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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 506

Cover image of 'A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma'

A parent's guide to neuroblastoma. Information and support for when your child is diagnosed with a type of cancer called neuroblastoma (September 2020)

Children's Cancer and Leukaemia Group|Neuroblastoma UK

This booklet is for parents and carers of a child who has been diagnosed with neuroblastoma. We hope it answers some of your questions and helps you to cope with some of the feelings you may have. There is information about neuroblastoma, the treatments that are used and their possible side effects. It also discusses how a cancer diagnosis can affect you, your child and the rest of the family.

Cover image of 'Hereditary phaeochromocytomas and paranganglioma syndromes [PPGL syndromes]'

Hereditary phaeochromocytomas and paranganglioma syndromes [PPGL syndromes] (August 2020)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

PPGL syndromes are conditions that may cause tumours called paraganglioma or phaeochromocytoma. This booklet describes their diagnosis and treatment and also covers issues such as genetic testing and emotional wellbeing.

Cover image of 'Cervical screening (a smear test). The facts'

Cervical screening (a smear test). The facts (March 2020)

Jo's Cervical Cancer Trust

Credit-card leaflet with facts about cervical screening. It also describes briefly what happens during cervical screening and who is invited for screening, and has tips for coping if you are nervous or worried.

Cover image of 'Spot cervical cancer early'

Spot cervical cancer early (May 2020)

Cancer Research UK

This leaflet contains information about how cervical screening can detect early changes in the cervix before they develop into cancer. It also provides information about factors affecting the risk of cervical cancer.

Cover image of 'Your urgent referral explained [Welsh]'

Your urgent referral explained [Welsh] (June 2020)

Cancer Research UK

This leaflet helps patients who have been urgently referred with suspected cancer to prepare for their appointments and tests. Includes English-language version.

Cover image of 'This free NHS test kit could save your life'

This free NHS test kit could save your life (July 2020)

Bowel Screening Wales

This leaflet describes the benefits of the bowel screening test kit, what the kit looks for, and what happens if blood is found in your sample. It also has information on how to reduce your risk of bowel cancer and the symptoms to look out for.

Cover image of 'Your urgent referral explained'

Your urgent referral explained (May 2020)

Cancer Research UK

This leaflet helps patients who have been urgently referred with suspected cancer to prepare for their appointments and tests. 

Cover image of 'This free NHS test kit could save your life [Welsh]'

This free NHS test kit could save your life [Welsh] (July 2020)

Bowel Screening Wales

This leaflet describes the benefits of the bowel screening test kit, what the kit looks for, and what happens if blood is found in your sample. It also has information on how to reduce your risk of bowel cancer and the symptoms to look out for.

Cover image of 'Bowel screening. What happens next. An explanation of your test results and what happens next'

Bowel screening. What happens next. An explanation of your test results and what happens next (July 2020)

Bowel Screening Wales

This leaflet explains what happens if the bowel screening test shows that blood has been found in your sample. It explains what a colonoscopy is, and how to prepare for it.

Cover image of 'Bowel screening test kit instructions'

Bowel screening test kit instructions (July 2020)

Bowel Screening Wales

Instructions on how to use the bowel screening test kit.

Cover image of 'Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges'

Living with the long-term effects of cancer. Acknowledging trauma and other emotional challenges (2020)

Jessica Kingsley Publishers

Challenging a number of myths about living long term with or after cancer, this book offers new insights by delving into areas that are not usually spoken about. Written from a dual perspective- that of a psychologist who had breast cancer and who copes with the long-term effects of treatment - the book contests the assumption that the afflicted person will simply 'get better' or 'move through' to a better situation. Emotional and physical side-effects can worsen over time and people living beyond or with cancer often endure a mismatch between expectations and reality, because they have been told that life would be easier than it actually is. This can leave both those suffering longer term and those close to them confused and unprepared. Including testimonies with people who have had a cancer diagnosis and people in the medical profession, the book signposts ways that professionals may help and offers prompts for friends and relatives to have useful and open conversations with the person affected. It gives voice to many people who feel that their suffering is disputed and diminished by the prevailing narrative around recovery. Galgut includes discussion on relationships, work, trauma, fear of recurrence and the role of therapy. Giving an unflinchingly honest perspective, Living with the Long-Term Effects of Cancer sheds light on these struggles, in the belief that bringing this conversation to the forefront is key to improving life for those who are affected by cancer and who suffer longer term from its effects. (Pub;lisher)

