Publications directory

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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 1749

Cover image of 'Nivolumab (OPDIVO®)  [Polish]'

Nivolumab (OPDIVO®) [Polish] (January 2020)

Macmillan Cancer Support

Nivolumab (OPDIVO®) is a targeted therapy drug used to treat melanoma, non-small cell lung cancer or kidney (renal cell) cancer. 

Cover image of 'Clinical trials'

Clinical trials (January 2019)

Kidney Cancer UK

Factsheet with information about clinical trials. It describes the different phases of trials, who conducts trials and where they take place and has advice about deciding whether to participate.

Cover image of 'Kidney cancer [Polish]'

Kidney cancer [Polish] (August 2018)

Macmillan Cancer Support

Polish translation of selected pages from the Macmillan booklet "Understanding kidney cancer" (MAC11629_E10_N)

Cover image of 'Understanding kidney cancer'

Understanding kidney cancer (August 2018)

Macmillan Cancer Support

This booklet is about a type of kidney cancer called renal cell cancer. It is for anyone who has been diagnosed with kidney cancer, or is having tests for it. There is also information for carers, family members and friends. The booklet explains how renal cell cancer is diagnosed and treated. The booklet also talks about your feelings when you are diagnosed with cancer. You can find practical advice on dealing with work and finances towards the end of the booklet.

Cover image of 'Have you seen blood in your pee, even once? Then it is time to tell your doctor [Easy read]'

Have you seen blood in your pee, even once? Then it is time to tell your doctor [Easy read] (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'If you notice blood in your pee, even if it's 'just the once', tell your doctor [Large print]'

If you notice blood in your pee, even if it's 'just the once', tell your doctor [Large print] (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'If you notice blood in your pee, even if it's 'just the once', tell your doctor'

If you notice blood in your pee, even if it's 'just the once', tell your doctor (2018)

Public Health England

Leaflet aimed at alerting general public to symptoms of bladder and kidney cancer and encouraging people to go to the doctor if they have blood in their urine.

Cover image of 'Understanding kidney cancer'

Understanding kidney cancer (April 2017)

Kidney Cancer UK

This booklet has information about kidney cancer, including the symptoms, diagnosis, staging and grading, and the treatment options. It also briefly discusses life with kidney cancer, including feelings, day-to-day living, money, and support. Includes sources of further information and a glossary.

Cover image of 'My child has a kidney tumour. Information and support for parents'

My child has a kidney tumour. Information and support for parents (August 2016)

Children's Cancer and Leukaemia Group

This booklet provides general information about kidney cancer (renal tumours) that occur in children.

Cover image of 'Kidney. The health of a single kidney after childhood cancer treatment'

Kidney. The health of a single kidney after childhood cancer treatment (January 2016)

Children's Cancer and Leukaemia Group

Information about the health of a single kidney after treatment for childhood cancer. Written to accompany the CCLG booklet "Aftercure: A guide for teenage and young adult survivors of childhood cancer".

Cover image of 'My child's Wilms' tumour has come back'

My child's Wilms' tumour has come back (August 2016)

Children's Cancer and Leukaemia Group

This factsheet is for parents of a child whose Wilms' tumour has come back (relapsed). It discusses the different treatment options that may be available.

Cover image of 'Wilms' tumour'

Wilms' tumour (September 2016)

Children's Cancer and Leukaemia Group

Written to accompany 'Children and young people with cancer: A parent's guide', this factsheet explains what Wilm's tumour is, and describes the signs and symptoms, tests and treatment options.

Cover image of 'Radiotherapy after breast surgery. A guide for patients and their families'

Radiotherapy after breast surgery. A guide for patients and their families (February 2020)

Christie Hospital NHS Trust

This booklet explains what radiotherapy is, when it will begin, in-patient and outpatient treatment, how treatment is planned, what happens during treatment, possible side-effects, and what happens when treatment ends. It also has sources of further information and support.

Cover image of 'My brother or sister has cancer. A children's guide to coping with cancer'

My brother or sister has cancer. A children's guide to coping with cancer (May 2020)

Children's Cancer and Leukaemia Group

This illustrated booklet tells the story of siblings Tom and Jess, whose little brother Ben has cancer. It describes how they cope with the illness and the changes it brings. It is aimed at children under nine.

