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The web Directory of Information Materials for People Affected by Cancer is regularly updated and currently has details of over 1,900 booklets, leaflets, books and audiovisual materials for people affected by cancer. Most have been published in the last five years but we have included some older ones that are still useful.

Results: 506

Cover image of 'If you are diagnosed with cancer – a quick guide [Polish]'

If you are diagnosed with cancer – a quick guide [Polish] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Tests for ovarian cancer'

Tests for ovarian cancer (June 2018)

Ovacome

This factsheet describes the tests that may be used to diagnose ovarian cancer: CA125; ultraound scan; CT scan; laparotomy.

Cover image of 'If you are diagnosed with cancer – a quick guide [Punjabi]'

If you are diagnosed with cancer – a quick guide [Punjabi] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version. 

Cover image of 'Ductal carcinoma in situ (DCIS)'

Ductal carcinoma in situ (DCIS) (March 2018)

Breast Cancer Care

This booklet describes ductal carcinoma in situ (DCIS), the symptoms, how a diagnosis is made, the different types of DCIS, and the treatment options. It also has a short section on coping with breast cancer.

Cover image of 'If you are diagnosed with cancer – a quick guide [Welsh]'

If you are diagnosed with cancer – a quick guide [Welsh] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'If you are diagnosed with cancer – a quick guide [Romanian]'

If you are diagnosed with cancer – a quick guide [Romanian] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Your smear test results [Easy read]'

Your smear test results [Easy read] (2018)

NHS Health Scotland

Easy read information for women about what happens after their cervical screening test, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'How is pancreatic cancer diagnosed?'

How is pancreatic cancer diagnosed? (August 2018)

Pancreatic Cancer UK

This factsheet is for anyone having tests for pancreatic cancer. Family members may also find it helpful. It explains the different tests that you might have, what they involve, and what your test results mean. There is also information about the support available. 

Cover image of 'If you are diagnosed with cancer – a quick guide [Chinese, Traditional]'

If you are diagnosed with cancer – a quick guide [Chinese, Traditional] (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support. Includes the English-language version.

Cover image of 'Your smear test results [Polish]'

Your smear test results [Polish] (2018)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Your smear test results [Urdu]'

Your smear test results [Urdu] (2018)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Primary peritoneal cancer'

Primary peritoneal cancer (December 2018)

Ovacome

This factsheet has information on primary peritoneal cancer, a rare variant of ovarian cancer. It describes what primary peritoneal cancer is, the signs and symptoms, diagnosis, treatment - surgery and chemotherapy - and follow-up care.

Cover image of 'Ultrasound scan'

Ultrasound scan (April 2018)

Lymphoma Action

This factsheet describes the use of ultrasound scans in the diagnosis of lymphoma. It explains why the test is used and describes what happens during the scan.

Cover image of 'Invasive ductal breast cancer'

Invasive ductal breast cancer (November 2018)

Breast Cancer Care

This leaflet discusses the main aspects of invasive ductal breast cancer. It describes what it is, the symptoms, how a diagnosis is made, the treatment options and coping with the diagnosis.

Cover image of 'Nodular lymphocyte-predominant Hodgkin lymphoma'

Nodular lymphocyte-predominant Hodgkin lymphoma (June 2018)

Lymphoma Action

Nodular lymphocyte-predominant Hodgkin lymphoma (NLPHL) is an uncommon type of Hodgkin lymphoma. This factsheet covers: What is NLPHL?; Who gets NLPHL and why?; Symptoms; Diagnosis and staging; Outlook; Treatment; Relapse; Transformation; Research.

Cover image of 'Screening for ovarian cancer'

Screening for ovarian cancer (May 2018)

Ovacome

This factsheet describes the tests that could be carried out to screen for ovarian cancer (internal examination; CA125 blood test; and ultrasound), their effectiveness, the problems of screening for ovarian cancer, and the results of recent studies. It also provides broad guidelines for women at low and high risk of developing ovarian cancer.

Cover image of 'Barrett's oesophagus'

Barrett's oesophagus (2018)

Guts UK

This leaflet describes Barrett's oesophagus, how it is caused, the symptoms, diagnosis and treatment.

Cover image of 'Scans: X-ray, CT, PET and MRI'

Scans: X-ray, CT, PET and MRI (November 2018)

Lymphoma Action

Overview of scans (X-rays, Computed tomography (CT), Positron-emission tomography (PET), Magnetic resonance imaging (MRI)), including what happens before, during and after each procedure.

Cover image of 'Tom has lymphoma'

Tom has lymphoma (November 2018)

CLIC Sargent|Lymphoma Action

Tom is ten years old when he is diagnosed with lymphoma. This illustrated, colour storybook for parents to read with their children describes what happens when he has to go to the hospital for tests and treatment. The story follows Tom from when he first feels ill, through diagnosis and treatment, to recovery and return to normal life.

Cover image of 'If you are diagnosed with cancer – a quick guide'

If you are diagnosed with cancer – a quick guide (December 2018)

Macmillan Cancer Support

This information is about what to expect when you find out you have cancer and where to get help and support.  