Cover image of 'Clinical diagnosis'

Clinical diagnosis (November 2019)

Orchid – Fighting Male Cancer

This leaflet has information about how testicular cancer is diagnosed and treated, including prosthesis and possible complications, and care after surgery. It also describes staging and the different types of testicular cancer.

Cover image of 'The PSA test'

The PSA test (April 2019)

PCaSO Prostate Cancer Support Network

This leaflet describes the PSA test and what it involves, and the advantages and disadvantages of having the test.

Cover image of 'Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer'

Supporting your grandchild and family. An information guide for grandparents of a child or young person diagnosed with cancer (April 2019)

Children's Cancer and Leukaemia Group

Being told your grandchild has cancer comes as a terrible shock. Most grandparents worry not only about their grandchild, but also about how their own son/daughter will cope. Many are also concerned about the effects a cancer diagnosis will have on other children within the family, how they can support their family and how, as grandparents, they themselves will cope. Sometimes, it is not as easy for grandparents to access information first hand and this can lead to feelings of isolation. This guide answers some of the many questions grandparents might have during diagnosis and treatment.

Cover image of 'Newly diagnosed pack'

Newly diagnosed pack (2019)

Pancreatic Cancer UK

The newly diagnosed pack is for people recently diagnosed with pancreatic cancer. It contains the following publications: An overview of diagnosis and treatment, Diet and pancreatic cancer, Chemotherapy for pancreatic cancer, We're here for you leaflet and our Patient Charter. Depending on your situation we will also include: Surgery for operable pancreatic cancer, Stents and bypass surgery or Caring for someone with pancreatic cancer. 

Cover image of 'Understanding breast cancer in women [Audio CD]'

Understanding breast cancer in women [Audio CD] (January 2019)

Macmillan Cancer Support

Audio CD of the booklet, which describes the causes, symptoms, diagnosis, stages, and treatment of breast cancer including surgery, radiotherapy, chemotherapy and hormonal therapy. It also discusses issues such as fertility, hormone replacement therapy, and feelings. Includes details of useful organisations and other resources such as books and websites.

Cover image of 'Travelling, going on holiday and lung cancer'

Travelling, going on holiday and lung cancer (March 2019)

Roy Castle Lung Cancer Foundation

Most people look forward to a holiday. This booklet covers everything you will want to know, from medication advice to destinations. 

Cover image of 'Adrenocortical carcinoma - AAC. Patient information for adult patients'

Adrenocortical carcinoma - AAC. Patient information for adult patients (October 2019)

Adrenocortical Cancer Support and Information

Guidance for people with adrenocortical carcinoma (AAC). Describes what AAC is, its symptoms, diagnosis, and treatment options.

Cover image of 'Skin lymphoma'

Skin lymphoma (April 2019)

Lymphoma Action

Skin lymphoma (cutaneous lymphoma) is a rare condition that can be hard to diagnose. This factsheet may be helpful if you are worried you could have skin lymphoma or if your doctor suspects that you may have it. It covers: What is skin lymphoma?; Who gets it?; What does it look like?; Diagnosis; After diagnosis; If it isn’t skin lymphoma.

Cover image of 'Bowel cancer'

Bowel cancer (2019)

Guts UK

Information about bowel cancer, including causes, symptoms, diagnosis, treatment options, and secondary bowel cancer.