Cover image of 'COVID-19 (coronavirus)'

COVID-19 (coronavirus) (March 2020)

Lymphoedema Support Network

Guidance for people with lymphoedema.

Cover image of 'Prostate cancer information booklet'

Prostate cancer information booklet (January 2020)

PCaSO Prostate Cancer Support Network

This booklet covers diagnosis (including the DRE and the PSA test), the Gleason score and the staging of prostate cancer, treatment options (active surveillance, watchful waiting, radical prostatectomy, external beam radiotherapy, brachytherapy, cryotherapy, high intensity focused ultrasound, hormone treatment, chemotherapy and photodynamic therapy), clinical trials, side effects (sexual problems, continence, bone health), and diet and lifestyle.

Cover image of 'Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients'

Laparoscopic fundoplication anti-reflux surgery. (Keyhole surgery to relieve chronic heartburn). Information for patients (2020)

The Oesophageal Patients Association

This leaflet explains what laparoscopic fundoplication anti-reflux surgery is and why it might be needed. It describes what happens before, during and after surgery, possible side-effects, and follow up.

Cover image of 'Diet and pancreatic cancer'

Diet and pancreatic cancer (January 2020)

Pancreatic Cancer UK

This booklet explains how pancreatic cancer can cause problems with diet, eating and nutrition. It has information on how to manage these problems, including how to take pancreatic enzyme replacement therapy. 

Cover image of 'Breast cancer in younger women'

Breast cancer in younger women (March 2020)

Breast Cancer Now

This booklet explores the feelings and experiences of younger women diagnosed with breast cancer, covering topics such as treatment, physical effects, relationships, finding support, and practical issues. Individual women share their thoughts and experiences.

Cover image of 'What is lymphoma?'

What is lymphoma? (March 2020)

Lymphoma Action

An overview of how cancer develops and what lymphoma is. 

Cover image of 'How to check your lymph nodes'

How to check your lymph nodes (November 2020)

British Association of Dermatologists

This factsheet aims to help you to understand more about checking your lymph nodes yourself. It explains what lymph nodes are, why you should check them, how often you should perform a check, and how to check them.

Cover image of 'Human papillomavirus (HPV)'

Human papillomavirus (HPV) (March 2020)

Jo's Cervical Cancer Trust

This booklet explains what HPV (human papillomavirus) is and the link with cervical cancer. It describes how HPV is transmitted, how to reduce the risk, and testing for HPV.

Cover image of 'Diet and breast cancer'

Diet and breast cancer (January 2020)

Breast Cancer Now

A booklet for people having treatment for, or recovering from, breast cancer. It explains what is meant by a healthy diet and what to do if the effects of treatment cause problems such as changes in appetite or taste, nausea, sore mouth, constipation or diarrhoea. It also covers weight gain, weight loss, bone health, dietary supplements, phyto-oestrogens, alcohol, and complementary and alternative diets such as the Bristol diet, dairy-free diets and macrobiotics.

Cover image of 'Inflammatory breast cancer'

Inflammatory breast cancer (February 2020)

Breast Cancer Now

This factsheet describes inflammatory breast cancer, the signs and symptoms, how a diagnosis is made, treatment options and coping with the condition.

Cover image of 'Planning for your funeral'

Planning for your funeral (February 2020)

Age UK

This factsheet highlights things to consider if you want to plan ahead and make financial and other arrangements for your funeral. It looks at options when deciding what type of funeral you want, ways to pay for a funeral, and information about organ donation. It may be helpful for people arranging a funeral. 

Cover image of 'Human papillomavirus (HPV). The facts'

Human papillomavirus (HPV). The facts (March 2020)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about HPV, high risk HPV and cervical cancer, contracting high risk HPV and how to reduce your risk. It also describes the services that Jo's Cervical Cancer Trust offers to anyone concerned about HPV, cervical screening, cervical abnormalities and cervical cancer.

Cover image of 'Surgery [Welsh]'

Surgery [Welsh] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery'

Surgery (January 2020)

Macmillan Cancer Support

This factsheet explains why surgery may be used to treat cancer. It describes how the surgery is carried out, what happens before and after an operation, and the possible long-term complications, such as lymphoedema.

