised and updated, "100 questions & answers about myelodysplastic syndromes" provides authoritative and practical answers to the most common questions asked by patients and their loved ones. What is myelodysplastic syndromes (MDS)? What causes MDS? Is MDS hereditary, and will I give it to my children? Written by experts in the field, and with commentary from actual patients, this guide is the only text available to provide both the doctor's and patient's views. It is an invaluable resource for anyone struggling with the medical, physical, and emotional turmoil of this disease. (Publisher)
Special Stories Publishing
Illustrated story about Harry who is five years old and having treatment for leukaemia. The book has been designed to help children with leukaemia (or other forms of cancer) to prepare for treatment, namely chemotherapy and a stay in hospital.
Marion Lloyd Books (Scholastic Ltd)
My name is Sam. I am eleven years old. I collect stories and fantastic facts. By the time you read this, I will probably be dead. Sam loves facts. He wants to know about UFOs and horror movies and airships and ghosts and scientists, and how it feels to kiss a girl. And because he has leukaemia he wants to know the facts about dying. Sam needs answers to the questions nobody will answer. WAYS TO LIVE FOREVER is the award-winning novel from an extraordinarily talented young writer. Funny and honest, it is one of the most powerful and uplifting books you will ever read. (Publisher)
Definitions (Random House)
Tessa has just a few months to live. Fighting back against hospital visits, endless tests, drugs with excruciating side-effects, Tessa compiles a list. It's her To Do Before I Die list. And number one is sex. Released from the constraints of 'normal' life, Tessa tastes new experiences to make her feel alive while her failing body struggles to keep up. Tessa's feelings, her relationships with her father and brother, her estranged mother, her best friend, her new boyfriend, all are painfully crystallized in the precious weeks before Tessa's time finally runs out. BEFORE I DIE is a brilliantly-crafted novel, heartbreaking yet astonishingly life-affirming. It will take you to the very edge. (Publisher)
Colin Mudford is on a quest. His brother Luke has cancer and the doctors in Australia don't seem able to cure him. Sent to London to stay with his Aunty Iris, Colin reckons it's up to him to find the best doctor in the world - and he starts by asking none other than the Queen to help... (This edition aimed at children 8-12 years old, there is another edition for younger children.) (Publisher) Also available as an audiotape.
MDS UK|Leukaemia Care|Bloodwise
This booklet has been written to help people understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It also provides information on coping with the emotional impact of an MDS diagnosis.