Cover image of 'When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer'

When your brother or sister has cancer. An information guide for teenagers and young adults whose sibling is diagnosed with cancer (November 2019)

Children's Cancer and Leukaemia Group

Being told that your brother or sister has cancer can be overwhelming and you may be full of questions. It is a difficult time for everyone in your family as life is turned upside down almost overnight. You will likely feel many different emotions as you try and come to terms with what your sibling’s diagnosis means for you and your family. You may feel worried or upset at this sudden change that you didn’t want or ask for, and you may desperately want everything to go back to normal as it was before their diagnosis. Life can seem very unfair. These feelings are completely normal and you are not alone. This guide covers how your brother or sister’s diagnosis might affect you, your feelings and emotions, and how it is important to take care of yourself during this difficult time. It explains more about cancer, and what you can expect over the coming weeks and months.

Cover image of 'Supporting your pupil after a cancer diagnosis. An information guide for teachers helping children and young
people returning to school after a diagnosis of cancer'

Supporting your pupil after a cancer diagnosis. An information guide for teachers helping children and young people returning to school after a diagnosis of cancer (December 2019)

Children's Cancer and Leukaemia Group

Getting back to school is vital for children with cancer. School helps them to feel ‘normal’ and reduces the isolation and loneliness which many children with cancer face. Teachers have a really important role to play in encouraging the child’s integration back into a school routine. But cancer is a scary word for many and it is completely normal for teachers and others working at the school to feel upset – not just for the awful situation facing the pupil and their family, but also for the impact on the rest of the class and school community. This guide aims to lessen some of the worries you may have by giving simple practical information and advice on a variety of issues faced by the child and their family, and some ideas on how to help them within a school setting.

Cover image of 'The bowel screening test. What you need to know'

The bowel screening test. What you need to know (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'The bowel screening test. What you need to know [Urdu]'

The bowel screening test. What you need to know [Urdu] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Myeloma. An introduction'

Myeloma. An introduction (February 2019)

Myeloma UK

This booklet provides a brief overview of myeloma, the causes, symptoms, diagnosis, and treatment and management.

Cover image of 'The bowel screening test. What you need to know [Polish]'

The bowel screening test. What you need to know [Polish] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Your smear test results [Arabic]'

Your smear test results [Arabic] (2019)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'The bowel screening test. What you need to know [Arabic]'

The bowel screening test. What you need to know [Arabic] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Solitary plasmcytoma'

Solitary plasmcytoma (February 2019)

Myeloma UK

This infosheet explains what a solitary plasmacytoma is, what causes it, what the signs and symptoms are, what diagnosis involves and how it is treated. 

Cover image of 'Diffuse large B-cell lymphoma (DLBCL)'

Diffuse large B-cell lymphoma (DLBCL) (July 2019)

Lymphoma Action

Diffuse large B-cell lymphoma (DLBCL) is a high-grade non-Hodgkin lymphoma. This factsheet describes what it is, who gets it, the symptoms, diagnosis and staging, the types of DLBCL, the outlook, treatment, follow-up, relapsed or refractory DLBCL, and research and targeted treatments

Cover image of 'Biopsy'

Biopsy (July 2019)

Lymphoma Action

This information sheet describes different types of biopsy and what to expect.

Cover image of 'Peripheral neuropathy'

Peripheral neuropathy (April 2019)

Lymphoma Action

Peripheral neuropathy may be a side-effect of chemotherapy. This factsheet describes peripheral neuropathy, the chemotherapy drugs that most commonly cause it, the symptoms and diagnosis, reducing the risk and managing the symptoms.

Cover image of 'Going back to work'

Going back to work (March 2019)

Ovacome

This briefing looks at the experience of returning to work after an ovarian cancer diagnosis and treatment, the importance of talking to your employer as soon as possible, your rights under the law and what to expect from your employer. 

Cover image of 'Lobular neoplasia'

Lobular neoplasia (February 2019)

Breast Cancer Care

This leaflet discusses lobular neoplasia, which includes atypical lobular hyperplasia (ALH) and lobular carcinoma in situ (LCIS). It describes the features, diagnosis, and treatment options, and concludes with guidance on how to cope with a diagnosis of lobular neoplasia and sources of support.