Cover image of 'Dying to be heard'

Dying to be heard (2020)

Hospice UK|Dying Matters

Guidance on how to be a good listener if someone wants to talk about death.

Cover image of 'HPV vaccine'

HPV vaccine (March 2020)

Jo's Cervical Cancer Trust

This booklet describes HPV (human papillomavirus) and how the vaccine works. It explains where girls can get the vaccine, how effective it is and the possible side effects.

Cover image of 'Goserelin (Zoladex)'

Goserelin (Zoladex) (July 2020)

Breast Cancer Now

This leaflet explains briefly what goserelin (Zoladex®) is, when it may be prescribed, how it works, and the possible side-effects.

Cover image of 'Help with health costs'

Help with health costs (August 2020)

Age UK

Most NHS services are free but there are charges for prescriptions, dental treatment, sight tests, glasses and contact lenses and wigs and fabric supports. This factsheet explains how the NHS Low Income Scheme helps people on a low income with charges and the cost of travelling to receive NHS treatment. The factsheet explains what you are entitled to if you: are aged 60 and over; receive Pension Credit Guarantee Credit.

Cover image of 'Surgery [Russian]'

Surgery [Russian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Know your breasts. A quick guide to being breast aware [Chinese, Cantonese]'

Know your breasts. A quick guide to being breast aware [Chinese, Cantonese] (January 2020)

Breast Cancer Now

This leaflet uses illustrations to show women how to check their breasts and the changes to look for.

Cover image of 'Bereavement. Sources of help and support'

Bereavement. Sources of help and support (August 2020)

Children's Cancer and Leukaemia Group

Sources of support for families who have lost a child from cancer. Includes details of organisations, bereavement centres, books for parents, and books for children.

Cover image of 'Surgery [Romanian]'

Surgery [Romanian] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'Cervical screening (smear test)'

Cervical screening (smear test) (March 2020)

Jo's Cervical Cancer Trust

This booklet explains what cervical screening is, who is eligible, the test itself, and what happens if the result is abnormal.

Cover image of 'Docetaxel (Taxotere)'

Docetaxel (Taxotere) (October 2020)

Breast Cancer Now

This factsheet explains briefly what Taxotere® is, when it may be prescribed, how it works, the benefits, and possible side-effects.

Cover image of 'Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers'

Caring for colostomates. A practical guide for staff in nursing and residential homes and for home carers (March 2020)

Colostomy UK

This booklet is for anyone responsible for caring for someone with a stoma. It briefly describes what a stoma is and why people have stoma surgery, then covers the practical aspects of caring for someone with a stoma. This includes everything from ordering medical supplies and disposing of waste, to diet, changing a stoma bag and recognising some of the common problems, such as sore skin. It also considers the concerns that people with stomas have and how these can impact on their physical and mental wellbeing. 

Cover image of 'Surgery [Urdu]'

Surgery [Urdu] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English-language version.

Cover image of 'A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma'

A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma (September 2020)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. We hope it answers some of your questions and helps you to cope with some of the feelings you may have. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Surgery [Polish]'

Surgery [Polish] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Your guide to cervical cancer'

Your guide to cervical cancer (March 2020)

Jo's Cervical Cancer Trust

A guide for women who have recently been diagnosed with cervical cancer, and those who care about them.  

Cover image of 'Surgery [Portuguese]'

Surgery [Portuguese] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Bengali]'

Surgery [Bengali] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

Cover image of 'Surgery [Punjabi]'

Surgery [Punjabi] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes the English language version.

Cover image of 'Surgery [Chinese, Traditional]'

Surgery [Chinese, Traditional] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Arabic]'

Surgery [Arabic] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English-language version.

Cover image of 'Surgery [Gujarati]'

Surgery [Gujarati] (January 2020)

Macmillan Cancer Support

This factsheet explains what cancer is, why surgery might be used to treat it, and how the surgery is carried out. It also describes what to expect before and after the operation, and the possible longer-term complications. Includes English language version.

Cover image of 'Cervical screening (a smear test). The facts'

Cervical screening (a smear test). The facts (March 2020)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about cervical screening. It also describes briefly what happens during cervical screening and who is invited for screening, and has tips for coping if you are nervous or worried.

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