Cover image of 'How prostate cancer is diagnosed [large print]'

How prostate cancer is diagnosed [large print] (October 2018)

Prostate Cancer UK

This factsheet describes the tests used to diagnose prostate cancer and explains what the results might show. The tests include the PSA test, digital rectal examination, TRUS (trans-rectal ultra sound) guided biopsy, CT scan, MRI scan and a bone scan. It also explains the staging and grading of prostate cancer.

Cover image of 'Being referred for tests and scans'

Being referred for tests and scans (April 2018)

Lymphoma Action

This factsheet briefly covers the tests the GP can do, how long will does it take to get a hospital appointment, and being referred to a local hospital.

Cover image of 'Explaining the NICE guidelines for diagnosing and managing pancreatic cancer'

Explaining the NICE guidelines for diagnosing and managing pancreatic cancer (August 2018)

Pancreatic Cancer UK

The National Institute for Health and Care Excellence (NICE) has produced guidelines for health professionals diagnosing and caring for people with pancreatic cancer. These guidelines are for the most common type of pancreatic cancer, pancreatic ductal adenocarcinoma. Health professionals don’t have to follow these guidelines, but they must take them into account when making decisions about care. They should also take your needs and wishes into account.

Cover image of 'Head Smart. Early diagnosis of brain tumours'

Head Smart. Early diagnosis of brain tumours (2018)

The Brain Tumour Charity

Leaflet with information about the common symptoms of brain tumours in children and young people and what to do if a child is experiencing any of the symptoms. It also has information about the Headsmart campaign and details of further support.

Cover image of 'Lumbar puncture'

Lumbar puncture (April 2018)

Lymphoma Action

This factsheet describes what a lumbar puncture is, how it is done and why it might be needed.

Cover image of 'The stages of ovarian cancer'

The stages of ovarian cancer (May 2018)

Ovacome

This factsheet describes the four stages of ovarian cancer. Includes a glossary. (There are separate factsheets with more information about each stage.)

Cover image of 'Hairy cell leukaemia (HCL)'

Hairy cell leukaemia (HCL) (April 2018)

Lymphoma Action

This factsheet about hairy cell leukaemia covers: What is hairy cell leukaemia?; Who gets hairy cell leukaemia and what causes it?; Symptoms; Diagnosis and staging; Outlook; Treatment; Follow-up; Relapse; Research and targeted treatments; Hairy cell leukaemia (HCL) variant.

Cover image of 'Self-management and remote monitoring'

Self-management and remote monitoring (October 2018)

Lymphoma Action

More and more people are living longer after a diagnosis of lymphoma. This has prompted some hospitals to change the way they organise long-term management and follow-up for people who have finished treatment. This factsheet explains how self-management support and remote monitoring may be used for people who have finished treatment. It covers: Self-management; Self-management support; Remote monitoring; When to book an appointment; Life on self-management and remote monitoring.

Cover image of 'Tubular breast cancer'

Tubular breast cancer (January 2018)

Breast Cancer Care

This booklet describes tubular breast cancer, diagnosis, treatment options and coping with the condition.

Cover image of 'Your smear test results [Chinese, Traditional]'

Your smear test results [Chinese, Traditional] (2018)

NHS Health Scotland

Information for women about their cervical screening test results, including: the letters that may be received; what happens at the colposcopy clinic; treatment; what causes changes in the cervix.

Cover image of 'Screening for pancreatic cancer'

Screening for pancreatic cancer (September 2018)

Pancreatic Cancer UK

This factsheet is for anyone who would like to find out more about screening for pancreatic cancer. It explains what cancer screening is, why there is no screening of the general population for pancreatic cancer, and how people at higher risk of pancreatic cancer may be able to have screening.

Cover image of 'Make time for breast screening [Polish]'

Make time for breast screening [Polish] (2018)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Waiting for test results'

Waiting for test results (April 2018)

Lymphoma Action

It can be difficult waiting for test results. This factsheet considers topics such as: How long will I need to wait; Why do I need to wait; Coping with waiting.

Cover image of 'Make time for breast screening [Arabic]'

Make time for breast screening [Arabic] (2018)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Mantle cell lymphoma'

Mantle cell lymphoma (April 2018)

Lymphoma Action

This factsheet is about mantle cell lymphoma, an uncommon type of lymphoma that usually behaves like a high-grade (fast-growing) lymphoma. Contents: Quick overview; What is mantle cell lymphoma?;  Who gets mantle cell lymphoma and why?;  Symptoms; Diagnosis and staging; Outlook; Treatment; Relapsed and refractory mantle cell lymphoma.

Cover image of 'Having a smear test [Easy read]'

Having a smear test [Easy read] (2018)

NHS Health Scotland

This leaflet explains what a cervical screening test is, what causes changes in the cervix, and describes how to make an appointment, what happens during the test and if changes are detected. It addresses the concerns of women who may not have been sexually active. 

Cover image of 'Paget's disease of the breast'

Paget's disease of the breast (August 2018)

Breast Cancer Care

This leaflet discusses the main aspects of Paget's disease of the breast, including what it is, the signs and symptoms, how a diagnosis is made, and the treatment options.