Cover image of 'Your smear test results'

Your smear test results (2019)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Make time for breast screening [Romanian]'

Make time for breast screening [Romanian] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'The bowel screening test. What you need to know [Large print]'

The bowel screening test. What you need to know [Large print] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Make time for breast screening [Pashto]'

Make time for breast screening [Pashto] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Skin (cutaneous) B-cell lymphoma'

Skin (cutaneous) B-cell lymphoma (April 2019)

Lymphoma Action

Skin (cutaneous) lymphomas are non-Hodgkin lymphomas that start in the skin. This factsheeet is about a rare type of skin lymphoma called B-cell skin lymphoma (also known as cutaneous B-cell lymphoma or CBCL). It covers the folloiwing topics: What is B-cell skin lymphoma?; Who gets it?; Symptoms; Diagnosis and staging; Types of B-cell skin lymphoma; Low-grade B-cell skin lymphoma; High-grade B-cell skin lymphoma; Outlook; Follow-up; Research and clinical trials.

Cover image of 'Communicating with the people around you'

Communicating with the people around you (July 2019)

Lymphoma Action

Lymphoma can put pressure on your relationships. This factsheet is for anyone affected by lymphoma, including family and friends of someone with a diagnosis. It offers tips to help you communicate well with the people around you.  

Cover image of 'Classical Hodgkin lymphoma'

Classical Hodgkin lymphoma (April 2019)

Lymphoma Action

This factsheet is about classical Hodgkin lymphoma. It describes what it is, the causes, symptoms, diagnosis and staging, outlook, treatment, follow-up, relapsed and refractory classical Hodgkin lymphoma, and research.

Cover image of 'Make time for breast screening [Albanian]'

Make time for breast screening [Albanian] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Lymphoplasmacytic lymphoma and Waldenström’s macroglobulinaemia'

Lymphoplasmacytic lymphoma and Waldenström’s macroglobulinaemia (August 2019)

Lymphoma Action

Lymphoplasmacytic lymphoma (LPL) is a rare type of non-Hodgkin lymphoma. Waldenström’s macroglobulinaemia (WM) is the most common type of LPL. This page covers the following topics: What are lymphoplasmacytic lymphoma and Waldenström’s macroglobulinaemia?; Who might get Waldenström’s macroglobulinaemia?; Symptoms; Diagnosis; Treatment; Outlook; Relapse; Follow-up; Research and clinical trials.

Cover image of 'A smear test could save your life. Don't ignore your invitation [Farsi]'

A smear test could save your life. Don't ignore your invitation [Farsi] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

Cover image of 'Make time for breast screening [Farsi]'

Make time for breast screening [Farsi] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'The emotional impact of living with lymphoma'

The emotional impact of living with lymphoma (August 2019)

Lymphoma Action

Adjusting to life with, and after, lymphoma can have a significant impact on emotional wellbeing. Each person has their own, unique experience of lymphoma. This factsheet covers the following area: Feelings after a lymphoma diagnosis; Coping with waiting; The impact of having treatment for lymphoma; Your feelings after finishing treatment for lymphoma; Depression; Coping with difficult feelings; Counselling; Life after treatment: finding your ‘new normal’; Other sources of support.

Cover image of 'The bowel screening test. What you need to know [Chinese, Traditional]'

The bowel screening test. What you need to know [Chinese, Traditional] (November 2019)

NHS Health Scotland

This leaflet explains the benefits of the bowel screening test, how the test is done, and the signs and symptoms of bowel cancer, and has tips on how to reduce the risk of bowel cancer.

Cover image of 'Make time for breast screening [Slovakian]'

Make time for breast screening [Slovakian] (2019)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'How to get a second opinion'

How to get a second opinion (January 2019)

Brainstrust

This factsheet describes the pros and cons of a second opinion, clarifies the options, and explains how to seek another opinion.

Cover image of 'A smear test could save your life. Don't ignore your invitation [Tigrinya]'

A smear test could save your life. Don't ignore your invitation [Tigrinya] (2019)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active, are lesbian/bisexual, menopausal, or pregnant. 

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