Cover image of 'Bone marrow biopsy'

Bone marrow biopsy (April 2018)

Lymphoma Action

This factsheet describes why a bone marrow test might be carried out and what happens before, during and after the test.

Cover image of 'CNS lymphoma'

CNS lymphoma (April 2018)

Lymphoma Action

Lymphoma can sometimes affect the central nervous system (the brain, spinal cord and eyes). This factsheet describes what it is, the differnt types, who gets CNS lymphoma and the causes, the symptoms, diagnosis, and staging, outlook, treatment, relapsed and refractory CNS lymphoma, and living with and after CNS lymphoma.

Cover image of 'Early menopause'

Early menopause (April 2018)

Lymphoma Action

Early menopause is a side effect that can affect some women who have been treated for lymphoma. This factsheet answers some of the questions that women may have, including: what early menopause is; lymphoma and early menopause; likelihood of early menopause; smptoms; long-term effects; diagnosis; treatment; what women can do to help themselves; FAQs.

Cover image of 'Testicular cancer. What you need to know'

Testicular cancer. What you need to know (April 2018)

Orchid – Fighting Male Cancer

This booklet aims to increase men's awareness about testicular health in general as well as provide support for men who have been diagnosed and are being treated for testicular cancer.

Cover image of 'Complementary therapies, relaxation and wellbeing'

Complementary therapies, relaxation and wellbeing (February 2018)

Breast Cancer Care

This booklet is about relaxation and wellbeing during and after breast cancer treatment. It looks at complementary therapies such as acupuncture, Reiki and massage. It also describes some popular relaxation techniques, including meditation and mindfulness, and has information on yoga, Thai Chi and Chi Gung. It discusses why people might use these complementary therapies and relaxation techniques after a diagnosis of breast cancer, and what they may need to think about before trying them. It also explains what herbal medicines and homeopathy are. 

Cover image of 'Burkitt lymphoma'

Burkitt lymphoma (April 2018)

Lymphoma Action

Burkitt lymphoma is a very fast-growing type of high-grade non-Hodgkin lymphoma (NHL). This factsheet is mainly about the sporadic form, which is the most common form of Burkitt lymphoma in the UK. It has a quick overview of Burkitt lymphoma and describes what it is, the causes, symptoms, diagnosis, staging, treatment, follow-up, and relapsed or refractory Burkitt lymphoma.

Cover image of 'Practical advice for young people with lymphoma'

Practical advice for young people with lymphoma (November 2018)

Lymphoma Action

Practical advice on issues that often concern teenagers and young adults (up to 24 years old) with lymphoma. It covers: After diagnosis; Where you will be treated; Your medical team; Looking after yourself; School, university and work; Relationships; After treatment.

Cover image of 'Breast screening. 10 minutes could save your life [Easy read]'

Breast screening. 10 minutes could save your life [Easy read] (2018)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Breast screening. An easy guide for women aged 50 and over'

Breast screening. An easy guide for women aged 50 and over (February 2018)

Public Health England

This illustrated leaflet is aimed at women with a learning difficulty. It explains the importance of breast screening and what will happen before, during, and after the screen.

Cover image of '10 ways to protect yourself against cancer'

10 ways to protect yourself against cancer (2018)

World Cancer Research Fund

A comprehensive guide to the World Cancer Research Fund's Cancer Prevention Recommendations, packed with tips on simple changes you can make to your diet and lifestyle that will help reduce your risk of cancer. 

Cover image of 'Secondary breast cancer information pack'

Secondary breast cancer information pack (April 2018)

Breast Cancer Care

This pack is for anyone with secondary breast cancer. It may also be useful for family, friends, or carers. It contains information that may be useful from diagnosis throughout treatment and care. The pack has four main parts. 1. The first part of the pack explains what secondary breast cancer is, looks at treatments and side effects, and has information about monitoring and coping with the physical effects of your condition. 2. The second part is called Your needs and concerns with secondary breast cancer. This looks at how to make sure your needs are met, from emotional and practical needs to concerns about relationships, work and finances, and health and wellbeing. 3. Personal organiser to help you record symptoms or side effects from treatment, which you can take with you to hospital appointments. You can also record appointment details and names and contact details of people involved in your care. 4. A small booklet called Planning ahead: choices and decisions about the end of life is for if and when you want to start thinking about these things. 

Cover image of 'Make time for breast screening [Chinese, Traditional]'

Make time for breast screening [Chinese, Traditional] (2018)

NHS Health Scotland

This leaflet explains what breast screening is, who is offered screening, the benefits and disadvantages of screening, what happens before, during, and after screening, and what it means to be called back. Includes breast awareness advice. Concludes with answers to questions that women may ask.

Cover image of 'Talking with your children about breast cancer'

Talking with your children about breast cancer (June 2018)

Breast Cancer Care

This booklet explains what children of different ages can understand about a serious illness such as cancer and how they may respond to the news that someone in the family has breast cancer. Individual parents describe their experiences and the booklet has advice on what, when and how to tell children about the diagnosis.

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